Lyrica for Chronic pain? Side effects?

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 406
   Posted 2/27/2012 8:01 PM (GMT -6)   
Hi everyone... I am new to this forum. First joined Crohn's Disease forum in 2010. Long story short, I have had a difficult two years. First diagnosed with Crohn's and Crohn's arthritis at 40... After many trips to the Mayo and local doctors, they were able to find a drug to work for the Crohn's.. Humira. Mayo could not figure out how to help my arthritis and chronic pain. Rheumy put me on Arava for joint inflammation. Drs agreed that I have a rare severe case of Crohn's in my joints and they are at a loss as to how to treat the constant pain.

Primary dr sent me to pain clinic.. he told me that I am at the end of my road... that he had one idea and after that I would have to live with my pain. They cannot put me on nsaids due to crohn's, narcotics are too addicting and they really don't want to use them anymore for chronic pain. He mentioned Fentanyl but I can't live on that. He mentioned Butran but said that would stop working after year and I am only 42. He said acupuncture wouldn't work and is not covered by my insurance. His only option was Lyrica... he said he is not sure if I now have Fibro or if I just have chronic pain.

The problem is that Lyrica is making me feel stupid. I can't remember things, I am messing my words up. It takes me forever to get a sentence out. I have already been sitting here for 45 minutes trying to type this. I have to correct words and sentences... I am always feeling like I am hungover. I am only on 50mg twice a day. He is talking about increasing it but I don't think I can handle it.

Does anyone have any experience with this?
(mods.. I am going to cross post in Fibromyalgia.. if this is not okay please delete. I just really need help)

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/28/2012 11:11 AM (GMT -6)   
Hi June, Kathy here, I am just a little confused, your doctor must know fentanyl is a narcotic, so as far as dependency fentanly is one of the stronger narcotic meds out there.
 
Now for your fibro, have you ever tried neurontin, it has a generic name, gab......., the pharmacists will know the generic name for neurontin.  It has worked so well for my fibro I was surprised myself.  I never tried lyrica due to the side effects that came with it.  But I am so glad my doctor started me on neurontin, its wonderful, and I dont know for sure since I have never taken lyrica, but from what I have heard it does not have to side effect lyrica does.  It has never made me feel woosy or floating or anything but much better.
 
All I do know is that it works for me and I can tell the difference when I dont take it on a regular basis, so now I take it just as prescribed, well mostly, I take 300mg 3xday, at night my doctor told me I could take 600mg before going to bed as it might help me sleep, which it sometimes does and sometimes doesnt, but it always helps my fibro.
 
Good Luck and Welcome to the CP forum,
 
Kathy
 
 
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 2/28/2012 1:47 PM (GMT -6)   
June when your Dr started you on Lyrica did he begin with 25mg 2 times a day for a week and then raise the mg to 50?? I am just wondering if you eased into it it might not have had such an effect. I am just easing off of Lyrica I'm at 50mg as well right now and I find myself taking forever to do the simplist task. I am actually weening myself off of Lyrica and Cymbalta at the same time. If you can try to start at a lower dose and then every week increase until you are at the prescribed amount.

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 406
   Posted 2/28/2012 6:22 PM (GMT -6)   
Kathy.. this is not the first , but second time I have been offered Fentanyl but nothing else. My husband and I just looked at each other. It confuses me that they will offer me such a strong narcotic. It boggles the mind. I have not been offered neurontin but will bring this up at my next pain clinic appt which is next week.

Grandmaroses.. no he did not. He started at 50mg once a day and then five days later, moved to 2x a day... I have not increased to three times a day because like you....it is taking me a long time to get sentences out...I am using wrong words... feel really stupid.
I have been in pain for two years....this has brought me some relief.. I hate there are side effects...maybe neurontin will be different.
42 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 20 years..
Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
currently disabled due to Crohn's
Humira,Arava, Lyrica, Vivelle, Propranolol, Dexilant, Promethazine, Ambien

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/29/2012 10:49 AM (GMT -6)   
Junerainbow- I am a bit confused about why the Dr will give you Fentanyl patches but won't give you pain medication? Fentanyl is extremely addictive. I agree that you should ask about Neurontin, I was not able to take it, but many others are and have great success with it. I have been taking Lyrica for over a year now and it helps a bit with my groin/leg pain, but does nothing for my back problems. I've never had any side effects from it, except that it seems like my blood sugar drops a little after taking it. I am so sorry that you have those side effects, that must drive you crazy. I hope you can get some relief soon! Also, welcome to the CP forum, you will love it here!
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 2/29/2012 12:45 PM (GMT -6)   
Hi June, unfortunately there are side effects to everything it seems. My lyrica is 25mg capsule so going from 25mg 2 times a day up to 75mg 2 times a day for a 150mg total was an easy transition however I was only on the 150mg for 2 weeks and then I made the choice to reduce beck down and then I will be off of them. After all my medication was purchased I looked at our budget and we can not afford lyrica and cymbalta and others so I am weaning myself off.

I am happy this medication works for some people but it is not for me. Maybe its not the lyrica causing the brain fog maybe its just FM? I have never been on Fentanyl but if everyone says its addictive I believe them, its really hard to find something that works for the pain and we can be a bit more sensitive to meds as well. Hopefully you will find something soon.

Hopefully this post makes sense as I have reread it twice and I keep forgetting what I am writing about. grrrrrrrr

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 2/29/2012 3:39 PM (GMT -6)   
junerainbow,
 
Welcome to the chronic pain forum and also to the fibromyalgia forum, since you are posting there.  I am also moderating in that forum as well.  You will come to find out that there are wonderful people in both of these forums, very knowledgeable and helpful.
 
I have taken Lyrica for years.  I agree with the person who wrote that 25 mg a day would have been a better starting doseage.  The lyrica makes you tired and a little goofy, but if you take it and increase it slowly, those side effects don't happen that much and when they do, they taper off as your body gets used to it.
 
Lyrica does make you gain weight.  I have gained fifty pounds on the med over the years.  I take 200mg twice a day and it helps me quite a lot.
 
The neurontin or gabepentin, is a similar drug as it helps with neuropathy which I have in both my legs, but it does not work as well as the lyrica.
 
This is my take on Lyrica.  I wish you luck with the med, if you so choose to stay on it.
 
God's blessings.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda
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