Newcomer, fentanyl to OxyContin

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Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/21/2012 3:06 AM (GMT -6)   
Hello,
I have been in debilitating pain going on seven years now. I've had three surgeries on my left hip and one on the left knee, which was at the same time as the second hip surgery. I would not recommend it for anyone and would never do it again having the knee and hip done together to save money on the anesthesia doctor. I thought all would be well and unfortunately found myself in greater pain. I became a great candidate for a neuro implant until the insurance denied me after the trial period, which was a success and a $14,000 bill to them, which had no bearing except to say the hip was in experimental phase and if it was the back, they would pay for it. Seriously, they said that with letter to prove. I couldn't believe it. All those hoops I jumped through, the light at the end of the tunnel and then the "no" even after my pain doctor and her office appealed it twice.

Since they mentioned the back, and the back did hurt, but not at the level of pain in my hip i had an MRI on the lower lumbar, and they found a multitude of problems. To many to list to be quite frank and I would have to dig out the report to list it all, well, it is a lot to me and a lot I do not underestand. My pain doctor and I decided to try injections. The kind where they sedate you. Not bad, not painful, I believe it is so you don't move with the injection going in the spine. Unfortunately, it didn't take and I see her on the 28th to see where we go from there. Came to this after my new doctor suggested this, which was quite some time later after the letter from the insurance.

During all these years I had been on Percocet 5mg 3 a day. I had asked my family doctor to up the dosage on so many occasions explaining to her that my body had a tolerance to it and was not working. She refused over and over and refused to give me a prescription early no matter how much pain I was in.
In addition, she would have me come in repeatedly for these discussions and would tell me swelling was not conducive to pain even though my calf would be three inches larger than the other. She measured this herself and it was not possible for her to measure the hip, plus, it is the number i remember the most. I will concede this to a point, however, when I'm in greater pain the whole leg does swell up. So there you go.

She also argued it was up to my pain doctor to give me the prescription and refused to give me anymore at the end of the month. I called my pain doctor and she explained to me I was referred to her only as for seeing her about the neuro transmitter, nothing else, and therefore all pain medication was up to my family doctor. She was so upset and had told me she had sent letters discussing this to the family doctor. It got to the point that my family doctor was telling me how the pain doctor was wrong and how she, the family doctor was right. She literally wanted me give her a message and that was she was no longer going to refill the prescription. Not my job, but I had to do it anyways. Hello? I'm the patient here. So I finally left her.

I found another doctor because I couldn't go on that way anymore. My new doctor took me off all pain medication except the Lyrica for the fibromyalgia and 800 mg of ibuprofen. I did this for over three months until I could barely walk. I believe she must have taken my old doctor to heart when she was told I must be abusing it. How I can abuse three a day is beyond me. I honestly think she was so upset that I left her office and found another. Actually, now I think back, my new Dr. thought if I went off of it my body might come to realize I did not need it after all because I had been on that dosage for so long. I can believe this and told her I would be willing to try anything.

I had also brought my husband in because he was a witness to my pain. He is the one who has seen me at my worse. He despised my first Dr. and could not understand my loyalty when she was not helping me. There is a lot more to the story, but it sounds almost unbelievable to me and i am taking up so much room as it is.

Okay, lets fast foward a great deal. A month ago I was on 60mg OxyContin 3's a day. My Dr. received a letter from my insurance company saying I was allowed no more than two because they should last 12 hours. In addition, I was taking two Percocet 10mg a day for breakthrough pain. I believe we had been discussing going to four a day of the OxyContin because it was not working.
So, I was put on the Fentanyl patch and went up to 100 within three weeks. It made me very, very drowsy. We have a six year old daughter and my husband is out of the house up to fifteen hours a day and on average 3-5 days off a month. I got scared on how tired it was making me. I was also on two Percocet 10mg per day for breakthrough. Tomorrow I am going back to the OxyContin with two prescriptions. One for the insurance company to pay and the other for us to pay for the remainder two a day. I just got off the phone from a large pharmacy saying it will cost us $521 for sixty.

