Shoulder pain 4 shoulder surgeries and fusion in the neck and.....

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mikesgurl1972
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/27/2012 7:19 PM (GMT -6)   
I have had 4 shoulder surgeries and a neck surgery.  Recently I had a arthrogram w/MRI and they found that I have interval rupture of the long head bicep tendon.  I am living with so much pain but the main thing for me is the concern that I am having pain in the area behind my collar bone in an area that I don't have a name for but it is the area where it would normally sink in behind the collar bone and the base of my neck and the back of my shoulder on top.  The trigger point that I have is beyond description causing me pain.  I am currently taking 10mg of percocet every 6 hours.  I am beyond be able to handle this pain.  I don't know what else to do.  I am afraid of having another surgery.  I am in a place that I need relief and don't know where to find it.  I need to talk to someone becaues talking to my husband has come to a hault, I know he feels helpless and I don't want to burden him with this any longer.  Can someone please help me out with some advice?

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 1/27/2012 9:34 PM (GMT -6)   
Hey Mikesgurl...

Welcome to the board. I'm sorry, though, for everything that brings us all to this place :(

It's sounds like your pain levels are way too high. While I don't know much about your particular pain issues - I'm a veteran to chronic pain, unfortunately.

My first thing is - are you seeing a pain management doctor? If not - that would be my first advice.

Second, you are on "relatively" a very low dose of narcotics. Have you tried anything else? Many of us here take an "extended release" (ER) med... something like morphine, oxycontin, fentanyl and so forth. On top of that - many of us also use a "breakthrough" (BT) med for the times where we have a pain surge... that can be percocet, oxycodone, instant morphine, dilaudid and so forth.

I don't know if you have muscular pain, too.... but my muscle relaxer also works to decrease my pain. In fact, right now it works better than my narcotics!

Finally, most of us come here seeking support - and many of us have formed very close friendships - for the exact reason that you write. I really don't talk about my pain issues w/ anyone except my friends here. It's very hard to talk about it w/ someone who doesn't suffer from chronic pain. Even if the people in our lives DO understand pain issues - it's often easier to have an outside source to vent and share the good/bad times. So - we welcome you here... and hope you'll stay and let us get to know you.

Again, welcome.... --Tina
I am a Christian mommy to 8 children - 6 wonderful boys and "surprise" identical twin girls. The kids are the love of my life, truly.
Health/Pain Issues - too many to list; feel free to ask
Medications - been on just about all of them; again, feel free to ask.... My faith and my children sustain me, even on my worst days - oh, and my friends here at HW :)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 1/28/2012 1:10 AM (GMT -6)   
Hi Mikesgurl and I too would like to welcome you to the chronic pain forum. From what you have described its loud and clear you really need some help in the pain department. Tina has said it all above and I cannot add a thing to what she has said. I do hope you can get in to your dr and get some relief.

Coming here and getting it out of your system is the best place to talk to people at. One thing about coming here, every one of us suffer with pain too, so we know what you are talking about.

Anyway, I wanted to pop on and say hello and welcome aboard. Please keep us posted on how you are getting along.
Moderator-Chronic Pain Forum

mikesgurl1972
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 1/28/2012 8:25 PM (GMT -6)   
Thank you for your replies, I am currently in pain management and have been for quite some time.  I feel like I have tried just about everything.  I have a tenz? not sure how to spell it but it only seems to make the spasms worse and muscle relaxer put me on my rear end if you get my meaning, and the one that was suppose to be one that didn't cause a lot of drowsiness made me vomit.  I have since being on all of these meds developed an ulcer so anitinflammatory medication has been taken off of the table.  I have an appointment with my surgeon on the 22nd of February and am not looking forward to what he might have to say.  I keep going back to the words of several surgeons that refused to help me in the beginning which was "you will be lucky if you can continure to brush your own teeth".  I don't feel that getting to this state is an option for me, I keep seeking ways to get better but have failed at finding a complete recovery.  It seems that I get something repaired temporarily and something else goes horribly wrong.  Until I see my surgeon I will just continue my pain management which I have to say my doctors there are wonderful and are truly trying to help me find relief.  In the beginning of this going down hill quickly I was determined not to become dependent on medication but it is truly the only way I can dress myself and make it through the day.  I feel myself becoming more and more frustrated and at times truly depressed.  I don't want this life, I want to go back and be the woman I was when I was serving my country and exercising, I can't even do a wall pushout without excrutiating pain I can't even imagine getting on the floor to do a true push up.  I am afraid I am going to wake up one day and just be thankful that I CAN brush my teeth and that scares me oh so much.  I can barely hold my grandchildren at all just sitting in my lap, the fear of dropping them is more than I can bare when they are with me.  I know I am rambling but I fear if I don't, the bottling up that I have been guilty of as of late will be the end of my emotional stability.  I am so thankful that I found this forum and would like to be able to contiue coming here to vent.    

