Posted 12/21/2011 5:57 PM (GMT -7)
Hi Gina, and welcome to Healing Well. I'm so sorry that you have CRPS. I have had it for nearly 13 years now, though I was only diagnosed 6 1/2 years ago. It started in my right knee following an injury and surgery when I was 14, got worse with a second injury and surgery when I was 20 and since then has spread everywhere.
I hadn't heard of Churg Strauss Syndrome, so I had to google it just now to check it out. I think they're probably completely unrelated. CS from what I can read is a vasculitis - an auto-immune inflammatory disease of the blood vessels themselves. With CRPS, it's thought the main problem is with how the central nervous system recognises and processes pain signals - this is called 'wind up' and 'central sensitisation' and is why we get so sensitised to things like normal touch. I believe they have now actually found brain changes as well (the process is called 'neuroplasticity').
Part of the process is an inflammatory type response for sure - the sympathetic component (the swelling and colour change), but the vascular changes of CRPS are nerve related - to my knowledge all that is happening is vessel constriction or dilation, not vessel damage. With any vasculitis, there is physical destruction of the vessels. Does that make sense?
Anyway, welcome again. Good to have you among us, but sorry you've reason to be here.
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump