I Can't Take It Much Longer

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 1/4/2012 6:01 AM (GMT -6)   
It's been a long time since I've posted...My pain is worse than ever...it never stops...every waking minute...I used to be able to escape the pain through sleep...Now I can't make it through the night without waking up several times in agony...I fall asleep on my right side, but I wake up in a couple hours with agonizing pain in my legs, groin, testicles, etc. So I have to try to fall back to sleep on my back, only to awaken shortly after with bad back pain...I go back to sleep again on my right side and hope for the best, but the pain keeps coming back again and again. It hurts so much just to get out of bed...Most of the time I just stay in bed most of the day...My wife gets lonely because I sleep much of the day away...I feel bad for her, but it hurts so much to be awake...I love my wife more than anything in the world and she's the only reason I'm surviving...She's my best friend and she's so supportive and understanding...She's also disabled and suffers from bad back/leg, nerve pain. I'm on Oxycontin 80 MG 3 times daily & Percocet 10/325 4 times daily, but the pain is so bad all of the time. I don't know what to do anymore.
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7
Spinal Stenosis
Degenerative Arthritis Left Knee
Pes Planus Both Feet
Multiple Neuropathies
Brachial Plexus/Thoracic Outlet Syndrome
Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 1/4/2012 6:47 AM (GMT -6)   
I am sorry, drjimmy, I really am... Do you need a medication change or have you been on them all?

Thinking of you, and hoping things improve. ...Tina

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/4/2012 10:21 AM (GMT -6)   

 

           Morning drjimmy!

      I'm the same as Tina, and feel badly for you! Sincerely! shakehead

           ...after looking at your med intake, I'm wondering if you have thought about a Pain Pump? I'm not on near the pain med's you are, and Im headed in that direction. Have you had corrective surgery yet?

      SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am" author unknown

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/4/2012 11:10 AM (GMT -6)   
Good morning Jimmy,
Gosh so sorry you are suffering so badly. Like the others, I would suggest making an appt with your PM doctor to review the meds you are on? when was the last time you saw him or had your meds adjusted? are you seeing any other specialists? perhaps a counsellor could help you in helping you to cope with the pain? pain pump or scs might help you.
I wish I had the answers. I would highly suggest you keep posting with us and we'll help you get thru this painful journey which we all face. The members here are very caring and understanding.
I am glad you have such an understanding and supportive spouse. That alone can make the big difference iin our survival.
 
Keep the faith,
Suzane

drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 1/5/2012 4:14 AM (GMT -6)   
Thank you Tina, Suzane & Screaming Eagle! I have not had any corrective surgery yet, as the specialists I've seen in the past have said surgery wouldn't help my symptoms I had at the time. I know I need to get a new MRI & then see some new specialists, since the pain and other symptoms I have now are so much worse & different than they were before. I see the pain doc every month and he feels that I'm at the highest dose he feels comfortable with prescribing...I've been on several other medications and they haven't worked as well as the combination I'm on now...I have thought about a pain pump...I have also looked into radio frequency ablation in the recent past...I guess it's time to give something new a try, because I can't survive the way I'm feeling...What is scs, Suzane? Yes I'm SO lucky to have my beautiful wife Michele to be by my side through these times and I'm SO thankful that I'm able to be by HER side through her pain. Thank you all for your kind & thoughtful wishes...I'll try to keep in touch as much as possible.

Eric
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7
Spinal Stenosis
Degenerative Arthritis Left Knee
Pes Planus Both Feet
Multiple Neuropathies
Brachial Plexus/Thoracic Outlet Syndrome
Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/5/2012 6:27 AM (GMT -6)   
The first thing that came to mind when reading your post was, "have you thought about taking care of the herniated discs"? I know surgery should be a last resort but when your pain becomes that bad I think the time could be near. Before my lumbar fusion I was bent over walking and the pain was more than I could handle anymore. The fusion didn't cure all of the arthritis pain my my spine but it did take care of the radiating pain that I was experiencing. If you could get the nerves in the lumbar spine opened up the leg, groin & testicular pain could be alleviated.

