Spinal Cord Stimulator for Chronic Groin pain

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BeanieCanada
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/10/2011 11:24 AM (GMT -6)   
I am a female with chronic groin pain for over 4 years now. I have had 2 trial SCS implants and 1 permanent implant that has not worked properly yet. I am having another surgery Dec 14 to see if the Dr can get the SCS working in the area that I have my pain. Does anyone have any experience with SCS for chronic groin pain?

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/10/2011 12:22 PM (GMT -6)   
Hello Beanie C!

Welcome to the Chronic Pain forum!

We have several members who have the SCS implants, many for cervical and lumbar pain problems, but I'm not sure about the groin pain.
Keep checking back, and in the meantime you may want to do a search by using our search button located in the upper hand corner of this page.

We are a Chronic Pain support forum for members and or their families and visitor's, so feel free to visit us often. Of course we always welcome support for our members as well.

We appreciate your interest and hope that you will find answers to your questions.

Again Welcome!

SE wink
Moderator Chronic Pain Forum

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Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/10/2011 12:25 PM (GMT -6)   
I did a quick search, and this should get you started on your search for SCS chronic groin pain.

www.healingwell.com/community/search.aspx?cx=010904608862850737972%3A1v124njdg5g&cof=FORID%3A9&ie=UTF-8&q=SCS+for+chronic+groin+pain&sa=Search&siteurl=www.healingwell.com%2Fcommunity%2Fsearch.aspx%3Ff%3D16

SE
Moderator Chronic Pain Forum

Weekly Quote!

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/10/2011 12:30 PM (GMT -6)   
Good morning beaniecanada. I assume from your name you live in canada. I am in Ontario.

Welcome to our chronic pain forum. Glad you found us but sorry you are suffering with this groin pain. What do your docs say the groin pain is from? Are you on any meds for this?
I don't know anything about SCS, but like Michael said, there will be others coming along that might have some info for you.

I wish you well and hope you will keep posting with us. You will soon get to know that the members here are very caring and understanding. We all suffer from some sort of chronic pain. Myself, I have continuous severe headaches which have been there since 2000.

Take care,
Suzane

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 12/10/2011 3:56 PM (GMT -6)   
Hi Beanie Welcome to the chronic pain forum. I'm sorry that you have so much pain. I don't have groin pain as you do. I have back pain. There are some members that have the SCS. They might be able to give you some ideas about it. Take care. I wish you well.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/10/2011 5:04 PM (GMT -6)   
Hi Beanie, and welcome. I'm sorry you have so much pain and so many problems with the stim.

I've had an ANS stim for 5 1/2 years. Mine covers more or less hip to toe.

What's been your problem with getting the SCS to work? Is it a matter of coverage and getting the stimulation into the right area, or trying to get the right sort of sensation?

What sort of SCS do you have? What sort of leads (i.e. percutaneous or paddle). I had a lot of trouble with lead migration and with coverage - I could only get very patchy stimulation with a perc. lead and I wasn't willing to have a traditional paddle implanted. I had a very narrow paddle implanted that is done the same way as with perc. leads: http://www.sjmneuropro.com/Products/US/1Column-Paddle-Leads.aspx

Laura
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bone spurs, bursitis, carpal tunnel syndrome, osteoporosis, osteopenia, compression fractures T4-T8, T10-T12.

On Oxycontin/Endone, Topamax, Mobic, Magnesium, Florinef, Midodrine, Somac, Cipramil. Have SCS, intrathecal pump with baclofen & bupivacaine and doing physi

BeanieCanada
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/11/2011 8:18 PM (GMT -6)   
Hello. ty for all the replies to my first posting. I have been trying to get as much done as I can before my next SCS implant on Wednesday.  With Christmas so close, being in surgery recovery again after surgery 2 weeks ago, I am feeling a little (no, a lot) sorry for myself. I have had 2 bladder suspensions, 1998 and 2004,  those surgeries have been given as a possible reason for the nerve pain/damage, the ilioinguinal nerve and the femoral nerve. I have tried every med there is, too many side efffects. I so want to get off the opiod meds, but without them at this point I would have no life at all. I have stomach ulcers, diagnosed as H Pylori, but I think that there are probably ulcers caused by all the pain meds. 
It is wonderful to talk with people who understand the loneliness of chronic pain, look forward to anyone especially who has Spinal Cord Stimulator  experience. I have only one kead for my pain area, so far, it seems like it has been difficult to get the SCS to work in only that area.

