Neurontin for Crohns?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Dec 2007
Total Posts : 44
   Posted 12/1/2011 10:00 PM (GMT -6)   
Saw my 2nd pain mgmt doc today and they pushed this drug on me. Any folks on this medication, doesn't seem to make sense with my disease and the type of pain I have associated w my Crohns. Did some research today after the appt, just a little perplexed. Hopefully someone has some insight. I'm reluctant to take it. Thx!
35 yr old male
Diagnosed with Crohns in 1994 (lower bowel/ileum)

Medication history: Prednisone, Entocort, Azathioprine, Sulfasalizine, Cimzia, Humira

Current Medications: Remicade (5mg per kilo - every 6 wks), Cipro, Lomotil, Reglan, Percocets PM

Surgeries: 2002,2005,2010, 2011(perianal surgeries) - 2004,2011 (small bowel resection)

Veteran Member

Date Joined Mar 2011
Total Posts : 816
   Posted 12/2/2011 8:26 AM (GMT -6)   
Hello, I myself take neurotin, but I take it for fibro which works well for me.  I have not heard of anyone who has Crohns that takes neurotin, but I am sure someone on this forum who has Crohns will be able to advise you much better than I.
Good luck to you, and hope you feel better soon, also, I am not sure, but I think there is a forum for people with Crohns, you should check that out, look under Diseases  And Conditions, if its anywhere its there, if not, like I said, many people on this forum suffer from Crohns,
Again, good luck to you,
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Regular Member

Date Joined Mar 2010
Total Posts : 186
   Posted 12/2/2011 11:24 AM (GMT -6)   
Hi Sean,

My PM also started me on Neurontin, and I HATED it! It made me feel soooooo drunk-like and drowsy all day. Not a good feeling. I did try it for a few months, just because I was somewhat desperate for help with my tummy pain. His reasoning behind using it for my Crohns was all the abdominal surgeries I have had could be causing nerve pain from all the nerves being cut so many times. I think it helped a little bit, but for me the small amount it helped was not a good trade for the drowsiness that came along with it. So thats my 2-cents on it...
I am a 30 year old female. Have had problems with Crohns/Colitis since 1997. Once I had my colon removed things got a little better. Until about 2 years ago. I just got my port placement and will start Remicaid treatments soon:)
I have awful tummy pain and joint pain as well as female issues.

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 12/2/2011 6:34 PM (GMT -6)   
I think the reason many doctors want to try it is that any chronic pain, regardless of origin, can lead to "central sensitization". This is basically where your body "remembers" the pain and reacts more strongly to pain stimuli over time. If you do have any central sensitization going on, Neurontin can be a helpful medication. It is generally well tolerated too, so there is not a big disadvantage to trying it.
Fibromyalgia, low back pain/SI joint dysfunction, anxiety, obstructive sleep apnea, endometriosis, asthma

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 12/3/2011 12:15 PM (GMT -6)   
I take neurontin and have Crohn's. It doesn't give me any bad side effects, probably the worst thing is it makes me wide awake so have to make sure I take it 3 hours before I want to sleep or I'll be up all night. I'm also on oxycodone and amitriptyline as have Lupus and it is causing major pain and nerve around all my joints. This is why the neurontin was prescribed.

Give it a try, start slow. I started on 100mg twice a day, then 100mg three times a day and now on 300mg three times a day. The combo helps keeo the pain normally at a fairly manageable level.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

Regular Member

Date Joined Dec 2007
Total Posts : 44
   Posted 12/10/2011 7:27 AM (GMT -6)   
Thank you all for the great feedback. Going to see my pcp on Monday, going to let him make the call. Thanks again!!!

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 12/11/2011 10:59 PM (GMT -6)   
hi Sean- i have had crohns for 20 years...extreme pain has been a symptom for the past two...i am taking oxycodone- helps with the pain not perfect...but it doesn't last long enough- maybe 3 hours tops...not the best solution but i hate trying new meds since i take so many and have no idea how they will interact...never heard of the drug you mentioned for crohns.
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2's been one heck of a ride!
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 4:43 AM (GMT -6)
There are a total of 3,004,543 posts in 329,153 threads.
View Active Threads

Who's Online
This forum has 161744 registered members. Please welcome our newest member, csorthofeet.
243 Guest(s), 3 Registered Member(s) are currently online.  Details
Bob in Elkridge, lyme1994, halbert