Hello All, Newbie Here with Muscle Pain after Stimulator Implant. Seeking your thoughts.

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Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/22/2012 11:57 PM (GMT -6)   
I'm a newbie to how this forum is laid out. But as most others I am looking for answers to my Chronic Pain Issues. And hopefully I can be of assistance to other members here in the forum.

I just joined the other day and posted on someone else s comment but when I came back I couldn't find where I had made my post so I decided I will try again.

Will try to be semi brief if that is possible...lol. Back in 2003 I had a L4-L5 decompression disectomy. I have had continued problems since then with pain, in my low back, legs, and neuropathy problems in my feet. I ended up retiring in 2006 and after getting off of concrete I improved to the point I could manage my pain with over the counter meds. In a year I was feeling better and went back to work in a sedentary type job for about a year and a half but ended up with back problems getting worse again and had to quit work. Since then my back hasn't calmed back down so my PM doc decided I was a good candidate for a Neuro Stimulator because a TENS Unit gave me some relief. The trial worked good so I had the implant in May of last year. It helps some buts doesn't take care of all my pain issues. The incision was made at T-11 to place the electrode pads next to my spinal cord. The incision healed well but I have never gotten over the surgery. The Muscles around the incision area tighten up on me when I stand for just a few minutes. Pain levels then start climbing rapidly to the point I either have to sit in the recliner or lay down. After resting for 30 to 45 minutes the pain levels dissipate back to low manageable levels. I'm wondering if any of you have had the same thing happen and if it eventually improved. I hate to say but at this point I feel like I am in worse condition with more pain than before I had the surgery. Before I could at least be on my feet for more than just a few minutes. Now I feel pretty home bound most of the time.
BTW the Stim Unit is a Medtronic with a 16 probe paddle.
Any information will definitely be appreciated. smilewinkgrin
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

Post Edited (DarnMe2000) : 2/23/2012 6:45:55 AM (GMT-7)


Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 2/23/2012 12:53 AM (GMT -6)   
Darnme2000,

Just a quick note to welcome you to the board.... I'm sorry, though, that you are dealing w/ chronic pain. I don't have the stim unit - but there are a few people on here that do... and I'm sure they'll be along soon.

Again, welcome... and I look forward to getting to know you better. Take care --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 12:56 AM (GMT -6)   
Thanks Tina for the Welcome. I look forward to making a few friends on here and maybe can be of some service to others.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/23/2012 2:18 AM (GMT -6)   
Hi Darnme, and welcome. I've had a stimulator for nearly six years now. I do get pain in my back, partly due to spread of the Complex Regional Pain Sydrome (for which mine was implanted) and partly due to deep scar tissue (or so my technician believes) causing irritation to the rest of the tissues through the area.

What do your doctor and/or tech say about it? Has anyone done a 'diagnostic' on the stim to make sure that it's functioning properly - that there's no current leakage or any accidental stimulation of your muscle there. Have you had an x-ray or scan to make sure the leads are intact?

I wouldn't go ahead without checking with your doctor or tech, just because I don't know exactly where your stim unit is or where your leads run and I don't want you to go out and risk shifting them, but I wonder if massage is an option for you?

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 7:49 AM (GMT -6)   
Laura, 1st off Thank You for Replying,

Doctor and Rep both looked at Xray post op 2 weeks and said everything looked good. Incision made at T-11 and probe paddle goes up to T-7 according to Doc. I overheard Rep and Him discussing location and Rep said he could work with that location. After going through setup of stimulator we were able to make it reach most of my areas where I hurt so I figured location must be ok. The wires run down my back to the Control Unit which is located in my left buttock. After buttock healed I've had no problems at Control unit location.

Doctor doesn't seem to not have a clue. Says first time he has had this happen. Now he has passed me off to Pain Management and giving me pain meds.

Talked with Rep just recently and we ran a Test. Turned stimulator off for a few days to see if there was any noticeable difference. It did not seem to change anything. Rep said he thought the wires were intact and were not leaking since there was no change. Turning the unit off should have made a difference if there was accidental stimulation. Seemed like he was more concerned about the wires leaking than he was about my having the pain. If you understand what I mean.

