All in my head?

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tara_
Regular Member


Date Joined Jun 2011
Total Posts : 133
   Posted 12/17/2011 12:57 PM (GMT -6)   
Hey,

I usually post in the fibro forum, but think maybe those here would be better able to give me advice.

I've been diagnosed with fibromyalgia, restless leg and chronic fatigue by an internist, neurological pain syndrome by a rheumy, and anxiety by a neurologist. No doctor I have seen has been able to explain my pain, offer a suitable form of pain relief, or even agree on what I have.

I'm trying to give up on my search for answers and accept that pain is just a part of my life, but the pain only seems to get worse and its taking more and more away from my life. I need some form of treatment plan, some direction, but doctors either tell me theres nothing they can do, or that I should try seeing a shrink.

I believe that the type of pain I have is neurological in nature, but the neurologist I saw said that my pain doesnt sound like anything he's seen before, and that I should try anti-anxiety meds. I am the most emotionally grounded, relaxed, and all around happy person I know. This doesn't feel like its in my head, but since I have no other explanation, may he is right.

If anyone can identify these symptoms and point me in the right direction treatment wise, or even just let me know that I'm not the only crazy person with this strange symptoms, I'll take any form of advice:

My pain symptoms are:
-Shooting "electric shock" pains that go up and down my arms, legs, sides, back, even my jaw. Often they start at the joints and increase with movement, other times they happen all over randomly. They can be extremely intense, but individually don't last for more than a minute (except for the one in my lower back/buttocks). They can feel very "thin" or very "thick"
-A more constant sharp shooting pain originating from my lower back/buttocks, that shoots up my back or down my legs with movement.
-Burning sensations, especially in my legs after exercise.
-A tight, twisting, aching, pressure pain in my chest, kind of like the feeling you get when someone hugs you too tight, except its more of a twisting feeling... hard to describe. (had an chest xray done, ultra sound, wrong). This gets much worse with exercise/walking.
-stabbing pains, lasting up to a few minutes at the most, often very intense
-I get a more general pain everywhere... it feels like there's thousands of thin, tiny shooting pains all over my body, up and down my arms and legs like every tiny nerve in my body is burning... but its hard to describe.
-pin prick sensations that happen randomly all over

Not sure if these are related, but there are other weird problems someone my age shouldnt have (im 21):
-Loosing sense of taste, esp. when my pain symptoms increase
-Loosing sense of sexual pleasure, esp. when my pain symptoms increase (barely feel anything *down there,* difficulty orgasming)
-frequent urination
-fatigue/brain fog
-Nearly constant, painful heart burn
-numbness in limbs, not often though and usually only while/after working out

If anyone can relate, and offer a viable form of treatment, it would be greatly appreciated. Thanks for reading.

Post Edited (tara_) : 12/17/2011 12:13:19 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 12/17/2011 3:04 PM (GMT -6)   
Hi Tara, wow you really do have a lot going on in your life as far as different types of pain and symptoms. I learned a very long time ago, if I ever went to the dr with more than 2 problems going on at the same time nothing would happen. The dr would always say which one is the most severe of all and that is what he would listen to me about. The rest pretty much all got put by the way aside. This has happened with nearly every dr I have seen. I have had them tell me lets deal with one thing at a time.

I am no expert by any means, but I do wonder how much all of this is related to Fibro and CFS. Those two right there can cause so many different types of symptoms and problems. The bad part is finding a good dr willing to treat it. What medications have you been tried on for the Fibro? I know a lot of folks are put on nerve meds like Lyrica, Cymbalta, Neurotin with good results for the Fibro. Have you been tried on any of these? What about going to a pain mgt dr for a consult and see what one of them think they could do for you to help get some of this pain under control. Going to a PM dr would probably be my next step if this were me. If you could get a dr to agree most of what is going on with you is a result fo the Fibro & CFS syndrome, it may well be worth a shot to go see one.

I am quite sure because of your age and being so young most drs like your PCP and rheummy do not want to have you on much medication for pain because you are so young. They sort of frown on that and they say well if we start you now we will run out of things to give you as you get older. But, in the mean time you are seeing your quality life issues go down the drain and regardless of how old or young a person is, they are entitled to quality life. Pain does not have an age limit, nor does it discriminate. I would not give up and accept what the drs are telling me at this point. If nothing else I would try to get in at a teaching hospital and see what they think is going on. You still have some options here. I would have to stay at it till I got some better answers.

