pain got so much better i thought...i move on almost normal- but now...

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Veteran Member

Date Joined Feb 2007
Total Posts : 553
   Posted 12/26/2011 12:26 AM (GMT -6)   
I got in a pain clinic, I switched rheumatologists to one the PM works well with, I see the psychologist once a week to work through the mix of bipolar and chronic pain symptoms, who is in open, consistent communication with both the Pain clinic and my psychiatrist who deals exclusively on the bipolar control.
The weekly visits with the psychologist exposed fibromialigia symptoms exacerbating both bipolar and RA pain coping ability. This caused adjustment for both bipolar and pain medication. After ramping up slowly on moderate pain medication, seeing a chiropractor and doing physical therapy there, and learning to use several coping skills including limiting my stress, clipping down my schedule, breathing techniques and labeling what symptom goes with what condition I BEGAIN TO FEEL LIKE A NORMAL PERSON.
I could almost forget about the pain sometimes when distracted enough. For a little while I "lived" at a 2! (With occasional bursts here and there, but it was a 2 for the very most part.
After several weeks, I thought this is what my life would be like now. I have to fight the pain, but I can beat it back if I work hard enough.
11 days my joint pain begain to climb. ATTACK! Ice, heat, gel, movement - little result. Over several days it has continued to climb. My knuckles are only slightly swollen, but I have that feeling of wearing tight, thin gloves, slowing movement and feeling. My jointes all hurt; from the shooting in my elbows, up and down my arms; aches in my neck and through my deshoulder. My back just can't get comfortable, no matter what position or gel or hot/cold pack I try. The chiropractor doesn't see significant change to cause the pain, and it is muscle ache anyway, but augh. My ankles and toes are so hard to ignore when there are no distractions left, like in bed.
I'm up to 5ish through the day now. I know not as bad as some, and not as bad as I have been. ... but I was living at a 2... I thought, I hoped. ... I don't know what I really hoped for. My life back?
The dream is not shattered per say, but it's an eye opener. I still live here. I'm still a chronic pain patient. I'm not going to get rid of that.
Its just such a let down.
I looked for literature for" when the pain returns " and I couldn't find anything out there.
I have no idea how long this will last, but I can't control it. I'm doing everything I thought I was doing to control it and it continues to build.

Last night I spent the whole night in nightmares. I was in pain and in a wheelchair and I could get more done with it han without, but I still fell behind in taking care of my responsibilities and ended being in danger and unable to protect myself or others.
I'm just falling apart.
"Life seems a little easier when you remember to breathe"

Dx: Rheumatoid Arthritis 2008
Bipolar 2 2006 (symptoms since 1993)
Fibromialgia 2010
Gluten senitivity 2010
Sleep apneia 2007

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 12/26/2011 5:53 AM (GMT -6)   
I first want to congratulate you on your successes.  They have obviously been many!!
I think you are having a flare (perhaps a very strong fibro flare) or flare of some other sort.   If this is the case, please don't give could be as simple as a strong front coming in and you reacting to it physically.  If that is the case, then your pain should return to the way it was once the front passes.
It may not be the absolute best idea, but I hate to see you so defeated by this lapse back into pain.  You wil succeed.....I know you will!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet, Vision Issues & much more.....

Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 12/26/2011 5:21 PM (GMT -6)   
Christina I think its great that you caught the break that you did concerning your pain level. That tells me it is possible to happen again too. I agree with RM this does sound very much like a bad Fibro flare. Weather during the winter months plays such a mean trick on our bodies especially when the barometer is all over the place. What ever you do is don't give up, you worked too hard to get to that 2. I am impressed as I have never heard of a CP patient getting a low pain scale like that. Keep up the good work.

Take care.
Moderator Chronic Pain Forum
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