I see some people write about wire mitigation and wonder if that is a viable concern. Since this doesn't happen when I sit it makes me wonder if when I stand something is getting in a pinch or binding causing the quick onset of muscle tightening and rise of pain.

Is scar tissue detectable on Xray or CT?

I have an appointment with my PM today and I think I will ask them to take another Xray and look to see if everything still looks ok in that region.

I have wondered about Massage also but since the muscles relax and pain drops back after sitting for a while I've debated whether it would help.

My memory is foggy as to whether I had this kind of pain from day 1 or not. I did have quite a bit during the first several weeks when everything was settling down from the surgery but attributed that part due to the surgery and staples in my back.
If there are no improvements before too long I may seek another doctor to take a look at things.

With as many people as there are on here I hope to find someone who has had similar problem and was able to resolve it.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 2/23/2012 9:14 AM (GMT -6)   
Good morning Darn Me
I wanted to pop on and welcome you aboard. Glad you found us but sorry you are having all this pain. You will really enjoy the members here, many caring individuals who all share in some sort of chronic pain.
Hope you can find some answers to help relieve some of your pain.
 
keep posting with us and let us know how you are getting along.
 
Suzane

ahuffman
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 2/23/2012 9:20 AM (GMT -6)   
DarnMe2000,

Welcome to the community! Sorry to hear about your pain issues, I wish I could help but I don't have any experience with stimulators. I hope that you can find some relief soon and figure out what the problem is.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16777
   Posted 2/23/2012 11:10 AM (GMT -6)   
Hi Darn and welcome to the chronic pain forum. I am sorry that you have to be here but so glad that you found the forum.

It sounds like things are not going so well with the SCS unit. That seems to pretty much be the norm with so many people once they have the final implant done, sad to say. If you will use our search feature here at the forum and type in SCS units you will find a good deal of information concerning the SCS units. I wonder if it is normal to implant the leads so high up like they did in the thoracic area, have not heard of others having them that high up for the level of coverage needed in the low back. As far as your dr not doing much that is normal, those guys have no clue about the workings of the units and they rely on the reps to handle it. Seriously, the drs do not know that much about them, your rep should be your new best friend. Considering the length of time since surgery I would think things would be working better-some say as more time goes by it gets better. I really feel bad for you, we have seen this happen so often. Personally speaking, I think they need to do a lot more work on these units and fine tune them better than they are now so when the final implant is done they do what they are suppose to, as it is now that does not seem to be the thing happening for people and thats wrong. There is a lot of money made off of them and sometimes this drives drs more than anything, greed. We have a lady here at the forum that had one implanted and it has never worked from day one and her dr will not remove it. They say they can't remove them because too much scar tissue builds up around the unit. A real no win situation.

I am glad that you have been referred to pain mgt and that is a good move for you. He is trained to handle people that suffer with pain, that is his specialty. He should be able to help you in that department. I would sure give him the opportunity to see what he can do to give you some much needed relief.

Please take care and keep us posted on how you are doing....Susie
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/23/2012 3:36 PM (GMT -6)   
Hello, I am the lady with the useless neurostim in my back, my name is Kathy/nini53 either will do.  My doctor first did the trial, and although its wasnt the best, I still decided to try.
 
He installed it to deep the first time, so one month or so later I went back and he reinstalled it where it was supposed to be.  Now it wouldnt work due to massive scar tissue.  He does not want to remove it yet as he seems to think there might be a way to get it to work.  There is not, unless he installs a new one at a different place, and thats not going to happen.
 
I do have pain from the scar tissue surrounding the entire unit and the top and, well everwhere.  It also feels icky to touch it.
 
Good luck,
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 4:29 PM (GMT -6)   
Thanks everyone for the Welcome. The unit does help some for my low back which is what it was intended to do. Not as much as I had hoped but am happy for any help. The thing it did the most was to reduce the burning and tingling sensation that radiates out from the L4-L5 incision towards my left hip area. The left hip area still has what seems like a deep aching pain to it and I still have pain that radiates down my legs to my feet but it has given minimal relief there also, some times more than other times.

