Posted 11/27/2011 1:48 AM (GMT -6)
Hi everyone. I'm sorry I've not been around much lately - things haven't been so good for me for a few months now.
I'm going under the knife again so to speak this week... what would be the most minor of procedures for most people, but is horribly frightening for me :( Some of you know, I think, that I found out a few months ago I had osteoporosis. Because of ongoing pain, I had scans recently that have shown I've got (I believe) eight thoracic vertebrae fractured, and that they're not healing. Which means treatment for the osteo is of the utmost importance.
I've had trouble with my wisdom teeth for a long time now, and because of the potential risks with any surgery and CRPS, I've been putting off having them removed. WT pain isn't nice, but full-blown CRPS in my face/jaw would be the end of me, I think. Only trouble is that having oral/dental surgery while on osteoporosis treatment can in rare cases cause a nasty side effect called osteonecrosis of the jaw :( I've had very minor, spontaneous ONJ in the past, so the endo won't touch me with meds until I've had my teeth removed.
I saw an oral/maxillofacial surgeon on Friday. He was very good, very nice - he didn't know anything about CRPS, but listened carefully to everything I had to say and to everything my PM doctor had written to him. Three teeth he thinks he can get out without problem but he's concerned that there is a high risk of nerve bruising/temporary damage with removal of the fourth. If my jaw is osteoporotic as well, there is even a risk that he will accidentally break it getting the tooth out. This terrifies me. There's no real other option - it can't stay there, because it's too risky to remove it if it becomes a problem once I start treatment for the osteo, but goodness :( He and my PM have worked out some precautions, but all the healing thoughts you can muster would be greatly appreciated.
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.
On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio