28 Years Old in Unbearable Pain

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/11/2012 1:16 PM (GMT -6)   
Hi everyone.

I am a 28 year old male who has been in pain since October 2010. I have been to many doctors, some say they can't do anything for me, but the PM doctor I am with now is helping me the best he can. The problem is I am so many medications for pain, and yet I still begin hurting every 2-3 hours. I have had a gastric bypass. I used to weigh 526 lbs. and am now down to 364 lbs. The pain began about a year after the surgery. I have asked the gastric bypass doctor about this and he says its not because of the surgery, but for some reason, after I eat, my medicine stops working, even if I just took something before I ate.

I have 4 herniated discs. Two in my neck and two in my upper back. I also have arthritis in my neck. The pain radiates from my mid back up to my neck and all the way down my right arm. When the pain starts, my right arm curls up and folds in on my chest. My hand clinches up to the point to where I have dug my fingernails into my palm to the point I have scars on my hands. My head leans to the right and locks there. I can hardly communicate when I am in this state. The current medicines I am on are:

Naproxen 375 MG 1 Pill 2x Daily
Neurontin 300 MG 2 Pills 3x Daily
Methocarbamol 500 MG 1 Pill 3x Daily
Hydrocodone/Apap 10/500 1 Pill 4x Daily

I'm to the point I don't know what to do. I have had spinal injections, nerve blocks, traction, etc. I honestly don't know what to tell my doctor. He just recently upped my Hyrocodone to 4 a day and I don't want him to think I'm just trying to get medicine for the heck of it. If anyone has any advice, please respond.

Thank You

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/11/2012 1:58 PM (GMT -6)   
First, congratulations on your weight loss.  Although many people do not support gastric bypass....I do (just not for me).  My best friend had it done several years ago (as did my brother-in-law).  I did not know either at the time they had the surgery, but I know it changed their lives considerably and that both of them are happy with the results.
 
My best friend wants me to have it done (I might just barely qualify, but I'm not sure) and I'm afraid to have anything so drastic done just for weight control
 
In your situation, you were facing a life or death situation and I applaud you on your willingness to undergo such a permanent surgery.
 
As far as the pain goes, I do not know what to tell you.  My best friend has some of the same issues you do (but she is also assurred that the problems are not related to the Bypass.) 
 
I can only offer you encouragement and support in finding your pain source.  It may take some time and you should not be afraid to be seeking the help you need.  Your body is undergoing so many changes right now that I don't think anyone could imagine what you have been facing.
 
Please continue to seek medical care for your pain. You certainly don't seem like a med seeker to me, however, you must be especially careful because you have an addictive personality (ie...food).  I remind myself that too, since I'm certainly not where I should be on the scales.
 
Good luck and keep us posted!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/11/2012 2:08 PM (GMT -6)   
Thank you very much for your welcome! :) I know a lot of people don't support it, but it was to the point I had tried every diet I could and nothing helped (I also come from large families on both sides). I appreciate the encouragement that you have offered. I don't have many friends because I can't go outside, because I am also agoraphobic, with Bi-Polar and anxiety thrown in the mix. If I could just dull the pain enough to be able to do the things I need to do. I have to take care of my mother who has Parkinson's and I'm not able to do all the things I need to do for her and we are on a fixed income, so we can't afford someone to come in to help her.

When I was about 16, I fell into a 8 foot concrete pit and landed on my back. At the time, I felt okay. I did pass out, but I went to the ER and they said everything was fine. I haven't mentioned this to my PM doctor because I wasn't sure if it could be possible that something that long ago could be responsible. Do any of you think this might be a part of it and should I bring something that happened so long agoo up to my doctor?

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/11/2012 2:10 PM (GMT -6)   
Ishepo,

Hi... welcome to the board. It seems like you are dealing w/ alot!

I don't know all that much re: gastric bypass.... and how it relates to your medications being properly absorbed. I do know that we have a couple of members on here that have absorption issues relating to their medication (I think for other reasons than GB surgery, though). But, anyway, maybe they will post and give their input.

Re: your medications.... you said that you "are on so many medications" for pain... I know it does seem like you are taking a lot... it looks like you are taking a muscle relaxer, nerve medication, opiate and an NSAID.... but, in terms of "strength" of medicine (particularly re: the hydrocodone) - you are more on the low end of the pain medication spectrum.

Have you talked to your PM doc about possibly trying an ER (extended release) medication? This might give you better pain coverage throughout the day..... that way - you don't have so many "peaks and valleys" - you know what I mean? The PM might still keep you on the hydrocodone for BT (break through) pain... but if you had some long-acting (like morphine, oxycontin, fentanyl, etc) - it might give you better coverage.

If your doctor doesn't want to put you on an ER med - there are also stronger short-acting meds - like dilaudid and so forth.

I would maybe print out some things on the web about your gastric bypass and how it does affect absorption of medications.... and bring this to your PM. I'd be really open and let him know that your pain is not controlled and that it is affecting your quality of life. And would he be willing to try some other medication?

Maybe others will have some other thoughts... but I really hope you can figure out something w/ your doctor to help your pain..... Take good care. --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/11/2012 2:20 PM (GMT -6)   
We were posting at the same time, lol...

YES, I think you should tell your doctor about your fall.... definitely. When I was 19, I fell 15 feet onto a concrete driveway... I broke my foot and had to have surgery... but I absolutely think that contributed to the pain issues (particularly my back) that I have today.

Oh - and I meant to say it in my other post - congrats on the weight loss. My brother-in-law and sister-in-law both had gastric bypass - and it literally changed their lives... (they had tried everything, too).

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/11/2012 2:29 PM (GMT -6)   
Okay. I will definitely tell him about it then. I wasn't sure since it happened so long ago, if it could be a problem now.

Thank you very much!

I also just read something about from the American Journal of Health about some drugs not dissolving completely before they are flushed out of the system. I won't post the link, because I think I read we can't post links. I will post a quote though. I apologize if weren't allowed to do that and feel free to remove it if we arent.

"Drug solubility and surface area for absorption are also affected by gastric bypass procedures. By bypassing major portions of the small intestine, Roux-en-Y procedures drastically reduce the surface area for absorption. These changes may warrant manipulation in drug route or dose to ensure adequate delivery. Drugs with long absorptive phases that remain in the intestine for extended periods are likely to exhibit decreased bioavailability in these patients. The reduced size of the stomach after surgery can place patients at risk for adverse events associated with some medications. Medications implicated in such adverse events include nonsteroidal antiinflammatory drugs, salicylates, and oral bisphosphonates. Drugs that are rapidly and primarily absorbed in the stomach or duodenum are likely to exhibit decreased absorption in patients who have had combination restrictive-malabsorptive procedures. Because reduced drug absorption may result in decreased efficacy rather than toxicity, increased patient monitoring for therapeutic effects can help detect potential absorption problems."

I don't know if this has anything to do with pain medicines, but I thought it might. Could someone tell me what you think. Again I apologize if we aren't suppose to post quotes.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 3/11/2012 5:52 PM (GMT -6)   
Hello and welcome to the chronic pain forum. From what I am remembering there can be absorption problems for people that have had gastric bypass done. My neighbor now that I think about it was on all liquids meds because of this. Seems to me we had a couple of people that were on here for a bit that were on liquid medications too as a result of the bypass surgery. So you are onto something here. I had a small bowel resection which left me with this problem.

Anyway, I am with Tina about being on an extended release medication. People on short acting do nothing but chase their pain all day long. Most of the short acting meds do not last as long as they indicate they will, and I will warn you the same goes with extended release, rarely does someone get a full 12 hours of relief. But still, you get a break from watching the clock all the time or setting alarms that its pill time. I am surprised no one has thought about absorption problems. I had a small bowel resection that left me with absorption problems.

I understand being hesitant about telling your dr that you are not getting much relief, but its best to just put your cards on the table, otherwise he thinks he is helping you. If I were you I would try to put some info together about absorption problems and the bypass surgery and take this with you on your next appt.