LifeOPain
New Member


Date Joined May 2012
Total Posts : 3
   Posted 5/4/2012 5:43 AM (GMT -6)   
Hi,
I am a 28yo male, new to the forum, who has been suffering from chronic abdominal and groin pain(particularly in the testicles) for the past 4+ years due to a surgical mistake from an army doctor (he thinks). It has made life unbearable. Every action that requires the use of the abdomen (so basically everything), and every bump or jar causes extreme pain. I had an SCS implanted two years ago, which provides a little relief, but am still taking Exalgo ,Nucynta, Flexeril, and using Lidoderm Patches just to be able to function at a minimal level. The pain has gotten so bad that it has made walking impossible for most of the day, and I am confined to a wheelchair for about 80% of the time. I use a cane or walker the rest of the time. My wife and I recently invested in a split king, Tempurpedic style, adjustable bed, which has raised my average nightly sleep (even using sleeping pills) from 2.5 hours to almost 4 hours per night. I thought that there was no hope for any added relief, as my last pain specialist (I recently requested yet another switch in doctors, and will start with a new one in a week) stated that I have taken every narcotic and was at the end of the line in terms of pain relief. However, reading through the forum, I see that some have found relief from an Intrathecal Pain Pump. I am thinking about discussing this option with my new specialist. I looked it up and found some information using Google, but I have a few questions for those with experience with these devices.
1) If I am able to get an IP pump, will I have to give up my SCS? The SCS does provide some relief (even if it is only from a 10 to an 8 or 9 at times), and I don't want to give it up.
2) How useful has the pump been for you? I have a 1.5 year old daughter, and I would love to be able to play with her. I haven't been able to pick her up and hold her since she was around 12 pounds. Have you found that you are able to live a life that is closer to normal having the pump implanted?
3) I take a large amount of medication throughout the day. Has the pump allowed you to curb much of your oral medication use?

Oh, and to the woman dealing with the groin pain, I keep a copy of all medical records and surgical reports close at hand at all times. What do you need to know? I have two leads going into my spine, and it took about 2 or 3 hours of working with my rep from Boston Scientific in order to get the 4 programs right where they would actually concentrate on my groin so that I could turn the device up without my abs spasming (my rep is awesome! He has even met me at my home when I have been unable to get out of bed in order to meet him). If your device is also Boston Scientific, perhaps I could give you the name of my rep, and your rep could possibly get a copy of the settings used on me as a starting point in order to better help you. If I can help, I am more than willing. I know how hard it is to live with pain like this, and how hard it is to talk to people about it. Nobody who isn't in pain 24-7 can possibly know what it is like to try to be sociable, or avoid depression when dealing with the pain we go through. I am thankful to have found this forum and to see that I am not alone.

Post Edited (LifeOPain) : 5/4/2012 5:00:23 AM (GMT-6)


drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 5/5/2012 1:33 AM (GMT -6)   
Hi Beanie...I have herniated disks, spinal stenosis, multiple neuropathies, etc. and have suffered with pain for many years. Among other areas of pain, I have daily pain in my testicles, groin, inner thighs, etc. I don't know for sure, but I'm convinced that my pain in that area, as well as others, is nerve related. Just recently, my pain clinic has suggested I look into spinal stimulation for the pain in my lower extremities. I wish I had more info to give you, but I'm in the research stage as well. I wish you relief from your pain.

Eric
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7

Spinal Stenosis

Degenerative Arthritis Left Knee...11 Surgeries

Pes Planus Both Feet

Multiple Neuropathies

Brachial Plexus/Thoracic Outlet Syndrome

Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles...11 Surgeries for Nerve Damage in Upper Extremities...27 Operations Total

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 5/5/2012 2:33 AM (GMT -6)   
LifeofPain - hello, and welcome here.

Might I ask that you start a new topic to introduce yourself? This is quite an old one, so chances are that not many members will read it.

To answer you question though - it's quite possible to have both. I had my SCS implanted in 2006, then IT baclofen pump in 2008. It does mean that I have a lot of hardware in my spine, and on my abdomen. It is not comfortable, but compared to the relief it is worth it.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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