Dizziness, nausea, and adominal pain - could this be the new baclofen? Opinions Please

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Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/23/2012 4:49 AM (GMT -6)   
Hi All,
 
As many of you may remember, I was switched from Soma to Baclofen with no warning.  I started taking the Baclofen this week and immediately didn't like the way it made me feel, but decided that it takes a while sometimes to get the meds into your system correctly. 
 
Yesterday, I took the "normal" dose...I've been taking half doses per the official web site and the Dr never gave any instructions except take 10 mg three times per day.  Anyway, somehow I got the med a little too close together I think and ended up as loopy as possible.  I was sort of hallucinating and kept falling asleep in mid sentence and then saying crazy things!  I was also very, very dizzy....as I have been since starting this med and nausea set in yesterday beyond what I can handle.  I could honestly say that it has NOT left yet at all!! Nor has the stomach pain in my upper abdominal region.
 
Anyway, my Dr is not open on Friday at all and I can't call, but I think this is one of the meds I should not be taking.  I do have Soma left, but I don't want to violate my prescription orders and take it after I have been told not to...I also don't want to end up in more withdrawals...since that may be some of this too...just to stop Soma cold turkey after taking it so long.
 
Any opinions??

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/23/2012 9:38 AM (GMT -6)   

 

    Retiredmom...I can see the worry, and I'm concerned for you! I see that you were hallucinating and saying crazy things...not good, especially when you are visiting with Insurance providers on the same day. Becareful doing so untill you get a grip on this. You are under a lot of stress with all the remoldeling as well too. How is that project going?

   Since your PM did not give instructions on the script, maybe you should consider splitting the dose as you were until you get back with him. Also, I doubt he would have changed the meds knowing full well you were on Soma for so long, and not letting you know there might be withdrawals while switching them. However, I suppose he might have missed that thought.

    Let us know how it works out, when you get back with him on it.

  SE wink


Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

CRPSpatient
Veteran Member


Date Joined Mar 2011
Total Posts : 1276
   Posted 3/23/2012 2:22 PM (GMT -6)   
RM, I agree that this is not good. Can you ask advice from your pharmacist?

Thinking of you,

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

Screaming Eagle
Veteran Member


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/26/2012 6:08 AM (GMT -6)   
I hope the med's are doing better for you mom….let us know.

SE
Moderator Chronic Pain Forum

Weekly Quote!

"Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward."

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/27/2012 5:33 AM (GMT -6)   
Hi Guys,

I did call the nurse said to stop taking the baclofen. She said I could NOT take the Soma I had on hand and that we would "visit" my medications when I go in today. I honestly pray they give me my Soma back! It helped so much and I didn't get the high or foggy feelings like everyone mentions. I was sleepy, but that hasn't changed...so I don't think it was the Soma.

Also, I have tried the flexeril and skelaxin (can't remember why I couldn't take them...it's been a while) and the zanaflex makes my throat feel like it is closing up. It knocks me out immediately too....like almost can't wake up.

I still want to ask about all my med questions today during my apt for my RFA, but it's starting to look like a lot of things at once and you guys probably remember what a difficult time I have with this office sometimes. I never know what to expect next.

On that same line, another patient I know well was seeing the same PM. He was initially diagnosed with a rare disease at Mayo in FL and they gave him some meds to help. They also did the referral to this PM. They obviously have to continue treatment, but are so far away that they wanted him to see a PM here. He was given VERBAL permission to take the meds from the Mayo, but...when they drug tested him, they sent him a nasty letter claiming he was getting meds from several Dr's (which he was not...only Mayo and them...with permission and a direct Dr to Dr communication clause because of his condition). One day after the letter arrived, they called him to make sure he would be in for his next apt and of course he said NO. He went back to Mayo (with all med records...including the bad things they wrote) and had no problems getting what was needed to control his pain. They are referring him to someone else, but he has yet to be approved to get in. I'm watching his case closely to see if his new PM will be an understanding one. If so, I may have to make the change...like it or not. Mayo will not take me because I have too many conditions. They want me to use the largest of the campuses and I simply cannot get there. I could get to FL, but nowhere else.

