Holy Guacamole

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Regular Member

Date Joined Mar 2011
Total Posts : 179
   Posted 1/19/2012 10:06 AM (GMT -6)   
Wow, sorry I haven't posted in a while. I swear since Christmas its been a total disaster.

Went to the funeral for my nephews it was beautiful. Still hard to believe their gone at 18 and 21. They had so much of their lives still ahead of them.

Anyway my insurance changed so I had to change my PM doc. This one seems real nice however I'm starting all over to square one with injections. Even though I was approved for the SCS and occipital neuromodulation. Been through too many injections in my neck and they don't seem to work anymore than a couple of weeks. So next month he's doing RF's again. This time on C2 - C7. Not looking forward to that again.

I'm kicking myself in the rear for stopping my pain meds. Even though the MsContin didn't seem to last as long as it should have, at least I got a good 8 hours of pain relief. I think I really hung myself in the longs run. Big issues with my blood pressure now being in the 170/120 range, so now I've added another pill. I've never had a problem with my bp other than when I was pregnant. I think my breakfast is now pills.lol My PCP decided to run an EKG, even though it was normal he wants me to have a treadmill test with the cardiologist. Should be interesting me walking on the treadmill, my husband figures I might last 2 mintes before my left leg says bye bye and sends me sailing.

And to boot my blood sugar has been going through the roof and the more that gets added the higher it goes. I think all the steroids I've been injected with have had some negative effect on that.Starting to get really old. What I would do to have an english muffin with strawberry butter.

And to boot last week my left leg said I don't think so while I was shopping and sent me face first onto the pavement. So sporting a beautiful arm brace. I tore the ligaments in my wrist. I guess it could be worse I could have broken it and cracked my head too.

I'm not going to say what next, because we all know where that can get us. LOL

Only good thing is we finally got the migranes controlled in our 8 year old. She's a much happier camper now.

Hope everyone is having a good day!

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 1/19/2012 10:39 AM (GMT -6)   
Hi Justanotherday
Sorry to hear of the loss of your nephews. Were they brothers? I don't recall what happened?
Well i'm glad you found a new doc that you like. I hope that all the injections will perhaps help you this time around. Can you tell me about the occipital neuromodulation. I believe I read a bit about this on the internet or perhaps it was even from you because i think we did discuss about our headaches once before. i believe it was in new hampshire that they do this. I did give them a call and if i were to be a candidate for the neuromodulation it would cost me over 11 thousand as i am out of state, i live in canada. Anyways let me know.
Let's hope that things improve for you. Keep posting and let us know how you are doing.
Oh and glad your child's migraines are better. What did they do to improve them? My friends' daughter is 13 and she misses a lot of school due to migraines.

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 1/19/2012 10:45 AM (GMT -6)   
Oh my goodness! You have really be put through the ringer lately. I'm so sorry for all of your losses and for all of the extra pain and problems. Hopefully they will consider a chemical stress test instead of making you do the treadmill. There is no way for that to be accurate with all of your injuries.

I feel so sorry for you for falling at the mall. I had a issue at the mall with my husband and daughter last week too. My right leg was dragging behind me and numb from the buttocks to the knee. He had to help me get it in to the car. I did not fall though...thank Goodness!

It's wonderful that you found the solution for your daughter. I know how painful it is to have migraines and how painful it is from the parent's prospective.

I hope you find your life greatly improved from this point forward. I know you certainly deserve it!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet, Vision Issues & much more.....

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 1/19/2012 12:37 PM (GMT -6)   
Many Sympathies on the loss of your nephews...and Sure hope things will improve...
Yes it is hard to start over with new insurance, but hopefully they won't make you
jump to hard thru their hoops...Maybe if your new doctor can push you thru faster after
you've had the RF's...good luck with the tread mill, you can only do your best, just
take it slowly and let them know before that about the falling down and that
you might fall, as they can take precautions...many many well wishes to you
and do keep us posted on how your doing...we do care...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Regular Member

Date Joined Jan 2012
Total Posts : 135
   Posted 1/19/2012 4:24 PM (GMT -6)   
So sorry @everything - your nephews, new ins (ugh!), fall, pain etc. You just have to go 1 day at a time & as a good friend told me once ..Move Forward! Hugs to you!
age 41
dx: MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
meds: Arava, prednisone, NIFEDIPINE, estropipate, cyclobenzaprine, gabapentin, hydrocod (4BTP), fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vitamin D, B stress complex, PRILOSEC, Transderm-Scop (on hold)

Veteran Member

Date Joined Nov 2011
Total Posts : 615
   Posted 1/19/2012 7:35 PM (GMT -6)   
Dear Just....I am so sorry for your losses that is awful and so young. Try to hold memories of them close to your heart. Now you also have to deal with new insurance, like Angelina said take things one day at a time......

