Thoughts needed...again

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CRPSpatient
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Date Joined Mar 2011
Total Posts : 1276
   Posted 11/27/2011 12:48 AM (GMT -6)   
Hi everyone. I'm sorry I've not been around much lately - things haven't been so good for me for a few months now.

I'm going under the knife again so to speak this week... what would be the most minor of procedures for most people, but is horribly frightening for me :( Some of you know, I think, that I found out a few months ago I had osteoporosis. Because of ongoing pain, I had scans recently that have shown I've got (I believe) eight thoracic vertebrae fractured, and that they're not healing. Which means treatment for the osteo is of the utmost importance.

I've had trouble with my wisdom teeth for a long time now, and because of the potential risks with any surgery and CRPS, I've been putting off having them removed. WT pain isn't nice, but full-blown CRPS in my face/jaw would be the end of me, I think. Only trouble is that having oral/dental surgery while on osteoporosis treatment can in rare cases cause a nasty side effect called osteonecrosis of the jaw :( I've had very minor, spontaneous ONJ in the past, so the endo won't touch me with meds until I've had my teeth removed.

I saw an oral/maxillofacial surgeon on Friday. He was very good, very nice - he didn't know anything about CRPS, but listened carefully to everything I had to say and to everything my PM doctor had written to him. Three teeth he thinks he can get out without problem but he's concerned that there is a high risk of nerve bruising/temporary damage with removal of the fourth. If my jaw is osteoporotic as well, there is even a risk that he will accidentally break it getting the tooth out. This terrifies me. There's no real other option - it can't stay there, because it's too risky to remove it if it becomes a problem once I start treatment for the osteo, but goodness :( He and my PM have worked out some precautions, but all the healing thoughts you can muster would be greatly appreciated.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/27/2011 10:38 AM (GMT -6)   
just a thought that is kind of unrelated; because you have osteoporosis i believe you should take a calcium/vitamin D supplement. there have been unconcluded findings recently that taking Calcium may open your risk to cardiovascular problems. if calcium does not have magnesium, zinc, vitamin D, phosphorus, vitamin K, and even better vitamin K2 (Mk-7) to help it mineralize the bone it becomes systemic in your blood and may lead to risk. you can take K2 with calcium or find a complex that contains everything such a Ultra-Bone-Up from Jarrow products.

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 11/27/2011 11:41 AM (GMT -6)   
Really hope everything goes well. Please update us with the results whenever you feel up to it!
--Patrick, aka Misterkatamari

I'm active on several boards. Main issues are: Chronic Pain due to Scoliosis & 2 Herniated Discs, possible DDD and arthritic facet joints. Also active in the Depression/Anxiety boards. Meds include: Prozac 40mg, Xanax .5 mg, Tramadol 50mg

“We must let go of the life we have planned, so as to accept the one that is waiting for us.” - Joseph Campbell

momtofourangels
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Date Joined Apr 2010
Total Posts : 2261
   Posted 11/27/2011 1:31 PM (GMT -6)   
Hi Laura I will be praying for you and sending all the healing thoughts I can muster to you. You've been thru so much. I will be thinking about you this week.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 11/27/2011 4:08 PM (GMT -6)   
Oh my gosh Laura, I just wish it wasn't so tough for you. It just isn't fair is it!! I pray that all goes well for your WT surgery. What day again? You're in my thoughts and prayers.
 
Suzane

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 11/27/2011 7:32 PM (GMT -6)   
Laura...hope everything goes well for you and will keep you in my prayers....



Take care, Amy

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 11/28/2011 1:14 PM (GMT -6)   
Hi Laura. I hope your WT surgery goes well. It was almost like reliving the dentist telling me about possibly breaking my jaw to remove mine and that in itself was extremely frightening. Mine turned out fine btw and hopefully yours will as well. The only advise I can give is to listen to the instructions they give you when you get home, rest, rest, and don't try to rush the healing.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/29/2011 3:17 AM (GMT -6)   
Praying for you Laura.... I know your fear, I truly do. Hang in there and please keep us updated.

With love -- Tina
Pain Issues: DDD; fibromyalgia; migraines; carpal tunnel syndrome; tendonitis
Multiple Health Issues: Disabled due to POTS (heart condition); dysautonomia (dysfunction of the nervous system); hypothyroidism; adrenal insufficiency; chronic hypertension; chronic fatigue; sleep apnea; anemia; Vitamin D deficiency; etc etc
Meds: Too many to list....
Personal: Mom to 6 boys and twins girls

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/29/2011 3:31 AM (GMT -6)   
Laura,

I'm heading off to bed and I realized my last comment to you was made in haste. I really want you to know that I completely understand your fear and concern. I have 2 wisdom teeth that I HAVE to get out - and the fear is crippling me. For one thing, my health is not strong enough to have this done. The other thing - the last time I had a wisdom tooth extraction, I got meningitis. That would be the 3rd time I've had that. Trust me - if someone will get something - it will be ME (and it sounds like you, too).

Anyway, I really want you to know that i will hold you in my thoughts and prayers. Please keep us updated. We do care here, Laura. Not many days go by that one of us isn't asking "Have you heard from Laura?"... so please know you are loved.

Night....
I am a Christian mommy to 8 children - 6 wonderful boys and "surprise" identical twin girls. The kids are the love of my life, truly.
Health/Pain Issues - too many to list; feel free to ask
Medications - been on just about all of them; again, feel free to ask.... My faith and my children sustain me, even on my worst days - oh, and my friends here at HW :)

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 11/29/2011 5:49 AM (GMT -6)   
HI Laura
Just want to wish you all the best and will be praying for you that all goes better than expected. After having many surgeries myself I know how nerves and imagination can get the better of you. Sounds like you have 2 very good doctors in your corner and that's a huge plus. Try and stay relaxed because stress can cause it's own problems. I know easier said than done. I wish you all the best and please keep us updated on how things go. Take care.
Stingray(Randy)
Chronic Back Pain, Anxiety, A little Depression, Left foot problems...foot growing in length and big toe growing out sideways, Osteoporosis,11 surgeries total..right foot twice, right knee 3 times, right elbow, throat/neck, spinal fusion, left elbow, left knee, currently deciding on whether to have surgery on left foot.
Meds: Oxycodone, Oxycontin, Clonazapam
Birthday July 18th

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 11/29/2011 11:06 AM (GMT -6)   
Laura, I am thinking of you and praying for the best outcome. Your health situation is so complicated that even minor things become a big deal. Hopefully getting these teeth out will go well and you can get the osteoporosis treatment you need.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 11/30/2011 9:49 PM (GMT -6)   
Thanks so much everyone. I cant express what you all mean to me. I am home now. I've already got a face like a basketball and finding it hard to swallow just with the amount of swelling...not so good when that's meant to reach its worst in another 2-3 days. My lip is numb/burning, even though the rest of the local is well and truly wearing off, so I'm guessing his warning about a bit of nerve bruising was correct too.

However, I couldn't have asked for a better anesthetist. He understood enough about CRPS to have an immediate grasp of all my issues. Very concerned with making sure my pain was/is well controlled - to the point that he called me yesterday and we spoke on the phone for a good 30 mins to make sure he had a handle on things before today. I was impressed with the little things that made a big difference - he briefed all the theatre staff that nobody was to touch me, drape blankets on me or whatever, they used manual rather than auto BP. He knocked me out on the trolley using gas, so I didn't have the pain of transferring/being transferred, or having the IV put in because my arms are so bad right now.

My CRPS pain is actually down a little bit too... Had my usual meds this morning, a big whack of fentanyl, ketamine and steroids in surgery and have had endone since. Now I just hope it stays there and my face becomes more comfortable.

Gentle hugs to all.

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/7/2011 10:10 AM (GMT -6)   
How are you doing Laura?

Suzane

Betsey Ross
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Date Joined Mar 2011
Total Posts : 1056
   Posted 12/10/2011 6:13 AM (GMT -6)   
Laura
I am praying for you. It has been a tough road for you ...Take one day ata time.

Keep us updated when you feel like it.

Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/10/2011 11:25 AM (GMT -6)   
Gosh Laura, I missed this update on you. That was a blessing for you to have such an understanding anesthetist. That must have put your mind to rest a bit.
How are you doing now? I am hoping that dental surgery wise you are feeling a bit better.
 
Hugs for you,
Suzane

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 12/10/2011 2:51 PM (GMT -6)   
Hi Laura I hope you continue to do as well as possible and that your face gets more comfortable as possible as well. It's good to hear that the anesthesiologist worked with you and everything went well. Take care and keep us updated on how you're doing when you can.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/10/2011 5:09 PM (GMT -6)   
Hi Laura...I am glad you had understanding doc. makes things alot better. I will keep you in my prayers.



Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others
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