RE: NEW MEMBER! YOUNG AND IN PAIN. HELP!

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db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 5:22 PM (GMT -6)   
Hi there,

I am a 20 year old female who is already experiencing chronic pain. I take pain medications on a daily basis in order to function in pain! They help so very much. However, my mom is starting to call me an addict. I am in so much pain and take them only for that reason. However, I feel guilty because sometimes they make me feel weird, almost "happy". Does anyone else have this problem? I don't take them for a good feeling (i don't even always have a good feeling sometimes i feel terrible after taking it (nausea, etc.) )I feel so bad taking them...when i go to the pharmacy to get them to pharmacists look at us patients with such judgmental eyes! I have considered stopping them but then I am in SO much more pain and cannot operate! I am in my undergraduate in university studying science with hopes to then study medicine. I take percocet up to 5 times daily (every 4 hours) and I take amitriptiline before bed. Any help is greatly appreciated!

Thanks!
xo

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 5:32 PM (GMT -6)   
Also, I should mention that I do go to a pain clinic. I have tried many other pain medications including nucynta, Tylenol 3, oxycontin, dilaudid (short and long lasting (12hr) ones), morphine (short and long lasting) etc. have not tried vicodin because i live in canada and we don't have taht here. Percocet seems to be the one that works the best with the least number of side effects. Morphine didn't help much at all...dilaudid ended up making me incredibly sick to my stomach! I have also been on anti-inflammatory meds (before we even tried narcotics) including naperson, celebrex, lyrica, toridal and any other one that you can think of! The anti-inflamm helped just as much as advil...in other words, they hardly provided any relief! Again, I am a new member and any insight/suggestions/advice/words of encouragement would be greatly appreciated! I also get injections of marcane to freeze the area where i have pain...the injections usually only last a few hours and i get them once every few weeks.

Thank you kindly!

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 11/27/2011 7:26 PM (GMT -6)   
Welcome db14, so sorry for your pain. I also suffer from chronic pain and could not function or have any quality of life without my pain meds. Your mom is probaly just worried and does not understand. There are many people who do not understand and judge us. Maybe suggest your mom go with you to your appointment when you see your pain doctor, sometimes when a doctor talks with a love one it helps them understand. As far as feeling funny on my drugs I have to say no...your dose maybe a little to high for you and needs to be adjusted.

I was 42 when my chronic pain began and I feel I am way to young for these health issues so I do understand how you must feel but with the proper meds life can become copeable, I now work 3/4 time, and am a bit more social after isolating myself for 5 yrs.

Look forward to your posts...I think you will find this forum very helpful

Take care, Amy

Chronic pain(nerve), fibro,ibs, and mild depression

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 7:33 PM (GMT -6)   
Thanks for your input :)
It's more of a "happy" feeling than a funny feeling.
I think it depends on the med. I am taking percocet...not sure which one(s) you are taking?
I actually have suggested that to my mom and she just says something like whatever beccause she couldn't be bothered to come as she has other stuff to do she says...

Hopefully some other members have some other input in terms of the meds as well...I feel so guilty taking them...not sure how others feel...thanks so much for your input!!! Appreciate it!

I think chronic pain is difficult to deal with at any age, however, it sucks that i will have to be on meds for the rest of my life!

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 11/27/2011 7:52 PM (GMT -6)   
Yes it does suck to be on meds the rest of your life.....but it sucks even more when you hurt so much you can not get out of bed. The meds I am on are morph sulf. 120mg.in the morning and 90mg before bed, I also take breakthru morph 20mg, 2700mg. gabapentin and 50mg amitrytline.

I do not feel guilty....do diabetics feeling guilty when they take their meds.?
I hope you can accept that you might have to have these drugs the rest of your life...who knows maybe you won't, I am hopeful that they fin a new way to deal with chronic pain.

