3 years of pain will not go away only 25 years old need help

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rockstar45177
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/10/2012 4:10 PM (GMT -6)   
I have been suffering from chronic leg and lower back pain and tight ness for about 3 years now.

my name is Patrick and in July 2009 I ran into another player with my big right toe and jammed it. I walked on the toe abnormally for about a month which messed up my right leg and the muscles in it. This did not calm down or help with PT and Chiropractic work. And after about a year of compensating for my right leg and shifting my weight onto my left side my left leg got messed up and so did the left side of my lower back. Around June 2010 I felt something tear in my left hip area and the muscles in my left leg slowly started to get messed up because they had to do extra work that other parts were not doing. I have seen over 15 different providers; deep tissue massage, acupuncture, three rounds of PT with on round lasting a year; reki, chiropractic work, ART, Zero Balance training, cranial energy work and seen 5 orthopedic surgeons and still the tightness and pain persists . I have had MRIs X-Rays and MRAs as well of my hip and spine. All Pretty much came up negative. I saw a hip specialist a Dr. Wolff in Arlington VA to look at my hip to see if there is a muscle , tendon or ligament tear and he thinks it's clean maybe a very small tear but does not think it merits surgery . He gave me a cortizone shot in the left hip and it did not have any effect which reinforces his thought that the problem is not in my hip or from a torn labrum and surgery is not recommended.

I am currently seeing a manual Physical therapist and rehabilitation physical trainer. Neither seem to be really helping. Or changing anything.

I can tell that the following areas are being stuck with muscle tightness and pain : deep rotators of the hip left side, piriformis/obturator/glut. medius, inguinal ligament on left side. Muscle pain/tightness in back of right leg, on bottom of right foot, pain in left hip area both front, back and side, tight hamstrings and tight calf's on both sides, IT band on left side and left side of lower back stays tight. Hip flexor and hamstring tightness. Good hip active and passive range of motion. Pain at end range hip flexion on left in inguial ligament. Mild hip abduction weakness on left.

Pain/tightness in the above areas will increase when walking/sitting/standing for long periods in gluts and in front left side of hip in muscle.



any advice would be great to hear I need specialist or program that works with hips or chronic pain

thanks,

Patrick

Post Edited (rockstar45177) : 3/10/2012 9:04:23 PM (GMT-7)


grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 3/10/2012 4:44 PM (GMT -6)   
Rockstar,

I understand what its like to be younger and in chronic pain. I was a bit older (26) when my chronic pain started to rear its ugly head and now I'm 32. I can of course only empathize as only you truly know what you are going through man. Just know you are far from alone.

Sometimes one slip progresses and keeps on progressing. For me, in 2001  I had a rappeling accident in which I came down the rope way too fast and my back smacked into the ground. I sucked it up and a few days later did a 12 mile ruck march (not fully healed). In fact, I did a bunch of 12 mile ruck marches at Fort Cambell and I'm sure they over time had a progressive effect on my back. I sprained my ankle 4 times which also I'm sure didn't help. However, I didn't really experience chronic pain lasting for years in my back until December 2006. The MRIs at the time (2007) revealed a slightly herniated disc. Over time the pain went from moderate to moderate severe and the next MRI (2009) showed a crushed L5 buldging disc which (if I understand this correctly) has the gel material pushing against nerves causing sciatica. Further tests revealed RA.

The reason I wanted to tell you my story is to show you that chornic pain in my case was progressive, seemingly stemming from past injuries that never quite healed and have become worse over time.

My treatment (on the non drug side) includes everything from red hot soaking baths with salts to deep tissue massages. The two friends work on my back really does help to give me some temporal pain relief. Both have discussed this "knot" on my left side which is always present. I'm not sure if that's the harden gel buldge or as one chiropractic put it, "scar tissue".

The other side of my treatment involves prescribed medication of Nucynta, Soma, and good ole asprin. The Nucynta seems to provide the most "mental" relief from the pain signaling, though it still only covers up what's really going on of course. The Soma and asprin treat some of the physical aspects and a good nights sleep seems to have restorative powers that the medications do not.

As for what you should do for your treatment.....I would say everyone is different so what will work for you might not work for me. I've had radio freq nuerotomies done that have had some success. Epidural shots have also provided some relief for a few weeks.

Have you recieved any epidural shots? Its not a cure, but it allows for a few weeks of less pain at the least. Also, have you been referred to an pain management specialist which can prescribe you prescription NSAIDs as well as prescription pain medications?  PM doctor can usually prescribe pain medications for long term use where as primary doctors often only prescribe them for shorter periods of time.
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures helped for months, but pain is up and im having the procedure done again. Currently on 75 mgs of Nucynta (tapentadol - A MOR + NRI) 2 to 3 time per day and Soma 350 as needed.

Post Edited (grainofsalt) : 3/10/2012 3:58:27 PM (GMT-7)


rockstar45177
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/10/2012 4:54 PM (GMT -6)   
grainofsalt said...
Rockstar,

I understand what its like to be younger and in chronic pain. I was a bit older (26) when my chronic pain started to rear its ugly head and now I'm 32. I can of course only empathize as only you truly know what you are going through man. Just know you are far from alone.

One Slip is sometimes all it seems to take, especially if the issue is progressive in nature. For me, I had an accident in 2001 which is where I think my back was weakened. I had a rappeling accident in which I came down the rope way too fast and my back smacked into the ground. I sucked it up and a few days later did a 12 mile ruck march (essentially putting more strain on an area not fully healed). In fact, I did a bunch of 12 mile ruck marches at Fort Cambell and I'm sure they over time had a progressive effect on my back. I sprained my ankle 4 times which also I'm sure didn't help. However, I didn't really experience chronic pain lasting for years in my back until December 2006. The MRIs at the time revealed a slightly herniated disc. Over time the pain went from moderate to moderate severe and the next MRI showed a crushed L5 buldging disc which (if I understand this correctly) has the gel material pushing against nerves causing sciatica. Further tests revealed RA.

The reason I wanted to tell you my story is to show you that chornic pain in my case was progressive, seemingly stemming from past injuries that never quite healed and have become worse over time.

My treatment (on the non drug side) includes everything from red hot soaking baths with salts to deep tissue massages. I will admit I have two trusted friends that actually have some knowlege on massage give me said massages, I do not goto a professional (and yes I know I should). However, their work really does help to give me some temporal pain relief. Both have discussed this "knot" on my left side which is always present. I'm not sure if that's the harden gel buldge or as one chiropractic put it, "scar tissue".

The other side of my treatment involves prescribed medication of Nucynta, Soma, and good ole asprin. The Nucynta seems to provide the most "mental" relief from the pain signaling, though it still only covers up what's really going on of course. The Soma and asprin treat some of the physical aspects and a good nights sleep seems to have restorative powers that the medications do not.

As for what you should do for your treatment.....I would say everyone is different so what will work for you might not work for me. I've had radio freq nuerotomies done that have had some success. Epidural shots have also provided some relief for a few weeks.

Have you recieved any epidural shots? Its not a cure, but it allows for a few weeks of less pain at the least :/



hey grain of salt no I have not had shots pain is not that bad to merit it. or even asprin. my gate pattern is off with my hips and they are out of alignment my right hip for reason is tilted forward and stays that way which causes extra work for my back and leg muscles and messes up my left leg and left lower back.

my pain doe snot get worse or better it just stays stagnant . for the life of me I can't understand why my hip won't rotate back into correct position and alignment

thanks for the reply and input

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 3/10/2012 5:02 PM (GMT -6)   
I edited my post because it was a run-onish, but the meaning is still the same :)

Also added to whether you've been referred to a pain management doctor to prescribe medications (both prescription NSAIDs and pain medications) for your needs?

I hope you can get some relief. Finding out WHY is very important.

For some time (until my 2009 MRI), I had thought my mind was simply exageratting an old ache. It wasn't until I saw the progressive damage the new MRI revealed that I realized it wasn't in my head.

