Does CRPS & Asthma = Churg Straus Syndrome

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GinaP
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/21/2011 6:44 PM (GMT -6)   
Hi.
I've been diagnosed with CRPS due to a left leg injury 6 years ago. It seems I've also now got Arthritis in my ankle, knee and my hip is showing signs of wear now too. I've had several steroid injection treatments & a sympathetic lumbar block which have not eased my pain. And despite numerous medications I'm not able to get rid of the pain. The burning sensation and the constant electric shocks/buzzing in the leg has just progressed over the years. It's not crept up to under my ribs & when I'm having a really bad attack from the nerves the sensations go right up to my head. I am regularly flushed/red faced and shaky.
As if this wasn't enough the drugs make me a bumbling idiot at times! And to top it all off, I am also an Asthmatic!
I wondered if anyone has any experience of CS Syndrome and if they could be able to expand on the symptoms experienced with this condition.
From what I've read on-line so far, it does look like people who have a leg nerve condition like CRPS like mine and are also Asthmatic should be checked for CS Syndrome. Is this reasonable to suppose?
Any advice would be greatly appreciated.
Thanks & Merry Christmas everyone.
Gina

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/21/2011 7:57 PM (GMT -6)   
Hi Gina, and welcome to Healing Well. I'm so sorry that you have CRPS. I have had it for nearly 13 years now, though I was only diagnosed 6 1/2 years ago. It started in my right knee following an injury and surgery when I was 14, got worse with a second injury and surgery when I was 20 and since then has spread everywhere.

I hadn't heard of Churg Strauss Syndrome, so I had to google it just now to check it out. I think they're probably completely unrelated. CS from what I can read is a vasculitis - an auto-immune inflammatory disease of the blood vessels themselves. With CRPS, it's thought the main problem is with how the central nervous system recognises and processes pain signals - this is called 'wind up' and 'central sensitisation' and is why we get so sensitised to things like normal touch. I believe they have now actually found brain changes as well (the process is called 'neuroplasticity').

Part of the process is an inflammatory type response for sure - the sympathetic component (the swelling and colour change), but the vascular changes of CRPS are nerve related - to my knowledge all that is happening is vessel constriction or dilation, not vessel damage. With any vasculitis, there is physical destruction of the vessels. Does that make sense?

Anyway, welcome again. Good to have you among us, but sorry you've reason to be here.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

GinaP
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/21/2011 8:22 PM (GMT -6)   
Hi Laura,
Thanks for the quick reply and the very warm welcome.
I think I understand the differences and your explanations of CRPS is great. Thanks again.
I guess I'm worried that my doctors have not checked for this CS and it sounds very serious and life threating. It's taken 6 years to get to this point of a CRPS diagnosis and i don't particularly want to wait another 6 years to be told it's something else.
Is it normal for me to still have such pains and hypersensitivityeven when on so much pain killers? I take Tramadol or Tramaquil, Pregablin or Lyrica, , Naproxen, Nortryptaline.
Gina

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/21/2011 11:28 PM (GMT -6)   
Hi again Gina,

I think it's always important to make sure other things have been ruled out. Because there really are no tests for CRPS as such - unless say, you get profound relief from sympathetic nerve blocks or something like that - it really is a diagnosis based on symptoms/signs, history and exclusion of other diseases that can mimic it. Have you had much testing done? Your doc should at least do some imaging of your leg and blood work to look for any evidence of auto-immune disease or ongoing inflammation or unhealed injury. My doc tested me for lupus, RA and things like that pretty early on.

Pain - I don't think there is a normal with CRPS so honestly I don't know. I take Oxycontin (+ Endone for BTP), Topamax, Mobic & Cipramil, I've got a baclofen/bupivacaine pump and SCS. I don't have the extreme hypersensitivity anymore thanks to the topamax and the bupivacaine, but my deep pain on a bad day is still close to 10/10.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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