Anyway, I wanted to say hello and welcome to the chronic pain forum. Keep us posted.
Moderator Chronic Pain Forum

bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 12/17/2011 3:11 PM (GMT -6)   
Hey Tara

I'm on fibro depression and chronic pain forums so I can relate to your troubles.

Have you had a dx of fibro? Are you on meds for fibro ? If so, what are they? Do you see a rheumy or a pain management doc?

Altho I don't get them often, many fibro folks get electric and/or burning pains, chest pain, and whole body pain that may move to different spot whenever it wants. Classic fibro

The shooting pain originating in you buttock could very well be sciatica or sacroiliac joint dysfuntion (alot of fibroers seem to have this problem too.)
Not all of us use pain meds but I would say most of us use them along with muscle relaxers NSAIDS, perhaps SNRI...everyone w/ fibro is on a different cocktail and the process is long. Counseling helps too, chronic illness canreally get you down

sounds like you have some docs who are not up to speed-get a fibro friendly doctor-pain is a major symptom of fibro and should be addressed and not dismissed

Good luck

Maggie
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

cymbalta seroquel hydrocodone klonopin magnesium potassium

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/17/2011 3:22 PM (GMT -6)   
Hi Tara and welcome to the the CP forum.

Straydog and Maggie have given you some excellent suggestions. I probably can't add too much except to reiterate the pain management thing. I know how hard it is to be taken seriously sometimes when you are younger, and there is no justification for it. Severe pain is severe pain.

I hope that you can find something soon to help.

Very best wishes.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 12/17/2011 4:46 PM (GMT -6)   
Hi Tara Welcome to our chronic pain forum. I don't have anything else to offer except to say I would recommend a pain management doctor. I wish you luck with getting your pain under control.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Lulicious
Regular Member


Date Joined Nov 2011
Total Posts : 31
   Posted 12/18/2011 3:46 AM (GMT -6)   
Hi Tara, sorry to hear your in such pain and are not getting the help you need. My suggestion is to go to the top of the Chronic Pain Form and Click on Chronic Pain 101, there are several charts you can print out to graph your pain and what you was doing when it happened. There are several helpful tips there. Then I would bring it to a pain management dr. and share the info with him/her. I know for sure that depression goes hand in hand with chronic pain/illness it wouldn't hurt you to see a counselor or therapist, at the very least you will have someone you can talk to about all this pain. It doesn;t mean that it is ALL in your head, because it definately is not. But what can it hurt? Please keep us posted, I'll keep you in my thoughts for dx and possible a good resolution to it.
Cheryl
DX: spinal fracture L5/S1, fusion 1/96, Spondylolethsis, DDD, nerve damage to both legs and bladder, 4/2007 anterior & posterior fusion L1-S1, 4 Bladder surgeries w/cystocele and rectocele. Partial Hysterectomy 2002 (pre-cancer), Ovaries removed 4/2009, Multipe injections, depression, PTSD, medical induced menopause Meds: MS Contin 60mg a.m, 45mg p.m, oxycodone 30mg tid

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 12/18/2011 10:52 AM (GMT -6)   
Hi Tara
I wanted to welcome you to the chronic pain forum. Glad you found us but sorry for all your pain. That's awful the doctors not believing you. Your symptoms are not in your head, they are real. Don't give up, keep looking for the right doctors for you. There are several members here with fibro so i know they will be along to give you some great info.
Stay with us and keep posting. Let us know how you are getting along.

Suzane

tara_
Regular Member


Date Joined Jun 2011
Total Posts : 133
   Posted 12/18/2011 11:46 AM (GMT -6)   
Straydog - thank you for the great advice. I've, too, learnt to keep things simple during a doctors visit. I just tell them shooting pains and chest pains. The only reason why I am confused by the fibro diagnosis is because both the rheumy and neurologist told me that I didn't have fibro, while the internist and my family doctor think that's what it is. Either way, none of them seemed willing to do anything for me. I've been put on flexeril, cybalta, and lyrica, all of which either made me so tired I couldn't function or violently sick. Apart from those medications, I've been told there's nothing else I can do.

Thanks to everyone else who responded. A pain doctor has never been mentioned and I don't even know if we have them here, but I'm going to look into it. I think I really do need a doctor who is sensitive to fibro issues.

