Hi Ollie and welcome to Healing Well's chronic pain forum. If you don't mind please start your own intro thread so that all members will see your post and be able to give you a proper welcome. By posting on this old thread not many people will see you.
To start your own post click Post New Topic, a window will open and type something like new member with LPHS, click it after filling that in and then start typing away about yourself.
You may want to also visit our kidney forum, there may be some members there that have this same disease. We have had members in the past that suffered with this disease. Also, another option is to use our search feature here at the forum. it is located at the top on the right, type LPHS and some posts should come up about this.
Moderator Chronic Pain Forum