I am new to this site and hoping to connect with other people that have LPHS. I was diagnosed back in 2004 and until the last 8 months have been managing okay with it. I would have flare-ups every 3 or 4 months, but in the last 8 months, I've been hospitalized about 5 or 6 times to manage the pain and nausea. My medicine has been keeping my pain under control until last April or so. Now, no matter what they try to put me on maybe if I'm lucky will take the pain from a 9 or 10, down to a 8, and that's if I can even keep the medicines down.
I've read some of the other posts about what different things people have tried, procedures, medicines, etc.., and I'm guessing I just want to see if anyone has any suggestions for me. I have an appointment with my nephrologist tomorrow afternoon, but if it's anything like the last time I saw him 12 months ago, he'll just tell me that there's nothing else that he can do for me, and we just have to manage the pain and hope for the best. I'm a mom of two and a military wife, so sometimes "hoping for the best" just doesn't cut it!
I'd appreciate hearing from anyone else out there who has LPHS and/or anyone who has dealt with or is dealing with chronic pain.