up crying since 4, tried most of my arsenal of breakthrough meds

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Alcie
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Date Joined Oct 2009
Total Posts : 5029
   Posted 12/4/2011 7:29 AM (GMT -6)   

Whine, tears streaming, pain intolerable.

Shoulder acromioplasty, rotator debridement 7 weeks ago.  No pain improvement since first 2 weeks.  Saw doc last week for 2 shots of cortisone.  He offered vic, perc, no thanks, they don't work anymore, and I have leftovers.  4 Advil works better.  I'm already on prednisone for chronic sinus infection, ambien and melatonin for 3 hours sleep.  Thanksgiving I managed to "pop" something in my lumbar spine pulling 1-y-o grandson out from under the Christmas tree where he was grabbing glass balls his brothers had hung. 

No tolerable sleeping position for shoulder, not recliner, couch, pillow under arm.  Took 4 advil, 2 vicodin, prednisone, 1 1/2 valium, heating pad on couch, pillow under arm.  Back hurts when I'm supine because of scoliosis, injuries from car wreck.  More, but that's other stories.  At least the pills are helping spine!

Excruciating agony, seeing pain doc Monday for spine.  I'd go to ER for shoulder, but they won't have anything but noise to offer.  I've taken most of my pills.  Last time I was there for heart arrhythmia I didn't even see a doc!  No treatment, sat there hours until it finally quit on it's own.

It's 7:00 now.  I guess I'll just hit the coffee pot button and take my tramadol.  It wakes me up, so no good at night, but raises serotonin so I won't be so depressed.

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 12/4/2011 11:58 AM (GMT -6)   
So very sorry about your situation, Hopefully your pain management doctor
will be of help on Monday...make sure to tell him everything thats happening..
Maybe try ice packs to see if that will help...Hope you can get a low pain
day soon many Prayers and well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 12/4/2011 12:07 PM (GMT -6)   
Wow Alcie, you are having a horrible time from the way things sound. I can relate to everything you listed that is hurting. I hurt my right shoulder back in May & have been putting up with it ever since, sometimes it gets so bad I just cry, something I rarely ever do no matter how bad the pain is. I get horrible muscle spasms in my shoulder that goes down my arm, did this happen to you? My dr wanted me to do a CT Scan which I have pu off because of money reasons, which I will not go into here right now.

What was the original dx with your shoulder and how did you injure it?

I hope the PM dr can something for you. Take care.
Moderator Chronic Pain Forum

Equestrianne12
Regular Member


Date Joined Dec 2011
Total Posts : 63
   Posted 12/4/2011 4:37 PM (GMT -6)   
sending love. I have spent too many days feeling like you are right now. I am so sorry. try and focus on something good and positive maybe your grandchilds smiling face anything to help. the pain can play tricks on our minds. suround yourself with as much comfort as you can and hopefully you can get some meds this week that will help. I would see if valium or more valium would help if you feel up to it. most of the time it helps me, and when it doesnt it makes it harder to cry. prayers your way

momtofourangels
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Date Joined Apr 2010
Total Posts : 2265
   Posted 12/4/2011 4:50 PM (GMT -6)   
Hi Alcie I'm so sorry that you're hurting so much. *hugs* I really do hope that your doctor can help you tomorrow. I will be praying for you.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 12/4/2011 6:36 PM (GMT -6)   
Oh Alcie, I am so sorry for the increased pain.  I can understand because I was in the same condition a few days ago.  It did get a little better though and for that I am eternally grateful!
 
I hope you will find some well deserved relief.  Children are such a joy, but the pain they can bring with such a swift movement takes a lot out of us CP patients.
 
I took my daughter to the parade in two cities (tiny little towns actually) this weekend, but I never made it to watch the parades.  I actually waited in the car for the last one and had to leave the first one after just a FEW minutes.  I am glad she was able to go, but sorry for the increased pain and the inability to fully participate.
 
I have the back issues and a great deal of spasms.  I am finding that the Oxy IR, Ultracet, Xanax CR, and Soma are working pretty well as a combination.  Perhaps one of these will help to relax your back and help it get back to a better place.
 
Have a Merry Christmas and enjoy it as much as you can.  I hope you feel better soon!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet, Vision Issues & much more.....

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 12/4/2011 8:26 PM (GMT -6)   
Thanks to all. I got going at 8 with my regular tramadol, 4 more Advil, diazepam, Topamax (not doing much for pain). Getting up, away from lying down helps the shoulder. Too bad I can't sleep like a horse. Lying on the heating pad is better for the back. I got some odd jobs done, laundry and such. Now the pain level is kicking up while I type. I'm dreading going back to bed. Couch and recliner no better. I'll take temazepam, more Advil tonight instead of just Ambien and melatonin. (don't want to add narcotics to benzos)

The only thing that I can take that stops severe muscle spasm pain and doesn't give me bad reactions, and I've tried loads, is diazepam, which my pain doc forbids, even 1 lousy mg (half the smallest dose). I'll have to face him about that tomorrow afternoon. The TENS unit helps back pain some but not enough to make this one bearable.

I've been really good about getting off all my narcotics (except 3 tramadol for fibro) since sinus surgery this summer, the burst appendix abscess followed a week later by the necrotic sigmoid colon, then the shoulder surgery which is hurting a lot worse than all the others and isn't quitting. I got tolerant but not addicted to the narcotics. Odd, I thought. Easy to just quit.

Straydog - The best diagnostic tool, from my pain doc, not my 1st shoulder doc, was the MRI (no rads either). It showed tendonitis and bursitis. 1st shoulder doc did x-rays showing bone spurs. Not terribly useful, his exam not impressive either. That was over a year ago. When 2nd shoulder doc got in there (after 3rd confirming opinion), there were a bunch of tears in the rotator cuff. He removed the bursa, shaved the bones (acromiopasty), debrided the tendons of the cuff, biceps and the labrum cartilage, which takes a long time to heal because it has a very small blood supply.
Mine may be related to auto wreck 2 years ago, or overhead work like painting or repeated arm motions, although I've never had an occupation like that. It hurt deep in the joint, stabs from bone spurs, radiating pain up neck, into back of shoulder, down the biceps all the way into my hand, still hurts like that but no stabs from bone spurs. The pain was, still is, horrible on abduction (away from body) with overhead reaching. I'm not allowed to do any abduction exercises or motions for a long time while rotator cuff heals.

Thanks again. Thoughts always appreciated. I hope not to be up posting in the middle of the night.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/4/2011 8:37 PM (GMT -6)   
Oh Alcie, it's beyond horrible when you're in so much pain and nothing will touch it.

I hope that your PM appointment is productive.

My very best wishes to you for some healing and reduced pain *gentle hugs*

Laura
CRPS since 1999, diagnosed in 2005 and since spread to full body, spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physio

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/4/2011 11:13 PM (GMT -6)   
Hope you get some real relief very soon, your story was very hard to read. It's really tough to deal with that kind of long term, steady pain, especially if you don't have the right mix or strength of meds to help ease it.

Hope you see some improvement soon, I really feel bad for you.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/4/2011 11:58 PM (GMT -6)   
Oh Alcie.....I am so sorry for your suffering. There nothing worse then not be able to get comfortable. I pray that you will get some relief soon.


Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 12/5/2011 12:03 AM (GMT -6)   
Focus on your appointment tomorrow and I hope tonight goes better for
you, will be thinking of you in hopes you'll be getting a low pain day soon...
Many many well wishes and prayers....keep us posted we do care...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 12/5/2011 8:00 PM (GMT -6)   
Temazepam (Restoril) made a big difference getting through the night. Makes me suspect there is a muscle component to the back pain (also the shoulder pain because that was better too). I was only up a couple of times. The problem with that med is it lasts too long. Duration of action is at least 8 hours (not the same as half-life). I stay dizzy a lot longer, had to be careful driving to doc's office.

Pain doc gave me some trigger point injections. Sometimes they help. So far not, but it's early. Then he sent me to X-ray to rule out compression fracture. I'm to wear my back brace for a while. Rheumy said not to because it makes the back muscles weak from not having to work, but if it's fracture ....

Somebody keeps saying ice. That's the thing instead of the hotpad tonight, then the temazepam. No driving tomorrow.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16796
   Posted 12/6/2011 4:18 PM (GMT -6)   
Alcie I have always heard that shoulder surgery is one of the very worst ones to have because of the recovery being so painful. Whenever one of our clients had shoulder surgery they always told me it was the worst of the kind. Once you get past the recovery its fine but its just getting there and I understand its a rather lengthy one. Like you say no position is comfortable when its time to sleep. Careful using a heating pad too much sometime the heat will cause inflammation.

The reason I asked about your shoulder is I hurt mine this summer and its been awful. I get horrible spasms and if it were not for Baclofen I would be out of my mind. When they hit its from the top of the shoulder down the arm and across the chest. My PM dr wants me to have a CT done but I am currently trying to get a bunch of medical bills paid off.

Take care.
Moderator Chronic Pain Forum

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 12/6/2011 4:54 PM (GMT -6)   
SD -
Is CT cheaper than MRI? My pain doc had me get MRI. I think because it was better, or maybe just because it was no radiation. Worth checking out. I don't know which would be better, but you want to see what's best to look at cartilage, muscle and tendon - to see if you have a torn rotator cuff. If you let torn cuff go it just gets worse. Mine wasn't bad enough for cutting and reattaching tendons. Labrum cartilage wasn't bad enough to need to be pinned. I got away with just cutting away the frayed parts, along with trimming the bones and removing the bursa which goes along with just about any of the ops.

I'm getting pretty good pain relief right now from temazepam, but since that I can't take that in the daytime of for very long, I'll ask the pain doc if Baclofen would be worth trying. Temazepam knocks me out for a while at night, better than Ambien and also relieves muscle spasms in shoulder and back. Of course they come back, but so far, not until after noon. Evening isn't much fun.

Back to the ice. Off comes the back brace. I was hoping to hear about the X-ray today. My hematologist can look it up tomorrow morning when I see him.
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