Looking for some Advice!

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New Member

Date Joined May 2011
Total Posts : 8
   Posted 12/1/2011 9:07 PM (GMT -6)   
Hello all,
I have posted before about my endometriosis and adenomyosis pain. Now, however, I am seeking advice for some additional problems. I have been having pain for a little over 3 years now and we are slowly narrowing it all in. I am 19 years old now and my pain is getting so unbearable. I cannot function normally and I cannot be a regular college student. I had an MRI done on my lower spine which showed arthritis, a bulging disc and a torn disc. My doctor prescribed me flexeril and steriods to help, but nothing relieved the pain. I have numbness, and a lot of pain and weakness in my lower back and down my left leg. My body does not take medications well and i cannot find any relief. I have a long list of medical problems and I have stopped some of the treatments due to this pain. I go to a neurologist tomorrow and a rhuematologist soon. I do not know what to do to get me through this. Please lend any advice!
P.s. I have tried streches, narcotics, steriods, anti-inflammatories and musce relaxers. No help!
p.p.s. I have Adenomyosis, Endometriosis, Hyperhidrosis,Irritable Bowel Syndrome, Pelvis Congestion Syndrome,Torn disc,Lumbar Arthritis ,Bulging disc,Neurocardiogenic syncope,Asthma,sciatica

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 12/2/2011 1:43 AM (GMT -6)   
First off I want to welcome you to Healing Well Chronic Pain Forum,  I really am glad you found us and have posted on our forum. We might not be able to cure you, but I do guarantee that you will find allot of compassionate, caring support! Helpful advice, and you will never be alone with your pain again! You have family here that understand about having chronic pain, and people not only can sympathize with you, but even better they can empathize with you!  So again I want to welcome you to our chronic pain forum!
You sure have went through allot for your young age, I am truely sorry that you have had to experience so much in the way of pain at such a young age. It just doesn't seem fair, that you have had to endure so much, a person your age, should be enjoying college and all that incompasses that experience, and not have to be burdened with dealing with  such extremely painful conditions. DestituteYouth, have you tried guided imagery, or biofeed back to help deal with your pain? Have you ever been referred to a pain management specialist? Or have talked with a pain psychologist? I would suggest you talk with your Doctor and ask about ways to deal with your pain, and ask about seeing a pain specialist, and using different treatments to try and get your pain under control.
And of course come to our forum and post, this is a great place to come and vent your frustrations, resulting from your pain and the treatment of it, or the lack of treatment for it. As I said we might not be able to rid you of your pain, but we will always lend you our ears and listen to you,  and let you know you are not alone!  As they say misery loves company, and here on this forum you have plenty of company!  When your here your apart of our forum family!
I wish you well and do hope you can find some kind of relief to your pain soon!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 12/2/2011 6:47 AM (GMT -6)   
Gotta agree with White Beard that a pain management doctor would probably be in a better position to help you with your lumbar pain. My lower back problems started with a torn annulus ( the outer lining of the disc) and just that alone was bad enough. The pain never stopped.

There are alot of different procedures that could help your pain without drugs. I've had temporary relief from radiofrequency ablation for nerve irritation and steroid injections into a bulging disc in the past. You see I used the word temporary. None of these procedures are a fix but they can alleviate or lessen the pain for months at a time. Of course, sometimes they won't help at all but everyone and every situation is different.

Your doctor prescribed you flexeril which is a muscle relaxer. If the flexeril isn't helping possibly speak with your doctor about trying a different one. There are alot of different types of muscle relaxers out there and the same one doesn't work for everyone. I probably tried over 5 (most made me too sleepy to function) before I found the right one for me. Baclofen was the first one I tried that helped without the drowsiness. Most of my lower back pain is from muscle spasms due to the arthritis in the facet joints.

Let us know how you upcoming doctor appointments go. Hopefully they can help you.

DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3 & L-3/4, fibromyalgia, polymyalgia rheumatica

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 12/2/2011 8:18 AM (GMT -6)   
Hello, I am Kathy/nini, I agree with White Beard also, he gave you great advice, I cannot add anything to it except to also welcome you to this forum, you have found the best place to be when you have the disease of chronic pain.
Take care, and I pray you will find what you need, and hope you will feel better soon.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 12/2/2011 6:50 PM (GMT -6)   
DestituteYouth, it sounds like you are on your way to see the right specialists. It sounds like you are having sciatica symptoms from things in your lower back. These types of symptoms are sometimes helped by conservative treatments like physical therapy, stretches, ice, heat, and rest, and sometimes need surgery. I'm not sure if the neurologist will be able to tell that or if you will get referred to a different specialist, but hopefully one of the specialists will know what to do next.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

New Member

Date Joined May 2011
Total Posts : 8
   Posted 12/2/2011 7:28 PM (GMT -6)   
Hey all,

I went to see my neurologist today and he seems to think I have firomyalgia. I will have nerve testing on my left leg and right arm to see if I have compressed or pinched nerves. I was given a sample of medication to try to see if it is infact fibromyalgia. I will also have bloodwork done tomorrow to test for any musclular dystrophy. I am really hoping this sample helps!
Diagnosis: Asthma, Endometriosis, Adenomyosis, Neuro-Cardiogenic Syncope,

Veteran Member

Date Joined Nov 2011
Total Posts : 615
   Posted 12/2/2011 7:32 PM (GMT -6)   
Hi Destitute....I hope the medication helps what did he give you? I agree with White Beard that was great advice. keep us posted as to how you are doing. I will keep you in my prayers.

Bless you, Amy

Chronic pain(nerve), fibro, mild depression and a few others

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 12/3/2011 9:30 PM (GMT -6)   
A good moist heating pad with an auto shut off, can help some and
when you use that and follow it with an ice pack it can help...There is
a good chance your probably low on vitamin D and B-12, so supplementing
these can help, make sure when you take your medicines that your getting plenty of
water to avoid some of the reactions...How soon till you see your Rheumy doctor?
A rheumy doctor might try steroid injections these can help
better than taking them by mouth, but you need plenty of water when you
get the injection...Many well wishes and Prayers that you don't have Muscular
Dystrophy...keep us posted on that and your tests result...we do care...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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