Surgeon says it's time for the SCS trial

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opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 1/4/2012 9:52 PM (GMT -6)   
Hi all-

I had to get nerve block injections on left and right side ribs today. Held off as long as I could. He said I need to do the SCS trial to see if I can get some relief. Problem is that after my esophageal tear surgery I now have severe nerve pain in my left ribs to go with the pain in my right ribs I have had for 4 years now. Both were caused from surgery.
I was scheduled for the trial last April, but since I was still in the hospital recovering from surgery and still had one more surgery to go. Didn't want t have anymore surgeries in 2011, 3 was enough, so I put the trial off until now. I called VA to get the ball rolling again today.

I was wondering if anyone knows if they can get the SCS to cover both sides of the chest wall?

Take care,
Bill devil
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/5/2012 8:04 AM (GMT -6)   

 

      Morning Bill! wink   It's always nice to see another mod visiting us! smilewinkgrin

           HUMM!....I'm at a loss though...as I do not have experience with the SCS units, but I wanted to bump this back to the top, and maybe one of the members will know a little more about it.

    Take care,

      SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"I hope to be the kind of person my dog thinks I am" author unknown

straydog
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Date Joined Feb 2003
Total Posts : 16285
   Posted 1/5/2012 10:23 AM (GMT -6)   
Hi Bill, I am curious as to what your dr has said about the SCS covering both sides or did you not think to ask this question when discussing things with the dr. You know the SCS units have been discussed here at the forum a lot and recently as well. I would urge you to take a look at some of these posts about the SCS unit before doing even a trial on one. Not trying to rain on your parade but this one device I would really have to pass on if this were me.

Good luck.
Moderator Chronic Pain Forum

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 1/5/2012 1:07 PM (GMT -6)   
SE-
Thanks for bumping this back up for me.
I try to bounce around a bit and see how everyone is doing. Since a lot of our GERD members have so many other issues as well. Seems to help me understand what they are going through better and how to support them. I really like your quote of the week too!


Straydog-
I have been trying to keep up with the SCS postings since this was first recommended about a year ago. The surgeon who thinks this is what I need is actually my thoracic surgeon. I forgot to ask about covering both sides though. I did ask about his thoughts on the SCS working for chest wall nerve pain and he said they have had good luck with it in the last year or so.

I also go to the VA in Iowa City and see a PM doctor there. She is who recommended it first. I put a call into her and want to ask her about covering both sides. Still waiting to hear back. She has been following me as I went through all these esophagus surgeries and her nurse was surprised I was already released from the surgeons.
Seemed like forever for the last10 months to go by for me.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 2/21/2012 9:31 AM (GMT -6)   
Hi all-

Just wanted to update this post a bit. I decided to see a local PM doc who everyone says is the best in my area. Actually my wife sees him for migraines and she asked about my ribs and he told her to have me see him first and I should wait to do the SCS after everything else had failed.
So I saw him yesterday. He thinks he may be able to help, but as usual is very conservative. He said my spine is now crooked from what he believes to be from the ribs being spread after so many times and the nerve damage. Also the 2 ribs where the went in to repair my esophagus last March 1st still aren't anchored in yet. H had be bow my back and he said they popped right out at him. Guess that explains why they hurt.

He wants to start with an epidural to get things calmed down a bit and progressively work at lower the pain as much as possible. He did say the thoracic area is pretty tricky though. When I had my cryo-ablation a couple years ago he was the head of the department at that teaching hospital and said they have pretty much given up on that method because there are too many variables and they aren't very successful.

Take care,
Bill
opnwhl4
Moderator: GERD/Heartburn
Nissen 6/06 and 5/09
#3 on 8/24/11
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