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New Member

Date Joined Jan 2012
Total Posts : 11
   Posted 1/23/2012 11:15 AM (GMT -6)   

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 1/23/2012 11:21 AM (GMT -6)   
Nanase, let us first try to help with your other posts, please be patient , other will come by soon
with some help for you...We can all tell your very frustrated with this and we understand that...many well wishes to you...
I posted a reply on one of your other threads...others will be by Okay...Many many well wishes to you hun, we are concerned for you...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 1/23/2012 11:34 AM (GMT -6)   


       Morning nanase!

          We have several members who have had this done, and White Beard seems to be our local expert on it. You can also send him an email if you wish, or I'm hoping he will see this post and respond.

     I will try to look up one of his old post on it and post it here....and you are also welcome to use the search feature listed in the upper righthand corner of this page. I'm sure there will be plenty of information there for you to read on it.

     ...also I understand your frustration, but double posting is against the forum rules here. I deleted your other post for that reason. Give the members time to respond to your questions. We are not Dr's here, so we cannot diagnose your problem. I sounds like you may need a second opinion, and bare in mind that your type of surgery may take several months to heal. Again I will do my best to contact other members who have had this type of surgery.

     ... Take care!

     SE wink

Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 1/23/2012 10:00:18 AM (GMT-7)

Regular Member

Date Joined Jun 2009
Total Posts : 256
   Posted 1/23/2012 1:43 PM (GMT -6)   
Yes, White Beard helped me so much and lots of others here...

My approach was posterior... my neck was open from C2- T3.... my scar runs 7 inches down the back of my neck...

Please look up some of my older posts... I promise you I had one with this exact same title...
Posterior cervicothoracic decompression and instrumented fusion (three levels) for spondylosis and stenosis with severe radiculopathy.. surgery performed 3/31/11

New Member

Date Joined Jul 2010
Total Posts : 7
   Posted 1/23/2012 3:14 PM (GMT -6)   
I had an anterior cervical disk fusion at C5-6-7 in Feb 2001. (With donor bone and titanium plating/screws.) I immediately felt better and had a positive experience. Several years later I was rear-ended in a car accident causing the plate to shift and three of the screws to break.

Much of my pre-surgical pain in my chest and arms has since returned. Neurosurgeon says it is due to screws impinging in spinal canal, but too risky to go in and take screws out.

What sorts of problems are you experiencing? When did you have the surgery?