What frustrates me the most is the newly created pain caused by the implant site of the probe.
Today I went to the PM Doc. Not sure how satisfied I am with him either. He works out of the same office as my Ortho doc. But today he seemed clueless as to why I was there until I refreshed his memory again that it was for the Neuro Stim implant site giving me the worse pain and not for my low back. I ask him to take Xrays and he did. We compared them to the ones taken 2 wks post op and didn't notice any difference in how they looked. If a problem is there though it could have been there from the get go and is undetectable. He increased my Oxycontin extended release to 20 mg every 12 hours, Renewed my Neurontin 600 mg 2x daily and told me to come back in 7 weeks. At that time if I'm showing no improvement he is going to send me to another PM doc to see if there is shots he can give me in my mid thoracic area. I don't like taking the Oxycontin but there isn't a quick release med I can take that would knock the pain down when I stand and have the sudden increases. So it appears keeping continuous pain relief meds in my system is the plan for now. One benefit of the Oxycontin is that it does somewhat help my hip area some.

I was surprised they implanted the probe as high as they did myself. I even asked Doc on one visit why. He said that is where the nerve bundles start separating that goes to the legs and they are totally separated by the time the reach the lower back and come out of the spinal column to go down the legs. It may also have something to do with the fact I have pain that runs down both legs so to cover both they had to put it higher. Where do most people have the probe implanted?
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 4:54 PM (GMT -6)   
Kathy, do you have the paddle implant with the 16 probes? There are different type probes and that may make a difference as to how they are implanted. Apparently they cut away some of the vertebrae for access and installed my probes in the epidural area next to the spinal cord. Is that where yours is? I do know that a good Rep is worth a lot. Mine even came to my home to adjust the setup of my unit. He setup several programs that picked up from different probe points and gave me some flexibility to make changes to my control unit. I have 7 different programs I can choose from. I also can change the rates and frequency/ wave length to give me different results. I'm kinda a tech type guy so he may have felt I was capable of playing with the adjustments without doing any harm to myself. Over the course of my healing time I have had to make some changes because the effectiveness of a certain program would change. So Kathy, getting with your REP to adjust the control unit again may be of benefit.

I obtained a copy of my surgery process and read they semi awakened me during the surgery when they were setting the placement of the probe paddle before they locked it in place also checking to make sure my feet and legs weren't paralyzed and asked me questions about if I was feeling it shock in the correct areas. I would think that would be standard protocol to do so and would hope your doctor did that when he implanted yours.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 5:06 PM (GMT -6)   
Susie, I agree with what you said in your post about some doctors and the cash flow it gives them. I honestly have a lot of respect for my doctor. I think the truly thought it would give me more relief and I don't begrudge him for the problems I'm having. The only problem I have with him now is the fact he didn't chase after finding out what is causing my new found pain. I honestly believe he doesn't have a clue. And that could go hand in had with them not knowing all they need to. I would think however he would have some knowledge of the cause of the muscles tightening and the pain level shooting up. Whether it be related to the actual implant or the surgical incisions they had to make in order to do the implant. I do hope in time there are more improvements.

One thing I have failed to mention in my other post is that I am type 2 diabetic and that may be part of the problems with the healing process and extended pain.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/23/2012 5:10 PM (GMT -6)   
Hi again, Kathy here, I cant speak for most people, but the pain in my back is basically where yours is, my useless implant is located on my right side, back, but not low back, the leads or at least one of them was to help relieve some of the pain from neuropathy in my right leg, foot, it never did anything for my hip, well at least during the trial period which was the only time it worked, my right hip remains very painful.
 
I also have fibromyalgia, and I take neurontin for that, for me a least neurotin, (the generic brand) works very well, after starting it back several years ago, I had no faith that there would be any change in my pain, but gladly there is, its remarkable, I still have pain, but nothing like I used to have.  I take anywhere from 300mg 3xday to 600mg 3xday, either or not both.  Depending on the weather is how I calculate what I will take that day, and this was okayed by my doctor prior, indeed, it was her idea.
 