Luckily I'm getting a grant from my school so I can go to physio. I was wondering if anyone with neurological pain had any success with a specific treatment plan?
*Fibromayalgia, chronic fatigue syndrome, restless leg syndrome

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 12/18/2011 2:39 PM (GMT -6)   
Tara, something to consider, going to your regular primary doctor and asking for a complete bloodwork up
with added B and D vitamins, if your low on B-12 or D vitamins, that can cause pain and things...and then seek out
help from a pain management doctor, that is what Straydog /Susie recommended, and I agree, it's a
good starting point but you'll probably have to wait a month or two to get seen by a good doctor...that's
why I suggested bloodwork...from my experiences, I'm low on B-12 and D and supplementing these does help
some...so maybe get checked, by your pcp...to make sure no underlining illness is making your
pain worse....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 12/18/2011 2:44 PM (GMT -6)   
I have diabetic nueropathy (nerve damage due to uncontrolled diabetes). I have had great luck with Cymbalta.

I know you said you tried it before, but you were not clear on why you stopped it, nor did you mention how long you were on it and at what dose or doses. The reason I am wondering about all of this is because Cymbalta is one of those meds that have to be started at the lowest possible dose (30mg once a day) and then slowly increased in 30 mg increments (no faster than every 4 weeks) until a theraputic dose is reached. It is also one of those meds that is cumulative in its effect, meaning the longer you are on it the better it works. It is not uncommon when starting to experience side effects ranging from feeling a bit dopey to nausea which usually go away in about 2 weeks. If started at a higher dose though these side effects can be very intense.

Lyrica is the same way, though the starting dose is 75mg, and I believe the dosing increase schedule is a bit different too.

Of course these medications do not work for everyone, and some people can not tolerate them. I am just bringing up the proper way they should be taken because there are a lot of doctors who do not understand or know the proper dosing of these meds.

As far as anti-anxiety meds and anti depressants many of them have been shown to have pain controlling properties, especially when it comes to nerve and/or non specific pain.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.
Moderator Depression Forum.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 12/18/2011 2:50 PM (GMT -6)   
Hi Tara. I'm so sorry you're dealing with so much. I'd definitely try to find a pain doctor...someone who really wants to find out what is going on with your health, and who is willing to treat you by trying new medications, etc.

I don't know what I would do without my pain doctor. I have a doctor who has a private practice, so I only see one doctor. I don't even see a PA or anything. I like it that way.

I'm pregnant now, and there's no way I would have even considered having a baby without my doctor's support. My point is...there is much to be said for having someone who really listens, is supportive, and cares.

ETA: Maybe you can seek out a good physiatrist/PM doctor/anesthesiologist???

I hope you get some relief soon.

Hugs,

Flower

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 12/18/2011 6:49 PM (GMT -6)   
Hello and welcome to the cp forum, I also agree with Straydog, she is a long time sufferer and knows what she is talking about, I myself have among other things Fibro, I take 300 to 600 mg 3xday of Neurontin and I have found it most helpful.
 
Good luck, and take care,
 
Kathy/nini53
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/18/2011 7:50 PM (GMT -6)   
Hello tara!

I too!... wanted to welcome you here on the CP forum…and I can tell you that you have been in good hands over on the Fibro forum…with Sherrine and Chutz…."caring and wise moderator's!" wink

I really don't have much to add to the good advice,…but agree with NiNi53…that Straydog has a lot of experience…and it may be wise and to your best interest to listen to her. She seldom let's me down when I ask for advice.

Take care, and I sincerely hope you find answers to your health problems. You are "always" welcome here on the CP forum as well….in fact many of our members visit both forum's on a regular,... if not, daily basis.

Good Luck!

SEwink
Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am" author unknown

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/18/2011 8:59 PM (GMT -6)   
tara,

welcome aboard.

you have been given a good spectrum of answers so far, and some pretty good advice.

i believe you, don't let doctor's convince you that it's "in your head", you are the best judge of what hurts and doesn't hurt

there are some anti-anxiety meds, that for secondary uses other than their primary purposes, might help you with some
of the pain. i have been on tranzene for years to help with pain related to radiation damage.

good luck to you, hope you find some help soon, or at least find a doctor that can be more in tune to what ails you.

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 12/18/2011 10:47 PM (GMT -6)   
Tara...Welcome to the hw forum...so sorry your reason for being here. I am sorry I have no other advice to add, you have already recieved alot of great advice. If there is one thing I wanted to say to you is....Don't give up trying to get answers, it took me 3yrs. and 5 doctors until I recieved help. I hope you get relief soon.

