Three Day Cycle of Pain?!

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SurfDesigner
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/6/2012 9:49 PM (GMT -6)   
Hello,
I am new to this forum, so let me give you the basics: I have not had any surgeries, no broken bones, etc. I do have a history of sprains and strains, tendonitis, etc. At the age of 40, after over 20 years of very physical jobs, including 10 years in the Navy, I was diagnosed with moderate arthritis in both hips and all the way up my spine to the base of my skull, but was told that OTC pain meds would take care of things. That was great, until they stopped working on the pain and started working on my liver. On top of that, I have been going through a very bizarre pain cycle: Late on day one, the back of my neck stiffens up and becomes VERY painful, lasting about six hours. That eases up, and sometime during day two I develop moderate to severe aching pain in every muscle from my neck to my toes. That pain lasts about 12 hours before easing off, leaving me exhausted from the ordeal for all of day three. Day four, the cycle starts all over again. This cycle has been going for almost a year, with the exception of two months last summer, and two weeks last fall. Maybe relating this story here will trigger something, and lead to some answers.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 1/7/2012 5:26 AM (GMT -6)   
Hi Surf, and welcome.

I'm sorry that you're going through this pain cycle. What does your doctor say about it? Is your arthritis a contributing factor? With it being muscle pain, does something like heat or massage help you at all?

Wish I could think of something else to suggest - hopefully some of the others will have some ideas.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16799
   Posted 1/7/2012 7:11 AM (GMT -6)   
Hi Surf and welcome to Healing Well's chronic pain forum. I am glad that you found us but sorry that you have to be here. Arthritis can really be quite painful and deal a person a lot of misery. I have it all the way down my spine starting at the base of my neck all the way down. What has your dr had to say the way this pain cycles so much.

By chance are you being see by a rheumatologist or just a primary care physician. I take a prescription medication called Mobic and it is pretty mild on the stomach.

I don't have an answer as to what is causing your problem but just wanted to pop on and tell you welcome aboard. Take care.
Moderator Chronic Pain Forum

SurfDesigner
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/7/2012 8:19 AM (GMT -6)   
Hi, and thank you for the welcome!
I have had many blood tests for: rheumatoid arthritis, lyme disease, lupus, hepatitis, other common painful disorders, and been evaluated for MS and Fibro. I have seen three different primary care doctors, three different ortho doctors, a rheumatologist, and a neurologist. I have tried all the NSAID's (leading to liver damage), Cymbalta, Mertazapine, Lyrica, and Flexeril all with little to no effect. The doctors have all said the same thing - HHMMM....UUHHHH....WWEEELLLLLL....I'm not sure.
They all agree that there is more going on than just arthritis, but no idea what.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/7/2012 11:00 AM (GMT -6)   
Hi Surf
I wanted to welcome you to our chronic pain forum. Glad you found us but sorry you are having such pain. You will enjoy the members here as everyone is so care, understanding and non judgemental. Hope you will stick it out for the long run with us.

You have certainly seen many different specialty doctors and tried some different meds. What about a pain specialist? Have you had an mri done?

Others will be along with more suggestions for you so hang in there.

suzane

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 1/7/2012 12:08 PM (GMT -6)   
Hi Surf,

One idea that comes to mind is that it is an inflammation pattern that ebbs and flows perhaps related to your activity level: it gets triggered, which either impacts your spinal cord, a nerve relevant to a gland over or under producing a hormone, or some other systemic mechanism. Perhaps you should try to modify the cycle by either decreased or increased activities. If, for example, on your most painful day, you were very active, I wonder if the pain would last into the next day. Or, if you did nothing for the better part of a week, perhaps the cycle wouldn't start.

Of course, I'm not an MD, but thought I would mention what came to mind.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16799
   Posted 1/7/2012 2:02 PM (GMT -6)   
Hi again Surf. After reading all the drs and meds you have been through have you ever considered being seen at a teaching hospital? Many of those facilities are able to find things that others could not. They also have access to many things our traditions drs do not, some of the best equipment around .Seeing how everyone else has bombed out on coming up with answers may be time to consider a teaching hospital. In CP101 at the top of this page if you will click on there and scroll through you will find a list of teaching hospitals and perhaps there is one close to you.

Take care.
Moderator Chronic Pain Forum
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