I hope someone else can give you more advice than I can. You are welcome and best wishes in your journey. :)
MRI revealed disc bulge and test injections revealed RA. Radio Freq procedures helped for months, but pain is up and im having the procedure done again. Currently on 75 mgs of Nucynta (tapentadol - A MOR + NRI) 2 to 3 time per day and Soma 350 as needed.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/10/2012 6:49 PM (GMT -6)   
Hi Patrick..

Welcome to HW....

I have to say I am perplexed about your first line in the post about speaking to someone on the phone?

We are a board of other pain patients...There are no Drs. or anyone in the medical field to offer medical advice..

So our suggestions are for what to discuss with your Dr.

Your follow up post mentions that the pain is not bad enough to need any shots or even aspirin? Did I read that part right? Although what we are meaning about "shots" are injections of cortisone and such that you do say in your original post that you have tried.

So is it more of an alignment issue without much pain? If so...that is extremely lucky right now...

Though you say you have seen 15 Drs, including 5 Orthopedics and even a hip specialist? As well as had all the required tests to figure out what is going on..

I am stumped on what other type of specialist for you as a pain management Dr. is not really about "fixing" an issue but just managing pain.

Yes, they can still send you for PT and such....but it sounds like you are still looking for an answer of what is truly going on and that you name every single thing you have already tried from massage to acupuncture...

We can certainly empathize with you...

My only suggestion is to keep seeking out another hip specialist or Orthopedic Surgeon...You are in a great area at least with numerous Drs and teaching hospitals..

Good luck..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

rockstar45177
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/10/2012 10:16 PM (GMT -6)   
Snowbunny21 said...
Hi Patrick..

Welcome to HW....

I have to say I am perplexed about your first line in the post about speaking to someone on the phone?

We are a board of other pain patients...There are no Drs. or anyone in the medical field to offer medical advice..

So our suggestions are for what to discuss with your Dr.

Your follow up post mentions that the pain is not bad enough to need any shots or even aspirin? Did I read that part right? Although what we are meaning about "shots" are injections of cortisone and such that you do say in your original post that you have tried.

So is it more of an alignment issue without much pain? If so...that is extremely lucky right now...

Though you say you have seen 15 Drs, including 5 Orthopedics and even a hip specialist? As well as had all the required tests to figure out what is going on..

I am stumped on what other type of specialist for you as a pain management Dr. is not really about "fixing" an issue but just managing pain.

Yes, they can still send you for PT and such....but it sounds like you are still looking for an answer of what is truly going on and that you name every single thing you have already tried from massage to acupuncture...

We can certainly empathize with you...

My only suggestion is to keep seeking out another hip specialist or Orthopedic Surgeon...You are in a great area at least with numerous Drs and teaching hospitals..

Good luck..


Hi snow bunny yes sorry I was sending that in an e-mail to another provider egoscue method. forgot to take it out.

thank you very much for saying I am lucky. That really helps put things in perspective and be grateful for that .

things could be worse. as I have seen on here. I had an MRI done without contrast and it showed a labral tear in my
left hip. But it proved to be a false positive and if I did have a tear the cortizone shot I had in my hip and did not do anything. All the hip specialists I saw said that usually means that there is no problem with my labrum and the problem is not coming from that area. I also had MRA with dye and showed no labral tear which means I should not need surgery.

My right hip seems to be rotated forward and stays stuck that way despite loots of treatments and causes my gate to be messed up and I can't keep my hips under me which casues back and leg problems it causes them to over work and be in pain after long use.

do you guys know any good doctor forums?

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/11/2012 8:06 AM (GMT -6)   
I hope that you didn't think that my "lucky" comment is minimizing your issue at all...

It really is all relative and even though you don't have much pain now, I can't imagine having your entire gait changed and hip rotated forward isn't going to cause a lot of issues down the road...

So I absolutely understand that you should keep pressing onward to find answers and hopefully a solution.