Bless you, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

Veteran Member

Date Joined Sep 2006
Total Posts : 2861
   Posted 1/20/2012 8:26 AM (GMT -6)   
Dear Just

condolences on yr nephews..there are really no words for the loss of a child.

My daughter gets migraines altho not so often as yours. she takes Maxalt and seems to do the job!! Hope she stays migraine free.

2012 is starting out with a BANG for you -hope it goes much better from hereon in

Just sending healing thouoghts to you

"We never realize how strong we are, until being strong is the only thing left"
Major Depressive Disorder, ptsd, fibromyalgia, chronic pain, l3/4, L4/5 gone, bursitis arthritis sciatica

seroquel, hydrocodone clonazepam norvasc multi vitamin and magnesium

Regular Member

Date Joined Mar 2011
Total Posts : 179
   Posted 1/21/2012 10:27 AM (GMT -6)   
Thanks everyone for all the well wishes.

Suzanne, yes they were brothers. They had just left their mom's to head to their step mom's on Christmas. Going a little too fast in the snow, skidded sideways into an oncoming vehicle. Killed the 2 of them and the 2 occupants in the other vehicle instantly.

Yes I'm the one that talked to you about occipital neuromodulation. Dr Greenspan in New Hampshire. I've left it in the wayside as my insurance won't cover it and the rep from ANS St Judes said that the stimulator themselves cost $20,000. And the fact that I need 2, I just can't come up with that kind of money without selling our house.

The neurologist put Sophie on cyproheptadine. Its actually an antihistamine but they've found it works on migranes in children. Seems to be working really well. Beats having her miss school or come home vomiting. We haven't figured out a trigger however we now know when she's going to have a migrane because we've noticed her eyes start twitching about an hour before.

Just thought I'd give everyone a little chuckle. To top of the beginning of the year. The other day the school nurse called to let us know our 13 year old had stapled her thumb. So we go to pick her up, staple still in her thumb. I've never laughed so hard in my entire life. The nurse couldn't get it out. Anyway had to take her to the ER so they could remove it. They also had to x-ray to make sure she didn't hit the bone. All is fine now. Just funny to walk in and her look at us and say "don't ask" and started laughing. Must have been the in thing that day because she was the 2nd out of 3 students to staple a finger.

Veteran Member

Date Joined Oct 2009
Total Posts : 5028
   Posted 1/21/2012 11:25 AM (GMT -6)   
Dear justanother day -
Just a thought re: Sophie.  Have you tried keeping a food log (writing down everything she eats, drinks, meds, times and symptoms with times)?  A lot of people with migraines have food allergies/intolerances.  The reaction can show up 2 days after ingesting the trigger.  My allergist had me keeping a journal and it helped me find my trigger.

Good website for migraine caused by food trigger: http://www.learningtarget.com/nosulfites/index.htm 
And guacamole would definitely set off MY reaction!

Regular Member

Date Joined Mar 2011
Total Posts : 179
   Posted 1/21/2012 12:32 PM (GMT -6)   
Hi Alcie,

Yes we did for about 6 months before they started her on meds. The docs couldn't figure out anything with what she was eating. She doesn't like chocolate or sugary stuff. She's not big on meats either. I swear the child would live off from baked potatos and salad if we let her. She's never been on any meds until now. They are questioning if it may be a side effect of her head injury she ended up with when she was little. She fell out of a first story window when she was a toddler. She also has acquired apraxia and dysgraphia form the fall.

I wouldn't eat the guacamole. I don't like avacados. lol

Your so right about food allergies/intolerances. I have to be careful with alot of fruit and veggies because of the sulfites they are sprayed with. I
would end up in the ER because of my asthma

Also found out that the red dye in hotdogs is salicylate. So if your allergic to aspirin you need to be careful of the red dyes.
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