I am going out of my mind

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fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/28/2012 7:11 PM (GMT -6)   
smhair So, I had the arthrogram this morning- my joints were not ruptured, which is good, and I will follow up with my pain Dr next Friday to see where things go from here. This is why I am losing my mind- I was given a ton of versed and diluiad (spelling?) and also a dose of benedryl, but I am SO itchy I can't stand it. I got no sleep last night from being anxious about the test, had to get up at 6am, got home at 11:00am and haven't been able to sleep all day from being so itchy. I had red marks all over me from scratching so much. I called the Dr and his nurse told me to take two benadryl and that some people get itchy from the diluiad. I also told her that I've been hot and sweaty all day & it's 67 degrees in my bedroom, so shouldn't be sweating. She said the medicine can also make me warm. Was told to call her back if I've not improved and I had to leave her a message. I cannot even explain how crazy this is making me...if I don't get any sleep tonight someone better take me to the loony bin tomorrow. I seriously feel like I am covered in ants. Does anyone know of anything else I can do? I'm not allowed to take a shower until tomorrow. HELP!
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 2/28/2012 7:24 PM (GMT -6)   
Hi, I wish I could help you, but the itching goes along with the meds, and not just dilaudid, most of the narcotic meds, at least at first make you itch like crazy, try to bare with it, it does go away.  As for the heat and sweats, that also is from the meds, all I can tell you there is maybe put a fan a little away from you at night, it might stop the worse of it.  Its alway something, isnt it.
 
Hang in there, good luck and take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/28/2012 7:33 PM (GMT -6)   
Thanks Kathy! I go get itchy from my Percocet sometimes, but this all started before I had taken my Percocet today. It pretty much started when I was in the recovery room. I also do get warm from my Percocet, but again, was warm way before I took it. I am still burning up and beyond itchy. I really hope this goes away soon.
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2265
   Posted 2/28/2012 8:26 PM (GMT -6)   
Hi Hillary I'm so sorry that you're itching so bad. I hope you're getting some relief by now. Take care.

hugs
Loretta
Dx: osteoarthritis, bursitis in left hip, Osteoarthrits in right hip, compression fracture in thoracic spine due to falling on frozen ground March 2001 , ddd, spinal stenosis, bone spurs, osteoarthritis in spine, osteoarthritis in both knees
Meds: Fentanyl patch, oxycodone, otc: BenGay, Tylenol Arthritis on occasion

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/28/2012 8:45 PM (GMT -6)   
Loretta- I'm still pretty miserable. Thanks for your well wishes!
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/29/2012 4:06 AM (GMT -6)   
I hope you are feeling better today Hillary!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/29/2012 10:45 AM (GMT -6)   
Thank you everyone- the itching is finally gone and I was able to get some sleep. Hallelujah!
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/29/2012 1:15 PM (GMT -6)   
Hi Hillary
I`m so sorry you`ve had such awful bad side effects, sounds really terrible. I`m so glad the itching has gone away now and you could sleep. I haven`t experienced that myself but I have experienced the warm feeling. I used to get really bad hot flushes and sometimes still do, it used to look like I`d run a marathon  at 9 in the morning at work lol. I`ve asked doctors if there`s any solutions and no one has any answers. I find an ice pack or a cold wet cloth on your forehead or neck helps to cool you down and eat lots of ice blocks. Also I found steaming my face helped, must be something to do with the sweat, you get a bowl, fill it with boiling water and put a towel over your head and keep your head a reasonable distance away from the water and stay for a few minutes. I`m glad your results came back with some answers so you can see where to go from here. Take care. Hugs xxxx

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 2/29/2012 4:31 PM (GMT -6)   
Thanks Di! I get actual hot flashes as I'm in surgical menopause, but this felt like I had a fever all day. I had my bedroom down to 65 degrees at one point and was still hot and sweaty. I tried the ice packs, drinking cold water, it didn't help. Thanks for your concern! Haven't seen you around in a couple of days, hope everything is OK.
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 2/29/2012 5:41 PM (GMT -6)   
Hi Hillary

Well you don`t need more hot flashes then lol. I`ve had all day hot flashes like what you described too, they drive me nuts. Mine have calmed down now I`m used to the meds but at the beginning it felt like I was on fire even though it was cold. I don`t generally feel the cold any more, though, lol. But sometimes I do still get a real hot flush. When I stayed with my parents last summer they had moved into a new house with double glazed insulation or something like that. It wasn`t even that hot but I felt like I was burning up, I couldn`t wait for the winter to arrive! They do get better though and less frequent.