My questions are: will the withdrawal be minimal due to the OxyContin and only being on the fentanyl patch for 30 days? Should I ask to increase the Percocet and only do two OxyContin per day. If so, how many for the average person? Is there something else I should ask my doctor in providing for me? There is no way we can afford this because we are struggling so much as it is. We are still paying off medical bills and we have the deductible to pay again this year. I've also had a total of 9 surgeries, which includes the hip and knee in a 3 1/2 year period. I have not picked up the prescriptions yet. Please, if anyone can help, I would be most grateful. Thank you for your patience, and I know the next posting will not be as lengthy. Thought only to give some background and venting.

Sincerely,

Ma'iingan

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/21/2012 10:26 AM (GMT -6)   
Welcome to HW...Sorry to hear about your pain struggles...

It sounds like you finally found a Dr. to help as you jumped from 3 Percocet a day to a very large dose of Fentanyl and Oxycontin....

So the only reason you are switching from Fentanyl back to the Oxy is because of the fatigue level?

It almost sounds like you were on too much of the medication when it causes that....Moving to 100mcg within 3 weeks is extremely fast....

May I ask what type of Dr. is treating you now? Is it a Pain Management Dr.?

And please know I am not judging at all...I am not a Dr. as no one is on these boards...we are all pain patients like yourself...I am just commenting based on my own experience and what I've learned over the last 11 years in PM...

We can't tell you how many pills to take for the transition...that is between you and your Dr....

I hope that you have a good relationship with the Pharmacist that you are using as it can raise red flags coming in with two different prescriptions for the same medicine and running one through insurance and the other through cash....

You may want the Pharmacist to call and speak with your Dr. to verify so that you don't have them alert anyone thinking that it's not on the up and up...I've known my Pharmacist for the last 11 years and he knows my Dr...

It seems like if you were on the 60mg 3 times a day...they would raise the mg instead of moving you to 4 times a day...As I personally don't know anyone on Oxycontin more than 3 times a day...

The main reason I am asking the questions and making some suggestions...is that for whatever reason...if something happens with this DR....if he isn't following guidelines like many other Drs....you could get stranded with being on extremely high levels and no one to prescribe....

May I also ask what other modalities does the Dr. have you using each day/week/month to help with your pain besides the narcotics?

Are you still on the Lyrica? Do you have a muscle relaxer to take when needed? A sleep med? Or things like daily exercise, aqua therapy, acupuncture, TENS unit, injections, cognitive behavioral therapy, etc...

Believe me...we all can totally empathize with living with pain and finding a good Dr. who wants to help us live the best life possible...

I live at a level of 5-7 on the pain scale each day which was our goal with chronic pain...I also walk 30-45 min a day, do yoga/stretching, and the other modalities I mentioned above...

Each thing chips away at the pain so I don't rely only on the medication and this keeps my tolerance level down....That is something that both my Dr. and I have wanted to watch as I will most likely have pain for years to come...So I will take a bit more pain to not keep going up in my dosage..I haven't upped/changed a dosage in over 2 and a half years....So it's being realistic of what to shoot for each day for my pain level.

For me....I do not have insurance....so I switched from Oxycontin to MSContin (generic) which is very cheap....and then I use generic OxyIR for breakthrough...

Hopefully your Dr. will also work with you on medicines to try based on the knowledge that you can't afford a lot each month...

Again...I hope you realize that we do understand...and that I'm just throwing out some thoughts and ideas as we get to know you better on here...

I would certainly discuss all the questions you have with your Dr. so that you can find out the best combination of modalities to help....
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/21/2012 3:16 PM (GMT -6)   
Thank you for your questions. It had been some time from the first doctor to the second with another hip surgery thrown in. I go to pt three times a week for close to two hours. I walk everyday and I am up to 31 minutes on the treadmill working up to 40. I am still on the Lyrica and I do stretches every day for my hip and back as well as exercises to strengthen my back.

I am not familiar with pain medications, but I do know the reading I did on the fentanyl patches scared me. I also feel it did not work and if I was active in the day, for instance, grocery shopping my pain level would jump to an unholy 8. I did not like the idea of driving with the patches and what scared me most was one instance when I became so tired I had to stand in order to not fall asleep. It was close to 8pm, which is her bedtime, but even so, it did scare me. In addition, I had taken the percocet early because I was in so much pain whereas I usually take them right before bed. I made a mistake, which I swore never to make again even though of the pain.
I believe that combination is what the driving force of getting off of them. Also I did not want to go up anymore on the patches due to what I have read.

