MY INTRATHECAL DRUG PUMP IMPLANT SURGERY

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

No Worries!
Regular Member


Date Joined Sep 2011
Total Posts : 225
   Posted 12/22/2011 6:08 PM (GMT -6)   
about two weeks after my Drug Pump trial was successfully completed I was scheduled for my permanent pump. Registration was standard where I spoke briefly with everyone involved in my surgery. They wheeled me into the operating room where I positioned myself on the operating table on my right side. I was promptly taped down to the table and my back, side and left belly was sanitized with (very cold) iodine and I was shaved like a lamb before slaughter. LOL. That was my last memory before being knocked out.

I woke up lying on my back in recovery in expected pain from my incisions. I also felt pain from my left lumbar area shooting down into my left leg. Why do they always position patients on their backs after cutting their back side open? I struggled to roll to my right side to find slight relief until the nurse could crank the pain meds up. During my transfer to my room I felt every tiny floor crack and how could I forget when they my bed into a wall, which promptly woke my groggy arse up with incredible pain! I particularly enjoyed the ride on the elevator with visitors who kept trying not to look, while staring intently at me as I lay in agony and wearing my silly blue surgical hat. Lol.

Once in my room I was immediately greeted by my floor nurse and my wife and mother (no time to rest, rest). My vitals were taking for the hundredth time. I was worried about my family being comfortable and they me. There wasn't much to say, not that I felt like talking much. I finally reached under my blanket and felt the bandage covering where my pump was and it surprised me how big (40 ml) it actually was! I think it is slightly bigger than a hockey puck. I also didn't expect my incision in my back to be as big (2.36 inches) as it was. After about 2 hours in my room I finally had enough strength to change out of the hospital gown and into my pj bottoms and a t-shirt. I hate those drafty gowns and I felt instantly better not having to worry about accidentally giving a free peep-show. After putting my shirt on, I noticed my IV in my hand was coming out, because my hands and arms are hairy and it didn't hold the tape very well. When the floor nurse came in to check it I asked him if the IV was still in my vein, since it was pulled half way out. The nurse assured me it was fine and added more tape to it. A short time later my Pain Nurse came to check on me. I told her about the nerve pain going from my lumbar into my leg. She told me the sciatic nerve may have been nicked or agitated during surgery and it will typically go away on its own. She added even more tape around my IV to keep it in place. She checked my bandages and gave me an extra shot of pain meds and tried to explain to the floor nurse what my surgery entailed and what I needed for my overnight stay and then she left for the night.

No Worries!
Regular Member


Date Joined Sep 2011
Total Posts : 225
   Posted 12/22/2011 6:08 PM (GMT -6)   
Unlike the trial period, I was content to stay in bed and try to overcome my pain and insomnia for a few hours of sleep. Once my family left I just tried to get some sleep, which totally didn't happen. I just couldn't sleep no matter how exhausted I was. I needed some pain meds during the middle of the night and called the nurse. Before she came I noticed my hand with the IV was incredibly swollen and it naturally hurt. I showed the nurse who came in with the pain meds ready to be injected into my no longer functioning IV. She agreed I needed a new IV and said she would be right back. Well about one hour later I was in even more pain and couldn't get ahold of the nurse. I managed to drag myself out of bed and with my cane in one hand and the useless IV pole in the other I struggled to the hallway where I saw my nurse walking another patient up and down the hall! I told another nurse what I needed and had been waiting forever for. I returned to my bed and waited some more. Finally, shift change came and the midnight nurse was left with the task of starting a new IV and giving me my pain meds! Although the previous nurse had turned off the IV, my hand and arm had already become deformed as it swelled up with the leaking IV fluids. I was given my sleep meds and Benadryl, but I still could not sleep!
Say what you mean and do what you say. Integrity and Pride are never taken away... They are given away. Stay true to yourself and embrace Karma!

No Worries!
Regular Member


Date Joined Sep 2011
Total Posts : 225
   Posted 12/22/2011 6:09 PM (GMT -6)   
Heck, I remember sitting on the side of my bed in pain and utterly exhausted, bored, and lonely playing with my iPAD2 when a nurse assistant came into my room at about 5:15am. She walked right past me and without a word she replaced a paper posted on the wall and left as quickly as she came. The paper was a check sheet for nurse assistants to complete at different times throughout the days/evenings/nights and not surprisingly, although it was only 5:15am, it was already filled out and signed for the 6am time slot! According to the form, she had asked me how I was feeling, what my pain level was, what could she do to make me more comfortably and that she cleaned the room, like emptying my two full urinals at my bedside...NOT! By shift change at 7am I was still in pain and my bladder was as full as the two urinals still hanging on the side of my bed. The nurse who was ready to leave took the urinals into the bathroom, emptied them and rinsed them out and kept them at the sink and both nurses quickly left my room. I again limped my way to the urinals and managed to bring them back to my bedside where I promptly filled them again.
Say what you mean and do what you say. Integrity and Pride are never taken away... They are given away. Stay true to yourself and embrace Karma!