I do not know of any type of forums online that can diagnose you or have Orthopedic Drs that answer any questions...

My recommendation is trying the teaching hospitals in VA, DC and MD to see if you can find someone willing to look at all the films and who is devoted to figuring out what is going on with you...

I do wish you luck!!!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16024
   Posted 3/11/2012 12:26 PM (GMT -6)   
Hi Patrick, I too would like to welcome you to the chronic pain forum. If I am reading your post correctly, you think your gait is off and this could be culprit of things. I know first hand if the gait is off, it can cause many problems and pain is one of them.

The owner of this forum discourages us from posting the names and phone numbers of our personal drs. If you have listed your email here at the forum, then someone can send you the info by private email.

My thoughts are perhaps trying to get in to see a hip specialist at a teaching hospital. Sometimes those drs are able to detect things other drs miss and they have access to a lot of medical advances that the main stream drs do not have at the moment, its worth checking into. If you will look in the post at the very top here called CP101, you will find a list of teaching hospitals and perhaps there is one close to where you live.

I do hope that you are able to get some answers and help. Take care.
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 3/13/2012 1:42 AM (GMT -6)   
Hi Rockstar, Welcome to the CP Forum. I'm wondering if sacroiliac joint dysfunction has ever been talked about or considered?
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

rockstar45177
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/13/2012 4:52 PM (GMT -6)   
Darn Me said...
Hi Rockstar, Welcome to the CP Forum. I'm wondering if sacroiliac joint dysfunction has ever been talked about or considered?



Hi yes that has been talked about. The SI joint as they call it. A good thing is we know and can see in pictures that something is causing my SI Joint or right hip to tilt forward ( which is causing a whole range of problems) but we can't figure out what is the underlining problem for that. what is causing my right hip to tilt forward?

everyone says I have full range of motion and all my muscles work ok and there is not acute pain and mechanically there is nothing wrong with me.

everyone is baffeled what do you thin about the SI joint?

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 3/22/2012 8:25 PM (GMT -6)   
Sorry for the long time it took me to reply, Somehow I missed you had posted back to me.

I was just wondering if the SI Joint was suspect for where the Tear was you spoke of.

Wish I had a answer for you. I really feel for what all you have been and are going through.

I do have to agree with the others saying to keep looking for another hip specialist or Orthopedic Surgeon. Teaching Hospitals are definitely something you may want to consider.

Again, I feel bad I haven't responded back sooner.
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

gypsysgrounded
Regular Member


Date Joined Aug 2011
Total Posts : 87
   Posted 3/22/2012 10:49 PM (GMT -6)   
lpHi rockstar,     I felt really moved to comment on your post because like you i suffered with serious hip, and back trouble from a 4-wheeler accident that caused multiple compression fractures to my spine from my neck to my lumbar area.  long story short ....I went to chiro"s and massage therapists who helped but i never felt completely better and at times felt NO better.   refusing to believe that there wasnt something out there... i kept trying new therapies and ....finally I, also being a massage therapist realized i was ignoring the most simple therapy ever! trigger point therapy!   I began doing it to myself as best i could(hard because you have to relax the muscle your trying to release) but i figured out a way to do it and was dumb-found at my relief! so I encourage you to look for a reputable therapist, even ask to see credentials of traing for this therapy. Ive helped so many people who felt hopeless like i did. I also went to chiropractor to realign my spine as i was "re-training my muscle's memory with triggerpoint therapy.  I felt like i had a new lease on life. If you have any questions ill be happy to help you look for a qualified therapist or give you some websites to find one who specialize in this awesome therapy.  There is help wink

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 3/23/2012 9:36 AM (GMT -6)   
Maybe get a referral out to a neurologists for nerve testing, as you mentioned S1
problems...if your doctor's think it could be back related, start with nerve testing
and then a contrast mri of your spine should be in order...and look into the teaching
hospitals that where mentioned by several members here...good luck to you and I
hope a doctor can locate your pain problems soon...maybe get into a podiatrist
for your foot pain....keep us posted as we do care...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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