I have been in a great deal of pain and the word "pain" does not seem to carry the weight for what I and others feel. It does not seem to carry all the weight it should. When I was on the three Percocet it wasn't doing any good. To be at the level I am at right now may be wrong, but I know with the help of this board, my doctor and and with more information I believe I can get to the right level.

After some thought, I believe maybe the two OxyContin may be right, but with more Percocet for breakthrough pain. From what I've read two pills a day for breakthrough pain is quite small in quantity, especially when I take them in the morning and right before bed. I have the whole day in between to deal with.

My goal is to be completely free of all medications and to find the doctor who will look at all of the information through all these years and be able to tell me why I am hurting so much. Yes, it is a dream and it has been shattered so many times.

Last week I brought up this new Neurosurgeon in town to my pt. to ask him if I should go because a friend of mine who has been in great back pain for 20 years is now all good to go. He sat me down telling me that anyone who has great results will tell everyone who will listen. It does not make this dr better than the rest. He was just successful in that instance. He was telling me not to jump right in, especially if it meant back surgery. He says I've had to many surgeries so close together, and I still need to heal. So, we are going to just keep on getting stronger. He doesn't think my back is strong enough to go through a surgery which might not work anyways. He says there are a lot of surgeons who tell patients they need this surgery when they do not. I am also very afraid of having to go through a surgery again. I don't want to do it unless the professionals around me agree with a second opinion thrown in.

I only take ibuprofen and do not take any sleep medications even though sleep is on average 3-4 at the most in one time. I do not want to take sleep medications like ambien because there are times my husband works nights and if there is an emergency I need to wake up. So I try to sleep when I can even though it seems I am always tired. I used to sleep a good 8 hours before all of this. I used to love my sleep.

I am prescribed tizanidine, but it made me so tired I could barely keep my eyes open. I do take this on really bad nights, but sometimes I just forget.

I use heat on my hip and back and ice on my knee and ankle.
I do not know my pharmacist very well. I think I have answered all of your questions. Please let me know what you think. Thank you for answering and asking.

Ma'iingankwe

Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/21/2012 4:03 PM (GMT -6)   
Im sorry I forgot to mention this: when I spoke to the pharmacist to get a quote on the OxyContin he told me the generic form was no longer being manufactured, MsContin. I had originally asked for the generic form. I do not know if his information is incorrect, but I would call your pharmacist to see if it is true.

Ma'iingankwe

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16421
   Posted 2/21/2012 4:24 PM (GMT -6)   
Hello and welcome to the chronic pain forum. It really does sound like you have been put through the wringer with all of these surgeries you have mentioned.

I too am surprised at the dr prescribing 100mcg of Fentanyl and quick as he did. Just so you know it can be a wonderful pain reliever for some people. Most people are started at a lower dose and worked up, you may have done better on a lower dose, obviously the 100mcg was too strong. Anytime a medication makes a person drowsy like you described it is just too strong for that person.

I think Snowbunny raised a very good point about the two different scripts of Oxycontin and I can see the pharmacist saying something to the effect of only being willing to fill one of the the two scripts. He/she would be within their rights to do this too. Four a day sure is a lot and what if something were to happen with the prescribing dr and the odds of finding another dr willing to script this much would probably be close to impossible. I am not sure how up-to-date you are on what all has taken place with pain mgt in the past two years but I can assure you much of it does not favor the patient. The new guidelines in place are not helping us, its hurting us more than anything because the drs are afraid of losing their licenses to practice medicine.

You may be right about trying to stick with the 2 doses of oxycontin a day and increasing the BT meds. But something we see with many people coming into the forums is people will not take their meds on a scheduled basis every day. Many forget or try to miss a dose, so instead of keeping a steady and even amount of medication in their systems they are doing nothing but chasing the pain day and night and not getting much relief for that reason. BT meds are to be taken as needed, not on a daily schedule because then the body becomes accustomed to that amount and needs it. A person should also know what their every day normal base line is with pain so they can recognize what actual BT pain is. My dr writes my BT meds as needed, not a daily medication and she verbally tells me how she is writing the script and will remind me they are as needed only, not to be taken as a scheduled medication.

