Hello Susan, I am nini53 aka Kathy, you have definetly found the right place. Its the place no one wants to be but are very glad its here for all of us.
I have been a cp patient for 12+ years, I didnt get out of bed except to go to my doctors once a month for a year and a half. Finally I realized I was sick and tired of being sick and tired. Although sadly I could no longer work outside the home, I knew I had to find different ways to make my quality of life better. And thats what I did, its a slow process and not everything I tried worked out. But the ones that did, well they are great.
I have learned to use the computer, my grandchildren make my life a joy every day, just with the things they say and how much they love me and I love them. I am fortunate to be able to walk with the help of a walker and cane, not both at the same time, but one or the other depending on how I feel. I read most everything I can get my hands on, my history education is 100% better than it was when I was in school, not to mention what I was taught in school was at best the bare minimum, and not a true. I wish I could say the same about math, but I am still struggling with that. I was unable to help my daughters after they were out of 3rd grade, its the same with my grandchildren, 3rd grade seems to be the cap for me in math.
My point is, there is a world out there, and its made up of many people some much worse off than I am and some much better off than I am, the difference is I have made my mind available and open to all kinds of new and interesting things to do. I have lived in the Washington D.C. area all my life and this year will be the first year I am going to see the cherry blossum parade, (mostly due to the various foods available all around the festival), but who cares why, I am going.
I hope you will find many other things to do with your life, even though you may not be able to do what you used to do, there is a great big world out there full of interesting things,, people, ect. just waiting for you to find.
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson