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di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/17/2012 6:23 PM (GMT -6)   
I apologise for venting but my pain just seems to be getting worse. My breakthrough meds aren`t working tonight and I`m at the stage where I would go to the doctor if he was open. I am pretty much sure there is nothing they can do at the ER and would just refer me to my doctor. I can ride it out but just need to tell someone how bad it is right now. Thanks heaps for listening. I`m going to try to sleep now. Take care, Di x 

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/17/2012 6:45 PM (GMT -6)   
Sorry you are having a bad day/night:(...

Feel free to vent away....I'm curled up for the evening....(well...except for my nightly walk with the pup...)...but going to take it easy this weekend as well with higher pain levels..

Sleep is good when you can to let your body rest and attempt to repair itself...

Hopefully tomorrow will be a better day for you....
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 926
   Posted 2/17/2012 8:42 PM (GMT -6)   
Sorry about what you're going through.

I don't know where you are, but it has been a very damp day here and I've had to turn to more BT meds than usual.

If you think it might help, maybe a hot shower? Heating pad or ice pack?
Or, I recently had a very positive experience with donuts. Is someone around who can head out to a store and get you something special? A delicious treat may take your mind off the pain momentarily, and maybe help your spirits.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg daily, breakthrough - hydrocodone 10-15mg, or oxycodone 5-7.5mg. .25-.5mg ativan as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/17/2012 9:20 PM (GMT -6)   
Hi Snowbunny and Cogito

Thanks so much for your messages, they mean a lot. I`m listening to music now which seems to be having a calming effect.

Snowbunny, I`m so sorry you`re also having high pain levels. It`s good you`re curled up too, even if you don`t feel better I think it`s more comforting to be able to curl up, rather than have to do lots of things when you`re in pain. I hope that your quiet weekend will help. I`m sure your pup will enjoy the walk tonight!

A shower is a good idea, Cogito, I`ll try that. I did enjoy reading about your donut experience! All the shops are closed as it`s late here but tomorrow I`ll have to get a donut and try out the healing powers of sugar! It`s been raining today here too, I haven`t taken much notice of the impact the weather has on my pain but after hearing a few people mention it I`m curious.

Thanks again for your kind words and take good care of yourselves. Love Di xxx

Post Edited (di43) : 2/19/2012 3:39:01 AM (GMT-7)


fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/17/2012 9:27 PM (GMT -6)   
Sorry Di! You can vent all you want, you know I do ;) I am so sorry you are having a bad night & wish there was something I could do to help. You are right, the ER won't do anything....and you'll just end up sitting there for hours to just to be treated like a druggie. You are in France, right? Can you get in to see your Dr Monday? I'm not sure how things work over there as far as getting in to your Dr when you need to- I live in Georgia and I've had nothing but problems getting into my Dr earlier than my scheduled appointment. I will keep you in my thoughts honey.
*hugs*
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/17/2012 9:28 PM (GMT -6)   
Oh Di, I'm sorry that you are in so much pain - you too SB.

Weather - I hate weather changes. I don't know if it's rain, or pressure changes (I think the latter), but something about them affects my pain too.

I hope your pain settles soon.

Gentle hugs

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5990
   Posted 2/17/2012 11:52 PM (GMT -6)   
Can I chime in? I'm usually on the fibro forum, but lately my first, middle and last complaint is PAIN!! I am very used to chronic pain, but this is way beyond.

I'm having a lumbar laminectomy in a couple of weeks, so in the meantime I just have to live with it. A pinched nerve from a piece of broken-off disc.
I've never had such bad pain for so long (over a month now.) I'm taking Norco pretty much around the clock, also Gabapentin and Flexeril.

My ankles and feet are swollen, not like a couple of days ago, but still, it's a worry...elevating them seems to aggravate the pain in my butt. My PCP wrote a script for compression hose, but I'm not sure I could handle them - I hate anything tight. I can barely tolerate regular hose once a year!

I'm sorry you all are having a bad time, too. Pain is just the pits.

Debbie
fibromyalgia, herniated disc L4-5, (with sciatica), bulging disc L5-S1, other assorted spinal deterioration, scoliosis, Hashimoto's, IBS, migraines, tachycardia, hearing loss (probably from Menieres Disease)

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/18/2012 8:24 AM (GMT -6)   
Hi Hillary, Laura and Debbie - thanks so much for your messages, they were comforting last night. The shower was very therapeutic too, thanks Cogito for the suggestion, it was nice to wash my hair and when I went back to bed though the pain was still bad I felt like I`d had a break from it. I finally got to sleep around 7am I think, but I was able to doze a bit before. I woke up around 11 and the pain was a lot better but it came back. I`m just literally going to stay in bed today, I`ll go for a little walk later but apart from that won`t move. Since I`ve decided I won`t do anything at least I don`t feel any pressure. I`m so glad this happened during a weekend, so at least today and tomorrow I can rest.

