I am a new member so excuse the History!
A little history first-----
I had an accident Aug21 2009, where I came down full force on both knees. I was rushed to the hospital and ended up with bruised bones and contusions on both knees. I saw an orthopedic doc who performed many injections in both knees for pain control.
By March of 2010 I was unable to walk and had a total knee replacement performed on my left knee Went through the surgery I guess OK ended up having blood transfusion on the third day post opt. From March through Jun 14Th I was doing great walking without assistance climbing stairs etc. , but still in pain. Was in a lot of pain but shrugged it off.
Then by the third day Jun 18Th I was unable to walk at all and having burning, spikes, needles and oh please don't touch me....feeling from mid thigh all the way down my left leg. I went back to the orthopedic doc who stated he had no clue as to why I was in such severe pain he took xrays and all looked fine. about
a month after trying the orthopedic doc and having many test MRI, XRAYS ,and ultra sounds looking for infection or blood clots and all coming back OK.
Jul 15th I ended up in the hospital with what they thought was blood clot in lung or infection from my leg. At this time I couldn't breathe and have very painful feelings in my left leg I screamed just to move it or raise it up to the hospital bed level. My leg turned beet red and very hot then it would turn purplish bluish and very cold. I spent over a week in the hospital and left with diagnostics of bronchitis and no findings as to what was causing my symptoms in my leg. When I was released I had another appointment with the orthopedic doc who then referred me to a neurologist with possible RSD in Aug 2010.
It is now late October and I have been on and still on several pain medicines and one seizure med. Hydromorphone 2mg (daytime)and 8mg night time. Lycra 3 times a day. It is now October 31st as I am writing this I still am either in wheelchair or walker for short distances, in aqua therapy (I love the warm water) It is good therapy I know someday I will be able to walk again (now my left leg and foot has rolled outwards towards the outside. I am unable to bend or straighten the leg. It is torture at night when you need to move. Night time I take 8mg hydromorphine, amitriptyline, 2 tylenol PM extra Strength and 3 lidoderm patches I still wake and scream out in pain. Night time is the worst for me. I just can't have anything touch my leg. I have learned to compensate using my right leg.
Next step for me On November 1st I am see a Pain Management doctor. Yes Finally!!!!! God will release some of my pain. Now you see I have come from a very good area in my life to having it cut from under me in an instance. I hope to be able to return to the life I had but due to the stress, medications and constant pain. I now have no life. Will I ever? What can I do to beat this I refuse to lie down and let it take me but I can't even crawl now. I am at my end I just want things back as they were before the surgery, before I fell that day at work.
Nov 17Th 2010
I saw my Pain doctor on November 1st and I am being scheduled for my first Sympathetic Nerve Block on November 17Th and another on December 1st 2010.
The Nerve block failed I am still in the same pain as I was prior to the block I am feeling nothing different. I spoke to my physical therapist and she stated not to worry. I continue to do therapy. No change in pain. What does this mean?
It is now Nov 26Th I now have pain up in my groin area into my pelvic and hip area. I will wait until I have my second block performed in just a couple of days.
Nerve Block day thank goodness I hurt so badly hard to walk with my right knee hurting and my left side from my waist down is awful. I mentioned this to doctor as he was preparing me for my block, we will see hopefully this one will work.
I am beside myself the block failed again and I just can't take this pain. I called my PM, I am to see him again on Dec 7Th, his office stated for me to call my Nero doctor to see if I can get something for the pain.
I called and they called in an RX for a steroid pack, I am in tears and been in tears for three days now off and on. I went to Aqua therapy cried pain and more pain I feel up my left side. It is hard to move at times. I have a husband for 37years I am 59 he is 76, Hubby has diabetes and is not able to help me although he tries God bless him.
HERE AND NOW!
I moved to Florida to live with my sister at her strong suggestion.
It now has been almost 2 years and I have been through many things trying to cope with this aweful mess of a thing.
DX RSD left knee and recently dx with dystonia. Medical docs are PM, Nero, PT and Aqua, Current medications are Baclofen - 10mg, Sertraline - 50mg, Tramadol ER - 200mg, Hydrocodone/APAP 10mg/375mg, Gabapent 300mg, Diltiazem ER 90mg, Lidoerm Patches 5% Patch. I have suffered acute kidney failure and have been in and out of hospitals many times from the medications. I have endured 3 more sympathetic nerve blocks. My PM is evaluating me for SCS.
I can say that after grieving my old life and with the help of my sister I am a much better person and even able to cope better.
I guess I really need to know now if anyone has developed dystonia and if anyone can help me understand.
Many Thanks for Reading my story
Sissy, I broke your post down into paragraphs to make it a little easier to read.
Post Edited By Moderator (straydog) : 2/14/2012 1:33:58 PM (GMT-7)