I have also taken the generic Zannaflex and I am now on Baclofen. I cannot tell you how important it is for most of us with pain needing to be on a muscle relaxer, because pain alone will cause the muscles to tense up and cause spasms. If the Zannafllex is not working get your dr to try you on something different. I am also surprised that your dr does not have you on something for inflammation like Mobic or Celebrex. One thing I have learned in 20 yrs or more of dealing with CP, pain pills alone will not get you quality life, it takes different medications to handle all aspects of the pain, like the NSAIDS and muscle relaxers and anything else a person can benefit from, things like hot tub soaks, heat/ice packs and things of that nature.

I agree with the dr that told you that your body needed healing time from all of the surgeries you have had so close together. I had 7 surgeries in a two year time frame and it took so much out of me each time surgery was done. Three of my surgeries were major and done in 6 weeks and the shock and trauma that our bodies go through during surgery is staggering. So, for your sake I hope you need nothing further done for a very long time.

One thing all of my drs have told me about CP, is once you go down the path of dealing with chronic pain, you will always have it. Nothing short of a miracle will make it go away. Not only that, but to strive for quality life that is one thing we are all entitled to.

Anyway, I wanted to pop on and tell you welcome aboard!! Please take care and keep us posted on how you are doing....Susie
Moderator-Chronic Pain Forum

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/21/2012 6:31 PM (GMT -6)   
Hi Maiigankwe...

I'm not quite sure I understand your 3rd, shorter post at 4:03?

Oxycontin and MSContin are two completely different medications...

Oxycontin is Oxycodone in Continuous form...

MSContin is Morphine Sulfate in Continuous form...

And yes...the patent ran out on the Oxycontin quite a few years ago....and now that there is a new brand formula, it will be awhile before they have another generic..That's why I mentioned if the Oxycontin is too expensive...trying MSContin.

There is absolutely a generic for MSContin as I take this...It's extremely inexpensive...I have no insurance and I have prescriptions for 60 of the 30mg and 60 of the 15mg so I can take either 30 or 45mg at a dose....And for those two prescriptions they cost $70 a month. So, with insurance it would be obviously so much less...

That is why I was suggesting that if the cost is an issue...than there are other medicines out there to try...

As Straydog mentioned...we certainly understand the pain that you have as all of us on this site has had chronic pain and many for a lot of years....

We are just concerned a bit as it seems your Dr. is very liberal with the medications and seems to leave it more up to you to decide instead of him providing how many Oxycontin you should take a day...As I said...I've not seen someone on it 4 times a day....but the 3 times a day max as it's a 12 hour medicine...but for many it only lasts 8 hours...

I certainly hope you can hold off on another surgery for as long as possible....

Again..we aren't trying to say that you don't need these medicines...Just trying to share that you have to be careful about being on doses that no other Dr. would take over if needed....It does sound like the Fentanyl was way too strong for you with not being able to stay awake without standing...that is very dangerous...

It sounds like you will hopefully work with this Dr. at getting your long acting medicine to a good level and then only needing the breakthrough occasionally...

As mentioned...with chronic pain...it's not about being out of pain...but living the best life we can with it..My Dr. thinks of it as a big toolbox and using every tool we can added together that gets us to that 5-7 pain level...

We are certainly glad you found us...It's such a great place to share and find others who know how you feel...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/22/2012 1:32 AM (GMT -6)   
Update. I had a good talk with my pharmacist. I must have misread the information on the Ms Contin and he explained exactly what Snowbunny said. Almost verbatim. Pretty awesome Snowbunny21.

I am on three OxyContin at 40mg. With two Percocet at 10mg. I am going to call my doctor first thing in the morning and ask about the MS Contin and to have one of them a day and two of the Oxcycontin as well. I will see if we can start this 30 days from now.