Debbie and Laura, I`m so sorry you`re also in awful pain. I appreciate you writing to me when you`re feeling the same. I read your thread, Laura, I`m really sorry about what you`re going through. And you too, Debbie, I can relate to what you said, I`m used to pain but this is just going too far! I hope you both feel a bit better soon. That`s interesting about the rain and pressure changes.

Hillary, you are a honey! I`m glad you had a good birthday. I hope you`re feeling ok today, considering. I`m lucky with my doctor there are a few days where you can just show up without an appointment, including Monday morning, so if I`m really bad still on Monday I`ll do that. He is a GP so it`s easy to see him but I think it`s the same here for pain specialists, it`s a hassle to get in between appointments. But the GP I have is more sympathetic than the pain specialist I saw lol, it`s usually the other way around! I`m not sure I want to up the dose of meds as I know it`s a good thing I haven`t increased them for 2 years as the doctors have less problems to keep me on them if they think I`m on a low dose. The pain specialist I saw recently even though she seemed very anti-opiates when I asked her what to do when I have pain attacks like the last couple of days she said taking a higher dose just for the bad days was an option so I might be able to do that. Yeah I thought with the ER the last thing I need is to go and wait for hours and then get a lecture for being a `drug seeker` lol, plus I`d have to speak French and when I`m on edge it`s always so much harder and I`d come across more `suspicious`. I may as well stay home and lie down and suffer than have to suffer in the waiting room and sitting for hours would just make it worse. The ER doctors would not know what to do with vulvodynia, I can just picture it lol.

Thanks again so much for listening. Hugs xxx Di

Post Edited (di43) : 2/18/2012 1:37:06 PM (GMT-7)


di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/18/2012 6:54 PM (GMT -6)   
Again most of today the pain was so intense and the BT meds didn`t do a thing. Finally later this afternoon I was exhausted and got really sleepy. I had the most peaceful nap and when I woke up I felt a lot better, I was very surprised after 36 hours or so of pain it finally went away. It`s on and off now but I`ve had a break from it. I`m going to try to sleep soon. Anyway I just wanted to say thanks so much for being there last night, it really helped and I didn`t feel alone. I hope you`re having an ok day/night. Love Di xxx

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/19/2012 5:21 PM (GMT -6)   
Just want to say thanks heaps for your support everyone the last few days, it meant the world to me. I usually have to go through these episodes of intense pain on my own as I don`t like to tell my family how bad it is especially when I`m far away from them because I know they worry a lot. And I know it`s just pain and I`ll get through it. But it is very nice to be able to tell people who understand. The pain is back to a manageable level (for now). Thanks for helping me get through it. I hope you are all doing ok. Hugs, Di xx

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/19/2012 7:44 PM (GMT -6)   
We are glad you are here too Di!!!...

Glad to hear your pain is doing ok.. Did you get to sneak in another nap today?

That is what is so wonderful about these boards..knowing that we all can share honestly about our good and bad days....and we can all empathize what it's like being in chronic pain..

My mind is playing tricks on me as I was looking for the post/thread where I asked where you lived...and I can't remember where you said...LOL...In France?

Sorry for my memory lapse...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/19/2012 11:21 PM (GMT -6)   
Di, I'm glad your pain is back to a manageable level for now - here's hoping it stays that way.

SB, I couldn't agree more. Doesn't matter what our pain is, we've all "been there, done that" and it's so good to be able to share without having to explain.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/20/2012 5:29 PM (GMT -6)   
Thanks Laura and Snowbunny for the messages! Yes, it`s very nice to come on here and not have to censor anything and I feel free to say what I want.
This was the first forum I found and I`m glad it was this one :)

Lol SB, it`s hard to keep track of threads sometimes. Yes, I`m in France, from New Zealand. What part of the US are you in? I did have a nap today! Did your pup keep you company in the weekend? How is your pain now? I hope it helped having a quiet weekend.

I hope your pain eases a bit too Laura. I really hope you can find a combination of medication that will help before you get a chance to do the ketamine. It`s so frustrating waiting with all the trial and error.

Take care of yourselves. Love Di xx

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/20/2012 5:40 PM (GMT -6)   
Ok...Di in France, from New Zealand...got it!:)

I live just outside of Washington DC in the state of Virginia...

So glad you got another nap in today...Aren't they wonderful?...I seem to have the best dreams when I nap..lol

And yes...my pup keeps me company all the time...he is my shadow!..If I get up to do anything...he is following...even after 8 years...He is great being left alone if I'm out...but when I'm here...he loves to be close...The funny part is that he is the only Lab on the planet that does not like to be rubbed or petted very much...He has really sensitive skin/fur...so most dogs who just LOVE their belly rubbed....he hates it...LOL...

But...he loves to be right next to me and having at least one of his paws touching me or someone sitting there...

Thankfully I'm a weirdo with all my medical stuff and so is he! HAHAHA

We are glad you found this forum as well:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/21/2012 1:53 PM (GMT -6)   
Hi Snowbunny

Animals are great comforters, I`m so glad you have your pup to curl up next to and keep you company ... without being stroked lol. He sounds like quite a character!

Yes naps are wonderful! I remember my dreams more when I nap than at night.

Take care. Love Di x
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