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beantown mom
New Member


Date Joined Jan 2012
Total Posts : 3
   Posted 1/9/2012 2:14 PM (GMT -6)   
Brand new to this community and let me just say, I think I could spend the next 6 months just reading all the great information here! A little background information:

I am a 46 (soon to be 47 smhair ) year old female with a diagnosis of degenerative joint disease, Fibromyalgia, Achilles tendonitis, plantar fasciitis...good grief, maybe it would be a shorter list to say what I don't have! Anyway, I was just recently referred to a pain management physician after almost 3 years on Vicodin 5/500 prescribed by my family doc. The Vicodin had long stopped being effective and I ended up taking my own "medication vacations) in order to try to help boost the effectiveness of the Vicodin, especially during the long, painful Ohio winters. PM doctor ordered a bone scan and found bone spurs and joint degeneration (or complete obliteration) in bilateral shoulders, knees, thumbs, mid foot and right ankle.

I find myself in the catch 22 of being inactive due to pain, gaining weight due to inactivity, inactivity due to increased weight and pain in joints, gaining weight.....well, you get the picture. I just don't know what to do or where to go. I have had injections in both thumbs with Cortisone in the past week. The PM doctor has placed me on Butrans patch 20mcg but I have so much breakthrough pain I am not comfortable on this new medication. The PM doctor cannot see me until the end of January, due to the loss of office hours during the holidays.

OK, sorry about that. I just wanted to give a short history and introduce myself; didn't mean to turn it into a whine fest. It's just nice to know there is a community here where people can relate to what I am experiencing.

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 1/9/2012 3:14 PM (GMT -6)   
Hi Beantown Mom. Welcome to the board.

I'm curious, did you find the "medication vacations" to be at all effective? How long were the breaks?

5mg of Hydrocodone is not much of a dose, especially after 3 years of use. Hopefully your PM will have some more suitable options if the Butrans patch is not working. There are also, as I'm sure you know, various medications marketed for Fibromyaliga as well, such as SNRI's (Savella, Cymbalta, etc.) and GABA-based medications (Lyrica, Gabapentin).

Regarding activity, I have a recumbent bicycle, which I use regularly. It is in the family room and faces the T.V., so I can just peddle away while watching. I keep it on a low-resistance setting because of my hip problems, but I can still get a fair cardio workout. I have also recently purchased an XBox with a Kinect. Though I can't do much with the latter, it can be a very fun way to exercise. They have sports games, fitness games, etc..
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/9/2012 5:25 PM (GMT -6)   
Can you ask your pain management Doctor about starting physical therapy slowly
and once you get some physical therapy started maybe look into a recumbent bike
like cogito mentioned as not doing any thing will cause pain possibly more
pain and is generally not good, make sure to let your PM Doctor know that
your not doing anything, maybe even try tai chi as its slow and can be done in a wheel
chair, so there has got to be something for you to look into,Many well wishes to you
and do keep us posted as we do care...also maybe look into ultra sound
treatments....
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

beantown mom
New Member


Date Joined Jan 2012
Total Posts : 3
   Posted 1/9/2012 5:31 PM (GMT -6)   
Thanks, cogito, I appreciate your response. The medication vacations were mostly in the summer months, May to August, sometimes September. We have an above ground pool and my wonderful husband built an amazing deck to make it easy for me to get in and out. The vacations seemed to help when I would initially start back up, usually full dose of 6 Vicodin a day by the time the cold weather would set in but mid-November or December and I would be back to very little relief from the medication. I know the Vicodin was never a large dose. I tried on several occasions to talk with my family doc to see about increasing, but she was convinced that would enable me down the path to hell and addiction confused I have been on the strongest dose of Lyrica (400mg. a day) without any relief.

I hope this new physician can find something that works for me. I really don't think I can stand this constant pain much longer. There are days when I can't physically step up or down one simple step out of my house.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/9/2012 5:35 PM (GMT -6)   
Some physical therapy places have pools that you could go to in the winter months...
if the road ways are good for you to get out, just a thought...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 1/9/2012 6:12 PM (GMT -6)   
Hi Beantown Mom,

You've been given some great suggestions already by Chart and Cogito. I'm not sure I can add much to them, but just wanted to stop by to welcome you and wish you the best with your PM appointment.

Please don't ever feel that you're having a 'whine fest' either. We're all in the same boat here, regardless of what causes our pain, and you're always welcome to blow off steam if you need.

Look forward to getting to know you :)

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Betsey Ross
Veteran Member


Date Joined Mar 2011
Total Posts : 1056
   Posted 1/9/2012 6:25 PM (GMT -6)   
Hello Mom

The Butran patch.....doc start out on a low dose and tritrate it upward for strength. I was on 40 mg of butran patch and it didnt help me. But some ppl it does help.

I sure hope and pray that you get pain relief soon.

Please advise us on your health.

Nice to meet you
Spft Hugs
Betsey
crushed lower knee and vertical fx of tibia/external fixator placed/plates and screws and tried to place big pieces of cartiledge under knee cap/tremendous pain in affected leg continously without improving/allergic to metal in left leg/leg isnt straight/ metal removed in July//then total knee replacement/straighten out leg/more phsyxical therapy/take oxycontin,flexeril,cymbalta,vicadin for BT

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 1/9/2012 7:12 PM (GMT -6)   
Welcome Beantown Mom....I hear ya sista! It know fun to have such pain, I hope your pain doc can get this better under control. I have been on meds for a while now and for the best part it is controlled and I don't seem to need BT unless I am in a flare. Now don't get me wrong I always have pain but it is controlled. I am so glad you found this site, I have found it to be very helpful....I wish you all the best.

OH and Laura is right don't think of it as a "whine fest"..we are all in the same boat...

Take care, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

SweetRandi
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/9/2012 10:16 PM (GMT -6)   
I have just moved to another state and have severe chronic pain due to a nicked spinal nerve..been on hydrocodone 10/500 for 9 years..I also have Hep C..My new Doctor has me on 100mg morphine ER 4X a day and 30 mg Morphine sulphate..I'm in pain..I see him tomorrow and am thinking if I should try the Fentynal Patch or Percocett 10/325 and stick with the Morphine..I don't want to be loopy....My nerve damage manafests itself as if a lit cigerette lighter was way up my private parts..It's agonizing. '
I have just remarried, after being widowed....PLEASE give me your feedback..I feel so very alone. I've been thru 5 operations..8 spinal injections..it's horriffic..I am truly grateful. I have 2 daughters..and I've been sick their entire lives with something..it hurts me to have them see me this way..I know the stress has contributed..and I have great support..I just am not knowledgable about these medications.

Post Edited (SweetRandi) : 1/9/2012 8:35:16 PM (GMT-7)


bayoub2
Veteran Member


Date Joined Sep 2006
Total Posts : 2861
   Posted 1/10/2012 8:18 AM (GMT -6)   
Hey Sweet

Welcom to the forum..this is a terrific place for support and meds advice...we have been on it all!!!!

Sorry to hear you are inn pain...me too...I have to get daughter off to school so will come back after that, ok?

Maggie
"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

seroquel, hydrocodone clonazepam norvasc multi vitamin and magnesium
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