I`m guessing they have just given you dilaudid or however you spell it just for getting over the arthogram. Has it had any effect on the back pain? Apart from the side effects that is. If it has helped the PM might be able to keep you on it even if they lower the dose, at least you can tell them if it helped or not. That`s great there is no rupture! Hopefully that means no surgery.

I`m ok, thanks honey, I haven`t been in contact since the other day as the pain has been so bad the last few days. I`m so tired, it`s all becoming a blur. I`m lucky it`s a quiet week at work so I can rest. On Sunday morning I was in agony, I was curled up and wanted to scream and I had to go to a friend`s and had already cancelled the week before from being sick so didn`t have the heart to do it two weeks in a row. I was dreading it because of the pain but finally just before I got there it started to subside, I think it was the rushing around that finally kicked the painkillers in. And the last two days the pain has also been like that at times though not for so long. Sorry I`ve just made this all about me.

Well keep me posted. Hope you are doing ok for now. Hugs Di xx :)

fireflyhillary
Regular Member


Date Joined Jan 2012
Total Posts : 148
   Posted 3/1/2012 9:50 PM (GMT -6)   
Di-
Hot flashes are horrible, especially when you wake up in the middle of the night soaking wet and have to change your clothes- not fun. I VERY rarely am cold, even if it's cold out, I'm not cold...it takes a lot for me to be chilly. I hate summer time as it's hot here and we have very high humidity, so summers are miserable for me.
The dilaudid was given during the procedure along with versed (a mild anesthetic). They could see that I was uncomfortable, so they kept giving me more doses of dilaudid- I think I heard them say they gave me the maximum amount that they could. It helped after the procedure, but I'm sure the cortizone injections they did also helped as well. My pain that day didn't really start until that evening. I don't think I will ask my Dr for it though, I cannot be that itchy again- I am not even kidding you, it was the itchiest I've ever been in my life. I was going out of my mind. I still think that the versed made me itchy as well as every time I've been given it I am itchy, but never like I was on Tuesday. Tuesday was absolutely miserable- it felt like I was covered in ants from head to toe all day and night.
Yes, since there is not a rupture that should mean no surgery! :)
I'm sorry that your pain has been so bad again- I figured that's what was going on since I hadn't seen you on here. I hate getting tired from the pain- it's like you are so tired but you can't sleep because of the pain. At least that's what happens with me. I'm glad you were able to get out and spend some time with your friend.
I hope today is a better day for you!
Hugs!
Current: DDD L4-S1, Arthritis L4-S1, Facet Syndrome, Interstitial Cystitis, Vulvodynia, Restless Leg Syndrome, Bi-polar, IBS, Fibromyalgia, PTSD. In past 6 months have had epidurals, facet blocks and radiofrequency ablation.
Past: Endometriosis, Adenomyosis, Polycystic Ovarian Syndrome. 3 laparoscopies, 2 cystoscopies, total hysterectomy, appendix & gallbladder removal.

di43
Regular Member


Date Joined Jan 2012
Total Posts : 108
   Posted 3/3/2012 6:59 PM (GMT -6)   
I understand, I wouldn`t want to take the dilaudid again after those side effects, that sounds like hell, how scary. I hope it`s all gone away now. I hope that your appointment goes well, I`ll be thinking of you.

I hope the hot flushes/fevers have calmed down a bit too. Yes it`s awful being woken up sweaty and hot and having hot flushes in summer. Oh that`s unfortunate you live in a very hot place. When I lived in Australia I was lucky for the last couple of years I was there, when I took this medication there were no really hot summers apart from one record day, but if I had taken that medication the year before it would have been terrible. I made it worse in the summer as I had my hot water bottle even on hot days, i figured I could put up with being too hot if it meant less pain. But I love winter now, it is one up side to all of this lol.

Thanks for your concern, as always. It has been more difficult the last couple of weeks but I think it`s getting better. Well today has been good, only a few times with bad pain and it is gone for now. I also get so tired from not being able to sleep from pain like you describe, it sucks! Also when you do get to sleep but get woken up sucks too. I also just get tired in general from being in pain, I feel like I don`t have much energy.

Well take care honey. Love Di xx
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