Anyway...I go in today for my visit and pray it will be less painful than I expect with better results that I can hope for and a very good day with the Dr. I could sure use a break about now.
Failed TLIF L5-S1, Miltiple Bulges/Herniations, Scoliosis, Pituatary Disorder, Fibro, Failed Bladder Surgery, Failed Nissen, GERD, OCPD, GAD, MDD, CFS, TMJ, Migraines, HBP, Idiopatic Reactive Hypoglycemia w/Diabetic reaction to HGH, Bi-lateral CTS (now trigger finger), Edema, Tarsal Tunnel Syndrome, Peripheral Neuropathy, Plantar Fascitis, Tibular Tendonitis, Adult Onset Flat Feet, & Vision Issues

zizz
New Member


Date Joined Mar 2012
Total Posts : 9
   Posted 3/27/2012 7:46 AM (GMT -6)   
Hi: am new here and take 10 mg of baclofen X 4 a day, which helps me tremendously with connective tissue disease spasms, but it's taken a long while to adjust to some of the side effects. Mine weren't nearly as severe. I think that due to our different chemistries and med intake combos, we may all react differently. I use to get a sense of dopey ness with it, but the spasms were so bad that it was worth the compromise. Now that's no longer a problem.

I wish you blessings for your appt. and I hope that they help you find the medicine that's ideal for you.

zizz
yeah

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/31/2012 3:00 PM (GMT -6)   
Rm, I am not sure where you live but I have bene seeing the same pm doctor since late 2009 and have only had one Urine test since the entire time I haverye been seeing him.  Do alot of people have the same amount of testing that you do.  I am wondering if it depends on which part of the country people are in.  These tests are very expensive, I dont understand why you continue to be subjected to these tests.  Again, I am wonder ing if it depends on where a person like which state they live in.
 
It just seems like a waste of money to me, some of which you have to pay for.
 
Good luck, and take care,
Kathy
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson

cogito
Veteran Member


Date Joined Oct 2010
Total Posts : 932
   Posted 3/31/2012 3:58 PM (GMT -6)   
Kathy,

I know this is OT, but I'm stuck with regular urine tests, roughly twice a year. They cost $500 each, about 1/2 is written off by insurance. I'm in a conservative part of the country and I would guess it is more common here to have regular tests than in states that, for instance, have medical marijuana.

Personally, I consider it outside of my medical care since I have no history of drug use. Just as my cardiologist takes my word for whether or not I am using my heart medication, I think the same should apply in PM. But I've come to accept that these tests have to be done for the sake of the PM's practice. Given DEA scrutiny, they need to show that they are actively trying to ensure patient compliance.

Since the rationale for the tests have to do with the PM's practice vs. the patient's medical needs, I think it is more appropriate for the practice to cover the cost, just as they do their other bills for doing business. It could then be built into the cost of an office visit. Unfortunately, testing has already become established as a cost for the patient.
C4-T4 Scoliosis (disk degeneration, stenosis, narrowed neuroforamen, bone spurs), RT hip and SI joint damage from car accident. Also, pectus excavatum, supraventricular tacycardia and mitral valve prolapse syndrome.
Current meds: Ultram ER 300mg & 2-3x 10mg Hydrocodone daily. Oxycodone 10mg for BT. .25-.5mg xanax as needed for sleep, Verapamil 240mg SR (for tachycardia). [/gray

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/31/2012 4:11 PM (GMT -6)   
Re: urine testing....

I second what you said Cogito. And I do think the cost should be covered by the requesting doctor; this is how it works w/ my PM doc... Like you said, it could be build into the "office visit" cost.

I'm in California (near SF).... I'm not sure how my PM office does it for everyone (there's about 10 docs in there).... but, for me, I do a random UA about every 12 to 18 months. I don't have to pay for it.

--Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to ask

NiNi53
Veteran Member


Date Joined Mar 2011
Total Posts : 816
   Posted 3/31/2012 7:36 PM (GMT -6)   
It could be that since I have medicare that is why the UAs are so far apart, I do not think it has anything to do with anything but money, plain and simple. Also I do live in a State that is about to pass a bill about MM, as D.C. already did, and Maryland is never far behind.
 
Thanks all,
Kathy,
degenerative disc disease, fibromyalgia, osteoarthritis, neuropathy, lumbar laminectomy july 1998 no help, rechargeable neurostimulator unit low right back w/lead wires to left side and right leg unit not working just sitting there.i am 57 years young in may will turn 58. i have 2 grown daughters, 25 and 29. i have 2 grandchildren, 9 year old grandaughter and 5 yr. old grandson
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