how do you keep going when you feel your worst

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Equestrianne12
Regular Member


Date Joined Dec 2011
Total Posts : 63
   Posted 12/4/2011 3:52 PM (GMT -6)   
I am new to healingwell website. I have Trigeminal neuralgia and a severe form of crohns/colitis that affects my entire digestive system since I was 7. lately the good days have become very few, it used to be about half and half and now it is about 90% of my life spent in severe pain. These last few days have been awful especially because I have hit that place of negativity where the pain has worn on too long with no relief. how do you best keep up your morale during the hardest times of pain?

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 12/4/2011 6:00 PM (GMT -6)   
Hello again, and welcome I am nini/Kathy.  This is going to sound oversimplified, but one day at a time.  Thats, at least to me the best way to maintain.
 
Also make sure you have friends and family to talk to, hopefully they will listen.  And of course you now have the HW family where someone is always there.  Many, many of us suffer from insomnia and so this is a good place to be at 3am.  Also I am aware there is a place to, oh yeah the name of it is Chat room, so theres another place to go where someone will have like minded on how you are feeling.
 
Its time for me to go, it just took me three times to spell the word feeling.
 
Good luck and take care, there is a big world out there, you will find your way.
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/4/2011 6:14 PM (GMT -6)   
Hello and welcome to hw forum. Nini is right you have to take one day at a time. Are you on pain meds. you may have to talk to your doctor and have them adjusted.
Surround yourself with family and good friends and like Nini said come on the forum or chat there are many of us are in the same boat.
I have found this forum very helpful and full of caring people.

Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 12/4/2011 10:54 PM (GMT -6)   
It's also good to seek out help with counseling, cause any chronic condition can
cause problems...On my bad days, I'll just stay home and not do much of anything...
except rest...heating pads help and sometimes ice packs help, try either or
a combo of both...I do have a group to do things with on Wednesdays
and I do my best to make it...We all have that struggle here and we are like family,
glad you found us, others will come by with better advise, many well wishes to
you in hopes you can get a low pain day soon..keep us posted as we do care....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 12/5/2011 9:39 PM (GMT -6)   
hi there! i have crohn's disease also and the past two plus years have been horrible. i've had the disease for over 20 years but the pain is a new symptom- so bad i'll be sitting on the can puking bc my gut hurts so bad. there are days when i want to quit- when i want it all to stop...then i think about my beautiful 6 year old daughter and know that no matter how bad it hurts and no matter how much i think life might suck at the moment there's always one little girl who's ready with a big snuggle- that's what keeps me going. i hope your conditions settle down and you can find some relief!
37 year old male living in AZ. Diagnosed with Crohns at age of 15.
Currently on 20 mg prednisone. still taking Asacol. Done with Remicade- antibody level was over 8! Waiting for scope results to see about Humira or Cimzia.
In the middle of a bad flare now for 2 years...it's been one heck of a ride!

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 12/7/2011 9:01 AM (GMT -6)   
Good Morning and welcome to our wonderful family of warm, caring people.

We all go through difficult days and when I have high pain levels i sit and watch a movie or read a book.

I always keep my pain doctor in the know on how Im doing. I take a low dose of oxycontion and some days it isnt enough relief.

One day at a time is the key

Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/7/2011 9:54 AM (GMT -6)   
Welcome to HW. I am glad you found us but so sorry that you are suffering so terribly with your pain.
My motto has been One Day At A Time. It's all I can do. And even sometimes it's one hour at a time. I have been suffering with continuous severe headaches for several years now and I am at the point, after having tried everything, am realizing that this is the way it's going to be for me. So I am working on accepting this illness and trying to make the best of every day. It's not to say that I am not in bed crying, because I certainly have my share of those days too. It is not easy living with chronic pain, but I can't change my pain. I can change how I go about my day.
I sure hope you will come back and keep posting. Perhaps tell us more about your illness, meds you take, treatments you are trying or have tried, etc.
We all care and we are here to help one another.

I hope you can have a good day.
Take care

--Suzane
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