Anyway, I wanted to pop on and tell you welcome aboard. Oh, congrats on your weight loss, that awesome. Take care.
Moderator-Chronic Pain Forum
Moderator-Psoriasis Forum

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 3/12/2012 3:51 PM (GMT -6)   
hi ishepoh
I wanted to welcome you to our cp forum. Glad you found us but sorry you are having so much pain. I am sure you will enjoy the members here. They have so much to offer from excellent info to great support.
Congrats on your weight loss. You must be feeling so much better in that regards.
Definitely tell your doc about your fall. Have you had any recent testing done, ei. mri, ct scan, etc
Do you see a pain specialist for your meds? The others have mentioned about changing to a long acting med along with a breakthrough med, which i agree with.

Keep posting and let us know how you are doing.

Suzane

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/12/2012 9:05 PM (GMT -6)   
Hello,
 
And welcome to the forum.  I agree with Suzane.  The members here are wonderful, helpful and certainly care.  I've been here since 2006 and don't want to leave.  When I have a problem and I've had some serious health issues over the years, this is the place I come to for support and information from the people of Healing Well.  In other words, you're in good company here.
 
I agree with mentioning to your doctor about mentioning the fall several years ago.  It could have an impact on your careplan the doctor has set for you.  And yes, DO tell him if your pain medication regime is not working.  Let him make the decision about long acting meds.  I don't know what the absorption properties of the stomach linings have on ER meds.  Bring your internet information and show him what you have found.  It's good to show him that you are well informed, but relying on his input.
 
I applaud your weight loss efforts.  I just rejoined weight watchers, so I know the drill about trying to lose weight.  I was very successful on weight watchers in the past, until I had a life changing event, surgery for my endometrial cancer.  That whole episode in my life threw me for a loop.  But I am back and now ready to resume my weight watcher's life plan once again.
 
God bless you.  Good luck to you.  Please let us know how your are doing after your next PM appointment.  We do care.
 
Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 3/12/2012 10:22 PM (GMT -6)   
hi ishepoh, I would also like to welcome you here. Congrats on the weight loss and sorry you are having such a rough patch. I agree with everyone about when I don't know how to handle something I tend to come here as not only are there compassionate people on here but most are friendly and knowledgeable as well. We all know what we have been through, and I know everyone is different so what works for one of us might not work for others.

Lots of good advise on here, I would mention the fall to your dr,

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/12/2012 11:45 PM (GMT -6)   
Hi Ishepo. I'm a bit slow so I don't think I can add to the wonderful advice that the others have given already, so let me just welcome you to here and congratulate you on your weight loss.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Baileysmom
Regular Member


Date Joined Mar 2012
Total Posts : 21
   Posted 3/13/2012 11:42 PM (GMT -6)   
Are you a surgery candidate? Has that been discussed? Because my feeling on it Is that at your age with radicular symptoms into your arms, especially, this could warrant a surgical correction.
The nasty fact is that people who carry extra weight (even 20 pounds) are going to have more joint back, back pain, etc. it's simply physics and gravity.
There's no quick fix, I know. But I would ask your neurosurgeon if you are a surgical candidate. If not, what's their plan? You're a young person (relatively speaking) and if you can avoid stronger meds, that's important. The way I look at it is that we're pretty young. What happens at 50? Or 60? If you open the opiate floodglate, it will mask the pain in the short term, a bandaid, but won't fix the problem.
Also, I have lots of folks (mostly older) who have ridiculously bad MRIs but take Tylenol. It's strange like that. But pain is very individual. Look for solutions, if you can. And dont be afraid to get a few opinions.
Congrats on the weight loss!
L5-S1 microdiscectomy 5/11; right ulnar nerve submuscular transposition repair 3/11; third degree ankle sprain 8/08
Hypothyroid, insomnia, migraine headaches, generalized anxiety disorder, lumbar radiculopathy, IBS
Keeping it real as a PA since 2007