Take care and I will keep you in my prayers, Amy

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 8:03 PM (GMT -6)   
I take amitrip as well at night...150mg though! High dose!
How many times a day do you have to take meds for BT pain?
Did you try many diff meds before realizing that the morph worked for you?

I know exactly what you mean about diabetics taking their meds...it's so very true! Those who have an infection take anti-biotics and don't feel guilty...cancer patients receive treatment and don't think twice about it! I guess I just feel guilty because they do sometimes make me feel "happy" and because when i pick up my meds the pharmacist makes me feel so bad...saying things like be careful with these "only when needed"...i obviously only take them only when needed! I guess it's the media that makes me feel bad about taking them due to the negative stigma! Also, I am so very young and it's people my age who i guess abuse these meds? I do not but i don't know i guess the neg. stigma brings me to feel guilty which sucks! Also the fact that my mom thinks I am addicted as she says "you cannot possibly be in that much pain all the time"...that bothers me the most...how does she know how much pain i am in :S!!!

If anyone else is reading this, do you guys feel guilty? Does anyone else sometimes feel "happy" when taking their meds? What do you do about it? I have considered stopping taking these meds but I cannot get through the day without them because of the pain!!! I know I am repeating myself in terms of what I wrote in my first post but if someone is just looking now I don't know whether or not they'll scroll up and read the first post...hope they do. I am very new to this as I just joined this forum so I hope that many others respond and don't just look at the post! The more input, the better!

Thank you Amy for your input and prayers! I will keep you in mine as well!

terraphantm
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 11:27 PM (GMT -6)   
db14 said...
Hi there,

I am a 20 year old female who is already experiencing chronic pain. I take pain medications on a daily basis in order to function in pain! They help so very much. However, my mom is starting to call me an addict. I am in so much pain and take them only for that reason. However, I feel guilty because sometimes they make me feel weird, almost "happy". Does anyone else have this problem? I don't take them for a good feeling (i don't even always have a good feeling sometimes i feel terrible after taking it (nausea, etc.) )I feel so bad taking them...when i go to the pharmacy to get them to pharmacists look at us patients with such judgmental eyes! I have considered stopping them but then I am in SO much more pain and cannot operate! I am in my undergraduate in university studying science with hopes to then study medicine. I take percocet up to 5 times daily (every 4 hours) and I take amitriptiline before bed. Any help is greatly appreciated!

Thanks!
xo


Hello db14 - I'm a 20 year old male who's been going through chronic pain for a little while. Don't listen to anyone who calls you an addict - I assure you, you'll be able to get off the drugs with no problems once the time comes. It has been shown that those who take those drugs for long-term pain control don't form the same psychological dependence that drug addicts do. I personally take a decent bit of morphine to control my own issues. I've gotten my fair share of "looks" from people too, I just try to ignore them. I'm confident the people who "judge" us wouldn't even think twice about taking them had they been in our shoes.

As far as the sideeffects go - they do vary from person to person; I personally never got any major sideeffects. The only sideffect I really had was the itchiness from the histamine release when I was on oxycodone. I've since switched to morphine and I don't get the itchiness anymore. Most people do develop a tolerance to the drugs over time, so your side effects should lessen with time. If you find that they're bad enough to prevent you from functioning "normally", then ask your doctor if he'd be willing to switch you to an equivalent dose of another narcotic. I've had pretty much no sideffects from morphine, and I know other people who get very nauseous on hydrocodone, but feel perfectly fine on oxycodone and vice versa. Depending on how large of a dose you're taking, the tylenol in the percocet could be giving you problems. I know sometimes doctors are hesitant to give plain oxycodone due to the potential for abuse, but it might be worth asking.

