chronic sci pain

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New Member

Date Joined Dec 2011
Total Posts : 13
   Posted 12/16/2011 5:55 PM (GMT -6)   
Hello All ! I am looking for suggestions on dealing with chronic sci pain. I have found that you can never hear enough ideas on the different ways people deal with there pain, you think you have heard it all, then someone has a new idea you've never heard of or considered. I have been battling chronic sci pain below my injury level, t6/t7, for two years, mostly burning and cutting sensations. I take max. dosage of baclofen, tramadol and neurontin., and modest amounts of oxycodone at the end of the day. I get plenty of exercise and stretch regularly. My pain is always at a 3-5 level but goes to 10 about every 24 to 36 hours and last for 4-8 hours. Thanks you for any comment you may have.

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 12/16/2011 7:23 PM (GMT -6)   
Hi, and welcome to HW. I'm sorry that you've had reason to join us, but very glad that you've found us - this is a great group of people.

You mention exercise and stretching as well as being on baclofen, so am I right in thinking that you get muscular pain as well as nerve pain? Would something simple like hot/cold packs and massage be helpful for you? I don't have SCI, but have nerve root irritation/radicular pain from multiple compression fractures (T4-T8, T10-12) that gives me a lot of problems with spasm; massage is one of the few things that helps.

Are you under a neurologist or pain management doctor? I wonder if it would be worth speaking to him/her about a change in your meds - neurontin is only one of a number of meds used effectively for nerve pain. Lyrica is another (very similar to neurontin); there are several members here having great success with an anti-depressant med called Cymbalta. I myself take yet another - one called Topamax, which is used for management of migraines or epilepsy.

They're a big jump, but I guess there are also the implant options too, if they are appropriate for your situation. Have you ever heard of, or has your doctor ever mentioned a 'pain pump' or spinal cord stimulator?

I'm sure some of our other members will be along to welcome you very soon, and hopefully they'll have some further input for you.

Take care,

Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 12/16/2011 7:36 PM (GMT -6)   
Hi tst and welcome to the chronic pain forum. I don't have sci pain but I do have back pain. I take Cymbalta and it works pretty well to help my pain.

I wish you luck on finding things that will help your pain. Take care.

Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

New Member

Date Joined Dec 2011
Total Posts : 13
   Posted 1/15/2012 11:03 PM (GMT -6)   
Hello everyone, do we have any members who suffer from Chronic, Spinal Cord Injury pain or "Phantom pains' ? Burning sensations, cutting sensations ? I would really like to here from anyone who is or has dealt with this pain.

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