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Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 11/23/2011 7:49 AM (GMT -6)   
How is everyone doing? Tell us what you have been doing, how you are feeling and what's new with you. Tell us what's good and/or bad. We all care!!
There are many members we have not heard from in a while--to name a few--
Educ8athome, Monty's Mom, CRPS, Heather Lynn, Loretta, Flower123, Sore, Petey, AuntKay...... come out come out wherever you are!! LOL

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 11/23/2011 4:59 PM (GMT -6)   
Suzane, You are a bright spot of happiness for me today.
Thank you for calling me out. I haven't been doing well and just feel being down and dreary is not what I want to post on the forum. I have been checking and lurking. I admit it! Guilty devil

Since the surgery I have nerve pain when I sit, and numb feet when I stand. I am four weeks out, and had so many hopes that this surgery would make the pain decrease instead of increase. The disappointment feelings now are lingering along with the longer healing time. I also have to finish my online transcription school by the end of the year or re-enroll for $5000. smhair Who has that kind of money for an additional year of school?

My sons are having bullying issues with a boy who used to be their friend, and his mother used to be friends with me as well. Now, she encourages his bullying the boys and even tells me that they deserve being hit for everything they do, calling them disrespectful to her and her son, idiots, and retarded. That last word gets me mad. I had to call the police. Add the insurance issues still happening and having no insurance as of the 30th of this month, and I am just feeling like a number that just takes away from the bottom line profits of this country and unimportant. The school isn't helping my kids or punishing the bully, but they will punish my sons if they defend themselves. Our family advice was be polite, not rude, but if he hits you, hit him back and make it count. Not a great place to be as a parent....unable to help, unable to protect them, and stuck with teaching them to punch because the school turns a blind eye, and our media isn't interested at the moment.

sorry to be such a downer cry See why I haven't posted?

I did learn that in the midst of the worst pain I have ever had, which has not let up, God provided for the new roof we need badly, and to pay for my medications for a short time without insurance. I had been hoping we could use the money to move, but instead it will be wasted on my medical needs instead of going to the family. Hopefully the private disability insurance appeal will be approved and things will continue to look up financially.
Thank you Suzane, for calling us personally. You are a wonderful member of this forum!

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 11/23/2011 5:57 PM (GMT -6)   
I'm sorry your sons are being bullied. Surely the school has an obligation to stop all forms of bullying and that they should have a comprehensive anti bullying procedure in place. Ask them for a copy of this and write a letter to the school head explaining what has been happening and that you expect the school to protect your sons and that all forms of bullying are not to be tolerated. If necessary contact the school governors as well. Not sure how in works in US, but can yyou not contact the local education authority as well and ask then what their anti bullying procedures are, as would have thought all schools in their area would have to abide by that as well.

Hope things setttle down for you all.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 11/23/2011 6:28 PM (GMT -6)   
Ah Mindy, I'm sorry you're going through such a bad patch, and for your sons to be being bullied as well is just horrible.

Suzane, thank you as Mindy said for calling us out. I have been reading, but afraid of being a downer too - my body is throwing out anything and everything it's got to cause me trouble at the moment. I'm still getting very severe radicular pain but we're not sure what's going on. The pain in my ribs/chest is understandable - I've got fractures from T4-T8 and T10-T12. I had CT scans (can't have MRI because of my SCS) and they didn't show anything other than that my fractures aren't really healing. Only thing is, the lowest fracture is at T12 and the new nerve pain in my legs seems to be sciatic in distribution.

My CRPS is out of control too - I've put on 8kg in two weeks with the oedema. I use forearm crutches when I'm not using my chair, and my right arm is so swollen it won't fit in my crutch shocked

Seeing my PM tomorrow, and also an oral surgeon because I'm meant to be having my wisdom teeth out next week as well :(

*gentle hugs* to all, and hope you're all keeping as well as you can be.

CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 11/24/2011 6:10 AM (GMT -6)   
Thank you Suzane. It means so much that you asked about me. I've been depressed for the last week almost. I've been reading a little and a couple of days I didn't read at all. I thought everyone had forgotten me.

I don't know why I got depressed all of a sudden unless it was my body or mind telling me the holidays are coming up. The holidays are hard on me since I lost our babies. I'm looking forward to them in one way and not in another. I don't know if that makes sense or not.

I just wish the depression would let up. I'm on Cymbalta, but it doesn't seem to be working and I've been on it for a few years now.