Take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/23/2012 5:26 PM (GMT -6)   
Kathy, One thing I have found that helps my hip pain for a little while is, I stand at the bottom of steps and place my left foot (my hip pain is on left) up on about the third step, Then I lean forward and I stretch the Hamstring for a count of 5 and then relax. I repeat that several times. I hold on to the stair rail to stabilize myself. Sometimes when I'm hurting a lot it really helps me to take the edge off the pain.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16777
   Posted 2/23/2012 9:08 PM (GMT -6)   
Darn I am glad you are getting some relief with the unit, but the new pain you speak of is sort of baffling. Does your dr have you on a muscle relaxer, if not you may want to consider asking the PM dr for something. Most people with back pain have muscle spasms and that in itself creates more pain. You mentioned the dr keeping you on extended release meds for the time being, try not to get discouraged that you need pain meds, even with the units people still need pain meds. Staying consistent in taking the meds will help control your pain rather than chasing it around with a short acting medication.

Before surgery did you have the pain down the back of your legs? Did your dr ever talk about you having a pinched or compressed nerve? The pain you describe is what most folks do when there is a pinched nerve. Regular pain meds do not have a lot of effect on nerve pain, that is where Neurotin comes into play to help with nerve pain.

You mentioned diabetes, my husband also has diabetes and he has neuropathy in his hands and feet. He does not have any pain in his legs, limited to the feet only. He too is on Neurotin for this, and he has not been on it long enough to know what it is going to do. He is on 600mg a day and I think his dr is going to have to increase it on his next visit. Do you have neuropathy as a result of your diabetes?

I hear your frustration with your dr because of this pain no one can explain why it is there and happening. I do hope as more times go by you can improve with this. What does the dr or rep say now that you are almost 8 months post-op as far as how long it would take for someone that is diabetic to heal? Did they give you any time frame prior to the implant? It sounds like you have a good rep to help with the unit. We have heard some horror stories on here about reps not helping the patient when there was a problem that cropped up. These reps know that is part of their job since the drs have no training in the devices.

Take care and keep us posted on how you are doing. We will keep our fingers crossed things get better for you....Susie
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/24/2012 12:18 AM (GMT -6)   
Susie, Like I said Dr. doesn't have a clue as to what is causing my current pain but he and Rep are both aware of my Type 2 Diabetes but it has not been mentioned as a factor in my heal process. I think it may not have been given consideration because I believe I was told 3 or 4 months to heal. I'm taking Metformin for the Diabetes. Once current Dr. gave me a steroid pack to see if that helped reduce inflammation and on the 3rd day it shot my blood sugar up to point vision burred on me and when I finally got to where I could check sugar levels it was 460 and that was about 30 minutes after blurring occurred. Needless to say I didn't finish the steroid pack and it took several days for levels to get back to normal, blurred vision cleared by next morning.

I'm not on a Muscle relaxer now but was on Soma for a while and it didn't seem to help. The Tightening of the muscles is not the norm in terms of spasms I am used too. I don't even recognize it as a spasm just a start tightening up and as it tightens the pain ramps up. It gets to the point is so tight it almost feels as though someone has put duct tape across the incision area, if that makes any sense to anyone. I have always considered muscle spasm as a real quick grabbing of the muscle and then somewhat fluttering feeling. Am I wrong or it there more than one type of spasm?

I had the pain going down the back of my legs and pain in the pads of my feet before and after original surgery on L4-L5. Pain down legs doesn't seem as bad now as it was prior to first surgery but was still present. Currently problems with feet are getting worse. I've started to have sore spots at the base of some of my toes. Foot Doctor concurred on the Neuropathy in the feet. I have been put in orthodics and diabetic shoes and still some days I have to use cane to get around because of sore spot in feet. The Neuropathy was there before I was diagnosed with diabetes. Diabetes may have had a factor in it but if it did was because I didn't know I had it. Neuropathy developed during time we were trying to take conservative approach to addressing the L4-L5 disc bulge that was causing the sciatica down back of both legs (left side was worst). Wasn't diagnosed Diabetic till a few years later.

