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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 3/1/2012 10:48 PM (GMT -6)   
Well, with my eye's being so bad (sjogren's), I'm limited now to my computer time, I have one day a week
so please be patient and I'll try to answer what I can...I did think about all the solutions you gave me but it still comes
down to me reading the computer screen, which hurts....even with those voice devises and then they don't always
spell check good...I had my injection into my right knee on this past Tuesday and I'm
taking things slowly, I don't think my emg testing was good on Monday, as the doctor seemed
concerned and definitely said I had radiculopy (sp?) going on...will know more on March 14, when I
talk to my doctor again....
Anyone, know if it's possible to get nerve blocks with radiofrequency (sameday)procedure, as that might
be my next topic with my pain management doctor....or some super combo thing that
he can try....and my eye doctor really thinks I might have MS....so maybe an head mri again....
blurry vision, walking off, falling, dizzyness (especially that) and other things, he really thinks I have ms....
so that's it on me, sure hope everyone is getting low pain days and do post updates okay....I'll try to read them....

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/2/2012 3:08 AM (GMT -6)   
Chart, I am so sorry that you are going through so much right now. You have entirely too much to deal with, but I (for one) will be glad to hear from you any time you are able to be here. We miss you! But, we do understand.

Now, with the computer thing, I don't remember if I posted before or if someone else already did this, but try to go the start button (or the little round circle in the bottom left corner...if you have windows 7)...then to control pannel...then to ease of access. This system is in place for those who have major problems with vision and I have used it on occasion. It takes a little getting used to, but it does help.

On the situation with your body....have you ever had your home checked for toxic mold? I only wonder because we have just found out about my home and I can honestly tell you that you would never know unless there were something that disturbed the mold in the floors/walls/under the floor/above the ceiling. I never even knew we had anything and it has invaded every room of our house....we are now in the process of removal and major renovation. I have found, however, that staying in the newer addition (particularly at night since I have to be available in the house for the construction guys during the day) is changing some of my symptoms...mostly those you describe. I don't know how to describe it and I certainly don't want to "jinx" anything, but removing this junk is making me "hurt less", decreasing my dizziness and dropping things and a great number of other things. I believe when they remove what is so certainly under the chair where I sit most of the days that it will change so much.

I hope you will have good results and will find the root of the problem. It seems that so many of your conditions could be related as symptoms more than separate issues that I wonder if they have found the true cause.

I will miss you when you are away and I hope you will find the answer soon!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/2/2012 5:40 AM (GMT -6)   
Chart, I'm sorry you're having such a rough time. You'll certainly be missed in the times when you are not here.

Take care, and please keep in touch when you can.
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/2/2012 7:30 PM (GMT -6)   
Char,
 
My heart is breaking for you.  It's been a while since we have talked on the chat.  I didn't realize that things have taken a turn for you.  I am so sorry girl.  Know that you are in my prayers.
 
I hope so much that the drs can identify all your needs and implement a good care plan to effictively deal with all your symptoms.  You deserve to feel better.  You're a great gal!!
 
God bless.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 3/2/2012 7:56 PM (GMT -6)   
Chart you have always been there for just about everybody here on the forum, I sure hate to hear about everything your going through now! I hope things get turned around for you and you start getting better. Your definitley in my thoughts and prayers.

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Heather Lynn
Regular Member


Date Joined May 2011
Total Posts : 283
   Posted 3/2/2012 10:17 PM (GMT -6)   
Chart, I'm sorry things have gotten so bad for you and that the doctors appointments bring answers.

I'm not sure what you mean about doing nerve blocks and radiofrequency at the same time. I know that sometimes a nerve block will be done first, so they can make sure they are using the radiofrequency on the right nerve. I have not had it done, but it is the next step for me too. Hopefully your doctor will have a better idea what to do once he looks at the EMG tests.

I'll be thinking about you and praying that your symptoms get better so you can still get some support on the computer.
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