I finally found a solution to my CPP/Prostetitis

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tpknet
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/17/2012 12:07 PM (GMT -6)   
I have suffered with chronic pelvic pain and prostetitis for two years. Many doctors have steered me in the wrong direction, chided me, suggested I needed a psychologist or just shrugged their shoulders. With the help of my good GP and Urologist I finally figured it out. I had H-Pylori in my prostate. I tested positive with a blood test 4 times over 2 years for H-Pylori but when doing a stool test I came up negative meaning it was not in my gut. My wife also tested positive and was treated though she was symptom-less. 6 years ago I had H-Pylori in my stomach which caused me great pain and I had similar "help" from doctors until my GP figured it out.

My Urologist was convinced I had an infection even though many Urologists did not agree. This urologist looked for clumps of white blood cells in the prostate fluid to indicate an infection instead of just relying on a count. He would go searching for clumps, if he found them and I was in pain he would treat me with antibiotics. It took well over a year and many different antibiotics before I found an article about a study done on people with h-pylori in the prostate. We started treating me for that which involved multiple antibiotics at the same time. What finally kicked it was 4 antibiotics at the same time. I now have been off anti-biotics for 4 weeks and my pain is slowly going down every day. Many of the doctors wouldn't believe me that I got relief while on antibiotics but the pain would come back when I got off of them because my prostate was not inflamed. I even traveled to the Cleveland clinic and was told the same thing there. I am sure it is rare but hopefully this can help a couple of people out there. I was so bad at my worst that the only reason I am still here is that I couldn't think of leaving my two little girls without a dad. I am a very lucky man.

Thanks,
Todd

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/17/2012 1:12 PM (GMT -6)   
That's wonderful news! I have only heard of h-pylori being in the stomach causing ulcers..I had trouble with this when I was in my early 20's...

How great that your Drs. kept researching and trying different things to figure this out!

I hope the pain keeps lessening for you!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16788
   Posted 3/17/2012 1:34 PM (GMT -6)   
Hi Todd that is great news and something we really like hearing about from people. You are so lucky that you have the urologist in your corner and he did not give up or blow you off. I too had h-pyloria and ended really sick from it. I had a blood work well over a year previously by the PCP and it came back negative. My gi dr that takes care of my crohns disease is the one that found it. When doing a scope he said I had grooves on the walls of my stomach which is an indicator of it being there for a long time. I told him I had been tested and it came back negative, he said if you have it and its been over a year most of the time it does not show up in the labs. Like you said, you have to do a combination of drugs to get rid of it, its called a prev-pack I believe. I was allergic to one of the antibiotics used in the prev-pack, so it took a while finding something to work that I was not allergic to.

I sure hope things continue to go well for you. Take care.
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