I too am an undergraduate in a science curriculum and want to become a doctor btw! I had to take this semester off because my pain got so uncontrollable that I couldn't reasonably function. I am hoping to get back on track next semester. Thankfully I had enough credits that I should be able to graduate on time... but even if I can't, it's not the end of the world. As long as I keep my grades up and do well on the MCATs, I should hopefully be able to get into a good school

Post Edited (terraphantm) : 11/27/2011 10:35:31 PM (GMT-7)


db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 11:34 PM (GMT -6)   
Thank you :)
It's nice to know there is someone else my age here :)
Not that I don't enjoy the other responses, I do....but it's still nice :)

The side effects are not bad actually. The medication works much better than any others i've ever tried! It works very well. You mentioned i won't have an issue getting of it when the time comes...the thing is, my dr thinks i will be on meds for the rest of my life! I know the tylenol in the percocet could cause liver problems...however, the dose i'm on is supposed to be in the safe zone. I have had the oxycodone w.o the tylenol and it does not work as well tbh.

We seem to have a lot in common. Shoot me an email if you'd like to talk! Respond here & I'll send you my email if you'd like. Hope things work out for you!

Thanks for your input :)

terraphantm
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 11:50 PM (GMT -6)   
Well I suppose it depends on what the cause of your pain is. If it never subsides, then you may need to stay on the drugs for a while (and there wouldn't be any reason not to continue them). If it starts getting better for any reason, I don't see why you'd have to be stuck on them. They would have to ween you off to prevent withdrawals, but as long as you have the will, it is possible. My own pain management doctor has told me something to the effect of "Don't worry about taking the drugs for long periods. I've been doing this a while and people like you have always been able to come off when it was appropriate to do so. You worry about getting yourself healthy, and let me deal with the long term plans with the painkillers." I guess I am lucky in that in my case, the cause of the pain is known (of course finding a successful treatment is another story).

It's good to know that the sideffects aren't too severe. I misread your post and thought you got the nausea more frequently. I have seen studies indicating that the tylenol often does more than simply prevent you from taking too much; I guess you're living proof of that. I've almost always had tylenol-free preparations, simply because I take tylenol arthritis every day for whatever it's worth.

And I'd definitely be up for talking with you if you'd like! Like you said, it's nice to know you're not alone with these kind of things. I'm not really sure how to send private messages on these forums, but my email address should be public. You're welcome to message me at any time :)

db14
New Member


Date Joined Nov 2011
Total Posts : 11
   Posted 11/27/2011 11:55 PM (GMT -6)   
Thanks :)
I sent you an email!

If anyone else has any insight on the topic it would be greatly appreciated :)

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 11/28/2011 2:25 AM (GMT -6)   
Hi db (and terraphantm). I'm a little bit older than you two - I'm almost 27 - but I've had chronic pain (Complex Regional Pain Syndrome) for over 12 years. I was diagnosed at 20 and I've been on an insane looking cocktail of pain medications, including opiates, since I was 22.

Db - do you have a diagnosis for your pain? You said you were a patient at a pain clinic, so do you employ other pain management techniques as well as medications - for example physiotherapy, OT, psych?

Notice that both of you said you are enrolled in science and wanting to be doctors! Keep working at it and don't let ANYONE tell you you can't do it with CP/chronic illness. It's true that I can't work now because of the way my own condition went - in part because it was badly managed initially - but I went to Vet School and graduated with honours so anything is possible :)

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Lulicious
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 11/28/2011 8:55 AM (GMT -6)   
Hi Db, welcome to the group!! You have found a bunch of new friends who understand why we have to take the medications we do. I started taking pain meds at 27 after a work accident that fractured my back. The meds in the begining did make me feel kind of happy, but I noticed that it was fixable by making sure that I ate something like a couple of crackers prior to taking them. Taking pills on an empty stomach can cause issues with you stomach lining and also give you that euphoria feeling. So try eating a little something prior to taking each dose. As far as your mom goes, my parents are the extact same way they think that I am a druggie and can't understand the amount of pain I am in considering a spinal fracture that lead to 3 spinal fusions with instrumentation. My Dad just had his knee completely replaced and is taking a fair amount of oxycodone and he is totally out of it. And he said to me YOU have NO IDEA the amount of pain I am in. BS!!! I can imagine that amount of pain. So I just gave up with trying to explain it to anyone who doesn't get it. I know how much pain I am in, I can't get out of my recliner w/o taking my medication first. I can't sleep in a bed because of the rods, you can feel them pushing against the bone. So if mom doesn't want to go to the doctors with you, then it would be a subject that I just would not discuss with her anymore. But your more than welcome to talk to all of us, we understand. Welcome again and look forward to chatting with you again. TakeCare :)
DX: spinal fracture L5/S1, fusion 1/96, Spondylolethsis, DDD, nerve damage to both legs and bladder, 4/2007 anterior & posterior fusion L1-S1, 4 Bladder surgeries. Multipe injections, depression, PTSD