I do have a question. I really do not understand what breakthrough pain is. When I was prescribed the two Percocet for am and pm I automatically assumed that is what it was for. My doctor has not mentioned the term. I caught it from reading other peoples' posts, and I believe I may be wrong. I apologize if I may have mislead, it is not my intention to do so. I believe in honesty because it will get me much further in the end.

Thank you so much for your honesty and kind words. This is the best thing I have done; I am happy to have at least found you now. I am not very well educated on medications, and your knowledge has given me a lot of relief and has made me sit down and really think. Thank you, thank you.

Ma'iingankwe

I really like what Susie had to say about taking the pills for breakthrough only if you need them. This is where I would like to be.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/22/2012 7:44 AM (GMT -6)   
Welcome to HW - I'm glad you've found us but I'm sorry that you've had to be here.

'Breakthrough Pain' - I'm not sure how well I can explain it as it's the middle of the night here... Many of us have an Extended Release (ER) medication and an Immediate Release (IR) medication. The ER med is usually taken every 12 - or sometimes every 8 hours - as a 'maintenance' med... it provides a baseline of pain relief that should keep us comfortable for most of our daily activities, that sort of thing. 'Breakthrough pain' usually comes on pretty quickly and sharply, and it's not controlled by our usual ER pain meds... i.e. it 'breaks through' the usual medications. Breakthrough medications are IR meds - things like percocet - which release quickly into the body to provide additional pain relief. I hope that makes sense - or that someone can explain more clearly.

Snowbunny - just for information's sake - my Oxycontin doesn't even last 8 hours now. I'm trying to manage on 3x daily dosing still, but my GP has said if necessary we can go to 4x daily if it really proves necessary.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16421
   Posted 2/22/2012 2:46 PM (GMT -6)   
As Laura said, the extended release meds do not always last the full 12 hours with all patients, as some only get 8 hours of relief. Then its up to the dr whether he/she will allow 3 pills instead of the two. When on an extended release medication, patients have what is called a base line of what their normal pain is. None of us are ever going to be pain free on our medication. When you get the bad pain spikes this is the break through pain coming through and this is where the instant release meds like Perocet come into play for the break through pain. Every pain mgt dr that I have seen over the years say never to take the instant release meds on a daily schedule like the extended release, if you do then your body will become accustomed to that amount of medication and need it. If the BT pain is bad enough daily then the extended release needs to be adjusted. My bottle of BT meds says 1 tablet every 4-6 hours, however, my drs instructions to me verbally are to used as needed only and not every day.

I don't know about trying Oxycontin and MS Contin together, not sure how this would work out, seems it should be one or the other and not both. I am not a dr or a pharmacist either, I just never seen it rx'd that way. I would be concerned with being on fairly high daily doses of meds to the point there is nothing left to increase me to in the future. At some point you can and will become tolerant to the medication and then what? I would be more inclined to reducing the Fentanyl patches to either 50mcg or 75mcg and see how that works before stopping the patches totally. Then you could still use the Percocet for BT pain with them.

I do not think anyone feels you are being dishonest, it was a little confusing at first trying to figure out where you were at with your meds, lol. Something else I want to mention is since they have reformulated the Oxycontin to keep the druggies from abusing it, I have heard the new formula is not as effective in controlling pain, so this is something else to ponder over.

I do hope that you can get this sorted out and get to feeling better and soon too. Take care...Susie
Moderator-Chronic Pain Forum

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/22/2012 3:38 PM (GMT -6)   
Laura..I just meant that even prescribing 3 times a day is going "off label" even though many Dr.s do prescribe it like this. That prescribing 4 times a day is not often done and it's just being careful about it as if someone ever has to change Dr.s....it can backfire on the patient when a new Dr. sees that another one was prescribing a certain way...

So...to you and Maiigan...I wasn't trying to say it was wrong at all...just that it's not done very often...Obviously whatever you and your Dr.s decide is all that matters.

And yes...both Laura and Stray described BT very well...sometimes it's called a 'rescue' med...as that may be easier to think of it....that when you have that really rough patch or know that a tough few hours will be ahead...you can take the medicine and it will work to lower your pain..

As mentioned, if you take a few times a day, every day...than it's not considered breakthrough but just part of your maintanence meds and then when you have a flare of pain...you have nothing to take..