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 1/23/2012 6:11 PM (GMT -6)   
Hi nanase, you have had quite a surgery, and with that said it will take a while for you to get any where close to feeling back to normal. So Please be patient with yourself, it will take some time, I had my first ACDF done in 1985  and I had some major damage done to my neck, the disk was at C-6/7 and it was so badly herniated that I had free floating fragments of the disk floating in my spinal canal! In fact the disk was pressing into my spinal cord and the spinal cord looked like a horizontal U shape, the doctors could not figure out why I was not a quadriplegic the damage was that bad! Well I had the surgery and at that time they did not use any hardware such as screws and a plate, or donor bone in a cage. They took the bone graft from my pelvis, and put it where the bad disk was. When I awoke from the surgery my head and my arms and my hand were completely numb. I was in a private room and was dark, and no nurse call button in sight! I had a soft cervical collar on my neck and I hurt like crazy, my neck and my pelvis. I tried calling out and I had no voice! I was terrified! I was in the military, but at a civilian hospital in downtown Anchorage Alaska! I was in the hospital for  eight days and then released back to the military, hospital in at Elemendorf AFB they did not have room for me so they gave me a plane ticket and sent me back to Eielson AFB just out side of Fairbanks with no post op instructions! They did not even make arrangements for my luggage so I had to try and carry it myself!  When the stewardress on the plane asked me about my cervical collar and I wrote her a note, since I could not talk she literally freaked out and said I should have been allowed to fly alone and that they should have been told about my condition.  It was very very scary, and when my wife picked me up at the airport in Fairbanks she had called my doctor on the base, and he was did not know I was even being released or sent back. Anyway I stayed at home and slept in a recliner, and I was not allowed to work or even go outside for many weeks, as it was winter and icey and they were afraid if I slipped and fell I would damage the graft till it had time to take hold and grow solid, (remember not hardware to keep it in place and solid) after six or eight weeks I was allowed to go back to work light duty for two hours a day for a few weeks then 4 hours a day  two in the morning and two in the afternoon, over a couple of months I worked up to being back full time. It took over three months for me to get my voice back. The surgery did take away my arm pain but it took many many weeks of recovery before I even started feeling better. It took the Air Force about 3 months before they finally diagnosed me, and then it was an emergency and they had to do surgery right away, thus sending me to a civilian surgeon at a civilian hospital in Anchorage. I survive the ordeal and retired from the Air Force in Sept 1991.  Every since that surgery I have had problem with an abnormal gag reflex and some swallowing difficulites.
In Sept 2009 I had to have another ACDF at C-5/6 ( the disk above the 1985 fusion) I was having pain in my arms again, they wanted to go in on the front left side, but with the trouble I had with my first fusion, ( it was done on the right side) they checked my vocal cords before doing the surgery. They found that my vocal cords on my right side was still paralyzed from my first surgery, so they could not go in the left side as they wanted, because they were afraid if they paralyzed my vocal cords on the left I would have no voice at all!. (that is a risk with this type of surgery) Anyway this time I was in the hospital three days, and they used donnor cadaver bone, and a plate with screws to hold it together. As soon as I came out of surgery my arm pain was gone and the surgery went well! Recovery was still difficult and I had about two months of physical therapy after I got healed up well enough to start having it.  I did have my good and not so good moments, I posted here at this forum all through my ordeal. My friends and family here  at Healling Well helped me get through it! Twice in fact! As the following year I had the articular joints at C-3/4 fused, they went through the back of my neck for that one, and put in pins and rods. My family here on this forum, was here for me all the way through that ordeal. I can not thank them enough for all the support they gave me!
nanase talk with your Doctor and tell him of any problems your having, and follow his instructions to the "T" and be Gentle and Patient with yourself, ( I cannot stress that enough!)  and of course, come here and share any thing you want to share with us, you are family here, we all are here to support you, and we all understand what you are going through!  We will listen and we are here for you. {By the way I did see your other post and I had written a very long reply to your thread, ( twice in fact) and both times before I could submit it, it dissappeared, and I finally got discouraged and gave up. that was a while ago.} So sorry I did not get back. 
Anyway I hope this has helped you in some way, and just know that you are not alone! If I can be of any further help just let me know.
Good luck to you, and I do wish you well!!
White Beard 
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 1/23/2012 4:20:18 PM (GMT-7)

Regular Member

Date Joined Feb 2012
Total Posts : 21
   Posted 2/3/2012 10:14 PM (GMT -6)   
Hi Nanase, I too had the same level and exact surgery you did. You have my sympathies as far as the healing. That being said, after about month 4-6 I really started feeling better. A year later and I felt great. I too had someone rearend me like the previous poster, and it shifted the fusion ever so slightly eventurally they performed what's called a rhizotomy on it.

But that's my story. WIth the initial surgery it was very very painful and it felt like it took forever so while your healing you may feel like it's taking forever to heal, a surgery of that magnitude will take up to a year sometimes to feel really good again.
I kept a pain chronicle, like a diary of my pain. It really helped to look back at my progress! And if I may be so bold, I had a massage therapist work only on my neck to help break up the scar tissue and help the tension with tendons, and muscles in the neck and shoulder area. Obviously you'd want to check with your doctor first, and maybe even have a physical therapist do it too, but the one that worked on me was skilled in manual therapy and I went 2x's a week post op 6 months to help break up the scar tissue and relieve the spasms on my shoulder blades and trapiezum muscles. It really helped me. Best wishes for a full recovery and feeling 100 percent by the spring! CHEERS
2000 a minor accident that caused a major hern in my C/5C/6. After neck fusion I did well.2005 was rearended the neck fusion was altered I had to undergo another neck surgery and now had a low back surgery too. 3 years of rehab and I finally went back to work. 2009 exiting a store a driver hit me in a pedestrian walkway.Now w/ low back fusion my LB didn't take the fusion. I have a fried spine.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16767
   Posted 2/4/2012 2:43 AM (GMT -6)   
Hello Friedspine and welcome to the chronic pain forum. I am so glad that you found us. If you don't mind would you start a new post and introduce yourself to all of the members here at the forum, that way everyone can pop on and give you a proper hello and welcome aboard. Otherwise not many folks will see your post here.

