First time posting on here and I apologize if this isn't in the right forum but I'm in pain. I feel relieved to know I'm not alone and I wish anyone who's on this website all the best if they are going thru their own problem.
My thoughts are all over the map so please excuse my grammar.
I had a subtotal colectomy with an ileorectal anastamosis done laprascopically for FAP where I've had hundreds of polyps for years. The surgery didn't go as planned as it took seven and a half hours to complete to remove all 5ft of my colon and large intestine but leaving most of my rectum.
Post OP was complicated as my new connection was not wanting to "wake up" just yet... so no food or water for 10 days whereby I lost 36lbs! I started out at 164lbs and dropped below 130lbs. I was super active and athletic and did sports like windsurfing and kiteboarding, so to lose that much that quick made me incredibly weak and sick. So they drained me via that god awful NG tube (which btw I pulled out after 3 days because I couldn't take it anymore). The Dr.'s then put a PICC line into me just so that I would stabilize and not lose anymore weight. Anyways, I'll spare you with the rest of my stay in the hospital...blah, blah, blah... 20 days later I went home. I've also been re-admitted or gone back in for minor blockage stuff but that doesn't count lol.
So to speed this up because I can't stand talking about my problem as it consumes every waking second of my life. I have pains all throughout my lower pelvis region, some are extremely sharp and stay for hours then disappear, some pulsate (around my rectum mainly), I feel sick and have a watery mouth but not all the time, I'm not capable of going out anywhere unless I know there's more than 1 bathroom as it's embarrassing being in a toilet for half an hour, I use the toilet 20 to 30 times a day (20 would be a good day), I also have issues down there now... all of these things seem to be compounding and getting worse?! What's happening to me???
My GI and surgeon have been useless and don't seem to eager to help and chalk everything up to the "healing period".
My family doctor has been the one helping more than anything and said it sounds like I might have Pudendal nerve damage.
Does anybody know about this or have this? I can also give more details if necessary.
Thanks in advance for any response.
Post Edited (Subtotal Nov 2011) : 1/30/2012 8:36:16 PM (GMT-7)