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New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/7/2012 12:21 PM (GMT -6)   
Hi Friends,

I am new here ... and like everyone else, I am here because I am looking for a place where everyone can acknowledge and accept my deepest and inner most feelings, fears, regrets, acknowledgements and joys.

Let me share a bit about me ...

Something I struggle with is my health. I have several serious and chronic conditions, the most life threatening of which are my poor functioning kidneys. I was born with kidneys that did not function properly. After several surgeries (at 6 months of age) to correct the problems, I have suffered all of my life with chronic kidney and bladder infections (today at age 47 I get 3-4 infections a month which are, for-the-most-part treated by oral medications). Moreover, having my two children (daughter is 21 and my son is 18) has greatly weakened my kidney functioning to the point that doctors say (I am associated with the kidney transplant team at St. Michael’s Hospital) I will, at some-point-in-time, require a double kidney transplant. I also battle my weight and was molested as a young child by my kidney doctor. This went on for 8 years (ages 5 to 13). I was also in an abusive marriage (physical & emotional) for 9 years. I have been joyfully divorced for 16 years now.

I also suffer from chronic pain – I have 8 herniated discs in my back, plantar fasciitis in both heels, chronic headaches (caused by the herniated discs), constant numbness in both hands and all fingers (caused by a strain on my back 2 years ago), arthritis in my knees which makes bending them hurtful, I have a hyiated hernia (disease that creates burning in my throat when I eat, bloating and the reflex of throwing up my food), and I just went through an episode of ‘gout’ (brought about my kidneys NOT being able to efficiently and effectively rid the body of uric acid.

Thank-you for taking the time to read this.

OX Jen
have a great day & may it exceed your expectations

Betsey Ross
Veteran Member

Date Joined Mar 2011
Total Posts : 1056
   Posted 1/7/2012 12:37 PM (GMT -6)   
Hi Jen

Welcome to our forum. So sorry that upu have a number ofissues. You will find emotional support on this forum by our warm and caring family.

Please come here when you want to vent or offer emotional support to our members.


crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

Forum Moderator

Date Joined Feb 2003
Total Posts : 15851
   Posted 1/7/2012 12:53 PM (GMT -6)   
Hi Jen and welcome to Healing Well's chronic pain forum. After reading your story sounds like to me you have a very full plate with health issues. I can relate to the multiple health issues always makes things a little on the hectic side at times. One thing we all understand here and thats pain.

I don't have a lot of experience with kidney issues. My one and only experience with kidney problems was when my dad had to have a heart cath done and the drs said the dye used in this test would finish his kidneys off and he would end up on dialysis. True to the drs words that is exactly what happened. The cath was a must it had to be done. When your dr says you will need a double transplant did he give any ideas as to when he thought you would get to that point?

As far as the herniated disc problems has any dr ever recommended surgery? Many times people with herniations end up having surgery. You spoke of your hands and fingers being numb, that generally happens when a person has a herniated disc in their neck and a nerve is being pinched or compressed. We have some members that ended up having surgery to correct this problem. Do you see a pain mgt dr or does your primary care dr handle your pain situation? Wow, then having gout on top of all of this. My kids dad gut hit with gout and I remember how painful it was when he tried to stand or walk the foot pain was incredible. His job required him to be on his feet 12-14 hours a day. He was put on medication and and given a diet to help keep the uric acid down.

The weekends tend to run a little slow so don't be alarmed if you don't see many people posting, its kind of a hit & miss type thing on the weekends. Anyway, I wanted to pop on and tell you welcome aboard. Keep us posted on how you are coming and take care.
Moderator Chronic Pain Forum

New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/7/2012 5:04 PM (GMT -6)   
Hi straydog,

Thanx for taking the time to read my post & write back ... and such a thoughtful one at that.

Let me respond to you Qs:

1) as for my kidneys, my transplant team is with St Michael's HOspital. The head of the team is wonderful. As for an eta for transplant - they are trying to prolong it for as long as possible because: 1) the wait list for a double kidney cadaver is 12-15 years, and no one has ever been on dialysis for more than 9 years; and 2) I am prone to chronic kidney & bladder infections with no known cause for why these happen, and so, I may not even get a transplant if they feel it would be 'wasted' on me because the infections would destroy the new kidneys.

2) surgery for back - because my kidneys are so frail, most specialists R frightened to treat me as it may further the damage to the kidneys. This is the for back surgery. As well, the dr I saw said there is NOT even guarantee that the surgery would eliminate the pain, or even reduce it to a state better than where I am now. As well, I would NOT be allowed to take the pain medications after the surgery because there are injurious to the kidneys.

3) numb hands came as a accident when I was doing a practicum for school in 1999. I was transferring a patient from their wheelchair to the toilette.

4) I have uric acid build p as a function of the kidneys NOT working properly. I am a low sodium and low protein diet, and so that is NOT the reason for the gout.

Thanx again for your reply - you were so kind to reach out to me.

xo Jen
ox Jen
have a great day, and may it exceed your expectations

New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/7/2012 5:06 PM (GMT -6)   
Hi betsy,
Thanx for the hugs and warm words.

Xo Jen
ox Jen
have a great day, and may it exceed your expectations

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 1/7/2012 6:20 PM (GMT -6)   
Hi Jen. I just wanted to pop in and welcome you to HW. HW has been a lifesaver for me. I am not on the site posting as much as I would like to be lately. But, I just wanted to welcome you. There are so many wonderful, kind, supportive people here.

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 1/7/2012 7:49 PM (GMT -6)   
Welcome Jen to our cp forum. I'm glad you found us but sorry it is under these circumstances. You will enjoy your time here as the members are super caring and understanding.
Keep posting with us and let us know how you are doing.


Regular Member

Date Joined Jan 2012
Total Posts : 66
   Posted 1/7/2012 10:00 PM (GMT -6)   
Hi Jen,
I am new as well and everyone has been just amazing. I hope you find some comfort knowing you are with people that care.

Forum Moderator

Date Joined Mar 2011
Total Posts : 1276
   Posted 1/7/2012 11:47 PM (GMT -6)   
Hi Jen, and a warm welcome to the forum from me as well. I'm sorry that you have so much on your plate, and such complex issues too. It's very difficult when doctors have to try a balancing act to maintain one condition without compromising another, and it's terrible for you as the one suffering.

I'm glad you've found us here. As the others have already said, this is a very warm place, and I hope you will find plenty of support here.

Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Veteran Member

Date Joined Nov 2011
Total Posts : 615
   Posted 1/8/2012 1:42 AM (GMT -6)   
Welcome to HW forum Jen....I am so sorry you have so much on your plate, it seems alot of us on this forum have more than one chronic illness. I am sure you will find a great deal of caring people here and they understand. I have not had problems with my kidney's however I have worked for healthcare for 23 years so I do know abit about kidney disease. Are you on the list for kidney transplant?
I will keep you in my prayers and thoughts, I hope to see more postd from you.

Blessings, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

New Member

Date Joined Jan 2012
Total Posts : 5
   Posted 1/8/2012 12:10 PM (GMT -6)   

Thank-you all for taking time from your day to send along your warm words and support. I am overwhelmed by this ... and feel like crying. I accept your 'hugs' and look forward to this ne 'family' environment.

ox Jen
have a great day, and may it exceed your expectations
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