Sorry to hear about your situation...
I'm a bit confused with your dosage....You say you are prescribed Oxycodone 5mg....3 times a day....
But this last post you say you have weaned down to taking them 2 to 3 times a day instead of 6 a day?
Have you normally been taking more than prescribed and then running out early towards the end of the month?
This alone may be the cause for your roller coaster pain..
I think we all have to make choices for ourselves and yes, it can happen where our bodies get better or our pain lessens and we don't know it if we stay on the same amount of medication.
Through the years I have always worked with my Dr. in making sure I am taking the absolute least amount of medication to lessen my pain.
The other key is making sure that the opiate is not your primary way of treating the pain. There are dozens of other modalities to help with our pain depending on the cause..
Do they not feel your lupus can be helped by Corticosteroids or Immunosuppressives, or even Aspirin to help since you can't take NSAIDS?
I also wonder if you have ever gotten an MRI to see if there is anything going on in your spine like disc issues if you say you have trouble standing for any length of time...
I would certainly suggest you change Drs. to someone you do trust and can talk to about anything.
As someone else mentioned...if you start changing your medicine dosage on your own...than if they choose to do a urine test and you come up with less medication or negative...than this will cause great trouble down the road.
Also...if you go down or even off of meds....the Dr. will obviously notice as you won't be asking for the same amount of Oxycodone or even telling them you don't need anymore. If this comes out of nowhere to them...they will wonder why you are not including them in your decisions.
To me, any Dr. would be happy to help you take less medication if you can do that.
I live with a 5-7 on the pain scale each day...this is with my medication and all other modalities from exercise, yoga/stretching, PT, aqua therapy, injections,massage, TENS unit, acupuncture, counseling, muscle relaxer, sleep medicine, eating all Organic and avoiding foods that cause inflammation....
Any one of those on their own do not take away my pain....it's doing all of them daily,weekly, or monthly (depending on the modality).
But all of them added like building blocks are what keep my pain at the range I listed...
I would just urge you to rethink speaking to your Dr. about your concerns...Just telling them that you want to see if you can take less medication...or try a muscle relaxer...or seeing what else you BOTH can come up with.
I do wish you well...
SB and "the pup who snores loudly"
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
ACDF with hardware, allograft bone Nov. 2005
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006