Trying to understand my drs diagnosis of chronic pain syndrome

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Justdreaming
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/3/2012 11:02 PM (GMT -6)   
Hello everyone and thank you for taking the time to read this.   I have been sick and suffering with constant pain for as long as I can remember.  Last year I finally decided too see a rhuemy.  He diagnosed me with Chronic pain Syndrome..  He said is was because of a stroke I had suffered years earlier.  He also said that fibromyalgia was one of the conditions that fell under this umbrella.. I am really confused by this diagnosis.  I have not been able to work since 2006 and have had a multitude of issues.  the only thing he said that I understood was that pain medications have not been effective in managing my pain so I have not taken any in years.  He put me on lyrica.. I only got to take it for a week before I found out that I was pregnant.  So now I am trying more to understand this diagnosis and seek answers and pain management.. any advice would be greatly appreciated.  Thank you again for taking the time to read and respond to me.. He also diagnosed me with osteoarthritis, All my other conditions I can list later if it helps
thank you

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 1/4/2012 1:10 AM (GMT -6)   
Just Dreaming

Welcome to our forum...nice to meet you.....congratulation on being pregnant

You can try applying moist heat packs on the areas that really hurt

Sorry you hurt so much...Please keep us yp to date on your health...more members will be welcoming you soon to

Soft Hugs
Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 1/4/2012 3:13 AM (GMT -6)   
Welcome to HW. This is such a great place for support. Are you currently pregnant? It sounds like you have a lot going on. Will you be seeing this doctor again? If so, can you write down the questions that you have, and maybe bring a trusted loved one into your appointment with you to help explain things afterwards. I do that, b/c I sometimes miss what the doctor says b/c it's a lot of information to take in.

I hope that you get some relief soon. Chronic pain is a tough (to say the least) thing to deal with. I'm sure others will be around with more advice.

Welcome again!

Hugs,

Flower

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/4/2012 8:51 AM (GMT -6)   

 

        Good morning justdreaming!

             We all "Welcome" you to the Chronic Pain Forum! wink

      I'm working on my morning list of members to reply to and you happen to be next here! smilewinkgrin

   OK!...lets start by asking you a couple of questions! You say that you started seeing this Rhuemy a year ago,...and that you have been off of your med's for several years as well....what med's were you on?....who scripted them?....and what was the max dosage? If you were diagnosed with Chronic Pain Syndrome a year ago....what were the pain meds for before that, and what,.. if any testing was done for your pain prior to the Rhuemy? These questions help the membership...so that we can better understand a little more about you.

   We also have a wonderful Fibro forum here, so please do visit it as well. Congrat's on the pregancy! I suppose your Dr is also aware of this?...Im guessing he will make sure you are taking the proper dosage and type's of meds.

      We all understand Chronic Pain here....so feel free to share and seek support from our members.

     Again Welcome!...and Enjoy the forum!

      SE wink


Moderator Chronic Pain Forum

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/4/2012 10:17 AM (GMT -6)   
Good morning Dreaming
I wanted to welcome you aboard. You will really enjoy the members here and you will find much support to get you thru the road ahead. I am sorry though that it has to be under these circumstances. Congrats on the pregnancy. How far are you along? There is one member who, a year ago, delivered twins, while having multiple health issues so I am sure she can give you information to help you and also another member who is currently pregnant. I am sure they will be by to help you out.
In the meantime, keep posting with us as we do care.