I was conservatively treated for over a year before 1st Dr. finally decided to do surgery. I went thru 3 sets of spinal injections and 1 Sacroilliac injection (which was extremely painful in itself). I was even in a Thoracic Brace for the last 6 months prior to surgery trying to keep pressure off the disc by keeping the spine aligned. When wearing brace I did get some relief. I don't think it was until he saw how the bulge was impacting the spinal cord on a mylogram that he decided to do the surgery. In hind sight I think we waited too long before doing surgery. When Dr. came out of the operating room he told my wife there was more damage there than had showed up on the MRI's or Xray's and said he was glad he decided to do surgery. Said I also had Ankylosing Spondilitis and Degenerative Disc Disease. He's a highly respected Neurosurgeon in this area and I still have faith in him for his skills. In fact he is who I will probably go back to see for a second opinion if things don't calm in the coming months. I would have went back to him for followup treatment once things flared up again but insurance had changed by then. I still may bite the bullet and go to him again.

Present Dr. diagnosed this time as Failed back Syndrome. When requesting pre-approval for implant.
Initial back problems began in 2002. L4-L5 surgery in 2003.

Having quite a bit of Depression/Anxiety now over all this and seeking counseling for it. My memory fails me a lot of the time so I have to look back where I have things written down sometimes to give answer. You may have noticed I may seem confused about a answer at times. I keep a journal now and that helps. Sometimes I lose focus and may jump around on ya so bear with me. I have to read and re-read then write and re-write to send intelligent message... There is some humor at times with it though and I try to make light of things some times to stay in good spirits. Thank God for spell check.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/24/2012 2:24 AM (GMT -6)   
Good morning DarnMe2000!

Welcome to the forum…..and just a quick tip for you! If you happen not to be able to find one of your post….click on your username, and it will take you to a page with the last ten of your comments. You then can click on any of them and it will take you right back to where you want to be to make more comments on that particular thread.

Hope that helps, and again Welcome and Enjoy the forum.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 2/24/2012 2:26 AM (GMT -6)   
Hey you,

I don't know anything about the SCS (other than what I've been educated here about)... so I told you that I can't help you there, lol. But I do want to give you a compliment. I like how you are new to the board - and already trying to support other people. That says a lot about you. Also, I think for as much as you are going through - you seem in pretty good spirits.... another quality that I admire. Ask anyone who knows me - and I often use laughter or my deranged sense of humor to get me through the tough times. I figure - I can laugh or cry, lol. Sometimes I do cry.... but I'd much rather be laughing!!

The point of all of that - I'm glad you joined us!

Just so you know.... MANY of us here suffer from depression/anxiety.... and many of us have memory issues - so no worries! I no longer go to counseling (simply for a lack of time....but I've spent many hours w/ my therapist, lol). But I would be a mess w/out my anti-depressant. It's as crucial to my well being as food and water (just ask my family and they will tell you!). I don't mean to make light of that.... because it can be really difficult at times and I'm the first one to find myself in a dark hole at times. But talking here about it helps.

All the other stuff - the SCS, diabetes, etc. - I won't even pretend to know about.... but I'm glad we have people on here that DO.... that's the great thing about our forum.

I hope you get some rest tonight, with as little pain as possible. And keep posting! I'm glad you are here. --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/24/2012 3:00 AM (GMT -6)   
Hello DarnMe,
 
I'd also like to welcome you to the board.  I don't know anything about the SCS...although my Neursurgeon wants to put one in.  I declined simply due to the things I have read here.  A few seem to get relief, but many do not.  I don't want another surgery on my list for another failure and I don't want to be limited to no more MRI's if I need them.  I'm sure you understand.
 
I can understand the L5-S1 issues, the feet issues and the muscle pain though and I can fully understand why you are seeking help.  I came here for that too and these guys are great!  You will find a great deal of understanding and compassion (not to mention knowledge) here.
 
Anyway, I just wanted to welcome you and to let you know that many, many of us here understand the pain of back problems and how they can change your life in a moment...forever.  We know fully about depression and anxiety and pain that never seems to leave. 
 
I am glad to have you with us on our journey, but sad that you have to suffer the same way so many of us do.
 
Again, welcome!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/24/2012 5:35 PM (GMT -6)   
Screaming Eagle, Thanks for the Welcome and the Tip. I tried it and it is very helpful. I still didn't see the original post I made. Know me I may not have submitted it after I wrote it.

