Neuropathy in feet and hands

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pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/22/2012 10:16 AM (GMT -6)   
I have horrible chronic pain from Neuropathy. Have been hurting in feet and legs for 6 years. Now, just suddenly my hands and arms are on fire and needles and pins and have lost so much strength. I take gabapinton, 3600 mgs a day. elavil 300 mgs daily. My pain has caused me to become a complete recluse. I was supposed to have laser neck surgery this week, then got shocker that I needed 15 thousand bucks up front. Well, cant go there. I am not only in pain but am so depressed. This has been going on for so long and I have pretty much given up.I feel bad unloading all this mess. Im sick of it. I have been up for about 3 hours and have to go back to bed and just try to stay calm and go to sleep. I do have 0.5 mgs of lorazapam 3 times a day which helps me go to sleep. Sleep is my only escape.

Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 3/22/2012 4:04 PM (GMT -6)   
neuropathy10,
 
Welcome to Healing Well.  I am so sorry you are feeling such pain and suffering, only to escape the pain with sleep.  That is certainly a heck of a way to go through life.
 
I have fibromyalgia and neuropathy as a result down my legs, but especially in my feet.  I take oxycodone every four hours and lyrica twice a day and that helps somewhat, but not always.  Sometimes, the pain is awful and I go a little nuts.  So I understand somewhat, what you are going through.
 
Please come back and let us know how you are doing, ok?
 
God bless.
 
Lindaloo
 
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16417
   Posted 3/22/2012 4:06 PM (GMT -6)   
Hi Neuropathy10 and welcome to the chronic pain forum. I am sorry to read that you are having such a horrible time of things right now. My gosh, the drs office schedules your surgery then suddenly drop the bomb they need $15,000 upfront, what in the world are these people thinking!! What kind of insurance do you have that would require that kind of money to be paid in advance? If you had no insurance, I could understand wanting this type of fee, but with insurance thats nuts. What kind of dr scheduled this surgery, a neurosurgeon or orthopedic? How long have you been treating with this dr too? Sorry for all the questions.

The medication you are taking is one I was going to suggest, have you tried Lyrica or Cymbalta? Both of these are used for neuropathic pain.

Have you been seen by a pain mgt dr by chance? That may be something for you to consider is seeing a pain mgt dr. Many of us here at the forum are under the care of a pain mgt dr. They are trained just to handle pain and I think they are more advanced in it since it is their specialty. If you would like to see one, you would need a referral from your primary care physician.

Anyway, I wanted to pop on and tell you hello and welcome aboard. Please keep us posted on how you are doing...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/22/2012 4:10 PM (GMT -6)   
I just read what I wrote earlier. Misspellings, rambling, pity party sounding I am embarrassed. I have been having more pain this week than ever before and I just feel so overwhelmed. I am 61, with wonderful husband. He does all grocery shopping. I have a great housekeeper for the first time in my life. Only one day a week. It really made me feel defeated the first time the great gal came. We are now good friends and I try to help with what I can. I have gained 80 lbs in past year. Never in my life weighed this much. I quit smoking and cant walk so there is the reason right there I imagine. I have felt so much from reading all the posts and I dont feel so alone. I have left my house 3 times since xmas, doctor visits. I just feel so weak and sick I just cant go anywhere. I am just too exhausted for anything. Thanks for all your posts. I look forward to them. Hope you all have a great evening.

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/22/2012 4:26 PM (GMT -6)   
Lindaloo and Straydog, thanks so much for your welcomes. To answer some questions. I have great insurance but the nation wide laser treatment place was not on our list of surgeons so insurance was to pay only small amount. I also have a wonderful pain management doctor and his PA and I talk on the phone some. I see him next week. I have spinal stenosis, 3 bulging disks, bone spurs and arthritis on my cervical spine, or top vert. That is what the surgery was hopefully going to fix. I am in the process now of finding another laser surgeon. My pain management doc is a neurologist and he will help me. He wanted me to be able to excercise in water. We put in a pool last fall and got cold here in e.texas I didnt get to use it much. I have a hot tub that helps some. I have been diagnosed with fibromyalgia and CFS. I have arthritis in my hands and they changing so much. Now since the neuropathy hit my arms and hands so bad I truly do just feel sick all over all the time. This forum is great and I look so forward to maybe helping others on here.....best regards....Cathy

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/22/2012 4:29 PM (GMT -6)   
You and I have a lot in common, it seems. I have a nice housekeeper too. I had her for once a week, but with the economy being what it is, I had to reduce her to once every other week. I could no longer afford weekly services. I have two big german shepherds, so there is a lot of hair to keep up with. lol.


I have a hard time shopping as well. There are automatic wheelchairs here in my grocery store, so I use them, but it is still very hard. If I go to Joann's Fabric Store or any other store, I have to use a wheelchair as well.


I too, have gained a considerable amount of weight and have joined weight watchers, hoping to lose the extra weight I have gained. The Lyrica has affected my appetite certainly, but I have to do something. My legs hurt so much, I can hardly move around inside of my house too.