I also agree with Stray that it's also not usual that they will prescribe two different types of long acting medications....so they would choose either the Oxycontin or the MSContin.

May I ask what type of Dr. are you seeing right now who is prescribing these medicines? It seems that your Dr. is letting you decide most things and what you should take and how much...

I'm not sure what you mean by the dishonesty thing.....we are just trying to get to know you better and try to offer the best suggestions or thoughts so that sometimes means asking a lot of questions in the beginning...

There are all sorts of reviews on the new formulation of the Oxycontin...Personally, I never go by what I read on the internet whether a medicine works or doesn't work as the percentages of good to bad are about 10% to 90%....Most people who are happy and having little pain issues or problems with their meds won't come online to here or any place...they are out living their lives happily...LOL...

So...I try to give any new medication an absolute 100% shot and barring any allergic reactions...I give it a solid month (recommended by my Dr.) to see if it helps with my pain levels...

Hope you are having a good day today...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/23/2012 3:32 AM (GMT -6)   
Hello,
When I was writing and mentioned the Percocet for breakthrough pain in the introductory post, I thought it may have been misleading because it had been written so matter factly. Afterwards, I wasn't real sure about what it meant. However, from the posts above, I can see I was correct. Just a little embarrassed, but wanted to make sure.

Saw pain mgt. NP that works with my pain doctor. I am being scheduled for another transferaminal lumbar ESI March 5th. I thought it didn't work because after a week and a half I was up in the pain level again. I thought it had been the change in the medications, and that is why I didn't know if it was the shot or the meds. They were actually sounding positive it had worked for that amount of time. I was told it works in threes and if I was interested in getting the second one and seeing if it would last longer. The Pain doctor would review my pain level diaries and see if it needs to be injected in another area and if I needed a higher dosage or to keep it all the same. Hmm...I was totally shocked. Didn't think that short time would've been enough. If it works in the end though I am all for it.

Snow bunny - I am with the same pain doctor and no, she does not take care of my pain medication. My GP takes care of that. I guess she really isn't my pain doctor if I think about it. She was referred by my latest GP for injections. She is a pain doctor and I think that is what has been confusing me and others. I just called her my pain doctor because that is how I saw her and in a way she is. Is she? Please, no need to answer that. :-)

Straydog - I went completely off of the patch on Tuesday when I returned to the Oxcycontin. Both of you make sense in that I should take one or the other. MS Contin or Oxcycontin. I called and asked for my doctor to call me personally so I can talk to her about it. If I could switch it would save me and the insurance company money. My GP is good in that they will return my call personally and always makes themselves available on weekends. I wouldn't be surprised to get a call then. They only have a half day on Friday. I know it is Thursday for most of you, but they are busy and my GP averages on 30-40 messages.
The Oxcycontin is working and I only had to take one Percocet today. Good news since I was active today. I had to do a lot of errands. All were short, but even so I am usually hurting a lot more than I am now. I am really happy about it.
Laura - I'm happy you mentioned that taking four is not that big of a surprise. I was feeling bad about it because I know it wasn't working at the time. Snowbunny- I appreciate your response to Laura It made a lot of sense and it was written without any animosity, which is so refreashing. I am so thankful there are people in reach who can help me now. I dont feel alone anymore.
I just can't find the right words to express how good it feels to have people speak with honesty, warmth and experience. All of you have laid out the facts for me to examine, none have been judgemental; this is a very mature group. Thank you.
I hope I have answered all of the questions, if not, throw them back at me again. Have a happy smiling day,

Ma'iingankwe

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16421
   Posted 2/23/2012 1:20 PM (GMT -6)   
Ma'iiganke, please I hope you never feel that anyone is judging you here at the forum as that is one thing that would not be tolerated. People are here to share and comfort each other. One thing I will say about this forum is we are always learning new stuff from other members. By sharing experiences others can learn.

So you are having a 2nd eppie done in March, I hope this one will work for you. Those can go either way, help or not help.

A few members here have their meds rx'd by their PCP, its rare though. Most do not want to get involved managing medications long term for one thing. Now we have the DEA calling the shots pretty much on narcotics and drs and many drs including PM drs are running scared. Really, I think its pathetic the way its all being handled. The bottom line it ends up the patient is the one that pays.