RetiredMom, Thank you for the Welcome. I am already finding out I have landed in a very good forum with kind and understanding people.

Momto8kids/ Tina, I really appreciate the kind words. This has been a long rough road for me to travel the last 10 years. I have great respect and compassion for anyone going thru what each and every one of us are going thru.
Some of our Ailments may differ a lot but we all have a common problem and that is the pain we deal with daily.

I've always tried to keep a positive attitude that things will get better but finally broke down several months back when it hit me I can no longer do what I used too and more than likely will never be able again too. I still get on the Roller-coaster at times with my Depression/Anxiety and have ups and downs but I now recognize the need to accept where I am at this point and time and try to make the best of a bad situation. Some things I used to do I now have to figure out a different way of doing them and not give up trying. The point is to keep trying and having a good sense of humor is definitely a plus to be able to make light of a bad situation laugh at yourself really helps. I have several issues I haven't begin to talk about on here but in time probably will and may list them on the Signature at some point.

As for trying to help others, I think it is something each and every one of us should do. Not just on this forum but through out our life in general. If you have something to offer a stranger then offer it. You never know what they might offer back to you that you really needed and didn't even know it.

All of you have made me feel very Welcome. I look forward to getting to know you all and helping each other in the future.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/24/2012 8:59 PM (GMT -6)   
Hi there...

I don't have any experience with the SCS...but as you've seen...we have some great advice from other members to help with this..

Just wanted to welcome you to the boards...it's such a wonderful place among "friends" who all can empathize with living with chronic pain and all the ups and downs that go along with it..

I agree that having a positive attitude and adding in humor whenever we can is critical to help keep our spirits up...That's why I love watching TV and listening to books on my phone/computer...I like watching things like Modern Family and 30 Rock to make me laugh out loud...or documentaries or shows on NatGeo or CNBC that make me think...It's all about keeping my mind occupied and off my pain..

So...hope you stay with us as I'm sure that we can learn from your experiences as well..

Hope you have a have a good and low pain weekend!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 2/25/2012 2:18 PM (GMT -6)   
Hi Snowbunny, Thank's for the Welcome to the forum.

Pain is actually doing pretty good for the moment. You all will probably think I'm all screwed up cause I just got up from sleeping about a half hour ago. But if some of you all are like me, my sleeping habits are very irregular anymore. When I take my meds they make me sleepy so I sleep a lot. And then I have a tendency to waste a lot of time sitting here on this computer and stay up later than I should because I'm not sleepy when I should be.

Hey, nuff about me this afternoon. How are you doing? Was looking at your signature and realized I'm going to have to learn what all these abbreviations are people use to describe what their ailments are.

Nice making your acquaintance.
I hope you and everyone else on the forum have a great day and weekend.
Things may seem bad right now but it could be a lot worse!!!
Don't forget to count you blessings.
I'm thankful to be here.

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/25/2012 7:45 PM (GMT -6)   
Darn Me, can you please send me an email when you have a moment :-) Just click on the envelope tab under my name.

Cheers, Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16777
   Posted 2/27/2012 8:38 AM (GMT -6)   
DarnMe, sleep is a big problem for a lot of us. I sleep when I can, I no longer have a real schedule with normal sleeping hours. My sleeping habits went south about three years ago. I usually lay down around 5-6 am and then awake & up by 9am the latest. I sometimes nod off while sitting here at the computer in the afternoon for a bit, lol.

I have to laugh and believe its one of our best medicines. I have learned how to do a lot of things a different way and hope for the best outcome, lol. The things I can no longer do, I figure there must be a good reason for me not to be doing them.

You mentioned acceptance, yes, that is one of the hardest things we have to deal with I think. Coming to peace with the new life is a hard thing to do and it does not come fast or easy. But, once we can make peace with it, life does get much better I think. It did for me, I stopped all the second guessing I was doing and I was able stay with one plan of action.

I have a 6 yr old grandson that keeps me busy. I spend as much time with him as I can. He is aware of some things I cannot do but we don't let that get in our way. He is into bowling and just loves it. I cannot bowl anymore so I go and be his cheerleader. He wears me out but I love it.

I hope you have a low pain week take care.
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