Posted 3/21/2012 8:40 AM (GMT -7)
Hello. I have sever chronic migraines and symptoms that I believe are fibromyalgia. I want to know if you people agree. This is what I'm giving to my RA. Keep in mind I am 19, almost 20.
-Bad migraines pulsating and pounding coupled with neck pain. This has been progressively getting worse since age 7.
-Extreme lower back pain since age 15-16.
-When I am touched it is extremely sensitive and if pressure is applied to most parts of my body, it has a deep burning pain that's indescribable.
-I have ground down my teeth from clenching them due to pain from every reach, bend, etc. that I have to endure through the day.
-It hurts to sit, I don't get releif when I lay down
-My ribs are constantly sore and I have trouble bending and sitting
-Trouble swallowing sometimes, it feels like my throat is swelled
-I get no sleep at night because of the pain and pressure. I've tried three different matresses each supposed to be more comfortable and I still can't sleep.
-I am tired and fatigued all day because I am never rested.
-It is hard to work and I am losing hours and am afraid of losing my job.
-Tingling in my hands and feet that is very scary, sometimes worse than the actual pain. My limbs sometimes go numb. It is an almost daily occurance.
-Achey constantly. It hurts to do any thing besides lay in bed. Even laying in bed is painful in my hip and shoulders and head.
-Tightness in my head, neck top of back, and shoulders
-Knees get very tender in the morning and worse throughout the day
-Diarrhea at least twice a week
This is how it effects my life:
-I have serious sleep issues, I'm always exhausted.
-I can't excercise, it's too painful. I used to love to go to the park and walk but I can't anymore.
-I have trouble concentrating at work, because of pain and fatigue and not getting any breaks.
-I wake up and feel like I got hit by a truck.
-I set my alarm and hour early, so I have time to properly wake up and deal with pain before getting out of bed.
-Taking showers causes horrible pain from bending, reaching, and moving a lot. If I take a shower it can make me exhausted for the whole day.
-I get panic attacks from the bad pain and from the tingling feelings in my limbs.
-I want to attend college but can't in this condition.
-I afraid of losing my job because I can't perform in pain.
Medications used in past:
Imitrex Pill/Nasal Spray - Worked well for first six months, lost effectiveness. Still using 100mg dose occasionally.
Voltarin - No effect, tried raising dose three times
Depekote - Bad reaction, gave me double vision
Amerge - No effect, made me feel dizzy
Celebrex - No effect, tried raising dose three times
Inderal - Made migraines much worse
Vistiril - No effect, just drowsiness
Torodol - Made me swell up, had to stop taking.
Maxalt - No effect even at raised doses
Vicodin - Helps for 2-3 hours but gave me a throbbing pain in my lower back.
Axert - Gave me frightening chest and shoulder pain
Lyrica - Gave me hives and peeling skin - I believe I am allergic
Relpax - Had identical effects to axert
Excedrine - Helps for 20-30mins, then get a worse migraine
Zomig - No effect even at raised doses
Relefan - No effect, then caused rash and had to stop use
Naproxen - Very minimal relief. Helps to use in conjunction with other treatments.
Midrin - No effect at high dose
Prednisone - Caused extreme agitation and moodiness worse than headache
Migranal - Caused extreme nausea, tried taking with a meal and was still very ill from it.
Fiorinol - Helped slightly, as much as naproxen.
Corgard - Extreme fatigue and tiredness throughout entire day.
Ativan - Helped at first, but after a month no effect, drowsiness.
Neurontin - No effect, drowsiness
Fexeril - Made me very dizzy had to stop taking it, didn’t help at all.
Elavil - No effect, tried two months of gradual dose raising
Tofranil - Made migraines worse
Cyclobenzaprine - Gave me dizzy spells no effect on migraine.
Tramadol - Didn’t help with pain and made migraines worse.
Percocet - Helped well for four hours with headache and back pain.
Aventil - Worsened migraines
Klonopin - Helps with nausea, no effect on migraine. Helps me sleep when I have bad migraines.
Adapine - Worsened migraines
Cardizem - No effect
Tenormin - Helped slightly, made me fatigued, lost effect after about a month.
Calan - Turned my skin red
Lopressor - Made migraines much worse, worse with higher doses.
Benadryl - Helps with vomiting, still occasionally use.
I've tried holistic, water, yoga, and acupuncture. This has been a problem my entire life but I never wanted to go on narcotic meds but I need to! How do I ask, and what should I expect? Thanks guys.