My husband is incapacitated as well, so it is hard to even keep up in between the housekeeper. I try to cook as often as possible, but we order in chinese food and go out often. Here I need to be creative with my weight watchers and counting points. lol.


I too, get depressed sometimes and to be frank, I take three different medicines for clinical antidepression and mood. This is something that runs in my family and has to do with my brain chemistry. I will be on meds for the rest of my life. I do not care, as long as I am stable with the meds. You know what I mean??


Well, I think I have said enough and rambled on. I just didn't want you to feel as though you were alone. I have similar experiences.


God bless.


Lindaloo
Moderator in Chronic Pain and Fibromyalgia Forums.

Believe in yourself. Be kind to fellow humans and animals. Take time to smell the flowers and the coffee.

And by all means, when you are down, ask me for help. I will be there.


Linda

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16417
   Posted 3/22/2012 4:30 PM (GMT -6)   
Hey Neuropathy, we all go thru periods when the pain is out of control and when that happens it is so easy to get overwhelmed. Usually, when I reach that point anxiety kicks in and I am just nuts at that point.

It is great that your hubby understands and is supportive, that goes a very long way. Sometimes spouses, family and friends do not get it when it comes to CP and they just can't wrap their brain around what we go through.

As for the pity party, we have those too, just don't let them last too long and please come here to have your party and invite us to attend. We can be right there with you and give you as much support as we can.

Depression, yep, we go there too, by chance does your dr have you on anything for it? If not, then you really need to consider talking to your dr about it and perhaps he can help. I know you are taking elavil, which can be used as a antidepressant, used for neuropathy pain and also used for migraine headaches. It does not sound like the Elavilis doing a thing for your depression, does it help with the neuropathy? So many drugs are used off label these days.

There are different exercises that you can do when in a sitting position. Have you tried any water therapy? What kind of a dr is treating you, by chance are you seeing a pain mgt dr? Sorry for all the questions, just trying to get a better idea of things.

Take care.
Moderator, Chronic Pain Forum & Psoriasis Forum

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 3/22/2012 7:47 PM (GMT -6)   
i to am also sorry about your pain levels. i do not know what you have tried but very high-dose Opana (oxymorphone) has got the muscle for high level big boy pain. some anticonvulsants can help like; Lamictal (lamotrigine) and Trileptal (oxcarbazepine) in combo with gabapentin or pregabalin has made the difference with me. adding some supplements like Taurine, 5-HTP, L-Theanine, L-Glutamine, alpha-lipoic acid, inositol, and lecithin can help.

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/22/2012 11:38 PM (GMT -6)   
thanks for all your kind comments. I was diagnosed with clinical depression so have been on meds since 1985. Had needed meds really since high school. I take effexor for depression and Lorazapam for anxiety. without the lorazapan I am on the edge of a panic attack all the time. I used to take zanax until I had a horrible and dangerous reaction with the combo of zanax and gabapinten. I was having some swelling in my lips and face but not bad. Then one saturday I started swelling. I just kept getting worse. I was home alone of course. by the time my hubby got home it was just scary when he just flipped out. Looking in mirror I could not identify myself at all. We went to hospital. They took it real serious and got me right in. They were amazed that I didnt have any internal swelling. I could have died so easily. I was just plain stupid I know. Well, I called my pharmacist, who I love, and he said he suspected the Gaba and the zanax caused reaction. Well, I have not had a zanax since then and havent had any swelling. Medication is so dangerous. I just cant imagine not having what I take. If not for sleep med. (cant think of its name) and elavil and more gabapentin I wouldnt be able to sleep a wink. Now that I have found this sight I have something so wonderful to look forward too. I have let all my friends go by the wayside over past 7 years. I do NOT have one single friend. Its true, people just dont understand the pain. Its not their fault and thank goodness they dont have CP. My depression med really done it job well. I can hardly believe it. Thanks to all my new friends. I might get kicked off here for too much use. Sleep well everyone and thank goodness for recliners, rather than a bed!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/23/2012 5:16 AM (GMT -6)   
Hello and Welcome to HW,

I think you have found a very good place for you with Healingwell. It's a great site and there are so many wonderful people. Please understand that we all have so many other things going on that some of us pop in and out sometimes for days at a time....so we may take a day or two to respond. Usually someone else will come along and respond to a post though and you will always be made to feel welcome.

Healingwell has been a life saver for me over the years since my chronic pain started. They have also been with me through med change, decisions on treatment options, and emotional things in between. You wll never be kiced off for too much use, but I do think you will find a happy medium after a while. Some members post a lot and others don't post much at all. We also have a lot of "lurkers"...that is basically someone who is not ready, willing, or able to post and wants to find information. They are always welcome too!

I noticed you had not made a profile...that will help others understand what is going on with you (if you feel like writing one...it is not mandatory). To make a profile, click on My profile and update whatever you feel like putting in. I personally do not use my name or identifying information. Some do, some don't..... Anyway, depending on how you click to reply, you can add emotions and things like that.