Post Edited (Baileysmom) : 3/13/2012 11:48:02 PM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 3/14/2012 8:28 AM (GMT -6)   
I have to respond to BaileysMom's comments above. Now wouldn't it just be wonderful if all of us were able to handle our pain with a Tylenol? Then we would not have to put up with the crap we do from some of these drs just trying to get decent treatment. Think of the money we could save to do things we would like to do. Maybe in the fantasy world this happens, but from dealing with CP for so many years I am afraid Tylenol just did not do the trick for me. Thankfully my drs had the sense to give me medications and injections so that I was able to continue to work for as long as I did. I have other health issues besides CP that require pain meds not Tylenol. BaileysMom wonders what happens when the young people start early on pain meds, like the rest of us the drs will find something that will help with the pain. All people should be treated appropriately regardless of their age, pain has no age limit. For those that can get their pain under control with Tylenol that is great, but I have learned pain is not a one size fits all, and that attitude that is does is why so many people suffer needlessly, its just a cop out with the drs. Ask anyone on this forum if they ever wanted to be in pain and be on medication.
Moderator, Chronic Pain Forum & Psoriasis Forum

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/22/2012 3:47 AM (GMT -6)   
Hi everyone! Thank you all for your input. I went to the PM Dr. today and they did what I've always called "nerve burning" (not sure of the clinical name). They also gave me a patch to wear instead of taking a pill. I wear the patch for 3 days and then change it. So far, either the procedure or the patch has helped a lot. I am not in near as much pain as I was. There is still some pain from the procedure, but they said that should co away in 3-4 days. I just wanted to give an update and wanted to wait until I went to the Dr. I hope you all are doing well. If anyone has had this "nerve burning" procedure, could you tell me what to expect from it? I've just never had it done and would like some first hand information about it. Thank you all again. You are all wonderful! Have a blessed day! :-)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 3/22/2012 3:56 PM (GMT -6)   
Helli Ishepoh, glad to hear that your dr changed you over to a patch. Please be sure to read the insert that came with your box of patches, especially if this is your first time with the patches. There are several brands of medication that comes in a patch form. I was on Fentanyl patches and did well for a while until it was increased the second time, then had some problems and had to come off of them. I bet this is what has helped so much.

The nerve burning you are speaking of, yes it is called a couple of different names too, lol. Some call it nerve ablation, and radio frequency under flouroscopy is some other names its called too. It usually takes a good week sometimes longer to see if these procedures are going to work. Is this your first time doing this? You may want to ice the area where its was done to help keep down swelling and inflammation from setting in.

Again, so good to hear you have some relief and keep us posted on how you are doing....Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/22/2012 7:26 PM (GMT -6)   
Hi straydog! Those are the type of patches I am on. They are 25 mcg. So far, the only place I am hurting is the injection points. Yes this is my first time having this done. I really appreciate the information about putting ice on it. That may help the pain of it. Will keep you posted. Have a great day! :D

Ishepoh
New Member


Date Joined Mar 2012
Total Posts : 8
   Posted 3/29/2012 12:49 AM (GMT -6)   
Hi guys. Here to give you an update. I can not stay on this patch. I have ha horrible, vivid nightmares. I have had terrible feelings of impending doom, been extremely nervous, and feeling just so scared I can't stand it. Even now, I have the patch off (Though I have only had it off about 8 hours) I feel like I'm going insane. I thought I was having a heart attack at one point and had a panic attack, which made it feel like I was. I have got to call the PM Dr. this morning and I don't know what to say. It never really seemed to help the pain, only make me feel like I described. Also, does anyone know how long it takes for this medicine (Fentanyl patch) to wear off or get out of your system? I appreciate anyone who writes back. I just feel so scared.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/29/2012 12:59 AM (GMT -6)   
Ishepoh,

Many people have reactions to Fentanyl.... I'm sorry this was your experience, as it can be an excellent pain medication.

