Sorry I haven't been here......

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 2/12/2012 6:27 PM (GMT -6)   
but this pain in the head, literally speaking, is killing me. I have such a hard time with this constant severe headache and never having any relief. I am sorry I haven't been able to support you all in the past couple of weeks.
I see that there are several new members, so I would like to extend a warm welcome to each of you and know that you have found a wonderful place to get support and friendship.
Hope to chat with you all soon.

Regular Member

Date Joined Jan 2012
Total Posts : 148
   Posted 2/12/2012 7:56 PM (GMT -6)   
Suzane- I'm one of the newbies here and I am SO happy I found this place. I'm so sorry that you've been having such a hard time with severe headaches- what a bummer. I have headaches pretty often, sometimes sinus, sometimes tension and about twice a year I will have a migraine, so I feel for you having such bad ones and having no relief.
*hugs* I hope you will get some relief soon!

Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 2/12/2012 8:21 PM (GMT -6)   
Hi Suzane,

Sorry you are having such a tough time:( I haven't been around for a long time myself because of many family issues...I miss everyone too!..

It's important to always take the time you need to care for yourself...I so wish they could find a good plan for you to get your pain to a more tolerable level...

Where are things standing right now? Any more possibilities with anything new? Or switching/tweaking medication? Or just plugging along....

Sending you some gentle hugs (( ))
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 2/12/2012 9:44 PM (GMT -6)   
I have tried all narcotic meds and other meds and nothing touches this pain. I have seen tons of docs, done many different types of treatments and nothing, like notta. Nothing helps me. I keep ice on my head all the time trying to freeze my head. I never have any relief.

Thank you Snowbunny and Hillary.


Regular Member

Date Joined Jan 2012
Total Posts : 148
   Posted 2/12/2012 10:04 PM (GMT -6)   
I am so sorry that nothing is helping. When do you see your Dr again? I wish there was something I could do, all I can do is offer my support and prayers. I really hope you have some relief!

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 2/12/2012 10:10 PM (GMT -6)   
I was getting a little worried about you, but know we are caring for you...
Many Many Prayers...keep hope relief will come things
are coming out all the time...they will find something....many blessings...
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 2/12/2012 10:27 PM (GMT -6)   
Oh Suzane, I'm sorry that you are having so much extra pain.

I'm sorry that I've not been around either. Things have been bad for me too.
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 2/13/2012 2:18 AM (GMT -6)   
Thinking of you both, Suzane and Laura. Seems to be hard times for many of us.... please know I'm thinking and praying for you both.

Suzane, I put this out on the FB page, too.... but I wanted to tell you that people come from all over the world to UCSF here.... they have a Headache Clinic.... That is where I had the babies, when absolutely nobody would touch me. There were literally people there from all over the place. These are just things you might want to explore.... I know there would be lots of hurdles to get through to do something like this (just the logistics; finances; so forth).... but we'd all help you figure it out!

Until then, I know how frustrated you are... and I always pray for your healing....

Love, Tina

Regular Member

Date Joined Jan 2012
Total Posts : 108
   Posted 2/13/2012 4:15 AM (GMT -6)   
Hi Suzanne,

I`m really sorry to hear about the pain you are in at the moment. I hope that you find something that helps soon. I`ll be thinking of you

Di :) xx
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 3:30 AM (GMT -6)
There are a total of 3,005,809 posts in 329,265 threads.
View Active Threads

Who's Online
This forum has 161805 registered members. Please welcome our newest member, fdgdfhdff8804.
198 Guest(s), 2 Registered Member(s) are currently online.  Details
BBN!!, Subdenis