I'm sorry for your pain and current struggles *hugs*
I can't relate to the Crohn's, but a friend of mine has a daughter diagnosed with CFAPS and I can see the similarities between it and CRPS (complex regional pain syndrome), which I have. My CRPS affects most of my body externally, rather than causing visceral pain, but it too is neuropathic (nerve) pain, in my case brought on by knee surgery.
It can be caused I think by any injury to the nerves of the gut... I'm not a doctor, but maybe the Crohn's lesions could have the same ultimate effect? Don't give up mate... They're not accusing you of it being in your head, but make sure you keep pushing. You need to know what's going on.
The first line meds aren't those usually though of as pain killers... I know with my friend's daughter she was treated with low dose anti-depressants and now is doing well.
Post Edited (CRPSpatient) : 12/4/2011 2:49:32 PM (GMT-7)