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16301
   Posted 1/28/2012 11:19 PM (GMT -6)   
Mikesgurl, I really wish there was something more that I could tell you to help you out, but just know when you need to get things out in the open and need to vent come right here and do it. We are all very good listeners and know how just being able to talk abut things can help a bit.

Take care.
Moderator-Chronic Pain Forum

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/29/2012 6:16 PM (GMT -6)   
Hello Mikesgurl!

Welcome, and we do understand all that you have said about your suffering. There are choices though, and only you can determine which is the lesser of the two evils. Of course we become dependent on long term pain med's, but for many of us it is a blessing and gives us some sort of a better quality of life than if we did not.

Forget the related stigma that often comes with the scripts of such med's, and remember that while they may reduce your pain, they will not in many cases remove it completely.

Look at all of your options, and ask what your chances are for a good outcome with surgery. For some our pain is so bad, and if we chose not to have surgery, then we may end up far worse. I don't know all of the med's you have tried, but I agree with Tina that 10mg of Percocet every 6hr's seems awfully low for the type of pain that you describe. Have you tried other pain med's such as those that Tina described to you?

There is also a pain pump and might very well be a better way for you to go. Don't give up, and please seek out pain management that best suites your pain. All of us here suffer from pain and mostly on a 24/7 bases. We understand!

Take care, and please follow up on a report back to us. We invite you to make this your family of support.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 1/29/2012 6:47 PM (GMT -6)   
hello mike
just wanted to pop in and welcome you aboard
so sorry you are suffering but certainly glad you found us
keep posting and let us know how you are doing.
 
Suzane

mikesgurl1972
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 2/2/2012 8:25 PM (GMT -6)   
Went to pain management today....  the decision was to stay on the same dose until I see my surgeon.  My PM doctor called and had the appointment changed from the 22nd to the 15th with my surgeon.  I will call tomorrow to confirm the new appointment.  The pain management doctor apparently did find a place to press and make me scream.  I am thankful that she is so understanding about my pain but would just like to go into one of those appointments and have them give me a miracle medication to make it all stop.  I am in a way looking forward to the appointment with the surgeon.  I don't want to think about another surgery but it is looking as if there might not be another option.  All is well though I still have my positive attitude today.  I pray the positive attitude stays with me permanently, don't like the way I have been feeling about it all lately.  I pray this finds everyone having a better than expected day.  Again just trying to stay positive and hold on until I can get some answers or solutions.  Have to be up by 4 am which is the usual rise and shine time so I need to put myself to bed. 

Friedspine
Regular Member


Date Joined Feb 2012
Total Posts : 21
   Posted 2/4/2012 4:26 PM (GMT -6)   
1st thank you for your service to our country. I'm greatful for your sacrifice. 2nd I'm really sorry you're in so much pain. I think i have complex regional pain syndrome (or so I've been told by my doc) and I'm in excrusiating pain too. It really bites. I'm impressed you're still working with so much pain and I give you huge kudos for doing so. I hope that your new surgeon can offer relief and I'm with the other's that the ER (extended release) of pain meds can really make a difference.  Wish you only the best and hope for a better tomorrow for you. Linda

Post Edited (Friedspine) : 2/4/2012 3:45:30 PM (GMT-7)


mikesgurl1972
New Member


Date Joined Jan 2012
Total Posts : 4
   Posted 2/18/2012 5:28 PM (GMT 0)   
I finally got in to see my surgeon.  As to why I am having so much pain was explained during the visit.  I am now bone on bone in my clavical.  It's called acromioclavicular, or AC, arthritis.  He gave me if I recall correctly 3 injections in the joint so I am trying to recover from that right now.  The injections should  relieve the pain but he wants to go in and cut off the end of the clavical so I'm not chipping away at it all the time.  I'm not thrilled about the idea of having it done but he said its at least a start.  He's pretty sure that's not all we are dealing with but we will try to deal with one thing at the time for now.  This is my left shoulder, he said we would also address the right shoulder at a later date.  He said there are to many things to try to take on at once but I am mentally better just knowing that we can get started on doing something to relieve some of the pain.   
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