Meds: MS Contin 60mg bid, oxycodone 30mg tid, clonazapam 1mg bid, Pristiq 50mg.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/28/2011 9:30 AM (GMT -6)   
Our family members mean well and want the best for us, but when a
chronic issue arrises in our lives it throws all that out the window, and
because chronic pain can't be seen makes it all the more harder on
how we are percieved out there...So when you visit your mother, just bring
up conversations around your chronic pain, as she'll probably never understand
I do this with my family members as well, it will be hard to do but if you
want your mother in your life then you must come up with other things to talk
about such as maybe how your doing in your classes and what classes your taking
ect...and I agree with the others in that don't ever think your an addict, your
not as for the pharmacy, say "Thank You and I do take them as directed
and I appreciate your concerns.." that should leave them speechless.
Sure wish you didn't have to deal with this...but you found this forum and I hope it'll help you when you need it.
We are like a family here, welcome...many well wishes that you can get a low pain day soon...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/30/2011 9:58 AM (GMT -6)   
hello DB14, i hope your having a good day up north. i am 33, i first hurt my lumbar spine when i was 23. i had surgery in 2003 i think and have been on opioid therapy since. i have dealt with a ton of judgemental hypocrites since then about daily narcotic treatment for chronic back pain. one thing i have noticed in almost 100% of them; when they get hurt or a chronic pain syndrome begins they all are very apologetic and say,"i did not know this is what you were going through" or,"i did not realize it was this bad". i do not wish this upon anyone, even the evil-eyed pharmacy technician, i think you have to go through this to know why meds are a priority. i do not know about Canada but here in the US it has become more accepted to treat CP with opioids. if it is not like that in Canada i think it will come around soon. best wishes to you.

vtskge
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/30/2011 10:36 AM (GMT -6)   
Hello DB,

I am also new here, but I saw that you said that sometimes you almost feel "happy" when you take your pain medications. When I spoke to my doctor about that over a year ago, he lowered my dose and it has helped a lot more; as well as allowed me to feel as though I am in control over my life and my recovery. I must say that I think having your mom go to the doctors with you as it was suggested in another post, is a fantastic idea. She probably does not understand what is going on and is just very concerned that her daughter maybe addicted to prescription medications. (Which statics are very high in that area).

I also know that you can become what is known as "tolerable" to your medications. So, when you take 5 pain pills a day, then eventually your body will come accustom to that and your pain will seem much higher, so you feel as though you need to take more than that or get on different medications. Have you tried maybe cutting down on good days? Also, I have found hot baths, warming blanket, the sun, heating pad has been a lifesaver for me at times. These are just to name a few that I have found that works for me.

I am sorry for your pain and surely know what you are going through. I do pray you find a resolution that will work for you and allow you to be in full control over your pain and your healing.

misterkatamari
Regular Member


Date Joined Jan 2011
Total Posts : 374
   Posted 11/30/2011 10:53 AM (GMT -6)   
23 year old guy here. I'm on tramadol right now, but I'm hoping to get a stronger medication to help out. I was hesitant to try narcotics at first, but I've learned that everyone is different and you need to use whatever tool(s) work best for you. In your case, it sounds like you are doing exactly what a patient is supposed to do! You're not abusing your medication, and you actually need it to feel alright. So don't feel guilty, and don't punish yourself because of other people.

