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New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/4/2012 8:58 PM (GMT -6)   
I was a little afraid to post at first since I'm sure many here have much more pain than I. That being said I have lumbar scoliosis, L4-L1 are the visible curvature where my physician first noticed(age 14 if I remember correctly, asked about back pain and stretch marks going across my back) but as the years went by and my body grew/grows(I am only 20) I noticed T12-T3(T2 to a lesser extent) are involved in a 3dimensional curve that is best described as spiraling slightly. Also C7-Thoracic area are supposed to be curved as you can see on a normal skeleton, on me that curve is dropped down 3or so vertebrae meaning it doesn't convex at my chest but near at my stomach area.
All this led me to yoga and a variety of stretches from different doctors and PT specialists and whatnot, but it feels now like anything other than child's pose(yoga) and laying on a massage table face down is straining one thing or another. For instance, If I align my shoulder with my hips then my ribs(mostly on my right side) hurt, if I align something else with another part of my body then it just moves the pain.The "hot spots" being my lower back, hips, ribs(mostly right side), neck, shoulders(most right side) and even my legs and sometimes groin. I have been taking my gabapentin now more regularly even though I don't really like it all that much because I don't feel like I am quite as sharp when I take it and that is sometimes the only thing I feel like I have left since in a addition to pain that keeps me up all night (I got 16hours of sleep the past 7 days and thats with ibuprofen at prescription doses and 2mg of buprenorphine) I am also diagnosed with depression/with anxiety(mostly social but also general). I hope I am not rambling since I know I'm very low on sleep(2-4hrs last night) and took my two 300mg doses of gabapentin(spaced 4hrs apart) I really don't want to proof read this. Please understand I'm not usually that "lazy" I just really can't sit in this chair more than 20or so minutes without taking a solid break.

I don't know what to ask for other than advice, I'm sure someone out there is in equal ore greater pain than I and must have some methods to be able to function.

Post Edited (ValleysOfTheMoon) : 1/4/2012 7:03:52 PM (GMT-7)

Veteran Member

Date Joined Oct 2010
Total Posts : 932
   Posted 1/4/2012 10:06 PM (GMT -6)   
Hi Valley,

I too have scoliosis C4-T4 and both it and injuries to my hip and SI from an accident cause me daily pain.

I understand what you mean about gabapentin and that is a key reason why I stopped using it. I had a similar reaction to lyrica.

I don't know what other pain meds you've tried, but there are certainly many others that could help if the buprenorphine is not. I have also recently gotten relief from trigger point injections into what I think you mean by "hot spots". The doctor injected the various places that felt like burning spears and one has improved radically, others nothing substantial.

Sitting is also a problem for me and I've come to work out of a "zero gravity chair" -- sort of like a recliner. I have set up my monitors, etc. all to fit my position. Further, I've gone through many pillows and I now am using a wheelchair pillow with a gel core.

My father has lumbar scoliosis and when he sits, he uses a lumbar support belt to help his ribs stay up and not rest on his pelvis. That is also something you might want to look into.

Lastly, sleep is very important and you should discuss a sleep aid with your doctor. I've used ambien (time release is best), as well as various benzodiazepines (xanax, ativan, valium).

Welcome to the board -- I'm sure others will welcome you as well. Hope you find some good advice & some relief.

Post Edited (cogito) : 1/5/2012 8:22:09 AM (GMT-7)

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 1/4/2012 10:11 PM (GMT -6)   
Valleys of the Moon,

Welcome to the chronic pain forum! I am glad that you have found the site, but sorry for the pain that has brought you here. I hope you will find many people here with helpful answers and similar situations to help you. I don't have scoliosis, but I do have some nerve pain and find that gabapentin helps me also. My husband has very mild scoliosis, and I notice that he too has some tenderness when stretching on the one side.

Please don't feel the need to apologize for not proof reading your posts, your pain, or being tired. I too have trouble sitting up at a desk for any length of time and use a laptop, and have trouble sleeping.

I guess I didn't understand what you are asking for, other than advice. My pain comes from fibromyalgia, but also the worst pain comes from endometriosis and adhesions that have glued my pelvic organs to my abdominal muscle wall, and everything in my abdomen and pelvis is stuck together. This creates pain from pulling on them with any movement. I find that not overdoing things, by resting a lot, using heat, and doing my best at being patient with myself are my best coping strategies. Understanding that I simply can't do the things I used to and not pushing through the pain to get something done save me many hours of pain. I still get stubborn and do it, but not as often as I used to, and with the help of medications, stretching, meditation and relaxation am able to cope most days.

I hope I helped some, and I am sure someone will be along to welcome you and offer advice as well. The members here are very friendly and open. Ask more questions if you like and I will answer where I can.

Hoping you find some rest tonight.
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI dysfunction, arthritis, fibromyalgia, depression and anxiety, 11 pelvic surgeries for pain, adhesions, endometriosis, adenomyosis, ovarian cysts, and ovarian remnant syndrome.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 1/5/2012 12:45 PM (GMT -6)   
Hi Valleys and I too would like to welcome you to Healing Well's chronic pain forum. First off please never apologize or ever discredit the amount of pain you are having or compare your pain to some other persons pain because that is just something that cannot ever be measured. It is your pain and trust me there is no contest here on who hurts the most or who is in the worse shape. Also, please do not say that you are lazy because you did not feel like proof reading your post, you covered it well by saying you were in a lot of pain. That just does not matter to any of us. What we do understand is pain and how it can affect a person in every aspect of their life. Every person here has a story to tell about how they ended up with chronic pain.

I am sure with you being only 20 yrs old most drs are not willing to script much in way of pain medication because of your age. We hear this story all the time from young people,. The problem is pain does not discriminate according to a persons age. if we could only get drs to understand this.