I also wish for something that's not going to happen. That's to have my babies back. The pain is so raw during the holidays. cry

Well, I'll go for now. I hope you and everyone else have a good Thanksgiving. I haven't been able to go to sleep last night. I have meds for sleep, but it's not working tonight.

Take care.

love and hugs
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 11/24/2011 7:30 AM (GMT -6)   
Hello to all of you that we have been missing. It's so good to see a post from you guys!

I have been MIA for a while and I pop in and out, so I didn't catch everything about everybody. I'm very sorry that you are all having such a rough time of it now.

I will have you all in my prayers over the holidays.
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, Pre-glaucomic, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet & much more.....

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 11/28/2011 4:19 PM (GMT -6)   
I have missed you Laura, Loretta and RetiredMom! Its good to see you ladies!

Life is overwhelming at times. Life with CP is a roller coaster.
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI pain, arthritis, kidney stones, depression, 10 pelvic surgeries for pain, ovarian cysts, adhesions, endometriosis, adenomyosis, and possible ovarian remnant syndrome. Unexpectedly growing ovary #3 on right side.

Regular Member

Date Joined Jul 2009
Total Posts : 278
   Posted 11/28/2011 4:23 PM (GMT -6)   
Snobrdgrl321/Donna here.... Just posted some questions in another post... Still in same situation and it sucks.
Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 11/28/2011 5:50 PM (GMT -6)   
Thank you MontysMom. I have missed being here.

Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Regular Member

Date Joined Jan 2011
Total Posts : 374
   Posted 11/28/2011 6:46 PM (GMT -6)   
Sorry you've been having so much going on lately, MontysMom! The bullying is really bad, and I really hope something is done about that. It's never ok to have people badgering your kids like that! And you're not a big downer, I'm glad you posted and hope you post updates soon even if its just to vent. :P

I've been feeling sorta icky lately. My pain levels are the same, and I wish I had other medication or something. My sleeping is strange too, so I feel tired all day. Still, it could be worse. lol!
--Patrick, aka Misterkatamari

I'm active on several boards. Main issues are: Chronic Pain due to Scoliosis & 2 Herniated Discs, possible DDD and arthritic facet joints. Also active in the Depression/Anxiety boards. Meds include: Prozac 40mg, Xanax .5 mg, Tramadol 50mg

“We must let go of the life we have planned, so as to accept the one that is waiting for us.” - Joseph Campbell

Veteran Member

Date Joined Sep 2006
Total Posts : 2861
   Posted 11/28/2011 9:01 PM (GMT -6)   
Remember, you can always come here and vent...we don't have to be all sunshiney here-we can be real here...most of us downplay with our friends and fsamily cause they don't really get it...so don't ever not post because times are bad. THAT is exactly the time to post

Everyone go easy over the holidays, I'm cutting way back to immediate family and lots of nights looking at our beautiful tree and listening to Christmas music...remember the reason for the season!!!

Take care
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

cymbalta seroquel hydrocodone klonopin magnesium potassium

Veteran Member

Date Joined Nov 2011
Total Posts : 615
   Posted 11/28/2011 9:49 PM (GMT -6)   
Maggie....I love your idea of the holidays, remember the reason for the season. Thanks for sharing and giving me a new motto to pass on.

Have a great Holiday season enjoying nice music and family.

Take care, Amy

Chronic pain(nerve), fibro and mild depression

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 11/28/2011 10:03 PM (GMT -6)   
Thank you everyone for reminding me that when I am at my worst I am not alone.

Donna! I am so happy to see you too! Sorry I missed your name the first time around. My memory stinks!

I have scaled back Christmas and all holidays. We cut down the traveling to one holiday for a shorter visit. The cookies I want to make are the slice and bake kind, just wish I could sit in the chair long enough to decorate and not move the party to our living room. We don't even do the shopping we used to, just get what we can online and the rest my hubby buys. We don't have the money to overdo anything, and weren't the type of people to do that before money was tight.

I am so grateful for my friends here. You lift me up in so many ways!

Maggie, you are right to remind us not to forget the reason for the season! Bless you!

Misterkatamari, it does make things harder when I feel icky. Trouble sleeping just makes it all tougher to cope with too. I am on the insomnia train right now,....happens every night. Try to be good to yourself and keep to a routine if you can.

Amy, Have a great holiday season too!

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 11/29/2011 4:06 AM (GMT -6)   
I'm sorry we all have stuff going on... but it was good to hear from you Suzane, Mindy, Laura, Donna, Amy, Patrick, Maggie, Loretta, Stripey, RetiredMom....

