New symptoms and reluctance to get a new specialist

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Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/29/2011 5:36 PM (GMT -6)   
There are a few new symptoms that have reared their heads lately. Panic attacks are one, different bowel and eating issues, and now hands and feet that are rarely warm and tingle off and on through the day for no reason. There is no color change which means Raynaud's is unlikely. They will not warm up given the right amount of time with warmth, but with my arthritis, this worries me. My RA is mild, but any type of temperature change is tough to cope with. Its making crocheting difficult.

I have had my pain management doctor or pcp handling the RA now for a year since the rheumatologist I saw only when absolutely needed has retired. Now I must find a new rheumatologist and bowel specialist. Driving being so difficult, I have to find ones close to home, which means I am severely limited in selection. To do all this, I must now go to my family doctor's office again. I get so tired of this cycle. Every time I think things are getting better, more pops up that requires new meds, treatments, or just complicates life.

Which brings me to the other changes, eating. Eating anything other than soup, yogurt, or fruit makes my stomach hurt badly. IBS has always been a factor because of adhesions, but now when I eat anything, I feel full after just a few bites and then the pain comes. I have had stomach ulcers in the past, which leads me to decide its time to go back to the GI specialists. I just wish I could enjoy the food that the season is known for. All the cookies and dinners have been less happy affairs because of this.

On a happy note, I graduate from school in the new year! I am handing in the last part of my final tomorrow and am done with my degree in medical transcription! I can work from home now! My whole family is so happy! My hubby wanted to take me out to dinner to celebrate, but with the new stomach issues he is trying to find a new way to celebrate.

You are all in my prayers during this busy time of year!
Mindy

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 12/29/2011 5:53 PM (GMT -6)   
you inspire me to try to advance myself, that's terrific you got your degree with the kind of life we live. i know what you mean by hating to start the cycle again and "limited selection". best of luck to you with these new symptoms. are you taking a beta-blocker for hypertension or some other reason' they can cause temp changes in hands and feet, usually cold?
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: MScontin 100mg q8hrs. , dilaudid 8mg q6hrs. prn, oxymorphone IR 10mg q6 ,vistaril 50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Elavil 25 HS, diazepam 10mg bid prn, Supplements: CO-Q10 100mg, Vitamin D 1000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, ALA

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 12/30/2011 3:24 PM (GMT -6)   
Thanks spinal soldier! Getting my degree took longer than I had hoped for, but just being able to look at my sons and say I graduated from some type of college is a good feeling!

I don't take beta blockers and am not on medication for hypertension. Its odd because I know we are in winter here, but our temperatures have been so mild that it can't be weather alone accounting for the change.
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI dysfunction, arthritis, fibromyalgia, depression and anxiety, 11 pelvic surgeries for pain, adhesions, endometriosis, adenomyosis, ovarian cysts, and ovarian remnant syndrome.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/30/2011 9:49 PM (GMT -6)   
congratulations on your graduation, that is a great accomplishment.

have your husband take you out anyway, better resturants often have quality soups on the menu.

good luck to you

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 1/3/2012 11:26 AM (GMT -6)   
Thank you David. I will have my hubby take me out, and he is planning a trip to a nearby natural hot mineral spring that has helped my pain in the past to celebrate!

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI dysfunction, arthritis, fibromyalgia, depression and anxiety, 11 pelvic surgeries for pain, adhesions, endometriosis, adenomyosis, ovarian cysts, and ovarian remnant syndrome.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/3/2012 9:15 PM (GMT -6)   
Congrats on your college degree, I'm so proud of you, WOW...
Good job...
Yes get into your GI Doctor and get on some stomach medicines to see if
they can help, or maybe try Zantac twice a day and make a chart to see if it's helping...
Finger's crossed they won't have to do an upper endo scope on you, I hated those...
Prayers for you to be feeling better soon...and congrats on your degree...yeah...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 1/3/2012 10:38 PM (GMT -6)   
Congrats Mindy! I just wish you were not having intestional issues...see your GI doc, hopefully he can help out. I will keep you in my prayers.

Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/3/2012 11:43 PM (GMT -6)   
Congrats Mindy. You done good girl!! Hot mineral springs, that sounds nice. Make you let us know how that helped you.

Suzane

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 1/4/2012 4:20 AM (GMT -6)   
Hi Mindy. I'm sorry you're dealing with so many different health issues. I hope that they get the right treatment for you, and that it is effective. That said...

CONGRATULATIONS! I'm so happy for you! It is wonderful that you finished your degree. You should be so proud of yourself. It's tough (to say the least) to be taking classes and dealing with health issues. It's great that you're done, and even better that you can now work from home! I wish I could work from home. I'm over the moon happy for you:)

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 1/4/2012 12:22 PM (GMT -6)   
Chart, Amy, Suzane, and Flower, Thank you all very much! It is finally sunken in that I completed the classes and am graduating. I keep telling myself that even though it was from an online school, I still completed a technical college program, and its no less school that a brick and mortar college. Even though it took me twice as long as I planned, I still stuck through it and finished, with a GPA of 97.89%.

I am so ready for the hot mineral springs. I think my hubby is taking me in the next few weeks, and I will be sure to let you know if it helped or not.

Thank you all for supporting me through the ups and the downs. Now is the time for relaxing and getting my pain levels down as I wait to hear from the school's connections for work.

Flower, I am over the moon happy for you! You will soon be a mother. Its so exciting!
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI dysfunction, arthritis, fibromyalgia, depression and anxiety, 11 pelvic surgeries for pain, adhesions, endometriosis, adenomyosis, ovarian cysts, and ovarian remnant syndrome.
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