From my own experiences, and what I've read - even upon removal of patch, it can take 12 hours or so before you aren't getting any more medication.... and in terms of getting out of your system - that really varies from person to person. Since you've only been on them a short amount of time, I would think you'd feel significantly better within 48 hours or so, if not sooner.

Fentanyl is the one medication that actually works for my pain - and I recently had to get off of it as well. It was making me vomit and have other side effects.

Re: calling your doctor - as I said, these are common reactions w/ the drug - so just be honest about your experiences. But that you need something else to help w/ the pain. Hopefully, they'll get you an appointment to figure out something else to use.

I'm sorry you had this scary reaction.... hopefully your doctor will be able to prescribe you something else that will work for your pain, but w/ no side effects. It can take awhile, unfortunately, to find that "right" thing.... try not to get discouraged.

In the meantime, drink lots of fluids to stay hydrated and flush the meds out of your body. And call your PM doc :)

Take care, Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/29/2012 4:15 AM (GMT -6)   
Bless your heart. I have used the patch briefly too and I didn't have any reaction from it at all...no pain relief..nothing, but I have had the reaction you are speaking of now from a med they gave me in the hospital one time. It is horrible, but it will pass.

For now, I don't know how much you can drink after the surgery, but I recommend (and I am NO doctor) that you drink plenty of fluids and call both the PM and the Dr who did the gastric bypass. The PM needs to know about your sensivity to the patch and the gastric Dr may be able to help you do the correct thing to flush the med out of your system the fastest. It feels so awful when you are going through it...just remember, it is only a reaction to the medication and make sure you list it at all your doctor's offices as one you cannot take.

Please come here as often as you like and someone will talk to you. You can even start a new topic about what is going on and people will go in and read it and respond. It may help to get things off of your mind.

Good luck my friend.
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

CiaoGirl
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 3/29/2012 5:55 PM (GMT -6)   
Hello Ishepoh--well, very interesting that you are talking about this subject!
I have been searching out info today RE:? How are medications absorbed differently after a Gastric Bypass??
 
I ALSO have seen some interesting things posted. Mostly, people reporting they typically require 'larger' doses of meds & more frequently due to decreased absorption & increased flushing out of system.
 
As I read down through all the posts>
1st: Congrats on losing almost 1/2 your body weight!!
2nd: So sorry you had a bad reaction to the Fentanyl patches.. bummer
3rd: I also have herniations, Fibromyalgia.. I use Ice packs... off & on all day. I occasionally use Lidocain patches on my neck/back.
 
4th!!! I AM/ WAS just reminded how IMPERATIVE it is Post GBP pts do NOT use NSAIDS, Aspirin, Ibuprophen.... a story about a young lady' whose pouch burst & she almost died, because she ignored this rule.
 
I am going to try yoga, to add more stretch.
 
Does anyone?? have advice re "Losing weight" after we plateau.
I lost about 100# the 1st year, but.... confused then I stopped... and have been stuck since.. I still 'need' should lose 80+ #.... I can't 'run' or work out too hard due to injuries. I am thinking about going on a 'protein diet'
OK thanks. MC-San Diego

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/29/2012 8:50 PM (GMT -6)   
CiaoGirl,

Welcome to the board.... sorry to hear that you have fibro and other issues... Congrats on your weight loss, though!

Anyway, we encourage "new" members to post a "new post"... that way, people have a chance to welcome you and you will also probably get more responses to your questions and such. But please feel free to continue to post on any threads... just wanted to make sure people saw your post :)

I have fibro, too, as well as other health/pain issues.... it makes life pretty challenging, that's for sure....

Anyway, look forward to getting to know you better!
--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, June 20, 2018 1:33 PM (GMT -6)
There are a total of 2,973,725 posts in 326,123 threads.
View Active Threads


Who's Online
This forum has 161109 registered members. Please welcome our newest member, HPB22.
482 Guest(s), 13 Registered Member(s) are currently online.  Details
momto2boys, Adele1983, Lwill351, HaleyBugs07, Gladioli66, getting by, ntzguy, Saipan Paradise, Alxander, Big Tasty, Busted1, xy123, HPB22