No Worries!
Regular Member


Date Joined Sep 2011
Total Posts : 225
   Posted 12/22/2011 6:10 PM (GMT -6)   
Then the daytime nurse gave me a blank discharge sheet to sign off on. I didn't have a pen, so. I just tossed it on the windowsill. A short time later my PM nurse came to see me and give me more detailed discharge orders. She was not surprised, but also not happy to find out that the floor nurse tried to discharge me without proper instructions. A little while later, around 11:31am my wife arrived to pick me up. At first she wanted me to simply meet her in the front of the hospital, but I told her I needed help due to my pain from my incisions. Reluctantly she came to my room where I was ready and waiting for the wheelchair. The last time I was here I walked out on my own, but not this time! When the lady came with the wheelchair my wife was in a fowl mood. As I was trying to carefully sit in the wheelchair she shoved my book bag at me and I almost fell over as I shoved it back to her. I knew then the ride home was not going to be pleasant. Heck, if my wife had her way, she'd leave me suffering in the car while she went shopping for the rest for the day! I demanded she take me home first, then she could go wherever she pleased. Thankfully she listened to me and I went straight to bed once I got home.

Two weeks later the bandages are gone and the incisions are healing nicely. The drug pump has helped so much with the pain and I am now off several other narcotic pain meds. The dosage for the pump meds was increased 16% during my Post-Op visit and I have not doubt it will be further increased as I slowly increase my level of activity, which is currently at zero percent. My goal is to not need anything other than aspirin for mild pain other than my drug pump medication. If I can maintain an active life style without needing other pain meds for breakthrough pain I will be grateful. No matter what, as it stands now I am very satisfied with my drug pump and I'm glad I have it. I have to get refills every 3 months.
Say what you mean and do what you say. Integrity and Pride are never taken away... They are given away. Stay true to yourself and embrace Karma!

No Worries!
Regular Member


Date Joined Sep 2011
Total Posts : 225
   Posted 12/22/2011 6:19 PM (GMT -6)   
I hope that my Drug Pump Implant Surgery experience will help others who suffer from Chronic Pain and are considering the Implant. I also posted my experience with the mandatory trial period. That post is old, so you will need to search for it using the following: Drug Pump Trial Period.

I welcome direct contact via email and phone if anyone would like to speak with me about my experiences. Not that what I've written above is lacking details, lol. I know I have already helped at least one person with her decision to get the Drug Pump. I wish her well wi her upcoming surgery and pray it goes better than mine, certainly hope she has far better nurse care!

I look forward to reading any and all replies. Again, you are welcome to email me directly to speak in more detail. I just ask that you put "healing well" in the subject box so I know it's not spam mail.

Take care!
Say what you mean and do what you say. Integrity and Pride are never taken away... They are given away. Stay true to yourself and embrace Karma!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/22/2011 6:56 PM (GMT -6)   
Hello Whats Done!

I'm going to re-post your trial experience here, so that members can follow the whole process if they wish.

All they have to do is click on the link provided below!


www.healingwell.com/community/default.aspx?f=16&m=2256592


Congrat's on a successful surgery! We seem to hear all kind of poor service stories, and I'm sorry your's was not up to par. I'm now on the long road to a pain pump, so I have been watching your progress on this, and I for one appreciate the details involving the pain pump trial and permanent implant. It will be interesting to see how your post-op success is, in about 30 days or so!

Please keep in touch, and let us know how things are going. Many of the members might be interested in the type of med's they are using on you, so post that if you can when you update us here on the forum.

Take care,

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am" author unknown

Post Edited (Screaming Eagle) : 12/22/2011 6:43:37 PM (GMT-7)


CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/22/2011 8:01 PM (GMT -6)   
Hi - Charles isn't it?

Like SE said, thank you so much for posting your experiences. I too had the problem with nerve pain and altered sensation after my pump was implanted - mine was down both legs though worse in my left. I have nerve pain for other reasons, but I still have residual proprioceptive deficits (poor sense of where my feet/lower legs are) almost four years after surgery.

I hope that your refills prove no big deal for you. I have mine every six weeks and sometimes they are quite painful, sometimes now. Definitely keep us posted on how things are going.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16284
   Posted 12/23/2011 10:27 AM (GMT -6)   
Hi Charles so glad to hear that you now are officially pumped, lol. Very good to to hear you are doing well and already have decreased some meds. Wow, you have a big pump, mine is an 18. It sounds like you are doing really well.

You may find your stomach to be numb when they refill your pump and if this happens its from the small surface nerves being cut during surgery which is normal. It took a good 6 months to get the feeling back in my stomach. I do not have any pain when I have my refills either, makes me wonder if Laura's pump is implanted a little too deep. If they are implanted too deep it can make a refill not pleasant at all. I have had nurses miss the little portal & dig around with the needle trying to get in it and still not have any pain.

Keep us posted on how you are doing.
Moderator Chronic Pain Forum

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 12/23/2011 3:07 PM (GMT -6)   
Hi Stray,

My pump is actually right under the skin - mine is a 40mL as well and it sticks out almost an inch from my abdomen! I have almost no body fat on me at all, especially compared to what I had when my pump was put in. Even though my doctor is gentle, I always bleed quite a bit and almost always bruise as well.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 12/23/2011 5:22 PM (GMT -6)   
Hi Charles It's good to hear that you're doing well after your implant. Please keep us updated on how you're doing. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 6:21 PM (GMT -6)
There are a total of 2,973,388 posts in 326,088 threads.
View Active Threads


Who's Online
This forum has 160962 registered members. Please welcome our newest member, Gladioli66.
430 Guest(s), 8 Registered Member(s) are currently online.  Details
81GyGuy, Michael_T, SeanL88, Serenity Now, Hoagie, Noah2112, CAdogsRus, MacroMan