Bless you, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 12/19/2011 1:16 AM (GMT -6)   
Tara Welcome to our Chronic Pain family, I am curious as to what type of test you have had done, have they done an MRI of your spine or your brain? any nerve conduction studies? Have you went to any other doctors for a second oppinion? Have you considered going to a University medical school  and be checked out there? Or possibly going to Mayo clinic and have your self checked out? I get more than a little irritated when a doctor says it is ("in ones head") and should see a shrink! I think that is a cop out and your being blown off ! Unless they have done exhaustive clinical studies to rule out physical problems first, and then as a last resort want to check out your mental status, then it might be appropriate, but to often that is not the case. I would continue to search for answers,  it is to easy to blame stuff like this on mental problems such as being anxious and such, instead of trying to find out the real cause! 
 
If it sounds like I have a bit of an attitude about the way your being treated, I do! I have been there and I do not have allot of faith in most neurologist, and have fired quite a few!  Your symptoms do not sound so unusual, to me, and allot of the symptoms sound like problems with the nerves themselves, impingment of the nerve root? or possible something neurological, have they done any studies for MS? You mentioned brain fog? and you have RLS?  do you snore? do you have problems with night sweats, or waking up allot during the night? have they ever done a sleep study on you to check you for sleep apnea? I am no professional or anything, but common sense just tells me that because of the stuff  you have described that there are allot of things other than ("in your head") that  could be causing these things! 
 
As I have said I have been there, I have had a few  neurologist just out right lie to me and blew me off, and I called them on it!  And I got to the bottom of some of my problems and got them fixes, I have had two major fusions done on my neck since 2009, and they fixed my problems I was having!  If I would have listened to my neurologist I would still be in pain! So please keep pressing  for answers, and change doctors if needed, but seek out solutions, and relief to your symptoms.  
 
I do wish you all the best, and keep us informed on how things go for you!
 
Good luck to you
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/19/2011 1:29 AM (GMT -6)   
Hi Tara,

I have full body Complex Regional Pain Syndrome, which is neuropathic pain. I see a physio weekly. Theoretically, most CRPS treatment should be patient-mediated but we've found the best treatment for me is passive - part of my problem (or so the thinking with CRPS goes) is that the brain doesn't recognise or interpret pain and other sensory signals normally. She works on trying to normalise this - gentle pressure, massage (which also helps with my muscle spasms and stiff joints). Magnesium is another thing that helps me.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Sue123
Regular Member


Date Joined Nov 2011
Total Posts : 52
   Posted 12/19/2011 2:02 AM (GMT -6)   
Take heart, Tara, It sounds like you, at the very least, have a vitamin deficiency. A lack of B vitamins and magnesium can cause tingling, B12 , zinc a loss of taste I would spend the next two months trying supplements to correct before reconsidering more serious medications.. (bravo for quitting, these meds have serious side effects and at 21, would have likely given you problems later in life...they have helped others but it's a trade off with the other problems they cause in the long term like diabetes, liver dysfunction, blood pressure, etc) You can email me for suggested vitamins. Get your doc to test B12 and D in your blood, and review this site for other symptoms.http://www.health-science-spirit.com/deficiency.html

Some docs are quick to diagnose, some make sure they've done the necessary blood work to rule out other causes. This site shows what to ask http://www.cfstreatment.info/quick_start_guide_for_practition.htm. Some have had a dramatic improvement on VitD alone. (3000-5000 iu a day)!

If boosting with supplements doesn't help, then I would focus on CFS treatments, these sites have helped me
http://www.drmyhill.co.uk/
http://drlapp.com/
http://helpingfibromyalgia.com/2011/sleep-problems-fibromyalgia/
http://foresttennant.com
http://www.treatmentcenterforcfs.com/ (if considering anti-viral)
http://www.theroadback.org/ (highlights what vit deficiencies result from meds)

best of luck and stay strong, with help and perseverance, life will get better, Laura


"There are many possible causes taste loss – some more easily treated than others. One of the more easily treated causes are vitamin and mineral deficiencies. Vitamin B and zinc seem to be particularly implicated in taste loss.

Some experts believe that as many as 40% of otherwise healthy men and women have a B12 deficiency and are not aware of it. B12 is an essential vitamin that helps develop red blood cells, preventing anemia. It also helps ensure nerve health.

B12 is found in meat, milk, cheese, ice cream, fish, eggs, and poultry. As we age, the body is less able to absorb this important vitamin, so it uses up its reserves which can result in anemia and other health problems.

Symptoms of anemia include: weakness, fatigue, lightheadedness, pale skin color, diarrhea or constipation, bleeding gums, a sore, red tongue, rapid heartbeat (or chest pain), shortness of breath upon exertion and taste loss.

If the deficiency has caused damage to the brain and nerve cells, these symptoms may be evident: numbness or tingling in fingers and toes, forgetfulness, confusion, depression, poor balance and coordination, difficulty thinking and concentrating, ringing in the ears (tinnitus), impaired judgment or impulse control (personality changes), difficulty sensing vibration and dementia.

A simple blood test can check for anemia. Fortunately, B12 deficiency is easy to treat. Supplements are widely available from any pharmacy without a prescription. However, oral supplements are not the first line of treatment. More often a physician will prescribe a B12 shot because it gets into your system much more quickly and in a much larger dose. After these initial shots, you will need to continue to take a B12 oral supplement for the rest of your life to prevent the return of the symptoms of this deficiency.

Taste loss from a B12 deficiency can take over three months to return after treatments begin. In most cases of mild deficiency it will return to normal. "
Neuropathic pain since 2000, born 1960, Fentanyl, Oxycontin
Therapies: Epsom salt baths, sauna, therapeutic yoga, visualization, NLP, massage and chiropractic
Supplements: Source Naturals Multi-Vitamin, Minami Omega Fish Oil, Co-enzyme Q10 Ubiquinol, DLPA, N-Acetyl Tyrosine, Magnesium Glycinate, 3000 IU Vitamin D, Megafolonic, B12 Methylcobalamin, Magnesium Ascorbate (Vitamin C)

Post Edited (Neurodreamz) : 12/19/2011 1:17:40 AM (GMT-7)


Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 12/19/2011 5:26 PM (GMT -6)   
Pain is pain no matter what age you are

Please go to a pain management doctor.

Please let us know what you decide.

Try to have a happy holiday
Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

tara_
Regular Member


Date Joined Jun 2011
Total Posts : 133
   Posted 1/3/2012 10:48 AM (GMT -6)   
It's been a while since I've replied, but I wanted to thank everyone else who has posted.

Chartreau - thank you for the advice. I actually found out I had a severe vitimin D defficiency, and since I've been taking suppliments my fatigue has radically improved, and I don't get muscle pain or weakness anymore. Since I'm vegan, I've always been taking B12 and a bunch of other stuff daily, which I feel like has been helping a lot, mostly with my energy levels. I've had so much blood work done for other stuff and everything is normal.

Jim - thank you for the suggestions. I have tried both cymbalta and lyrica and could not handle either. I was vomiting and shaking for days, miss almost two weeks of school, cannot do either again. I'm going to ask for anti-depressants next time i see my family doctor. It's great that those medications are working for you.

White beard - I have had tones of blood tests (everything normal), a chest scan (also normal), and a brain MRI (clean) and I'm waiting for the results of a sleep study. Pretty much everything has been ruled out. I'm really glad that you have found relief, I really hope that I can find the same one day.

CRPS
*Fibromayalgia, chronic fatigue syndrome, restless leg syndrome

tara_
Regular Member


Date Joined Jun 2011
Total Posts : 133
   Posted 1/3/2012 10:50 AM (GMT -6)   
It's been a while since I've replied, but I wanted to thank everyone else who has posted.

Chartreau - thank you for the advice. I actually found out I had a severe vitimin D defficiency, and since I've been taking suppliments my fatigue has radically improved, and I don't get muscle pain or weakness anymore. Since I'm vegan, I've always been taking B12 and a bunch of other stuff daily, which I feel like has been helping a lot, mostly with my energy levels. I've had so much blood work done for other stuff and everything is normal.

Jim - thank you for the suggestions. I have tried both cymbalta and lyrica and could not handle either. I was vomiting and shaking for days, miss almost two weeks of school, cannot do either again. I'm going to ask for anti-depressants next time i see my family doctor. It's great that those medications are working for you.

White beard - I have had tones of blood tests (everything normal), a chest scan (also normal), and a brain MRI (clean) and I'm waiting for the results of a sleep study. Pretty much everything has been ruled out. I'm really glad that you have found relief, I really hope that I can find the same one day.

CRPS - thank you for the suggestion. I actually just got a grant from my school for physio therapy, so I'm going to start with alternative treaments.

Neurodreamz - wow, so much good information there. I really do feel like at this point, my symptoms are largely due to defficiencies, so I'm willing to try anything. As I said previously, I did have a severe vitimin D deffficiency and I have started taking B12 (I think it's been helping, even with my taste!). I'm not anemic, but I am willing to try any cocktail of suppliments as it's been helping me already. Thank you for the great links!
*Fibromayalgia, chronic fatigue syndrome, restless leg syndrome
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