I hope you continue to make progress and feel alright. :)
--Patrick, aka Misterkatamari

I'm active on several boards. Main issues are: Chronic Pain due to Scoliosis & 2 Herniated Discs, possible DDD and arthritic facet joints. Also active in the Depression/Anxiety boards. Meds include: Prozac 40mg, Xanax .5 mg, Tramadol 50mg

“We must let go of the life we have planned, so as to accept the one that is waiting for us.” - Joseph Campbell

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16290
   Posted 11/30/2011 11:13 AM (GMT -6)   
Hi Db and I too would like to welcome you to Healing Wells chronic pain forum. I am sorry that you have to be here but very glad that you found us. Whats worse is to see someone as young as you suffering when you should be out kicking your heels up & living your life. Who knows perhaps one day you may wake up tp discover the pain gone and then you can do what most your age are doing.

Where is your pain located at? Have you had any testing done, like an MRI or Ct Scans? I hope that if you have had them they checked out ok. Besides CP has your dr given you any other diagnosis?

If you took a poll here at the forum everyone here would tell you they don't want to be on medication. I surely wish there was some other way besides medication. But, if I am going to have some quality life then I must be on meds.

I am sure your mom is very concerned about you and she is probably quite worried because you are taking medication. If I had no knowledge about pain and pain medications and had a daughter or son on them, I would be very, very concerned. Have you tried sitting down with your mom, one on one and discuss this? If not why not give it a try and let her know how bad she is hurting you with these comments. Ask her again to try & make a dr appt with you so she can meet with your dr. People that do not have CP rarely knows how to act around someone with CP let alone comprehend what life is like for us.

Anyway, I wanted to pop on and tell you welcome aboard. Please keep us posted on how you are doing.
Moderator Chronic Pain Forum

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 11/30/2011 7:25 PM (GMT -6)   

Hi Db14

I'm sorry to hear your suffering from chronic pain at such a young age. I started suffering from back problem when I was about 12 or 13 and I'm 48 now. I have had a spinal fusion a few years ago that didn't work out so well. It left me in chronic pain. I have tried pretty much everything from A-Z but there's nothing that can be done but rely on pain medication. Someone mentioned that your body becomes accustomed to the dose and you need a higher dose to get the same relief. That is unfortunately true. As for having a feeling of euphoria or happy feeling, I think that is quite common and does fade away after taking it for awhile. When I first started taking percocet I to had that feeling and was quite happy not just because of the effect of the drug but because my pain would ease off about 70 -80%. Now about feeling guilty. I must admit that there has been times early on that I did feel as though I was doing something wrong. Like maybe I was being a bit of a wimp not enduring the pain without the help of pain meds. Maybe that's a guy thing I don't know. You do not have anything to feel guilty about. Taking pain medication is no different than taking any other kind of medication for a sickness or disease and anyone who thinks different I don't have the time or patience to convince them otherwise. As for your mother do you think it would help if you asked your pain doc to explain the situation to her.? Do you think your mother would be willing to come with you to the pain clinic? Well that's my 2 cents worth for what it's worth. I wish you all the best and you've found a very good site with alot of caring and supportive people and if you feel up to checking out the chat rooms you'll also find some very nice people. Oh I forgot to mention that I'm from Canada too.

Take care DB and hopes things get better for you and keep us updated on your progress.

Stingray


sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 11/30/2011 8:09 PM (GMT -6)   
Db 14...in answer to your question about my meds. I do not need my bt much at all maybe once a day if I have a flare up otherwise I do not need it. Yes I did have to try different meds. before I settled on morph. I was on percacet and oxycodone but found the morph worked best for me. Hope this helps.

Take care, Amy





Chronic pain(nerve), fibro and mild depression
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