Superb investigative article on CP

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PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/30/2012 7:21 PM (GMT -6)   
Hi, everyone,
Most of you don't know me, as I've not posted for a long time, but I read one of the best pieces of investigative journalism related to chronic pain and the difficulties we have finding adequate treatment I've ever seen today. So I had to come here and leave the link. I hope I do this correctly, but if not could one of the mods please make the link so members can click on it? The article can also be found at aol.com and Huffington Post, and it's going to be one of a three part series. Plus the author is requesting comment from anyone who might like to be interviewed. I'm sure he'll be overwhelmed with responses. Here's the link:


www.huffingtonpost.com/radley-balko/prescription-painkillers_b_1240722.html

Sorry it's in cut and paste format, but I hope one of the mods will change that soon.

And hello to all my old friends!

PaLady


I made the link HOT per your request!…and actually copied the correct link in, as the one you posted brought up a Page Not Found notice.
It should work correctly now, and I have double checked it as well.
Thanks for the information! SE wink

Post Edited By Moderator (Screaming Eagle) : 1/30/2012 5:44:40 PM (GMT-7)


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 1/30/2012 9:13 PM (GMT -6)   
OMG PALady!!!! I am soooo happy to see you again!
 
I enjoyed the article, by the way and look forward to seeing more of the series. 
 
I am so happy that I checked in tonight to get a chance to speak to you.  I've often wondered how you are doing and thought about you.
 
I missed you my friend!
TLIF L5-S1/failed, Pituatary disorder w/HGH deficiency, Fibro, Failed Bladder Surgery & Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (surgery related trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendionitis, Adult Onset Flat Feet, Vision Issues & much more.....

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/30/2012 10:28 PM (GMT -6)   
…we always appreciate articles pertaining to Chronic Pain, and they are welcome here! We would also like to see many of our veteran members return to support,... and share their wisdom and knowledge as well. We can always use the help!….and of course!... we will support you as needed.

We have many new members, since you have last been here, and I am sure they would enjoy your insight. Feel free to post anytime,…. and again articles are welcome. Many of the rules have been reworded and or changed…and relaxed to a degree. Feel free to take a peek at them, to see what has changed. We are in the process of posting one rule a week for a review, and the moderator posting it for that week, will explain the definition of each rule. Other than that, you pretty much know your way around here, and we welcome you back, and hope you are able to spend some time with us.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 1/31/2012 6:43:21 AM (GMT-7)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 1/30/2012 11:39 PM (GMT -6)   
PALady
 
It was great hearing from you again. It has been along time since you have posted, I do hope you come back and post at least a little bit more often! I went to the site and read the article, it was outstanding, but a little maddening, and worrisome, because, like the article said allot of the information about the abuse was incorrect. It is the chronic pain patient that suffers in all of this, and I really don't see any thing changing anytime soon either!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 1/30/2012 11:58 PM (GMT -6)   
PA Lady,
So very nice to see your posts, sure have missed you a lot...Interesting news story, Thank You...
Hope your doing good, many well wishes to you...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/31/2012 6:27 AM (GMT -6)   
It is soooo good to hear from you PA. Hope your doing well and staying safe & happy. Did you ever get a pet? Did you get your SSDI? Ok, enough questions. Take care!!!
---Jag---


DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3 & L-3/4, fibromyalgia, polymyalgia rheumatica

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/31/2012 5:05 PM (GMT -6)   
Hi, old friends!
White Beard, Chartreux, Jag, & Reitred Mom - thanks for remembering me! (SE, you, too, & thanks for making the link "hot".)

I keep thinking I should write an update, then I think there's not much that's changed. Or maybe it's too depressing. I don't know....but I'll think about starting a new update thread but can't promise. I haven't forgotten all of you - honest!

Two quickies - yes, Jag, I did get my SSD. A little over a year ago, & on the first try without an attorney. What a relief to see even the pittance of a check come every month, although by the 3rd week of the month the bank account is pretty empty. I'm surviving, and am grateful for that. And I adopted a cat from the humane society a couple of months ago. Problem is he was a 2 year old stray and he really wants to be an outdoor cat. And he's not the cuddler I thought he would be (and I really wanted). So I'm not sure he's the right cat for me. Time will tell.

I would love to discuss this article more. White Beard you brought up some good points. I wasn't at all aware of how this mess with the DEA and others coming down on doctors started. If this journalist is correct, it seems to be with that article in the Orlando newspaper which contained so many incorrect facts. Very interesting that the focus is on Florida, with all the problems with pill mills down there (Pete should find this interesting, too).

Just as I was smiling after having read the article, I made the mistake of scrolling down to the comments section. It didn't take long to realize the general public obviously doesn't care about facts. The attitudes and confusion around CP and addiction are quite entrenched. Wish I hadn't read the comments. (for any of you who haven't read the article yet, don't ruin it for yourself and scroll to the comments!).