Suzane

Justdreaming
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/4/2012 10:05 PM (GMT -6)   
Thank you everyone for the warm welcome.  I am no longer pregnant.  I delivered a healthy baby girl sept 23rd.  I have found that since giving birth i am suffering more.  I have written it off to my body trying to heal from its ordeal :-)   I will give a brief history of what I have been diagnosed with and what meds to the best of my ability.  The first time I ever heard Chronic was in 99 when I injured my lower back at work.  Several MRIs showed a herniated disc in the L5-S1 the doctors told me I had bursitis of the right hip and sciatica of the right leg along with chronic sacriolitis.  They put me on Darvocet and Soma along with Motrin.  I am so afraid of becoming addicted to meds I only would take them if I was littarally unanble to move just to avoid a trip to the ER.  I found a wonderful therapist who helped me heal my injuries the best they could and I was told that I would never be able to do all the things I used to without pain.  I moved on in life with that and then in 2004 I was in a car accident that changed my life. I suffered a traumatic brain injury that the drs did not diagnose till a month later.  I was told in the ER that my back was a mess.  they sent me home from the ER with hmm Darvocet and Soma with Motrin.. I soon realized that my injuries were much worse than what we thought.  I had internal bleeding.  A herniated disc in my cervical spine.  my old back injury had flared back up.  I could not move my toes on my left foot. but the worst was the memory loss I was sufferring.  We found later that I had swelling and bleeding of the brain. about a month after that another mri showed a small lucunar infarct.  That I needed balance therapy and memory therapy and biofeedback therapy along with physical therapy for the legs and back and neck.  I was put on a multitude of medications for migraines and pain.  Soma was always one.  I am allergic to percocet so they usually give me vicodin or darvocet.  I have been on Elavil but it did not help I cannot really remember alot of the meds they had me on for those years and unfortunetly my husband past away in 2006.  My health has not changed that much since 2006 I guess I have just gotten used to the pain and the good and the bad days.  I do not drive very often or very far due to anxiety and I am currently on zoloft and ativan.  I have a horrible primary right now and I am going to find a new one.  The one I have currently had not even read my chart uhhgg.  so for pain right now I am on vicodin and soma but it just makes me drowsy it does not really do alot for the pain.  The rhuemy said that is because with cps most pain medications are not effective.  I am a bit worried to go back on lyrica.  Does anyone have any pros and cons to lyrica.? I don't mind gaining the weight at all and I am tired of being so sick and exhausted.  My kids deserve a healthier mom. sorry this was so long.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16017
   Posted 1/5/2012 10:50 AM (GMT -6)   
Hi Dreaming and welcome to Healing Well's chronic pain forum. I am a little confused by your posts because look at the dates. You wrote in your original post that your rheumy gave a dx of Fibro and started you on Lyrica but you were only on it for a week then found out you were pregnant. Your second post said you delivered your baby on Sept 23, I don't know if you got out of sequence or what with your story. lol. When did your dr dx you with Fibro? In your second post you spoke of weight gain while on Lyrica and that is one of the side effects of it. There is also other meds like Neurotin, Cymbalta and a couple of others that work the way Lyrica does so perhaps this is something to talk to your dr about.

Your rheumy is correct about the typical pain meds not working on nerve pain that so many have with Fibro, that is why so many are on the meds that target nerve pain. This includes amitriptilene which is the generic of Elavil. Some of these drugs actually have to build up in your system over time to be effective.

You mentioned a herniated disc, did any of the drs ever recommend surgery to correct this problem? What about pain mgt drs, have you ever been seen by one of them? A lot of folks are under the care of PM drs to handle their CP. As one of the other members suggested, we do have the Fibro forum and you may want to look there and get some info on the medications many are on if you are wanting to stay away from Lyrica because of the weight gain which is understandable.

Take care and keep us posted on how you are coming along.
Moderator Chronic Pain Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/15/2012 2:19 PM (GMT -6)   
Hello, Kathy here, I take (along with other meds) neurontin which is very helpful for my fybro.  Its amazed me how well it works,, I take 300 to 600 mg 3xday.
 
I really dont understand why a doctor would tell you narcotic will not help your pain, thats simply not true, you need to find a Pain Management Doctor, or Clinic and take your records with you, your disc pain alone is enough for you to be treated with something more that darvocet, which to me is like taking regular tylenol, its nothing.  Vicodin is a little better.  Even though you are alergic to perc's there are many other meds out there you can try.  As far a worrying about becoming addicted, you will become dependent possibly on the meds, but addiction is a word we try not to use, I used that word while trying to explain something to someone,and was reminded (and I was glad to be reminded) the word dependent is not as explosive a word as addiction.
 
If you want a good quality of life for yourself and your baby girl, you must feel as good as you possibly can, if that includes narcotic meds, its so worth it.
 
Take care and good luck
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16017
   Posted 2/15/2012 2:23 PM (GMT -6)   
This is an old thread and the person that started it is no longer here at the forum. I will lock the post and if anyone wants to comment further please start a new post.
Moderator-Chronic Pain Forum
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