Finding out why?

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realstar
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Date Joined Mar 2012
Total Posts : 11
   Posted 3/11/2012 9:46 AM (GMT -6)   
 

Post Edited (realstar) : 3/13/2012 10:58:06 AM (GMT-6)


NiNi53
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Date Joined Mar 2011
Total Posts : 816
   Posted 3/11/2012 10:31 AM (GMT -6)   
Hello Realstar, I am Kathy/nini53, I am going to assume you have seen many doctors in your lifetime, such as neurologist, spine specialist, your general physician.  When you were diagnosed originally by anyone, and since you yourself can put a name to your problems, issues, what were you told to do?
 
I am not sure the question you should be asking is why, but what.  What is going on with my body now, as you were born with one, I am sure your parent(s) took you to a pediatrician.  From then you have become an adult, have you been seen by any type of specialist?  I think the question why was answered by yourself, as what you were born with would seem to me to be possibly the answer.
 
I think sometimes doctors cant answer why, what they can do is try to make your life as good as it can be considering you are a chronic pain patient.  The why's of the different issues all of us have are much more difficult to answer then the question of how, how can you (the doctor) make me feel the best I can, how can I have the best quality of life considering what is happend to my back.
 
Of course let me add I am not a doctor of any kind, but I am a cp patient and have been for more than 12 years.  I stopped asking why along time ago, now I just ask for help to deal with what has happened to my back, leg, foot, toes, hips, etc, well you get it.
 
Good luck to you and may I suggest you see a pain management doctor if you have not already,
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 3/11/2012 12:31 PM (GMT -6)   
Realstar,

I understand your question... and, in the beginning, had similar thoughts as to some of my own health issues.... wondering how important an "official" diagnosis was.

But - my diagnosis (in terms of my health issues) was important - because I ended up having a heart disorder... and w/out knowing that, I wouldn't have gotten the proper treatment.

In terms of pain, though, I view things slightly different. I agree w/ the thoughts of Kathy - in that, the "why" isn't so important.... but now I just deal with my back pain, sciatica, hand pain and so forth. With some pain issues - a proper "why" may be important. But, in others, not so much.

Re: being told "things aren't that bad" - as you know, nobody is in our bodies... so pain is subjective. Nobody can say "things aren't that bad" - how the heck does that person know? lol. Those kind of things used to bother me quite a bit... now, not much at all - because I know what hurts and exactly how bad it is!!

Re: sciatica - I have that really bad, too - off/on. Right now, I'm going through a flare on my right side... and, oh - it hurts so bad! I'm sorry you deal with this, too :(

Anyway, those are just my rambling thoughts! :) ....Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/11/2012 5:49 PM (GMT -6)   
Hello Realstar, and welcome to Healing Well's chronic pain forum. I do know you were not asking "why me", although, I myself have asked myself that questions during the dark times for me. Fortunately I dont have those dark time very much anymore, they were around alot in the beginning, but after awhile it became pointless to ask myself "why me".

I am now at a place where I am happy when I open my eyes in the morning, and although I have more than enough pain, I always know someone else out there is worse than me.

Good luck, take care, if there is anything I can help you with, please let me know, the one thing I am good at is being a mom, oh yeah and grandmom.

Kathy

I have edited Kathy's post at her request.

Post Edited By Moderator (straydog) : 3/13/2012 5:25:40 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16783
   Posted 3/11/2012 10:06 PM (GMT -6)   
Hi Realstar and welcome to the chronic pain forum. I am sorry that you have to be here but glad that you found us. One thing we all understand here is pain and know how it can make a person feel.

Have you at any time had an injury to your back that you can remember? You mentioned above having a myelogram, and I just wondered about any possible accident in the past. Of course, it takes very little to injure ones back, just the wrong movement while say putting a gallon of milk in the refrigerator can cause a disc to herniate or even being bent over putting clothes in the dryer, same thing can happen. Other than scoliosis showing up on the myelogram, did it reveal any other problems with you back? As you know with scoliosis, many people have it and do not know it until they have xrays made, I too have it and had no clue until xrays were done. Scoliosis is one of those things that can be mild to severe resulting in a person requiring surgery to correct the curvature.

I think just about anyone that has problems with their back has had sciatica problems. Its one of those things that rears its ugly head out of the blue with no warning and it can be quite painful. You may want to try to find a physical therapists that has dealt with a lot of patients with this condition. There are particular exercises that can help with this. You may want to do a google search and see what you can come up with and then print some of it out and ask your drs opinion on trying some of them.

Anyway, I wanted to pop on and tell you welcome aboard. Take care.
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/12/2012 7:10 PM (GMT -6)   
RealStar, I am so sorry to have gone over what was clearly not my business, and I have no knowledge of.  Please accept my apology, it will never happen again.
 
I am 58 years young, my children (2 grown daughters), who constantly tell me I am to abrasive and talk to much, I clearly did that to you and I am very very sorry.
 
I will check and see if that post back to you from me concerning your parents can be removed, I am not sure,what I will do is to say to all who read that post, I said something which I should not have and please ignore it, I really dont know if that will help, and I feel awful, I cant say sorry enough.
 
I could not email you as you have no email address.  If you would like, my email address is with my information, and please feel free to email me.  I will really pay attention to what I say and how I say it as placing blame when I have no idea what any of the reason are.
 
Again, please forgive me, I meant no harm, and I also would like to say to your parents I am sorry, I have a big fat mouth.
 
Please take care, I promise I will never do anything like that again.  At 58 you would think I would learn to stop and listen before reacting.
 
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/13/2012 12:05 AM (GMT -6)   
Kathy!

Sorry to step in here.... but I know your heart - and I know you meant nothing wrong! I think it was just a bit of miscommunication, that's all.

If you do want to edit your post - just click on the "pencil" and you can take out what you want to....

But, as someone who knows you, I really know you were just trying to help...

:) Hugs, Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/13/2012 12:15 AM (GMT -6)   
…..I will vouch for Kathy as well….she has a good heart and means well.

SE wink
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 3/13/2012 8:16 PM (GMT -6)   
good luck to you, realstar, you have already been given some really good advice.

hope things go better for you soon,

david
Age: 59, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, original catheters 63 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, 2/11 1.24, 4/11 3.81, 6/11 5.8, 12/11 14.0
Other: Spent total of 1 ½ years on 21 catheters, had Ileal Conduit Surgery 9/10
Member of Prostate Cancer & Chronic Pain HW Communities
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