Gabapentin and any stories if pain relief.

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Lasardo
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Date Joined Jan 2011
Total Posts : 373
   Posted 12/7/2011 1:04 AM (GMT -6)   
I take 100 mcg of fentenyl every two days, 15 mg oxycodone for breakthru and soma. I have been on the same dosage for 5 years. This is a reasonable dosage for my amount of pain but i still do not find complete relief.
I also see a chiropractor and find some relief there.
My new pain specialist recently started me on 300 mg of gabapentin/neurontin and am actually finding some relief from it. I was curious how high this dose can go and any stories of other methods others have used to control their pain.
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,interstitial cystitis,ileostomy,chronic pain,arthritis,fibromyalgia,severe 42 degree scoliosis,degenerative disc dx,neurological impingement,pelvic tilt and complete loss of neck curve. 4th degree tear during childbirth with 13 reconstructive surgeries (including fistulas) resulting in chronic pelvic pain and an ileostomy. Bp and panic attacks.

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/7/2011 1:39 AM (GMT -6)   
Lasaro...I take 2700mg a day that is just above halfway. My doctor said the high end is around 4600mg. I started with 300mg almost 6yrs.ago but my doctor increased it slowly, and have been on this dose for almost a year now. Yes, I do get relief but is different for everyone. Hope you find relief soon.


Take care, Amy



Hello Amy! I took the liberty of removing your duplicate post of this reply. It happens!

Thanks! SE
wink

Post Edited By Moderator (Screaming Eagle) : 12/7/2011 1:03:31 AM (GMT-7)


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/7/2011 2:30 AM (GMT -6)   
Good morning Lasardo!

I was wondering what your pain is on a scale of 1-10 when you are on your pain med's?

It is rare, that a CP patient finds complete relief even when on pain med's. Everyone is different in what they find as an acceptable amount of pain relief when on these medications. As an example, for me personally, I find that anything over a 4 and reaching a 5 is interfering with my quality of life. When being treated for chronic pain, I believe one must be careful in their expectations, and not reach the point that a patient may over look other hidden health problems…..some of them may be life threatening and quite serious.

It's just food for thought and my opinion only. I'm not here to judge you, but only to suggest and make sure your expectations are within reason. My sister had taken the Neurontin, and did very well on it. However one of the side effects was gaining weight, and she gained it rather rapidly, so she had it removed from her arsenal of pain relievers. I believe she is now looking at Cymbalta, a med I had tried recently. For me, it worked rather well at first, but then quickly lost it's pain reducing qualities. Since it is a depression med as well, it was bothersome to me, and changes to my personality became unacceptable.

I do know a few CP members that take a combination of the two med's and do rather well on them. (Neurontin/Cymbalta)

I think my sister summed it up for me, in that it took the joy right out of my heart.

Good luck to you, and be-careful .shakehead

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am"

Post Edited (Screaming Eagle) : 12/7/2011 2:26:51 AM (GMT-7)


hopeful63
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/7/2011 3:08 AM (GMT -6)   
eyes

HI GABAPENTIN GREAT COMBO WITH OXYCONTIN BUT HAD TO STOP BECAUSE OF WEIGHT GAIN OF 70 POUNDS IN 2 YEARS SO TRY TO FIND ALTERNATIVE IF YOU HAVE PROBLEMS WITH WEIGHT. I NEED PAIN MEDICATION FOR FACIAL NEURALGIA THAT WONT CAUSE WEIGHT GAIN

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/7/2011 3:35 AM (GMT -6)   
Welcome Hopeful63!

I would like to invite you to start a new thread, by clicking on "Post a New Topic" button. There is a good reason for this, and that is,... that not all members read each and everyone of these post. You will be far better served by starting a new post and introducing yourself. This way you will reach out to a much larger population, and may receive far better support and answers to your questions.

I'm sorry for your health problems, but so very glad you found this site!

Again, "Welcome" and please consider starting a "New Post"

Thanks, and Take Care!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am"

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/7/2011 10:08 AM (GMT -6)   
I had previously been on 3600mg per day of Gabapentin but unfortunately it did not help me.

I wish you much luck with this med.

Suzane

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 12/7/2011 11:34 AM (GMT -6)   
I am on 200-300mg neurontin 3 times a day and 10-15mg oxycodone and 30mg amitriptyline at night and this gets pain down to about a 4-5 and is much better so working for me. To be honest any weight gain would be fantastic as have Crohn's and ileostomy and shortbowek syndrome so need to eat about 4000 calories a day to maintain weight at normal level and I'm finding that hard at the moment as the exhaustion from the Lupus is meaning I'm too tired to eat full amount of calories needed.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 12/7/2011 12:50 PM (GMT -6)   
I find my pain at about a 6, I am in bed a lot and find it hard to function properly, although I do have some good days.
Like stripy I have crohns disease and an ileostomy, I weigh 93 pounds and find it hard to just maintain that, I am excited to read that it helps with weight gain! Any poundage is welcome!
Thank you everyone for responding to my post, very helpful..has anyone tried the invert ion table? ..because I have so much pelvic pain I thought it may help to get that pressure of my pelvis, if so do have any idea how much it may be?
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,interstitial cystitis,ileostomy,chronic pain,arthritis,fibromyalgia,severe 42 degree scoliosis,degenerative disc dx,neurological impingement,pelvic tilt and complete loss of neck curve. 4th degree tear during childbirth with 13 reconstructive surgeries (including fistulas) resulting in chronic pelvic pain and an ileostomy. Bp and panic attacks.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 12/7/2011 1:52 PM (GMT -6)   
Hello, I have been taking Neurontin for 3 years along with my ms contin 60mg 3xday, 10 mg percocet as needed for bt pain and 300 to 600 mg of Neurontin.  This has worked well for me, I was going to try Cymbalta, but I have changed my mind.  None of what I take makes all the pain go away, nothing does and nothing ever will.
 