Ok, gotta go. The cat (Mittens is his name - he's a Hemingway polydactyl with extra toes that make his front paws look like mittens!) just knocked over a stack of things! Best go check out what!

PaLady
p.s. I went back to the article and the newer comments are quite supportive of those of us with CP - many from other CPP's. Nice to read! yeah

Post Edited (PAlady) : 1/31/2012 4:38:06 PM (GMT-7)


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 1/31/2012 6:37 PM (GMT -6)   
Hi PaLady It's great to see your post. I too have missed you. It's great to hear that you got your SSD on first try. I look forward to seeing more posts from you in the near future. Take care.

love and hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 2/1/2012 9:49 AM (GMT -6)   
PALady,

I am so glad to see you back. That article was very interesting. It amazes me how the controversy began with a report that had so many errors. I remember the 80s crack babies controversy that the article mentions as well, and I have long wondered how much media hype can increase the response of the government to certain medical issues. It would be great to have a detailed discussion on this article with other members who have been having CP treatment longer than I have, to share opinions.

Nice to see you again, hoping that Mittens didn't break anything or cause you more pain. Give him or her some time. I have a cat that was an outdoor cat for 2 years, and now is strictly an indoor cat. He is 13 this year, and just became a lap cat about 3 years ago for no apparent reason. Hope you find what you need though, if he is not the kitty for you.

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw
Pelvic adhesive disease, IBS, SI dysfunction, arthritis, fibromyalgia, depression and anxiety, 11 pelvic surgeries for pain, adhesions, endometriosis, adenomyosis, ovarian cysts, and ovarian remnant syndrome.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/17/2012 3:46 PM (GMT -6)   
Hi,
I'm bumping this post up because later I'm going to post the link to part 2 of the series, and I thought anyone who didn't see it the first time might want to read the first part.

BTW I didn't respond to Loretta and Mindy - my apologies! It's always good to read a greeting from old friends.

Mindy, thanks for the tip on the cat situation. I may ask for more. Mittens saw a squirrel outside yesterday and I thought he was going to fly through the window to chase it! Yikes - whatever will he do to a screen? But I'm getting so attached to him....Sigh. I'll be curious to read what you and others think of part 2 of this series of articles. There are a lot more numbers in it, and it took me awhile to get through it, but I'm so glad the reporter is doing his true investigative work. Seems like so few others have, and it's led to an absurd situation for us CPP's.

More later...
PaLady

newname
Regular Member


Date Joined Jun 2011
Total Posts : 95
   Posted 2/18/2012 12:47 PM (GMT -6)   
I wonder if it wasn't for celebrities overdosing on prescription drugs, would such a big deal be made of the issue?
 

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 2/18/2012 3:11 PM (GMT -6)   
Just wanted to say thanks for the link. I read the article and thought it was quite good. I was surprised by how many of the early anecdotal and scare-tactic articles that have been debunked.

Further, one key theme impressed me: that the paucity of pain doctors, and their DEA induced fears have forced many people with legitimate CP to behave as if they were addicts (doctor shopping to get enough meds to treat their pain, hording because they can't establish a stable PM relationship, etc.). Thus, the DEA is helping to create the criminal enterprises they are suppose to prevent. Perverse!

A friend of mine in Oklahoma called me last night as his PM is closing his practice. My friend went to his GP to see if he will prescribe his meds (more or less, 10mg hydrocodone daily). The GP made the offer a few years ago, but now, with something or other happening in his state, the GP said he no longer could.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/18/2012 5:09 PM (GMT -6)   
Hi,
Cognito I agree - perverse! And Part 2 of the series goes into even more detail (I'll start a new thread with that link soon), with a focus on what's happened in Florida, but also how that relates to the rest of the states. To think the situation we CPP's have to deal with has been created in part by data that's now been debunked is....well, I don't think I have a word. And it seems what's been done is sadly not being undone - at least not yet. That's why I think these articles are so important. I wonder if they will matter as much as some of the original scare tactic articles have?

And yes, I think the celebrity deaths certainly contribute, although I think without all this other data about supposed "epidemics" of abuse and such, the celebrity deaths in and of themselves wouldn't have such a huge impact. People also forget to separate celebrities who are able to purchase doctors (yes, I do mean purchase them) to do their bidding, and prescribe whatever they want, are far different from the large numbers of average folk (like us) who have to seek medical care the way everyone else does.

Thanks for reading and keeping the discussion going!

PaLady

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/18/2012 5:43 PM (GMT -6)   
Thank you so much for the way to reach this article.  It is great, I for one volunteered to be interviewed.  Something must be done, and we have to do it. ( us cp sufferers).
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/18/2012 5:54 PM (GMT -6)   
Hi, Kathy,
I gave them my name and phone number, too, but haven't heard anything. I bet they were flooded with e-mails!

Thanks for adding your thoughts!

PaLady
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