Sounds like you could use something for nerve pain maybe discuss this with your doc next visit. Also, has your doctor tried any injections into your knee. I have arthritis in my knees but the right one was giving me alot of problems and was getting painful. My rheumy gave me a cortizone injection into the bursa and it really did help.

Good luck and keep us posted on what you decide to do next.
---Jag---


DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3 & L-3/4, fibromyalgia, polymyalgia rheumatica

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 1/5/2012 8:03 AM (GMT -6)   
Hi jimmy
I'm sorry to hear about the pain your suffering. I know first hand how that feels as do many others here. I have had back problems for a long time as well as many surgeries on other parts of my body. If your considering surgery please research the general outcomes. I wish I had with my back fusion. I don't know what other meds or treatments you've tried but by what you describe I think it's time to explore some other options. I hope you find some relief soon. Wish you all the best.
Stingray

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16763
   Posted 1/5/2012 11:18 AM (GMT -6)   
Hi Eric, wow, you really sound like you are in bad shape friend. I have followed you along for quite a long while and can remember some of your situation. Last time I can think you were being started on some of the meds given for nerve pain, cannot recall exactly which one of those it was. What happened with that? If one of those meds did not work, did your dr try you on any of the others? Many times it takes trying each one out to see if its going to work.

So, if these nerves meds bombed out I am with Jag, get yourself some new MRI's done and get in with the best neurosurgeon you can. The reason I say neurosurgeon over an orthopedic is the neuro dr is more trained to deal with nerve issues than an orthopedic, that is part of his specialty and you certainly have the nerve issues going on. The ortho is trained to handle the bony structure type of things. Granted, surgery is always the last resort, but you have reached a point where there may well be nothing left to help you. Conservative care has not worked. If I remember correctly you are not all that old and have a lot of years ahead of you. Laying in a bed because that is the most comfortable place is not quality life. As long as all of this has been going on and looking at what your drs have done at this point I would not bother wasting time and money on procedures that may not even work, not to mention they are temporary. If this were me I would rather get more aggressive with my care and start moving forward with some current Scans and consults.

Please keep us posted on what is going on with you and what the dr says. Take care.
Moderator Chronic Pain Forum

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 1/5/2012 11:35 AM (GMT -6)   
Jimmy it sure sounds like you are getting a little desparate with your pain, if you have nerve root impingement and it is getting worse, surgery is about the only thing that will actually give you some permanent relief. As long as the nerve root is being pressed on or pinched. ( impinged upon) pain meds might help a little, and steroids might relieve the inflamation, but the root cause is still going to be there untill it is surgerically fixed. I would be seriously  thinking about going back to your Doctor and tell him/her what you have told us! Get a new MRI done to see what is actually going in your back. If surgery is needed talk at length with the surgeon, learn all you can about what the surgery would entail, and what the odds are, ( percentage) of relief you can expect to get! Then make an educated decision! There is one thing to always consider, is how much worse can it get with out the surgery? Not just pain wise, but loss of movement, (reflexes) permanent nerve damage. In some cases that can happen if not surgerically fixed. So see your doctor and find out, get a second or third oppinion if you need to, then weigh all the pros and cons ( past,present, and future) and then deside.
 
Good Luck to You!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/5/2012 12:12 PM (GMT -6)   
Try and remember that each day is unique and sometimes there is a glimmer of a moment of some sort of relief or change of the pain. Relax, breath deeply, I pray that there is some form of help for you. It makes me almost cry, I understand. I was just removed off 60mg of methadone a day for pain. Through a slow lowered dosage method. I stopped on Christmas. My pain Dr gave me a moral speech and wants me to try and give my body a break for 20 more days. I can not decide if I am more terrified of the oncoming days or have set my teeth into this thing and can make it one day at a time. We are all strong people, and we can handle these things. Remember that your a strong human being. Do not let the pain win over you. You can do it. There will be moments to breath. My hopes are with you and yours.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16763
   Posted 1/5/2012 12:20 PM (GMT -6)   
Ssinss hello and welcome to Healing Well's chronic pain forum. If you wouldn't mind please start your own introduction post so that all members can see that you are new and can give you a proper welcome. Otherwise, not everyone will see your post and be able to give you a proper welcome.