Again welcome aboard!!
Moderator-Chronic Pain Forum

Ali 2012
New Member

Date Joined Feb 2012
Total Posts : 1
   Posted 2/4/2012 5:45 AM (GMT -6)   
I had an anterior cervical fusion with donor bone and titanium screws at C5,6,7 in 2005. I had never had pain from the problem; I would simply be walking and sometimes my right foot would not move forward and I would fall straight down on my face. No fun, for sure. I had the surgery one morning and went home about 3:30 pm the same day. The best "treatment" I now use is simply a neck pillow.......the oblong kind containing buckwheat hulls or even those tiny styrofoam balls. The whole point is to keep your neck supported when lying down and sometimes in the recliner, as well.

Hope you get better very soon !

New Member

Date Joined Feb 2012
Total Posts : 2
   Posted 3/5/2012 11:21 PM (GMT -6)   
I had cervical disc prolapse at C 6/7 and a anterior approach laminectomy with graft from pelvic bone plus a fusion with a metal butterfly plate  in 2010 in New Zealand. I was told that I had about 40-60% permanent damage (myelopathy) to my spnial cord, as it was late detecting what was exactly wrong and where. But I recovered nearly 80% after surgery with physio over six months. I still have chronic pain, numbness and stiffness below knees and some burning type of pain in my lower arms below elbow, which I have to live with for the rest of my life and now I am more or less used to it, but my most troublesome and nagging problem is spasmodic bowel sphincter which gives rise to intermittent constipation and so much discomfort. I started taking Beclofen and felt bit better for some time but now it seems I am back to where I was (constipation and being unable to pass stools as I wish). Is there anyone who knows what will work for me with some expereince of the same/similar problems.

New Member

Date Joined Mar 2012
Total Posts : 5
   Posted 3/8/2012 1:12 PM (GMT -6)   
Hi, I had cervical fusion July 2008 at C6-7, for ruptured disks and myolopathy. The surgery itself was fine, but the aftermath has been a nightmare of chronic pain. I was well controlled with extended release morphine and Percocet for 3years and able to work at my job 3 days a week and participate in swimming/walking. After a fall in November 2010 and feeling something shift in neck I stated having symptoms on right side of body whereas before pain and burning was confined to left side. After having to stop morphine due to personality change and paranoia, I am unable to work since July 2011. I cannot sit, stand or walk for longer than 20mins with needing to lie down. If I walk/stand longer than 1 hour my knee starts giving out and I stumble/fall. I have many drug sensitivities/allergies and am unable to take antidepressants for pain relief due to heart condition long qt syndrome. This is absolutely wearing away at me....unfortunately I didn't get diagnosed until 11 years after initial symptoms of falling and numbness occurred. I think better outcomes occur with proper diagnosis and care early on. Neurosurgeon couldn't believe the extent of neck problem considering that I was 40 when symptoms first started. For 11 years I was told that I had a psychological problem, and now since having to stop work my doctors are back to the stress/depression theory of on-going pain problems. The other thing is that I have terrible migraines also which started when I was 40.
I was so happy to find this forum as most I have seen do not have current activity on them. I know my doctors have no understanding of what I am going through...

Forum Moderator

Date Joined Feb 2003
Total Posts : 16767
   Posted 3/9/2012 3:55 AM (GMT -6)   
Hi Gadira and welcome to the chronic pain forum. I nearly missed your post since it was started on another person's post. If you don't mind please start your own intro post so that the other members can see it and give you a proper hello and welcome aboard. To do this all you have to do is click post new topic and type in a heading of some kind and then start typing away, lol.

I am so sorry to read about all of the problems you are experiencing. It sounds like your drs are no really doing much to help you out and thats so sad. By chance have you seen a pain mgt dr for these problems? If not I sure would ask one of my drs to make a referral to one. Taking care of pain is their specialty and they can usually do a lot more for a pain patient that a primary care dr or even a surgeon, at least get a consult with one to see what he/she can offer you.

We look forward to getting to know you, take care and please make an intro post so everyone can say hello and welcome aboard......Susie
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum
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