From what you say you do things to help keep you up and moving around which is a must. I don't know if you have access to a jacuzzi or not but that might be something else to consider. Have you tried any type of physical therapy, what about a TENS Unit. Sometimes people get some relief with those. Only other thing I can think of is when it comes to medication it is always best to take the meds as directed by your dr in order to get the maximum effect. If you are having a problem with a medication talk to your dr about it.

Anyway, I wanted to welcome you aboard. Take care.
Moderator Chronic Pain Forum

New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/5/2012 2:25 PM (GMT -6)   
I would like to thank all of you for replying(not to mention how quickly). I am going to look into the zero-gravity chair and TENS unit. Hot tubs as well as jacuzzi has been very helpful for both soothing and taking pressure off so I think I will see if the YMCA in my area has one or if I can otherwise access one. Luckily I managed to get some rest and now after reading the support on this forum I can see I was being kind of silly but I guess you guys might be used to the sort of fog that pain and even gabapentin produce. I think I will give the gabapentin a few more days just to see if my Dr. is right about the side effects decreasing. I have been through a number of sleep aids as well but haven't really been brave enough to try anymore since after going through God knows how many medications when I was younger(mostly for depression, anxiety and sleep) I became a little scared of them. Forgot to mention it wasn't as bad before 2 car accidents one in 2008 and one in 2009 that really exacerbated my pain/lack of alignment. I would apologize for being so apologetic but that seems even sillier than the first set of apologies so I will just say thank you for the support and I hope I can find ways in which I can support people on here. One thing I wanted to add is even though it can't directly help the more intense pain delicious and healthy home cooked meals have helped me especially since it raised the potassium in my diet(I also started taking a magnesium supplement at night which has been helpful but just got to make sure I keep my potassium levels up or it can lead to cramping). A good tip for those on low sodium diets is get "light salt" which is potassium chloride along with the usual sodium chloride and to me tastes identical on food and makes me feel less "salty" hahaha. Also considering taking on the somewhat daunting task of building a flotation tank(high mineral content water for buoyancy and no outside stimulation) so not only will there be little to no stress on my joints and muscles but the heat could be adjusted to slowly melt away the tension.
Thank you again to all of you and know that I really appreciate your time.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 1/5/2012 5:32 PM (GMT -6)   
Hey Valleys, I feel quite certain that you have a lot to contribute to the forum. We all get brain fog for one reason or another so never let that bother you here, lol. I do hope you will give the medication more time as so many of those meds have to build up in your system and in time usually in a few weeks the side effects subside.

I am quite sure the auto accidents sure did nothing but aggravate your condition. I have been in 3 and sure hope no more and each time things got worse. As far as vitamin and mineral levels, yes that can really be a problem. I have crohns disease and had to have a resection of the small bowel, as a result of that surgery I have problems absorbing and stay in the red constantly no matter how much I take. Its a constant battle. Next time you are in having labs done get your dr to check your vitamin D level. They have done extensive studies on low vitamin D and its been proven how it affects pain and can cause pain, so get that checked. Also, if you are in a sunny area get out at least 30 minutes a day in the sun. People up north that do not have a lot of sun were found to be low on vitamin D.

Keep us posted on how you are coming along.
Moderator Chronic Pain Forum

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 1/5/2012 6:04 PM (GMT -6)   
I don't have time for a lengthy post right now...but will write more later. But, I wanted to welcome you to our board!

More soon! ...Tina
I am a Christian mommy to 8 children - 6 wonderful boys and "surprise" identical twin girls. The kids are the love of my life, truly.
Health/Pain Issues - too many to list; feel free to ask
Medications - been on just about all of them; again, feel free to ask.... My faith and my children sustain me, even on my worst days - oh, and my friends here at HW :)

New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/6/2012 12:27 AM (GMT -6)   
Wanted to jump on here again real quick since although it is late I somehow am feeling a lot better for the time being thanks to a massage from an experienced friend. Thank you again those who posted and thank you Tina for stopping by to welcome me, I can already tell there is a lot of love on this forum and I am really glad I decided to take the plunge so to speak and join. I forgot to mention I do take high dose vitamin D and think that with the magnesium before bed and a very comprehensive multivitamin(not sure I can name the brand here so I'll play it safe and just say that despite my age I have been taking the 50+ version of the brand) and think that along with a banana anytime in the morning, prunes, apricots and orange juice have taken it down a small but appreciated notch. Straydog, I believe it was who mentioned the vit. D, thank you for your kind words and I hope I can contribute as much help in any sort of way to this forum. I think that sleeping in allowed me the consciousness to meditate after the short massage and that helped more than one might think(unless familiar with yoga, meditation and the like in which case you know).

Although I mostly meant advice or pointers/tips that were not medication oriented if anyone has experience with non-narcotic (complex subject that needs to be discussed another day/on a separate thread) medications that have helped them or even ones that they think I should pay attention to if my doctor does put me on them. By that last part I mean for example: when I was prescribed Lidoderm patches for quite some time I found that using them for 12 hours then off 12hours(what the prescription said) that I had sort of "rebound" pain where my back felt even worse for the off 12hrs and when wearing the patches it went back to normal. While as when I first put one on I laid down(to relieve the pressure I was feeling) after a couple minutes the pain slowly dissipated and I finally felt like I used to before my growth spurts that really made the scoliosis an issue(and much before the car accidents). Obviously I'm going to try what my doctor and I decide together is a solid option, its just good to also hear some first hand(or second hand if you feel it's helpful) information about the medication in question. Anyways I ought to be getting to bed now just wanted to stop in and then it turned into these two paragraphs, hahaha.
Appreciate you all and thank you all for the warm welcome! I foresee a bright future here(not sure if that is exactly the words I'm looking for but seems darn close).
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