Hopefully you will hear back from your dr and you can get all of this taken care. Good luck...Susie
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Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/23/2012 1:44 PM (GMT -6)   
Completely agree with Stray...I hope that my questions didn't come across as judgment...it's so hard sometimes online when we don't know each other and written word can seem more blunt...

I promise there is no judgment for me...I'm just a naturally curious person...In fact, I should add that to my signature! LOL...No judgment-just asking....haha..I'm sure I bothered my mom and teacher's when I was young always saying, "but why?....what does that mean?"...:)

Hopefully the next ESI will help more..and that you and your Dr. find a good combination of the pain meds to keep your pain at a tolerable level..That is interesting that your GP handles your meds and not your PM Dr....but as Stray mentioned...it does happen but getting less common with new laws being passed in certain states..

That's great that you had a good day yesterday with only needing one bt med...hope today is good as well...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Maiingan07
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/23/2012 4:00 PM (GMT -6)   
There has been absolutely no judgement whatsoever from this forum. I have had judgement from family and friends, and that is why I have turned inward all these years. I have found myself no longer talking about what is going on even to the most intentional friends. I feel the story is too long and repetitive, and just no longer want to get into an update whether it is out of concern. I've gotten to the point I don't want to take up the conversation because so much has happened or I just don't want to get into it anymore because it is just plain depressing.
My husband is the only one I have been keeping up to date every step of the way and always asking for his opinion on our next step. He is a rock. We have been married ten years and I have fallen in love with him a little more everyday. It is amazing how much love two people can give. We married for the first time for both when we have seen so many people are age divorced. I can see us both in rocking chairs still holding hands. I've been given a great gift when it comes to family; I consider myself very lucky everyday.
I have awesome friends too. Friends I have hads for over twenty years. However, after all of these years in CP it just seems as if I am repeating myself so now I change the subject or give only a short summary. I know many believe that is what friends are for, but there is so many other better things to talk about rather than me repeating what has been going on year after year. If it is a surgery I'm about to go through I do let them know. I guess a part of me is afraid to be the friend repeating the same thing over and over again. I do have a few friends who know more of what is going on because they are the ones around me more often, but I have found myself getting more brief and to the point, rather than going on and on and woe is me.
It has hurt to have my mom be so judgemental. She feels as if I should just be done with it all. I don't think she can see it being possible I may not ever find out what it is they cannot fix and me to live it. She is my mom, old fashioned and doesn't like to see her child in pain. She has seen me at my worst and still she will say come on and walk no matter what pain level I'm in. She figures it's not far to go from a and b and to get on with it. Kinda frustrating and funny when it is usually a surgery I've just gone through. She has never been one to coddle. Kinda sad really, but there you go. I do know she loves me, and I understand it is not easy for her and she handles it the best she can. She really is a great lady, just not one who has been with a lot of warmth and hugs or kisses growing up. However, with my daughter you can't separate the two when they are together. I am so happy for that. I give my daughter numerous hugs and kisses everyday and she is still at the age that loves it.
We were in line at the grocery store two days ago, and she came up to show me a kit kat in dark chocolate. I told her no and to please put it back. She said, aaaaawww. The person behind us said what a mean mom you got. She turned around and said my mom's not mean, she loves me very much. The checkout lady laughed and laughed. I did too, thinking, you go girl. That is my daughter at six years old.
This forum, all of you have been beyond any expectations, and all good. I can actually feel the warmth form your words, and yes, it feels good. This is a place where people understand pain, procedures, doctors, surgeries etc., it is place where there is no judgement. How awesome is that? I now no longer feel as if I'm depressing my friends over and over again. Now I have a place where questions will be answered based on experience. I can feel so much strength within all of you and it carries across to me. There are so many people who have gone through so much more, and yet not one holds themselves up higher than the rest; all are equal here. I feel as if I've been guided here, and what a lucky girl I am. One day I will be able to write to others with experience and knowledge.

From my own peoples' language, chii miigwhich, thank you very much.

Ma'iingankwe
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