First Dilaudid pain pump~have I lost my mind?

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New Member

Date Joined Feb 2012
Total Posts : 5
   Posted 2/11/2012 7:22 PM (GMT -6)   
I did the trial, had no problems.
Had the permanent one done Feb. 3rd, and have been so ill and insane. Can't stop vomitting, feel so sedated, just out of my mind. I was told that theses feelings will subside. Is this from the general anesthesia? Or from the very small amount of dilaudid that they are starting me out on? I can't wake up, I have been sleeping until 7PM every day.
I used oxycontin and fentanyl up to that time, and I could at least function.
I feel like I am insane, very frighened.
Please tell me that this is temporary!
Thanks for you help.

Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 2/11/2012 8:46 PM (GMT -6)   
That sounds awful!...Sorry to hear that...
Are you able to keep any food down? I certainly hope you are staying hydrated with water, postassium, and a bit of salt...
And you are sleeping from what time do you go to bed? If it's in the are saying you sleep close to 24 hours?
This is emergent in that I would call the on call Dr. and even say you want to go to the ER...
You could be having too much medication getting into your system...Some fatigue is normal but a week of such extreme drowsiness and fatigue could be very serious...
Also..being dehydrated can be life threatening if you are not replenishing fluids...People can last without food for days...but not appropriate liquids..
That is why if it's as serious as you say...I would be going to the ER and letting them know...
Keep us posted..

Veteran Member

Date Joined Nov 2011
Total Posts : 615
   Posted 2/11/2012 9:10 PM (GMT -6)   
Welcome Bonnie....I am with snowbunny if this has been going on for a week I would go to th ER and have it checked. There they can at least see if maybe you are getting medication into your system. Take care and keep us posted.

All the best, Amy
Chronic Pain(nerve), fibro, mild depression and a few others

Forum Moderator

Date Joined Feb 2003
Total Posts : 16787
   Posted 2/12/2012 3:59 PM (GMT -6)   
Hi Bonnie, welcome to the chronic pain forum. I have a pump and when it was first implanted I did not have the problems you are experiencing at all. It sounds like you may not tolerate Dilaudid. I am assuming the dosage of Dilaudid is 5mg, which they do start you off at the lowest dosage and slowly titrate the dosage. Do you know what your flow rate is set at, meaning how much Dilaudid you receive an hour. They could have the flow rate set too high, and this could cause some of your problems especially if you are super sensitive to Dilaudid. I have a total of 4 different meds in my pump.

I urge you to call your dr first thing Monday morning or have someone take you to his office. I doubt going to an ER will be of any help to you because hospitals do not have the computer equipment needed to make any adjustments with your pump.

I can tell you first hand once they get your meds straightened out you will be a lot happier than you think. Please keep us posted on how you are doing and take care.
Moderator-Chronic Pain Forum

New Member

Date Joined Feb 2012
Total Posts : 5
   Posted 2/12/2012 9:31 PM (GMT -6)   
I will call him first thing in the AM. I am so sick, never have had this problem with anesthesia. I will obtain hospital records, as I always do. All that I was told, was that there was the min. dosage of dilaudid.

Thanks for your help.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 2/15/2012 4:06 AM (GMT -6)   
Welcome to Healing Well Chronic Pain Forum,  Usually when a person experiences nausea and vomiting from a pain med, it is usually caused from the dosage being to high, and often the body needs time to adjust to it. Often a doctor will lower the dosage to relieve the nausea and vomiting and then slowly increase the dosage over time, to the point that the patient has attained the desired pain relief. So I highly recommend that you talk with your doctor about this, as it is bad enough being in pain, and the feeling of nausea and vomiting does not need to be added to it! 
I am glad you found us and posted, I do hope you will continue to come to our forum and post and become an active member of our chronic pain family! I think or at least I hope that you will find this forum to be not only informative, but also a place where you can share your feelings about your chronic pain, and find people who can really empathize with you  and  give you caring and compassionate support!
 So again I welcome you to our chronic pain family!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Regular Member

Date Joined Oct 2010
Total Posts : 147
   Posted 2/16/2012 10:57 PM (GMT -6)   
Woah! This sounds really not fun :( Those are serious adverse effects. My grandma takes care of another old lady who's on Fentanyl patches and pops as well as dilaudid. I don't know the details but she upped her fentanyl and had the same thing and if it weren't for my grandma she could have slipped into respiratory arrest (My grandma is an ICU nurse). If the symptoms persist call your doctor and head to the ER! They can manage it with opioid antagonists short term and then come up with a better plan hopefully! I don't take enough Oxycodone for anything to serious but I understand the initial sedation is just a pain and I wish you luck! :)
C6 Herniation/Buldge (my docs debate), gen. nerve pain, Crohns, Anxiety, Aspergers, and Mild Insomnia.
-Adderall XR 30mg am, Percocet 5/325mg x3 day, Flexeril 10mg 3x daily, Klonopin 1mg night, Zoloft 100mg night, and Naproxen 550mg 2x daily. It could be worse :)

Regular Member

Date Joined Dec 2005
Total Posts : 256
   Posted 2/25/2012 3:33 PM (GMT -6)   
If you are new to Hydromorphone, which in my experience (I've been on pretty much everything there is on the market except for Demerol which I'm not a fan of, and have yet to try Buprenorphine though I may at some point) is one of the best pain meds out there overall despite its short half-life -- which is far less of an issue in a properly calibrated pump-based steady release system.....then it's likely that you are just adjusting to the difference in how the different pain meds bind to the same may actually be experiencing Fentanyl withdrawal, rather than a direct Hydromorphone side effect....even if the dosages are roughly equivalent or even a bit higher, because Fentanyl hits receptors in a way and with such a high "affinity"/potency that it tends not to be fully compensated before by most other opioids if you make an abrupt switch from one to the other.....

Regardless of the exact cause, I personally would counsel patience. It's probably a short-term effect of med switching/adjustment, and with a little dose adjustment (either up or down, more or less frequent dosing intervals, if that's an option....whichever ends up working best) should be feeling MUCH better than you are are now, without changing the medication or abandoning the pump.

Don't necessarily take my word for it, but that's what my personal experience and research would suggest. FWIW....
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