Sorry I haven't been here......

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 2/12/2012 6:27 PM (GMT -6)   
but this pain in the head, literally speaking, is killing me. I have such a hard time with this constant severe headache and never having any relief. I am sorry I haven't been able to support you all in the past couple of weeks.
 
I see that there are several new members, so I would like to extend a warm welcome to each of you and know that you have found a wonderful place to get support and friendship.
 
Hope to chat with you all soon.
 
Suzane

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/12/2012 7:56 PM (GMT -6)   
Suzane- I'm one of the newbies here and I am SO happy I found this place. I'm so sorry that you've been having such a hard time with severe headaches- what a bummer. I have headaches pretty often, sometimes sinus, sometimes tension and about twice a year I will have a migraine, so I feel for you having such bad ones and having no relief.
*hugs* I hope you will get some relief soon!
Hillary

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/12/2012 8:21 PM (GMT -6)   
Hi Suzane,

Sorry you are having such a tough time:( I haven't been around for a long time myself because of many family issues...I miss everyone too!..

It's important to always take the time you need to care for yourself...I so wish they could find a good plan for you to get your pain to a more tolerable level...

Where are things standing right now? Any more possibilities with anything new? Or switching/tweaking medication? Or just plugging along....

Sending you some gentle hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 2/12/2012 9:44 PM (GMT -6)   
I have tried all narcotic meds and other meds and nothing touches this pain. I have seen tons of docs, done many different types of treatments and nothing, like notta. Nothing helps me. I keep ice on my head all the time trying to freeze my head. I never have any relief.

Thank you Snowbunny and Hillary.

Suzane

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/12/2012 10:04 PM (GMT -6)   
I am so sorry that nothing is helping. When do you see your Dr again? I wish there was something I could do, all I can do is offer my support and prayers. I really hope you have some relief!
*hugs*

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/12/2012 10:10 PM (GMT -6)   
I was getting a little worried about you, but know we are caring for you...
Many Many Prayers...keep hope relief will come soon....new things
are coming out all the time...they will find something....many blessings...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/12/2012 10:27 PM (GMT -6)   
Oh Suzane, I'm sorry that you are having so much extra pain.

I'm sorry that I've not been around either. Things have been bad for me too.
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 2/13/2012 2:18 AM (GMT -6)   
Thinking of you both, Suzane and Laura. Seems to be hard times for many of us.... please know I'm thinking and praying for you both.

Suzane, I put this out on the FB page, too.... but I wanted to tell you that people come from all over the world to UCSF here.... they have a Headache Clinic.... That is where I had the babies, when absolutely nobody would touch me. There were literally people there from all over the place. These are just things you might want to explore.... I know there would be lots of hurdles to get through to do something like this (just the logistics; finances; so forth).... but we'd all help you figure it out!

Until then, I know how frustrated you are... and I always pray for your healing....

Love, Tina

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/13/2012 4:15 AM (GMT -6)   
Hi Suzanne,

I`m really sorry to hear about the pain you are in at the moment. I hope that you find something that helps soon. I`ll be thinking of you

Di :) xx
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