Posted Today 5:23 PM (GMT -7)
Hi, and welcome to HW. I'm sorry that you've had reason to join us, but very glad that you've found us - this is a great group of people.
You mention exercise and stretching as well as being on baclofen, so am I right in thinking that you get muscular pain as well as nerve pain? Would something simple like hot/cold packs and massage be helpful for you? I don't have SCI, but have nerve root irritation/radicular pain from multiple compression fractures (T4-T8, T10-12) that gives me a lot of problems with spasm; massage is one of the few things that helps.
Are you under a neurologist or pain management doctor? I wonder if it would be worth speaking to him/her about a change in your meds - neurontin is only one of a number of meds used effectively for nerve pain. Lyrica is another (very similar to neurontin); there are several members here having great success with an anti-depressant med called Cymbalta. I myself take yet another - one called Topamax, which is used for management of migraines or epilepsy.
They're a big jump, but I guess there are also the implant options too, if they are appropriate for your situation. Have you ever heard of, or has your doctor ever mentioned a 'pain pump' or spinal cord stimulator?
I'm sure some of our other members will be along to welcome you very soon, and hopefully they'll have some further input for you.
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump