Questions... Let clear it up...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jul 2009
Total Posts : 278
   Posted 11/29/2011 4:08 PM (GMT -7)   
Ok, I am hoping this post can clear up a few question I might have...
IF u are getting SSI/SSDI or are in the process, can u please post your answers...

1. Are u getting SSI or SSDI
2. How long did u wait for an approval?
3. How any appeals and did u get a lawyer?
4. What condition(s) were you approved for?
5. How old were u when u became disabled and applied?

Thanks guys
Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~

Veteran Member

Date Joined Sep 2006
Total Posts : 2861
   Posted 11/29/2011 5:58 PM (GMT -7)   
Dear Donna

I receive SSDI, I waited 2 years, was denied twice and got an attorney. I was approved on depression chronic pain and fibromyalgia. I had to resign when I was 52 and received it jan 2008., at age 55.

Each state has its own timeline...Mississippi had a very long list so it took longer to get an ALJ.

My husband also receives SSDI, he waited about a year or 15 months, denied once, got an attorney and then before she could do anything, he was reconsidered (terminal cancer) and approved. He was 60 when he got it. AND he is still here@!!!!!

Best of luck
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

cymbalta seroquel hydrocodone klonopin magnesium potassium

Elite Member

Date Joined Oct 2008
Total Posts : 25341
   Posted 11/29/2011 9:25 PM (GMT -7)   

2. 2 Years

3. 2 appeals, and yes, finally took a good SS lawyer to get the job done

4. Chronic Pain/Chronic Fatigue due to severe radiation damage

5. Age 56 when applied
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Regular Member

Date Joined Feb 2008
Total Posts : 253
   Posted 11/30/2011 2:34 AM (GMT -7)   
3 tries the first 2 were on my own.
The last appeal was with my attorney and I was approved..
I was granted the SSD due to severe COPD at age 40
I was 38 when I applied and it was 2+yr's before being approved

Post Edited (NO-RELIEF) : 11/30/2011 2:37:52 AM (GMT-7)

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 11/30/2011 4:23 AM (GMT -7)   
2 years
2 appeals
lawyer after 1st denial
fibro, facet syndrome, bulging disc, chronic pain
54 when I was approved

Donna, there is a very good website that I used during my process with alot of good information, I think another is disability secrets. Also, your library should have a book, Nolo's Guide to Social Security Disability. This book gives current information from start to finish. Make sure you get an updated version.

When filling out your initial paperwork make sure that you give details about how long and how often you have to rest during the day to relieve your pain. Don't just put I can't do anything. If you do laundry tell how often you are able to do it, how it affects your pain level and how long you have to rest afterwards or what pain meds you must take to alleviate the pain from doing laundry.

Be specific about your limitations. If you have to sit down on a stool to do dishes, if you need assistance with personal care, how long you can sit or stand before changing positions.

You will do fine. Relax and be truthful just don't be vague with your answers. Social Security wants facts.

Regular Member

Date Joined Nov 2011
Total Posts : 31
   Posted 11/30/2011 6:23 AM (GMT -7)   
1. Are u getting SSI or SSDI - I am receiving SSDI
2. How long did u wait for an approval? about 6 months
3. How any appeals and did u get a lawyer? o appeals was approved 1st with a lawyer
4. What condition(s) were you approved for? spinal fractures, DDD, Spondylolethsis, depression, nerve damages to legs and bladder
5. How old were u when u became disabled and applied? 28 yo
I got long term disability, I did 2 renewal and a few weeks ago I got a letter stating that I was permanently disabled and would no longer be required to do renewal forms.

DX: spinal fracture L5/S1, fusion 1/96, Spondylolethsis, DDD, nerve damage to both legs and bladder, 4/2007 anterior & posterior fusion L1-S1, 4 Bladder surgeries. Multipe injections, depression, PTSD

Meds: MS Contin 60mg bid, oxycodone 30mg tid, clonazapam 1mg bid, Pristiq 50mg.

Post Edited (Lulicious) : 11/30/2011 6:26:41 AM (GMT-7)

Regular Member

Date Joined Jul 2009
Total Posts : 278
   Posted 11/30/2011 8:18 AM (GMT -7)   
Thanks guys!! This is Great info..

I got all the paperwork done and submitted. I need to make copies of my records from the specialist when I was 4-9yrs and drop off to them... (not sure if they would be able to get those from so long ago)

Been researching my condition(s) and cannot find a lot in regards to anyone else getting SS for it. (Tethered Spinal cord) but guess we will see.
My main issue is impatience... I'm so bad..

Tethered Spinal Cord~1.5x1.2 cm spinal cord cyst at L5/S1  (Lumbar Laminectemy completed 9/10/09)~Scolosis~Migrains~Leg Deformity~Foot Deformity~Knee, Hip, Back, Neck Pain~Severe Depression~Insomenia~DDD~Artheritis (Spine)~Spinal Bone Spurs~NEW: Herniated Disc T5/T6 
"I'm not going to vacuum 'till Sears makes one
you can ride on"
~Roseane Barr~

Forum Moderator

Date Joined Feb 2003
Total Posts : 15160
   Posted 11/30/2011 11:05 AM (GMT -7)   
Hi Donna, hope this helps;

1. SSD

2. 5 months

3. None

4. Crohns disease, CP, & deg. joint disease

5. 51

As Jag stated, they want facts and descriptive wording. Each state is so different on how long it can take to get a hearing before an ALJ, it depends on the backlog of older cases. Most attys will not take a case until its been denied the first time. Good luck.
Moderator Chronic Pain Forum