All I look for is a good quality of life with being disabled, and that is what I get, and I am grateful.  If you keep looking for something to make the pain go away and never come back, and you find it, please  let everyone know.
 
Good Luck to you and take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 12/7/2011 9:57 PM (GMT -6)   
Screaming eagle and nini,
I tried the cymbalta also and it had bad side effects in the mental department. It made my depression worse.
Nini as far as pain releif I can say that I was on double the amount of pain medication (200 mcg of fentanyl, 30 mg of oxycodone, 350 mg of soma) when I found a medication that controlled my depression my pain went way down and I cut my dosage in half. I believe that the two work and in hand. When your pain is triggered your depression is triggered and vice versa.
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,interstitial cystitis,ileostomy,chronic pain,arthritis,fibromyalgia,severe 42 degree scoliosis,degenerative disc dx,neurological impingement,pelvic tilt and complete loss of neck curve. 4th degree tear during childbirth with 13 reconstructive surgeries (including fistulas) resulting in chronic pelvic pain and an ileostomy. Bp and panic attacks.

weathernut
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/13/2011 7:09 PM (GMT -6)   
I was taking 10/325 hydrocodone 4 times a day along with 300mg gabapentin 3 times a day. I asked the doc to take me off the gabapentin because it makes be so drowsy that I can't function.
Spinal fusion C2-C5

sunflower7
Regular Member


Date Joined Jul 2008
Total Posts : 75
   Posted 12/13/2011 9:53 PM (GMT -6)   
I have been taking Gabapentin for about 5 years.
3000mg per day. My neurologist says that is about the top amount that should be taken.
Works for neuropathy in my arms and hands. Without it I wouldn't be able to function at all.
The effectivness became less a few months ago so I started on Cesamet which also helps the neuropathy.
bonnie

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/15/2011 10:01 PM (GMT -6)   
Lasardo, Gabapentin had me so dopey I couldn't function and like you Cymbalta had serious mental side effects for me. I suffer from mild depression - with the cymbalta on board it became severe depression and borderline psychosis, to the point that I very nearly came to physical harm.

Instead I'm on Topamax and it certainly does help. The downside for me - and certainly would be for you too - is that it can cause weight loss. My gastroparesis is stable again at the moment, but I can lose 5kg (~10lb) in a week when I have a crash.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 12/16/2011 12:08 AM (GMT -6)   
Funny thing,
Topamax as caused serious mental side effects and my weight is down to 93 pounds so couldn't afford to lose anymore. But thanks so much for the suggestion. My doctor is going to up the gabapentin I am hoping at the next appointment.
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,interstitial cystitis,ileostomy,chronic pain,arthritis,fibromyalgia,severe 42 degree scoliosis,degenerative disc dx,neurological impingement,pelvic tilt and complete loss of neck curve. 4th degree tear during childbirth with 13 reconstructive surgeries (including fistulas) resulting in chronic pelvic pain and an ileostomy. Bp and panic attacks.

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 12/16/2011 7:38 AM (GMT -6)   
It is so hard to find complete relief Us chronic pain ppl have a difficult time getting pain relief.

When is your next appointment with your doctor to adjust meds?

Please keep us updated on your health.

soft Hugs
Betsey.
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 12/16/2011 9:57 AM (GMT -6)   
My next appointment is December 21 ..can't wait, hoping he will up my gabapentin..
Crohns dx,Pelvic Floor Tension,Pelvic Adhesive dx,interstitial cystitis,ileostomy,chronic pain,arthritis,fibromyalgia,severe 42 degree scoliosis,degenerative disc dx,neurological impingement,pelvic tilt and complete loss of neck curve. 4th degree tear during childbirth with 13 reconstructive surgeries (including fistulas) resulting in chronic pelvic pain and an ileostomy. Bp and panic attacks.

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 12/17/2011 12:53 AM (GMT -6)   
I have heard great things about both Neurotin and Lyrica. I've also heard there can be significant side effects as well. Considering that I'm already on two moderately potent medications, I decided to pass on talking to my doctor about adding Lyrica or Nuerotin to adjuvant pain control. However, about 80 percent of the time I achieve moderate to significant pain relief with my current regiment.

Then there's that 20 percent of the time when I'm not receiving proper pain relief. However, with both medications as I understand, they have to be taken daily for any substantial affect. Perhaps if my pain were unsatisfactorily treated about 40 percent of the time on my current regiment I'd consider it and its something to keep in mind IF that happens. :)
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures helped for months, but pain is up and im having the procedure done again. Currently on 75 mgs of Nucynta (tapentadol - A MOR + NRI) 2 to 3 time per day and Soma 350 as needed.
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