My new pain scale

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Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/19/2012 12:04 AM (GMT -6)   
I look at those pain scales every visit and I have to decide if I should be 1 fine to 10 uncontrolled crying.

I disagree

1.. thank you for a moment to breath and laugh with my family

2... can someone help me, just talk

3... I am sorry Mom can't cook dinner tonight, ramen?

4... I need to rest again today, more ramen?

5... Please don't get worse...

6... Call the neighbor, maybe she has extra for supper for the kids tonight

7.... Smile and pray that you can keep the tears away when anyone is looking

8... Pray for sleep its the only time you can't feel for a few minutes.

9.... start typing a new pain scale on healingwell.com

10.. Pray that no one else in this world has to feel this


I can't afford to writhe and torment myself with this condition. That will never be my ten.

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/19/2012 12:12 AM (GMT -6)   
I love it! Well said :)
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 1/19/2012 12:53 PM (GMT -6)   
I have always found the pain scale too vague.

Here's mine.

0. no pain

1. a pain (tinge, ache) that is only noticeable if one mentally focuses on it

2. a pain that declares itself, but has no hold on you. Just passive attention on almost anything can win your attention from it.

3. a pain that draws your attention to it and requires some doing on your part, some purposeful focus on to something else (a mediocre t.v. show can be enough).

4. a pain that you struggle to find something sufficiently powerful to distract you from it (a lively conversation, a good book, a fun game, something that require your active engagement such as writing a post on this website ;) etc.).

5. akin to 4, but you'll have trouble keeping your focus consistently away from it and most of the time, it declares itself and competes against all else for your mental space.

6. Where the tide turns in favor of the pain and though you can still have your attention on other things, the pain has become your master.

7. You're overwhelmed by the pain and every other thought is swamped by its power.

8. akin to 7, but the pain breaks forth into shaking, convulsions, screams, or in other ways has taken your body not just your mind.

9. Madness

10. Coma.



Using the above, most days, I wake up at 1-2. Within 30minutes -1hour, I'm at 3-4. On good days, it moves no farther. On typical days, up to 5 or 6. I'll have brief 7's some days, when I've done something I shouldn't have. 8 a few times a year (fortunately quelled after a few minutes lying down).

When I was about 12, during a hike one day, I tripped, put out my arms to break my fall, but my left hand went right through the spike-like stub of a broken branch coming out of a fallen tree. My hand was impaled through the branch, bones broken, and I pulled it free before screaming as blood was gushing. That was my 9.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/19/2012 2:01 PM (GMT -6)   
I spend most days lately between 7 and 8, my ten was waking up after surgery number 5, left colectomy with little to no pain relief for three days, it was a fog of screaming and delirium. On day three they finally got it under control. I guess they had been giving me the same dose of meds I was on for regular pain maintenance. Not really sure.
I am sorry that happened to you, I worked a forestry type job for a year and I know exactly what kind of injury that was, I am sorry it happened to you especially at that age.
I hope today is one of your 3-4's

Thanks Smurfy :)
Abdominal surgeries 7ish (C section x2, Hysterectomy, Laprotomy due to scar tissue, left Colectomy, ventral hernia repair,MRSA, Ventral hernia repair removal, MRSA. Ventral hernia repair laproscopic, last surgery left a hole for months that needed to be packed. The last hernia repair was a placement of a Large abdominal mesh with unusual sensitivity to the tacks.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 1/19/2012 2:24 PM (GMT -6)   
You guys are right on with the pain scale. I think the one they use with the pictures makes about no sense.

Every time I go in to the PM office, they ask me what my pain is on the scale right now...at that second. I don't know how to answer. When I get up on most days, I feel like it's a 9 that goes to a 5 after 20 minutes, then to a 3 after an hour. The rest of the day is a struggle to keep it around a 3 or 4 and then I'm back up to a 6, 7, or 8 before bed again. It depends on the day, of course, but it's rather impossible to tell someone how badly you hurt right now. Each person feels pain so differently and it is all relative.

The pictures are funny with no pain and a smile to crying. I'm crying way before I get to a 10. I'm screaming at a 10 or passing out!

It's too bad there isn't a more definitive way to explain true pain to the Dr when you are trying to address a problem because anything that is subject to interpretation is subject to confusion.

This is a very interesting thread!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet, Vision Issues & much more.....

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17895
   Posted 1/19/2012 2:42 PM (GMT -6)   
This pain scale describes our pain perfectly!  Enjoy!
 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 1/19/2012 3:28 PM (GMT -6)   

AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 1/19/2012 3:50 PM (GMT -6)   
Dear all pain-scale ammenders,
I am so sorry you feel such pain! Just bc mine is at 5 today doesn't mean tomrw wont be an 8! You just made me think that I should feel fortunate that today its not so bad ...bc it can always get worse! Pain is not my friend :(
Angelina
age 41
dx: MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
meds: Arava, prednisone, NIFEDIPINE, estropipate, cyclobenzaprine, gabapentin, hydrocod (4BTP), fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vitamin D, B stress complex, PRILOSEC, Transderm-Scop (on hold)

Ssinss
Regular Member


Date Joined Jan 2012
Total Posts : 66
   Posted 1/19/2012 4:30 PM (GMT -6)   
Sherrine, Thank you for the laugh and the small cry. Number 2 and 7, gave me a belly laugh. I feel like printing yours and cogito's out and mass mailing to my local offices, but I will resist and with my luck I would get a paper cut and up my scale higher. Found some great relaxation videos and meditations on youtube YAY youtube.

Glad your having a pretty good day Angelina.
Abdominal surgeries 7ish (C section x2, Hysterectomy, Laprotomy due to scar tissue, left Colectomy, ventral hernia repair,MRSA, Ventral hernia repair removal, MRSA. Ventral hernia repair laproscopic, last surgery left a hole for months that needed to be packed. The last hernia repair was a placement of a Large abdominal mesh with unusual sensitivity to the tacks.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/19/2012 8:01 PM (GMT -6)   
I had not seen these before! LOL…thanks for sharing!

Sherrine it's always good to see one of our wise mods from a far away forum visit us here! tongue tongue

Thanks! …and good post!

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 1/20/2012 1:45 PM (GMT -6)   
Thank you for the laugh!

Mindy

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 1/20/2012 5:49 PM (GMT -6)   
I have such a hard time with those darn things... when I came out of my surgery and I was getting only 2 5mg Percs every four hours in the hospital I was saying my pain was an 8.... really it was 100....

I don't know why I always feel guilty about saying a higher number....

After almost 12-13 years of chronic pain it's hard to judge....

I want to scream... IT HURTS OK...
Posterior cervicothoracic decompression and instrumented fusion (three levels) for spondylosis and stenosis with severe radiculopathy.. surgery performed 3/31/11

sos007
Veteran Member


Date Joined Nov 2011
Total Posts : 615
   Posted 1/20/2012 6:30 PM (GMT -6)   
Thanks for sharing Sherrine.....I had a good laugh!
Chronic Pain(nerve), fibro, mild depression and a few others
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