We do hope you will break up your posts into small paragraphs as many of us have difficulty reading paragraphs that are condensed. Grammar and spelling are not really judged here and mistakes are common considering the conditions we face and the medications we take. Do not ever worry about spelling or grammar.

Finally, I am very sorry about the conditions that have brought you here, but very happy to have you in our group. I tend to type a book, so I'm going to stop now and let somebody else have an opportunity. Again, welcome to HealingWell!
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/23/2012 8:21 AM (GMT -6)   

 

        Good morning Cathy!

     Welcome to the CP forum! So sorry to hear of your increased pain! It sounds like you have a good PM though, and hopefully they can help you soon. I was also started on gabapentin recently, and have been sleeping my life away in the evenings. At the moment I'm only on 300mg x3...and at first I was thinking it was helping....but it seems the last two days...I'm slipping back into the harder pain levels.

   I see you are on the higer dose of Gabapentin....although you are suffering more at the moment....did you find relief when you were scripted this dose?

      Lets hope that you find the right surgeon on your insurance plan...and that you will get some relief after the surgery. 

      ...also never be embarrassed about ranting here on this forum...that's what were here for....lots of support! wink   Rant all you want...and support if you feel like it.

     Take care,

   SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Post Edited (Screaming Eagle) : 3/23/2012 8:30:26 AM (GMT-6)


grandmaroses
Veteran Member


Date Joined Jan 2011
Total Posts : 1355
   Posted 3/23/2012 9:44 AM (GMT -6)   
Hi Neuropathy, I just popped in to say hello and extend my sympathies for the added pain. When my neuropathy started my Dr suggested a product that you rub into the area made especially for neuropathy. Its a tiny bottle but you only use a drop or two and gently rub in to area, it helped me a little. I hope you find something that helps soon.

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/23/2012 1:59 PM (GMT -6)   
Today I cant get motivated to do a dang thing. One year ago I was mowing 3 acres of lawn every week. My yard was beautiful. Today it is knee high with weeds. I am determined to mow tomorrow if it harelips ever dog in Texas. It will cause me lots of pain but heck, I hurt anyway. Weather is beautiful here today but I cannot sit outside and look at yard. I dont like to mow without someone here. I love my riding mower but I have a tendency to mow for too long and really cannot walk when I try to get off of it. Will go from my mower to my hoveround now.....until later...thanks for your time....Cathy

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16417
   Posted 3/23/2012 3:51 PM (GMT -6)   
Hi Cathy, I don't know if you are in Tx or not, I live in Tx. I see you have not learned to pace yourself, mowing 3 acres, wow!! I do hope you will reconsider and break the mowing up maybe into sections, remember Rhome was not built in a day. Seriously, you will do much better once you learn how to pace yourself. I was doing a lot things quicker a year ago, but I am 58 going on 59 and you have to slow down some time, especially with CP. Once I learned how to pace myself I found I was able to do more than I realized too. You know you really are pretty hard on yourself, but we usually are.

Someone mentioned your profile, just so you know only members can read information in your profile. But, it is discouraged by the administrator to post personal info here at the site since its an open public forum.

I too had a terrible experience with Xanax. I was put on the lowest dose by my PCP and within 7 days became toxic on it and ended up in the hospital. It clashed with my blood pressure medication. Never again will I ever touch the stuff, it wired me up something awful.

Hope you have a good weekend and go easy on the mowing thing, lol...Susie
Moderator, Chronic Pain Forum & Psoriasis Forum

Darnme2000
Regular Member


Date Joined Feb 2012
Total Posts : 88
   Posted 3/24/2012 9:57 PM (GMT -6)   
Hello neuropathy10,

Glad you found us and so sorry you are having even more problems now than you were before.

I have a tendency to go at things too hard at times and over do it myself. So be careful if you are just now getting back on that mower. Definitely break it up a bit. I hate the though of mowing 3 acres a week even if there wasn't anything wrong with me.

You did make me wonder how them poor dogs would sound if that happened to them... Muff Muff...... Muff Muff.. Who knows...

Be careful out there, Get feeling better and hope you find a Doctor within your insurance plan.
You don't stop laughing when you grow old
You grow old when you stop laughing !!!

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/25/2012 1:54 PM (GMT -6)   
Morning Cathy. I'm a little late in replying, and I really can't add to the advice given by the others - but I just wanted to welcome you here to the forum.

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 3/26/2012 6:16 PM (GMT -6)   
HI to all my new friends. Our weather is just beautiful. i had planed to mow on Sat. and I said I was gona do it if I harelipped ever dog in Texas. Well, when I awoke sat morning I was in such pain my hubby helped me out of bed. He had a good friend visiting and I was just in bed and couldnt hold a book to read. Anyway I heard my mower going, and my husbands tractor. They were both mowing. I felt so guilty but our friend said he totally enjoyed it...........I hope all of you had a great weekend and not too much pain. It is amazing how a day can hit you like a brick wall. I havent even been on my laptop. This site is like opening a door to a good friend, and that friend knowing just how I feel. And I have insight into her feelings too....Time to fix supper. I will be back to catch up on everything...Thanks folks for so many howdy doos!
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