I miss you all and think of you often :)


Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 11/29/2011 9:21 AM (GMT -6)   
Mindy/Monty's Mom,
Write letter to the principal to the School Board, to everyone you can think of this bullying has
got to stop, and if you write them then they will know and they can't ignor a letter
which is what you just need to take the time to do it's important...many well wishes on
We had our furnac checked last week and it needs to be replaced as it has rusted,
but who's got an extra 2,000 around...especially this time of year, so it's cold
in Texas right now and we have no heat...I have a dental
and pcp check today and I get my saline infusion on Thursday and I'm over do
to see my endocrinologists, but my periods are off...so having problems there...
and I'm kinda in a rut....
Well wishes to everyone...fingers are cold....signing off for now...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 11/29/2011 10:27 AM (GMT -6)   

Thanks for checking on us all. I've been trying to check on the boards to offer my support to people, but I sometimes find them a bit overwhelming, especially when lots of new members join and I feel like I can't keep track of people anymore!

Everything's kind of the same for me. Right now the combination of the back pain and the hip bursitis is just killing me. We were in DC for the holiday and went to museums on Friday. We walked about a total of a mile and by the end I could barely walk, was limping and in so much pain from both my left hip and my back. Saturday we went to the National Archives, but had to park far away, and I just broke down in tears because I didn't feel like I could walk that far. It was awful, I feel like I am becoming more and more disabled.

I had a good talk with my physical therapist yesterday though. She thinks that my troubles are all caused by muscle weakness secondary to the original back pain. She also thinks it is going to take a few more months before I have developed enough strength to be able to walk farther and be more active. So the plan for now is to work hard on strengthening and limit prolonged walking until I am stronger.

Glad to hear updates from everyone, but sorry so many are struggling. I'm glad we are all here to support each other - we can get through this.

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 11/29/2011 11:01 AM (GMT -6)   
It's so nice to hear from everyone, even if we are not doing well. That is why we have this forum, to support each other in good times and bad.
Myself, my pain is so bad. I wish I could just catch a little break on these headaches.
That being said, I went to the Santa parade with my grandkids Sat. evening and we decorated the tree on Sunday. Those two things brought a shining light into my heart.
Hope you all have a good day.

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 12/7/2011 11:16 AM (GMT -6)   
How is everyone doing this week? Are you doing any preparations for Christmas yet? Will you be travelling over the holidays? How have you been feeling?

Hope to hear from many of you. It's time to catch up!

Myself, I just got back from a weeks visit with my mom. Nothing better than a good visit with your mom to lift your spirits and make you feel better.
No change in the pain, it's always bad.
Christmas tree is up and hubby just put up the lights outside. Looks so nice.
Have most of the gifts bought. Need to do some wrapping now.
We'll have a turkey dinner on the special day but I am so lucky that hubby does the whole feast. Pies and all.

Hope you can all have a nice day.


Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 12/7/2011 10:08 PM (GMT -6)   
I'm doing okay. Pain is improved over Thanksgiving, but my pain very much comes and goes. I am very grateful to have a reprieve.

Had another talk with the PT today. She said she's not sure what the whole picture is with me - that the hip pain is probably a combination of muscle weakness, fibro, and referred pain from my back. She also said that we'll work out a home workout program when I'm done with her (my insurance only pays for 15 visits or two months) and that I should definitely do more PT when I have new insurance next year. I am stronger from this round of PT, but still pretty far from "baseline". I'm not sure I'll ever make it back to baseline.

I have a PM appointment tomorrow. I don't expect anything to change. I am still worried about rheumatic diseases but I know he is not, and I'm tired of looking like the crazy, overworried patient. Not sure if I'll even bring it up tomorrow.

We're moving at the end of January, so I will need to find all new doctors in our new city. I have asked a colleague for a recommendation for a PM (he's a PM and did his residency in our new city), and I know someone with fibro from the internet and will ask her for a PCP recommendation. I hope that when I get new doctors I will also be able to get a rheumatologist appointment to address some of my concerns.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 12/7/2011 10:18 PM (GMT -6)   
Suzane, your Christmas plans sound like just the right mix of festive and low key.

We have been so busy with the move that we haven't made much progress yet. This weekend we are repainting the window seat where our tree usually goes, then we will put the tree up. I really enjoy making handmade gifts, and I have started on several, but still have a lot to accomplish.

We are spending the actual holiday at my mom's house, it will be wonderful to see my family and mom usually has a huge beautiful tree. It will be our first Christmas at her house since my dad passed away, so I know it will be a bittersweet time, but we will be with the people we love.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma
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