Veteran Member

Date Joined Dec 2007
Total Posts : 1228
   Posted 12/2/2011 10:20 PM (GMT -7)   
I get SSD- Social Security Disability
No appeals, no attorney's , was approved the first time I applied
Medical conditions- Cauda Equina Syndrome, failed back surgery x 2, neuropathy effecting legs, bowels, bladder, and ability to walk, stand and sit, RSD-right shoulder, arm and hand
Age at approval - 35
I found that having all of my records, complete information for my treating physicians, medication history, treatment history, etc all made getting the approval through the first time. I also made copies of all of the documents and kept one set in case something came up missing. I applied in person, having all of the paperwork with me and did all of it in the local office.
I was told that the reason my approval came through so fast was because of the completeness of the medical information, supporting test results and reports, and that everything was in order. The woman at the office said that many times , applications are rejected because of incomplete medicals, or the failure on the part of the treating physicians, hospitals, etc in replying for requests for information.

Regular Member

Date Joined Dec 2010
Total Posts : 213
   Posted 12/4/2011 11:46 AM (GMT -7)   
My reply is going to be much more complicated than the rest as I have been on it and then disapproved and then reapproved. But - I did keep getting benefits all of that time as I applied to keep receiving them.

1. Are u getting SSI or SSDI - SSDI
2. How long did u wait for an approval? The first time I was approved immediately because I had Acute Myelogenous Leukemia (blood cancer). In the social security listings handbook - this qualified for immediate approval because it was considered a terminal disease and not too may people live when they have it. My original date of disability of July of 2004 and I was 37. I was then reviewed in 2007 because I had a bone marrow transplant and was technically cancer "cured". BUT - due to the treatment to cure me - it left me totally disabled - just alive. In 2007 I was turned down, 2nd hearing was in 2009 and I was again ruled against.
3. How any appeals and did u get a lawyer? So that would be 2 appeals and then I did get a lawyer - luckily for me - we were low income and I got a Legal Aid lawyer who did not require a cent to take my case. During each of my turndowns - I had to appeal to ask for another hearing and to continue my benefits - at this time - it wasn't just the money I needed for benefits - it was the medicare Parts A, B, and D. Wtihout D I could not get any of my medications. I was seeing doctors all the time and had no other insurance as well as being hospitalized between 2005 and 2009 for shingles and 2 different bouts of pneumonia.
4. What condition(s) were you approved for? Initially - Acute Myelogenous Leukemia - Secondly - Complications due to Chemotherapy and Bone Marrow Transplant that all together easily equalled a listing of totally disabled. Some of the complications include: Chronic Non-Malignant Cancer Pain, Chronic Kidney Disease Stage 3 at the moment (about 50% kidney function), Vasovagal Syncope, Pyoderma Gangrenosum, beginnings of COPD, I have now had 2 abnormal CT scans of the chest and they cannot figure out what is wrong and they cannot use the dye in my veins as it will damage my kidneys further. Chronic Major Depressive Disorder, Neuropathy (mine is small fiber neuropathy - but it causes me not to sweat - so when I get over heated I cannot cool down and just pass out instead), low blood pressure, Hyperlipidemia, Hypothyroid, Chronic Fatique, Moderate Obstructive Sleep Apnea ( it has to be treated by oxygen as CPAP did not work on me so I am on oxygen on and off during the day and full time at night at 3ml), and Dyspnea on Exertion (shortness of breath constantly) - Believe it or not - prior to getting cancer I used to work 80 hours per week!
5. How old were u when u became disabled and applied?originally 37 and approved at 37 and then after all the fighting - was reapproved at 42 after an additional 2 1/2 year fight. I am in Ohio and the ALJ hearings are really backed up - they flew a judge in from California for my hearing in 2011.

My lawyer told me that I had kept good enough records myself that the ALJ would have ruled in my favor with or without a lawyer. But then again - it all depends on what ALJ you get.

Now - I know you did not ask for a book - but if you need any further info - please feel free to contact me via this sight and I will do my best to help.
DX pyoderma gangrenosum, Acute Myelogenous Leukemia, Bone Marrow Transplant, Chronic Pain syndrome, Chronic Kidney Disease Stage 3, Major Depressive Disorder, Radiculopathy, Bilateral Hip Pain, Insomnia,Left Groin Hernia, Bulging Disk in Lumbar Spine, Tear in Lumbar Spine, Tendonitis and Bursitis in both hips, hypoxia due to sleep apnea and new problems with my lungs. Have had 2 abnormal CT scans.

Regular Member

Date Joined Dec 2006
Total Posts : 274
   Posted 12/4/2011 7:19 PM (GMT -7)   
2. 2 years
3. 1 appeal, then got lawyer
4. Sarcoidosis and Chronic pain
5. I was 33
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, November 20, 2017 5:40 PM (GMT -7)
There are a total of 2,895,981 posts in 317,855 threads.
View Active Threads

Who's Online
This forum has 157456 registered members. Please welcome our newest member, Sesoneagst.
426 Guest(s), 14 Registered Member(s) are currently online.  Details
Crispix, Alcie, countingstarsx, desert bound, BabsBunny, Casa11, island time, Glascis, Rust, ChickenArise, garyi, Evanston1, GiGi2 five, jackinthebox

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.