All you have to do is click Post New Topic and write something in the box like new member & introducing myself and then click again and another window will open and start typing away about yourself, lol.

Welcome aboard.
Moderator Chronic Pain Forum

drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 1/8/2012 3:29 AM (GMT -6)   
Thank you for your encouragement, warm words and support & understanding...It really means a lot and helps me in a way I can't really explain. Straydog, wow, I can't believe that you remember details about my situation with all the posts you've read and posted. Thanks for caring so much about people! They weaned me off of Prozac & started me on Cymbalta for both anti-depression & nerve pain relief. The pain didn't improve at all (maybe got worse) and my depression took off like crazy...I was really low, crying at the drop of a hat, etc. It didn't take long for the doctor to get me back on Prozac. Right now it's a blur to me and I can't really remember which meds they've tried me on. I remember Lyrica & Neurontin...I definitely am going to have a new MRI and schedule appts with some Neurosurgeons. I have to resolve my health insurance situation first, however. Thanks to the changes made to Medicare advantage plans, I have been dropped by more than 1 insurance co. I had a very hard time finding a medicare advantage plan in my area that would cover my pain dr. Therefore, I switched back to straight Medicare a while back. I now have to pay 20 % of my medical bills...With office visits it's not much different than the co-pay I was paying for a specialist. However, if I were to have an operation, the amount I would be responsible would be quite expensive and not workable. That has caused me to be at a stand still in my medical care. In addition to my back/Leg nerve issues, I have torn meniscus in my right knee according to the last MRI. The right knee has always been my good knee and the leg that I would lean on through my 11 operations on my LEFT knee. Now that I have torn meniscus in my right knee, I'm in trouble as I don't have a leg to stand on (Lame attempt at humor). I need to call medicare and try to get some help from someone there in finding a medicare advantage plan that is available in my area that will cover my doctors. Once I straighten that out, I can move ahead with a new Lumbar MRI and some consults with Neurosurgeons. Maybe I'll get the MRI while I'm working on my health insurance problem.

Anyway, thanks everyone for your advice and encouragement! Hopefully I'll get some things going soon and I'll keep you updated on any developments. I hope your pain levels are bearable and that you're getting enough relief with pain meds.

Eric
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7

Spinal Stenosis

Degenerative Arthritis Left Knee...11 Surgeries

Pes Planus Both Feet

Multiple Neuropathies

Brachial Plexus/Thoracic Outlet Syndrome

Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles...11 Surgeries for Nerve Damage in Upper Extremities...27 Operations Total

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16763
   Posted 1/8/2012 7:09 PM (GMT -6)   
Hi Eric, I believe you may have missed the deadline to change from regular Medicare to an advantage plan for this year. Something else to think about with regular Medicare many times hospitals and drs will work with a patient and either reduce the amount owed after Medicare pays or completely write the balance off to charity. I am on regular Medicare and do not have a supplemental policy and cannot buy one until I am 65 and that just sucks. None of my drs are on the HMO's and I am not about to change drs at this point in my life either, I have been with some of them too long to consider a new dr.

Something else I thought about with you is sometimes when a person has a pinched nerve in the lower back it will cause pain to go down their leg and cause foot numbness very much like what happens with diabetes. This is called radiculopathy. My husband is a severe diabetic and he has no feeling in his feet or hands. One problem with pinched nerves if it is left alone for too long the damage becomes permanent and no surgery will help that.

I have had all of the knee surgeries I can at this point, new knees are the next step. Been through torn meniscus in both knees and torn the ACL in one of them too. Take care of yourself and keep us posted on how you are coming along.
Moderator Chronic Pain Forum
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 7:59 PM (GMT -6)
There are a total of 3,004,459 posts in 329,148 threads.
View Active Threads


Who's Online
This forum has 161739 registered members. Please welcome our newest member, pinky;spoorback.
208 Guest(s), 13 Registered Member(s) are currently online.  Details
Tim G, OzLyme, logoslidat, xpeetzax, Ss800, Michael_T, Admin, wednesday77, Sherrine, mordant, FamilyGuy, CatskillsMelanie, straydog